Sensitivity of household reported medical conditions in the medical expenditure panel survey
Abstract
INTRODUCTION: Accurate survey data on medical conditions are critical for health care researchers. Although medical condition data are complex and are subject to reporting error, little information exists on the quality of household reported condition data. METHODS: We used pooled data from 4 years (2002-2005) of the Medical Expenditure Panel Survey (MEPS) to estimate the extent to which household respondents may underreport 23 types of medical conditions. The medical expenditure panel survey is a nationally representative annual survey of approximately 15,000 households which collects medical condition information in 2 separate components-the Household Component (HC) and the Medical Provider Component (MPC). We computed sensitivity rates based on linked HC and MPC data under the assumption that if collection of medical conditions from household respondents was complete, then the conditions reported in the MPC would also be reported in the HC. RESULTS: Sensitivity rates ranged from a high of 93.8% to a low of 37.4% and were 75% or higher for 10 of the 23 conditions analyzed. The overall sensitivity rate for the 23 conditions combined was 74%. CONCLUSIONS: Household reports tended to be more accurate for conditions that are highly salient, cause pain, require hospitalization, require ongoing treatment, have specific recognizable treatment, alter lifestyle, and/or affect daily life (eg, pregnancy, diabetes, and kidney stones). In addition, reporting generally was better when conditions are classified in broader categories rather than in more detail.
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The sensitivity of a broader diagnosis in mental health disorders reported is above 90%, but the specific diagnosis might be less certain.
“Although the sensitivity of a broader diagnosis in mental health disorders reported is above 90%, the specific diagnosis might be less uncertain, as addressed in a case study (41).”
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Alahmed, A. A., Lauffenburger, J. C., Vaduganathan, M., Aldemerdash, A. M., Ting, C., Fatani, N., Fanikos, J. R., & Buckley, L. F. (2022) · American Journal of Cardiovascular Drugs · doi:10.1007/s40256-022-00540-x · Cited by 7 · see citing works
“We used collapsed three-digit ICD codes for the present analysis as fully specified codes lack sufficient accuracy owing to the self-reported nature of medical conditions [9].”
MethodBhattacharjee, S., Yegezu, Z., Kollecas, K., Duhrkopf, K., Hashemi, L., & Greene, N. (2021) · ClinicoEconomics and Outcomes Research · doi:10.2147/ceor.s305154 · Cited by 6 · see citing works
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Prescription Medication Use and Expenditure for Atrial Fibrillation in the United States
Thyagaturu, H. S., Seetharam, K., Roma, N., Patel, N., Lacoste, J. L., Padala, V., Gonuguntla, K., Munir, M. B., & Balla, S. (2024) · Value in Health · doi:10.1016/j.jval.2024.11.012 · Cited by 5 · see citing works
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“…worker), or general medical provider care, emergency department visits, or inpatient hospitalization specifically linked to ICD-9 codes related to mood, anxiety, psychotic, substance use, personality, behavioral, and developmental disorders (codes 291, 292, or 295–314) (Machlin et al., 2009).”
BackgroundVyas, A., Cohen, S., & Eisenhower, C. (2025) · Scientific Reports · doi:10.1038/s41598-025-13071-7 · Cited by 3 · see citing works
“Also, validity of self-reported disease in MEPS is relatively high 48 .”
The impact of medication use on symptom burden in older patients with multiple medical morbidities
Han, M. A., Tinetti, M. E., Agostini, J. V., Han, L., Lee, H., & Walke, L. M. (2013) · Journal of Clinical Gerontology and Geriatrics · doi:10.1016/j.jcgg.2013.03.002 · Cited by 3 · see citing works
Comorbidities and perceived health status in persons with history of cancer in the USA
Obeng‐Kusi, M., Vardy, J. L., Bell, M. L., Choi, B. M., & Axon, D. R. (2022) · Supportive Care in Cancer · doi:10.1007/s00520-022-07479-4 · Cited by 3 · see citing works
“Machlin and colleagues found the overall sensitivity, in terms of consistency between the self-reported and healthcare provider reported chronic conditions in the MEPS, to be 74% [14].”
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“While one study reported discrepancies in estimations of results based on MEPS data [38], other studies have addressed the sensitivity and specificity of this matter and reported the overall relative accuracy of MEPS data [39].”
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“) with a median sensitivity of 70% [16].”
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“Evidence from studies examining the accuracy of selfreported OA suggests that most people with OA simply report what they have as arthritis, or misreport it as rheumatoid arthritis or a nonspecific type of arthritis (12,13).”
The Impact of Medication Use and Medical Morbidity on Symptom Burden in Older Patients
Han, M. A. (2010) · Europe PMC (PubMed Central)
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“broadly defined medical conditions of respondents in the MEPS HC, (Machlin et al., 2009) and have been used by previous investigators to select persons with musculoske-”
MethodComorbidities and perceived health status in persons with history of cancer in the USPreprint
Obeng‐Kusi, M., Vardy, J. L., Bell, M. L., Choi, B. M., & Axon, D. R. (2022) · Research Square · doi:10.21203/rs.3.rs-1620306/v1
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Vyas, A., Cohen, S., & Eisenhower, C. (2026) · Lupus · doi:10.1177/09612033261430565
- Authors
- Machlin, S., Cohen, J., Elixhauser, A., Beauregard, K., & Steiner, C.
- Affiliations
- Agency for Healthcare Research and Quality (US)
- Corresponding author
- Machlin, Steven
- Venue
- Medical Care
- Published
- 2009-06
- Volume
- 47
- Issue
- 6
- Pages
- 618-625
- ISSN
- 0025-7079 (ISSN-L)
- OpenAlex
- W2031950852
- Cited by
- 96
- References
- 9
- Citations by year
- 2026: 2 · 2025: 1 · 2024: 2 · 2023: 2 · 2022: 8 · 2021: 6 · 2020: 6 · 2019: 4 · 2018: 4 · 2017: 4 · 2016: 9 · 2015: 10 · 2014: 5 · 2013: 9 · 2012: 8
- FWCI
- 25.88
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Medical Care (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Health Sciences › Health Professions › General Health Professions › Health and Medical Studies
- Keywords
- underreporting, survey data quality, Medical Expenditure Panel Survey, chronic disease, diabetes mellitus, pregnancy, kidney stones
- MeSH terms
- Adolescent, Adult, Aged, Child, Child, Preschool, Chronic Disease, Health Expenditures, Female, Health Services Research, Humans, Infant, Infant, Newborn, Male, Middle Aged, Pregnancy, Sensitivity and Specificity, Models, Economic
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