Normal complications and abnormal assumptions after perinatal death
Abstract
There are several ways, clinically, to approach grief after perinatal death, including from a humanistic or a medicalized perspective. The death of a baby is complicated. The loss is an embodied one that incites deep psychological wounds and can be isolating for many parents. Parents process their grief experiences within a sometimes oppressive social context that either sees their expressions of loss as a normal response to an abnormal tragedy or as pathology. Several diagnostic categories have been proposed relative to the traumatic grief experiences of grieving parents that potentially affect them. We explore this nomenclature and, through the lens of a Social-Cognitive Processing Model, examine social support, attitudes, context, and oppressive interpersonal and social structures that affect parents. Clinical implications are discussed.
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Perinatal loss causes intense, traumatic grief.
“Perinatal loss causes intense, traumatic grief.1”
From Bereavement care guidelines used in health care facilities immediately following perinatal loss: a scoping review (2024) · cites this paper as [1]
Complicated grief is associated with health problems such as depression, anxiety, alcohol abuse, drug use, increased use of health resources, increased mortality within the first year, and suicide.
“Complicated grief is associated with health problems such as depression, anxiety, alcohol abuse, drug use, increased use of health resources, increased mortality within the first year, and suicide.”
From Mindfulness y duelo: programa MADED, mindfulness para la aceptación del dolor, las emociones y el duelo (2020) · cites this paper as [8]
Cites
Social cognitive theory of posttraumatic recovery: the role of perceived self-efficacy
Benight, C. C., & Bandura, A. (2004) · Behaviour Research and Therapy · doi:10.1016/j.brat.2003.08.008 · Cited by 1,565 · see citing works
de Velde, S. V. V., Bracke, P., & Levecque, K. (2010) · Social Science & Medicine (1967) · doi:10.1016/j.socscimed.2010.03.035 · Cited by 765 · see citing works
Prevalence of complicated grief in a representative population-based sample.
Kersting, A., Brähler, E., Glaesmer, H., & Wagner, B. (2011) · Journal of Affective Disorders · doi:10.1016/j.jad.2010.11.032 · Cited by 628 · see citing works
Complicated grief after perinatal loss
Kersting, A., & Wagner, B. (2012) · Dialogues in Clinical Neuroscience · doi:10.31887/dcns.2012.14.2/akersting · Cited by 419 · see citing works
Long-term effects of the death of a child on parents' adjustment in midlife.
Rogers, C. H., Floyd, F. J., Seltzer, M. M., Greenberg, J. S., & Hong, J. (2008) · Journal of Family Psychology · doi:10.1037/0893-3200.22.2.203 · Cited by 344 · see citing works
Predictors of psychosocial distress after suicide, SIDS and accidents
DYREGROV, K., NORDANGER, D., & DYREGROV, A. (2003) · Death Studies · doi:10.1080/07481180302892 · Cited by 327 · see citing works
Maciejewski, P. K., Maercker, A., Boelen, P. A., & Prigerson, H. G. (2016) · World Psychiatry · doi:10.1002/wps.20348 · Cited by 298 · see citing works
Antidepressant use during pregnancy and the risk of autism spectrum disorder in children
Boukhris, T., Sheehy, O., Mottron, L., & Bérard, A. (2016) · JAMA Pediatrics · doi:10.1001/jamapediatrics.2015.3356 · Cited by 297 · see citing works
National trends in psychotherapy by office-based psychiatrists
Mojtabai, R., & Olfson, M. (2008) · Archives of General Psychiatry · doi:10.1001/archpsyc.65.8.962 · Cited by 283 · see citing works
Utsey, S. O., Giesbrecht, N., Hook, J. N., & Stanard, P. (2008) · Journal of Counseling Psychology · doi:10.1037/0022-0167.55.1.49 · Cited by 264 · see citing works
Our other prescription drug problem
Lembke, A., Papac, J., & Humphreys, K. (2018) · New England Journal of Medicine · doi:10.1056/nejmp1715050 · Cited by 160 · see citing works
Social and Professional Support Needs of Families After Perinatal Loss
Hutti, M. H. (2005) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1177/0884217505279998 · Cited by 156 · see citing works
Prevalence and Predictors of Parental Grief and Depression after the Death of a Child from Cancer
McCarthy, M. C., Clarke, N. E., Ting, C. L., Conroy, R., Anderson, V. A., & Heath, J. A. (2010) · Journal of Palliative Medicine · doi:10.1089/jpm.2010.0037 · Cited by 142 · see citing works
Comparison of Continuing Bonds Reported by Parents and Siblings After a Child's Death from Cancer
Foster, T. L., Gilmer, M., Davies, B., Dietrich, M., Barrera, M., Fairclough, D., Vannatta, K., & Gerhardt, C. (2011) · Death Studies · doi:10.1080/07481187.2011.553308 · Cited by 134 · see citing works
The effects of social support on maternal anxiety and depression after stillbirth
Cacciatore, J., Schnebly, S. M., & Frøen, J. F. (2008) · Health & Social Care in the Community · doi:10.1111/j.1365-2524.2008.00814.x · Cited by 131 · see citing works
Prolonged grief and depression after unnatural loss: latent class analyses and cognitive correlates
Boelen, P. A., Reijntjes, A., J. Djelantik, A. A. A. M., & Smid, G. E. (2016) · Psychiatry Research · doi:10.1016/j.psychres.2016.04.012 · Cited by 125 · see citing works
Oppression of the Bereaved: A Critical Analysis of Grief in Western Society
Harris, D. L. (2010) · OMEGA - Journal of Death and Dying · doi:10.2190/om.60.3.c · Cited by 119 · see citing works
The impact of losing a child on the clinical presentation of complicated grief
Zetumer, S. D., Young, I. T., Shear, M. K., Skritskaya, N. A., Lebowitz, B. D., Simon, N. M., Reynolds, C. F., Mauro, C., & Zisook, S. (2014) · Journal of Affective Disorders · doi:10.1016/j.jad.2014.08.021 · Cited by 103 · see citing works
Should Prolonged Grief Be Reclassified as a Mental Disorder in DSM-5?
Wakefield, J. C. (2012) · The Journal of Nervous and Mental Disease · doi:10.1097/nmd.0b013e3182482155 · Cited by 82 · see citing works
Social Constraints are Associated with Negative Psychological and Physical Adjustment in Bereavement
Juth, V., Smyth, J. M., Carey, M. P., & Lepore, S. J. (2015) · Applied Psychology Health and Well-Being · doi:10.1111/aphw.12041 · Cited by 63 · see citing works
Public stigma of prolonged grief disorder: An experimental study
Eisma, M. C. (2018) · Psychiatry Research · doi:10.1016/j.psychres.2017.12.064 · Cited by 62 · see citing works
Belsher, B. E., Ruzek, J. I., Bongar, B. M., & Cordova, M. J. (2011) · Psychological Trauma Theory Research Practice and Policy · doi:10.1037/a0024362 · Cited by 61 · see citing works
DSM-5 and beyond: A critical feminist engagement with psychodiagnosis
Marecek, J., & Gavey, N. (2013) · Feminism & Psychology · doi:10.1177/0959353512467962 · Cited by 55 · see citing works
Xu, Y. Q., Herrman, H., Bentley, R., Tsutsumi, A., & Fisher, J. (2014) · Bulletin of the World Health Organization · doi:10.2471/blt.13.124677 · Cited by 43 · see citing works
Lacasse, J. R., & Cacciatore, J. (2014) · Death Studies · doi:10.1080/07481187.2013.820229 · Cited by 42 · see citing works
An Item Response Theory Analysis of a Measure of Complicated Grief
Boelen, P. A., & Hoijtink, H. J. A. (2009) · Death Studies · doi:10.1080/07481180802602758 · Cited by 41 · see citing works
van Denderen, M. Y., de Keijser, J., Huisman, M., & Boelen, P. A. (2014) · Journal of Interpersonal Violence · doi:10.1177/0886260514555368 · Cited by 41 · see citing works
Huh, H. J., Huh, S. W., Lee, S. H., & Chae, J. (2017) · Psychiatry Investigation · doi:10.4306/pi.2017.14.3.231 · Cited by 39 · see citing works
Did Narrowing the Major Depression Bereavement Exclusion From DSM-III-R to DSM-IV Increase Validity?
Wakefield, J. C., Schmitz, M. F., & Baer, J. C. (2011) · The Journal of Nervous and Mental Disease · doi:10.1097/nmd.0b013e31820840c5 · Cited by 38 · see citing works
Thieleman, K., & Cacciatore, J. (2013) · Research on Social Work Practice · doi:10.1177/1049731512474695 · Cited by 37 · see citing works
Tuccori, M., Montagnani, S., Testi, A., Ruggiero, E., Mantarro, S., Scollo, C., Pergola, A., Fornai, M., Antonioli, L., Colucci, R., et al. (2010) · Postgraduate Medicine · doi:10.3810/pgm.2010.07.2175 · Cited by 31 · see citing works
Predicting Need for Follow-Up Due to Severe Anxiety and Depression Symptoms After Perinatal Loss
Hutti, M. H., Myers, J. A., Hall, L. A., Polivka, B. J., White, S., Hill, J., Grisanti, M., Hayden, J., & Kloenne, E. (2018) · Journal of Obstetric, Gynecologic & Neonatal Nursing · doi:10.1016/j.jogn.2018.01.003 · Cited by 29 · see citing works
Adverse outcomes in bereaved mothers: The importance of household income and education
Cacciatore, J., Killian, M., & Harper, M. (2016) · SSM - Population Health · doi:10.1016/j.ssmph.2016.02.009 · Cited by 28 · see citing works
Cacciatore, J., & Bushfield, S. Y. (2008) · Affilia · doi:10.1177/0886109908323972 · Cited by 24 · see citing works
Florence, C., Leray, E., Bodeau‐Livinec, F., Husky, M. M., & Kovess–Masféty, V. (2015) · Journal of Affective Disorders · doi:10.1016/j.jad.2015.04.039 · Cited by 16 · see citing works
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Roberts, L. R., Nick, J. M., Sarpy, N. L., Peters, J., & Tamares, S. (2024) · JBI Evidence Synthesis · doi:10.11124/jbies-23-00149 · Cited by 27 · see citing works
Zheng, Q., Yin, X., Liu, L., Jevitt, C., Fu, D., Sun, Y., & Yu, X. (2024) · International Journal of Nursing Studies · doi:10.1016/j.ijnurstu.2024.104863 · Cited by 18 · see citing works
Gorman, R., & Cacciatore, J. (2020) · NJAS - Wageningen Journal of Life Sciences · doi:10.1016/j.njas.2020.100339 · Cited by 17 · see citing works
Alonso-Llácer, L., Barreto Martín, P., Ramos-Campos, M., Mesa-Gresa, P., Lacomba-Trejo, L., & Pérez-Marín, M. (2020) · Psicooncologia · doi:10.5209/psic.68244 · Cited by 9 · see citing works
Good practices in perinatal bereavement care in public maternity hospitals in Southern Spain
Martínez-García, E., Lara-Rodríguez, H., Álvarez‐Serrano, M. A., González‐García, A., Salvador, A. M., Gázquez‐López, M., & Pérez‐Morente, M. Á. (2023) · Midwifery · doi:10.1016/j.midw.2023.103749 · Cited by 13 · see citing works
Roberts, L. R., Sarpy, N. L., Peters, J., Nick, J. M., & Tamares, S. (2022) · JBI Evidence Synthesis · doi:10.11124/jbies-21-00053 · Cited by 5 · see citing works
Perinatal Loss and Parents’ Grief Amidst the COVID-19 Pandemic: A Mixed-Method Research
Vincenzo, C. D., Cena, L., Trainini, A., Nieddu, C., Iacona, E., Ronconi, L., & Testoni, I. (2024) · Behavioral Sciences · doi:10.3390/bs14040339 · Cited by 4 · see citing works
Lalande, D., Desrosiers, A.-A., Zeghiche, S., Landry, I., & de Montigny, F. (2022) · Recherche en soins infirmiers · doi:10.3917/rsi.149.0031 · Cited by 3 · see citing works
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Cacciatore, J. (2023) · Seminars in Perinatology · doi:10.1016/j.semperi.2023.151870 · Cited by 2 · see citing works
Length of gestation and postpartum visit attendance
Scott, K. A., Miller, E., Culhane, J. F., Greenspan, J., Handley, S. C., Lo, J. Y., Knake, L. A., McKenney, K. M., Nelin, T. D., Gregory, E. F., et al. (2026) · Pregnancy · doi:10.1002/pmf2.70306 · Cited by 1 · see citing works
“Liberating Grief”: Applying an Anti-Oppressive Framework to the Field
Hyatt, E. G., & Sawyerr, T. (2024) · Studies in Clinical Social Work Transforming Practice Education and Research · doi:10.1080/28376811.2024.2430571 · Cited by 1 · see citing works
Providing Supportive Psychosocial Care to Parents after Perinatal Loss
Hutti, M. H. (2021) · Wiley eBooks · doi:10.1002/9781119676980.ch33
The iterative process of decision-making
Riedijk, S. R., Dekkers, F., Ras, L., Fisher, J., Pajkrt, E., van Leeuwen, E., Emons, I., & Diderich, K. E. M. (2021) · Elsevier eBooks · doi:10.1016/b978-0-12-823329-0.00004-0
“It Started After Trauma”: The Effects of Traumatic Grief on Sleep Paralysis
Blood, C., & Cacciatore, J. (2022) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228221093895
The Impact of Stillbirth on Maternal Wellbeing
Massmann, K., Jagannatham, S., Stone, J. L., & PLATT, L. D. (2024) · Obstetrics and Gynecology Clinics of North America · doi:10.1016/j.ogc.2024.08.012
- Authors
- Cacciatore, J., & Thieleman, K.
- Affiliations
- Arizona State University (US)
- Venue
- MCN The American Journal of Maternal/Child Nursing
- Published
- 2019-01
- Volume
- 44
- Issue
- 1
- Pages
- 6-12
- ISSN
- 0361-929X (ISSN-L)
- OpenAlex
- W2900788737
- Cited by
- 15
- References
- 35
- Citations by year
- 2026: 1 · 2024: 5 · 2023: 2 · 2022: 2 · 2021: 3 · 2020: 2
- FWCI
- 1.47
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- MCN The American Journal of Maternal/Child Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Maternal Mental Health During Pregnancy and Postpartum
- Keywords
- perinatal death, grief, bereaved parents, traumatic grief, social support, social stigma, medicalization of grief, humanistic approach
- MeSH terms
- Adaptation, Psychological, Adult, Attitude to Death, Female, Grief, Humans, Infant, Newborn, Male, Parents, Pregnancy, Pregnancy Complications, Perinatal Death
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