The DOI matches its Crossref record; 15 of the 15 references it cites were found in a registry or an index.
‘Everybody just freezes. Everybody is just embarrassed’: felt and enacted stigma among parents of children with high functioning autism
Open accessAbstract
Abstract This paper reports the results of a study of felt and enacted stigma among a sample of parents of children with high functioning autism. The results indicate that a majority of the parents experienced both types of stigma, but that mothers were more likely to do so than fathers. This was especially true in the case of enacted stigma, where a majority of mothers, but only a minority of fathers, encountered avoidance, hostile staring and rude comments from others. The child's type of autistic symptoms was also related to the stigmatisation of their parents, with parents of aggressive children more likely to experience stigma than the parents of passive children. The study also found that the distinction between felt and enacted stigma was more distinct analytically than it was in practice, as many parents tended to conflate the different types of stigma. The results of the study are considered in the context of the changing conceptualisations of, and treatments for, high functioning autism and their implications for the stigmatisation of parents.
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Cites
Doing Naturalistic Inquiry: A Guide to Methods
Erlandson, D. A. (1993) · Cited by 2,581
Being epileptic: coming to terms with stigma
Scambler, G., & Hopkins, A. (1986) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep11346455 · Cited by 778
Felt versus enacted stigma: A concept revisited
Jacoby, A. (1994) · Social Science & Medicine · doi:10.1016/0277-9536(94)90396-4 · Cited by 601
Perceptions of stigma: the parents of autistic children
Gray, D. E. (1993) · Sociology of Health & Illness · doi:10.1111/1467-9566.ep11343802 · Cited by 348
Self-citationA follow-up study of high-functioning autistic children
Szatmari, P., Bartolucci, G., Bremner, R., Bond, S., & Rich, S. (1989) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02211842 · Cited by 257
Asperger syndrome in adulthood
Tantam, D. (1991) · Autism and Asperger Syndrome · doi:10.1017/cbo9780511526770.005 · Cited by 223
A study of intellectual abilities in high-functioning people with autism
Lincoln, A. J., Courchesne, E., Kilman, B. A., Elmasian, R., & Allen, M. (1988) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02211870 · Cited by 207
Register, C. (1987) · Cited by 205
Dirty, diseased and undeserving: The positioning of HIV positive women
Lawless, S., Kippax, S., & Crawford, J. (1996) · Social Science & Medicine · doi:10.1016/0277-9536(96)00017-2 · Cited by 172
Birenbaum, A. (1970) · Journal of Health and Social Behavior · doi:10.2307/2948301 · Cited by 151
Cited by
Scambler, G. (2009) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2009.01161.x · Cited by 658
Stigma as Related to Mental Disorders
Hinshaw, S. P., & Stier, A. (2008) · Annual Review of Clinical Psychology · doi:10.1146/annurev.clinpsy.4.022007.141245 · Cited by 490
The factors predicting stress, anxiety and depression in the parents of children with autism
Falk, N. H., Norris, K., & Quinn, M. G. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2189-4 · Cited by 369
Kinnear, S. H., Link, B. G., Ballan, M. S., & Fischbach, R. L. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2637-9 · Cited by 365
Social identity, self‐esteem, and mental health in autism
Cooper, K., Smith, L. G. E., & Russell, A. (2017) · European Journal of Social Psychology · doi:10.1002/ejsp.2297 · Cited by 354
Metadata
- Authors
- Gray, D. E.
- Venue
- Sociology of Health & Illness
- Publisher
- Wiley
- Published
- 2002-10-22
- Volume
- 24
- Issue
- 6
- Pages
- 734-749
- ISSN
- 0141-9889 (ISSN-L)
- 1467-9566
- OpenAlex
- W2062748379
- Cited by
- 567
- References
- 15
- FWCI
- 4.27
- Type
- journal article
- Language
- en
- Open access
- bronze
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- Gray, D. E. (2002). ‘Everybody just freezes. Everybody is just embarrassed’: felt and enacted stigma among parents of children with high functioning autism. Sociology of Health & Illness. https://doi.org/10.1111/1467-9566.00316
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.