Lay experiences of health and illness: past research and future agendas
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Abstract This article presents an overview and appraisal of work published during the 25‐year history of Sociology of Health and Illness that has contributed to our understandings of lay experiences of health and illness. It highlights an important and welcome shift from an ‘outsider’ perspective as epitomised in the Parsonian concept of the ‘sick role’ to one that focuses directly upon people's subjective experiences within the contexts of their daily lives. Particular attention is paid to the ways in which early work by Bury (1982), Charmaz (1983), and Williams (1984) has helped pave the way to an understanding of lay experiences that is sensitive to a broad range of micro‐ and macro‐contextual influences. The article looks to the future as well as the past by pointing to ‘uncharted terrain’ and ‘missing voices’ within the medical sociology literature. It discusses some recently published work in the Journal that has opened the door to what may prove to be a 21 st century sociology of health and illness. It concludes with a call for medical sociologists to be more open‐minded to the use of novel and seemingly unconventional theoretical and methodological approaches.
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Experiences of health are more intangible and elusive than experiences of illness, making the former much more challenging to study.
“Experiences of health are more intangible and elusive than experiences of illness, making the former much more challenging to study (23).”
From Concepts and definitions of health and health-related values in the knowledge landscapes of the digital society (2017) · cites this paper as [23]
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Aasbø, G., Solbrække, K. N., Kristvik, E., & Werner, A. (2016) · Sociology of Health & Illness · doi:10.1111/1467-9566.12396 · Cited by 53 · see citing works
Social Class and Ageing Bodies: Understanding Physical Activity in Later Life
Dumas, A., & Laberge, S. (2005) · Social Theory & Health · doi:10.1057/palgrave.sth.8700056 · Cited by 52 · see citing works
Mapping the field of medical sociology: a comparative analysis of journals
Seale, C. F. (2008) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2008.01090.x · Cited by 51 · see citing works
Co‐construction of chronic illness narratives by older stroke survivors and their spouses
Radcliffe, E., Lowton, K., & Morgan, M. (2013) · Sociology of Health & Illness · doi:10.1111/1467-9566.12012 · Cited by 50 · see citing works
From causes to solutions - insights from lay knowledge about health inequalities
Putland, C., Baum, F. E., & Ziersch, A. M. (2011) · BMC Public Health · doi:10.1186/1471-2458-11-67 · Cited by 50 · see citing works
Visvanathan, A., Mead, G., Dennis, M., Whiteley, W., Doubal, F., & Lawton, J. (2019) · PLoS ONE · doi:10.1371/journal.pone.0222500 · Cited by 24 · see citing works
Meaning and coherence of self and health: An approach based on narratives of life events
Ville, I., & Khlat, M. (2006) · Social Science & Medicine · doi:10.1016/j.socscimed.2006.10.014 · Cited by 49 · see citing works
Review paper: more than ringing in the ears: a review of tinnitus and its psychosocial impact
Holmes, S., & Padgham, N. D. (2009) · Journal of Clinical Nursing · doi:10.1111/j.1365-2702.2009.02909.x · Cited by 49 · see citing works
Mazanderani, F., Locock, L., & powell, J. A. (2013) · Sociology of Health & Illness · doi:10.1111/1467-9566.12001 · Cited by 48 · see citing works
Do Young People's Illness Beliefs Affect Healthcare? A Systematic Review
Haller, D. M., Sanci, L. A., Sawyer, S. M., & Patton, G. C. (2007) · Journal of Adolescent Health · doi:10.1016/j.jadohealth.2007.09.013 · Cited by 47 · see citing works
An analysis over time (1990–2000) of the experiences of living with HIV
Pierret, J. (2007) · Social Science & Medicine · doi:10.1016/j.socscimed.2007.06.017 · Cited by 47 · see citing works
Garthwaite, K. (2014) · Sociology of Health & Illness · doi:10.1111/1467-9566.12168 · Cited by 46 · see citing works
Health commodified, health communified: navigating digital consumptionscapes of well-being
Cavusoglu, L., & Kaplan, M. D. (2017) · European Journal of Marketing · doi:10.1108/ejm-01-2017-0015 · Cited by 45 · see citing works
Establishing Self and Meaning in Low Back Pain Narratives
Ong, B. N., Hooper, H., Dunn, K. M., & Croft, P. R. (2004) · The Sociological Review · doi:10.1111/j.1467-954x.2004.00494.x · Cited by 45 · see citing works
Veinot, T. C. (2010) · Information Research · Cited by 45 · see citing works
Rhodes, T., Bernays, S., & Terźić, K. J. (2009) · Social Science & Medicine · doi:10.1016/j.socscimed.2008.12.017 · Cited by 44 · see citing works
Perception of Dental Illness Among Persons Receiving Public Assistance in Montreal
Bedos, C. P., Brodeur, J., Levine, A., Richard, L., Boucheron, L., & Mereus, W. (2005) · American Journal of Public Health · doi:10.2105/ajph.2004.045955 · Cited by 44 · see citing works
Developing Evidence for How to Tailor Medical Interventions for the Individual Patient
Griffiths, F. E., Borkan, J., Byrne, D., Crabtree, B. F., Dowrick, C. F., Gunn, J. M., Kokanović, R., Lamb, S. E., Lindenmeyer, A., Parchman, M. L., et al. (2010) · Qualitative Health Research · doi:10.1177/1049732310377453 · Cited by 44 · see citing works
The Body Projects of University Students with Type 1 Diabetes
Balfe, M. (2008) · Qualitative Health Research · doi:10.1177/1049732308328052 · Cited by 43 · see citing works
Hogg, M. A., & Ridgeway, C. L. (2003) · Cited by 43 · see citing works
Coutu, M., Baril, R., Durand, M., Côté, D., & Rouleau, A. (2007) · Journal of Occupational Rehabilitation · doi:10.1007/s10926-007-9089-9 · Cited by 42 · see citing works
Campbell, T., Dunt, D. R., FitzGerald, J., & Gordon, I. (2013) · Health Promotion International · doi:10.1093/heapro/dat058 · Cited by 41 · see citing works
Modern Symbolic Interaction Theory and Health
Charmaz, K. C., & Belgrave, L. L. (2013) · Springer eBooks · doi:10.1007/978-94-007-6193-3_2 · Cited by 41 · see citing works
Stronks, K., Hoeymans, N., Haverkamp, B., den Hertog, F. R. J., van Bon-Martens, M. J. H., Galenkamp, H., Verweij, M. F., & OERS, H. A. M. V. (2018) · BMJ Open · doi:10.1136/bmjopen-2017-020210 · Cited by 41 · see citing works
To work or not to work? The occupational trajectories of wheelchair users
Ville, I., & Winance, M. (2006) · Disability and Rehabilitation · doi:10.1080/09638280500192561 · Cited by 41 · see citing works
Llewellyn, H., Low, J., Smith, G., Hopkins, K. A., Burns, A. P., & Jones, L. (2014) · Social Science & Medicine · doi:10.1016/j.socscimed.2014.05.037 · Cited by 40 · see citing works
Salter, C., Howe, A. C., McDaid, L., Blacklock, J., Lenaghan, E., & Shepstone, L. (2011) · Social Science & Medicine · doi:10.1016/j.socscimed.2011.06.030 · Cited by 40 · see citing works
Patient participation in fundamental psychiatric genomics research: a Dutch case study
Baart, I., & Abma, T. (2010) · Health Expectations · doi:10.1111/j.1369-7625.2010.00634.x · Cited by 40 · see citing works
Restoring a sense of wellness following colorectal cancer: a grounded theory
Beech, N., Arber, A., & Faithfull, S. (2011) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2011.05820.x · Cited by 40 · see citing works
Higginbottom, G. A. (2006) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2006.00508.x · Cited by 40 · see citing works
Healthy Eating Policy and Political Philosophy
Barnhill, A., & Bonotti, M. (2022) · doi:10.1093/oso/9780190937881.001.0001 · Cited by 39 · see citing works
Bishop, F. L., & Yardley, L. (2008) · Psychology and Health · doi:10.1080/08870440802609980 · Cited by 39 · see citing works
Balcou-Debussche, M., & Debussche, X. (2009) · Qualitative Health Research · doi:10.1177/1049732309341642 · Cited by 39 · see citing works
The DIPEx Project: Collecting Personal Experiences of Illness and Health Care
Herxheimer, A., & Ziébland, S. (2004) · doi:10.1002/9780470755167.ch7 · Cited by 39 · see citing works
Children and youth’s perceptions of mental health—a scoping review of qualitative studies
Beckman, L., Hassler, S., & Hellström, L. (2023) · BMC Psychiatry · doi:10.1186/s12888-023-05169-x · Cited by 38 · see citing works
Freydberg, N., Strain, L. A., Tsuyuki, R. T., McAlister, F. A., & Clark, A. M. (2010) · Social Science & Medicine · doi:10.1016/j.socscimed.2009.11.026 · Cited by 38 · see citing works
Health world views of post-soviet citizens
Abbott, P., Turmov, S., & Wallace, C. (2005) · Social Science & Medicine · doi:10.1016/j.socscimed.2005.05.019 · Cited by 38 · see citing works
Experiencing and controlling time in everyday life with chronic widespread pain: a qualitative study
Richardson, J. C., Ong, B. N., & Sim, J. (2008) · BMC Musculoskeletal Disorders · doi:10.1186/1471-2474-9-3 · Cited by 38 · see citing works
Health and role functioning: the use of focus groups in the development of an item bank
Anatchkova, M., & Bjørner, J. B. (2010) · Quality of Life Research · doi:10.1007/s11136-009-9570-3 · Cited by 36 · see citing works
Explaining chronic obstructive pulmonary disease (COPD): perceptions of the role played by smoking
Hansen, E., Walters, J. A., & Baker, R. W. (2007) · Sociology of Health & Illness · doi:10.1111/j.1467-9566.2007.01013.x · Cited by 36 · see citing works
Paudel, M., Javanparast, S., Dasvarma, G., & Newman, L. (2018) · PLoS ONE · doi:10.1371/journal.pone.0194328 · Cited by 36 · see citing works
Coventry, P. A., Dickens, C. M., & Todd, C. J. (2014) · Social Science & Medicine · doi:10.1016/j.socscimed.2014.07.068 · Cited by 35 · see citing works
Vassilev, I., Rogers, A. E., Sanders, C., Cheraghi‐Sohi, S., Blickem, C., Brooks, H. L., Kapadia, D., Reeves, D., Doran, T., & Kennedy, A. P. (2014) · Chronic Illness · doi:10.1177/1742395314521641 · Cited by 34 · see citing works
Thinking beyond rupture: continuity and relationality in everyday illness and dying experience
Ellis, J. (2013) · Mortality · doi:10.1080/13576275.2013.819490 · Cited by 33 · see citing works
The meaningfulness of time; Narratives of cancer among chronically ill older adults
Hannum, S. M., & Rubinstein, R. L. (2015) · Journal of Aging Studies · doi:10.1016/j.jaging.2015.12.006 · Cited by 33 · see citing works
Significados do câncer de mama para mulheres no contexto do tratamento quimioterápico
Machado, M. X., Soares, D. A., & Oliveira, S. B. (2017) · Physis Revista de Saúde Coletiva · doi:10.1590/s0103-73312017000300004 · Cited by 33 · see citing works
- Authors
- Julia, L.
- Venue
- Sociology of Health & Illness
- Publisher
- Wiley
- Published
- 2003-03-14
- Volume
- 25
- Issue
- 3
- Pages
- 23-40
- ISSN
- 0141-9889 (ISSN-L)
- 1467-9566
- OpenAlex
- W1504678047
- Cited by
- 328
- References
- 69
- Citations by year
- 2026: 3 · 2025: 6 · 2024: 6 · 2023: 4 · 2022: 18 · 2021: 12 · 2020: 10 · 2019: 10 · 2018: 13 · 2017: 16 · 2016: 17 · 2015: 24 · 2014: 20 · 2013: 10 · 2012: 16
- FWCI
- 10.30
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Sociology of Health & Illness (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Social Sciences › Education › Qualitative research in health
- Health Sciences › Health Professions › General Health Professions › Health, Medicine and Society
- Health Sciences › Medicine › Psychiatry and Mental health › Medicine, History, and Philosophy
- Keywords
- medical sociology, sick role, subjective experience, emic perspective, illness experience, theoretical and methodological approaches
- MeSH terms
- Attitude to Health, Chronic Disease, Humans, Research, Self Concept, Sociology, Medical
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