What should dental services for people with disabilities in Ireland be like? Agreed priorities from a focus group of people with learning disabilities
Abstract
Accessible summary: This study asked a group of people with learning disabilities in Ireland what was important to them about their dental services. The group easily ordered their priorities according to five topics:Access, Cost, Information, Quality of Care and Treatment. The group's discussion revealed a disempowered group who had little control over how they interacted with dental services. We suggest ways to empower people with learning disabilities in their interactions with dental services. Background:In Ireland, people with learning disabilities have poor oral health. This is in part due to inappropriate oral health services. Recognising the value of inclusive approaches to research and healthcare planning, this study sought to include a group of people with learning disabilities in priority setting for oral health services in Ireland. This study discusses the feasibility of the methods used to promote inclusive approaches in oral healthcare planning. Materials and Methods:A single focus group of six participants with communication and cognitive impairments agreed priorities for dental services using evidence‐based research tools across five topics:Access, Cost, Information, Quality of Care and Treatment. Sorting was recorded photographically and discussion was video‐recorded, transcribed and analysed using deductive content analysis. Results:The group ranked priorities within each topic but found it difficult to meaningfully rank between topics. Across topics, issues of control, empowerment and choice were observed. Conclusions:Participants were largely disempowered in their interactions with dental services. The method used in this study to empower potential service users with disabilities was successful and can be used by others who have an interest in inclusive healthcare priority setting.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Accessible healthcare information is perceived to be a high priority by people with intellectual disabilities and/or autism.
“Accessible healthcare information is perceived to be a high priority by people with intellectual disabilities and/or autism.48–50”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [50]
Some healthcare information may be incomprehensible and/or difficult to obtain.
“Some healthcare information may be incomprehensible and/or difficult to obtain.25,34,50,51”
From Barriers and facilitators to primary health care for people with intellectual disabilities and/or autism: an integrative review (2020) · cites this paper as [50]
Cites
The qualitative content analysis process
Elo, S., & Kyngäs, H. (2008) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2007.04569.x · Cited by 22,617 · see citing works
Finlay, W. M. L., & Lyons, E. (2001) · Psychological Assessment · doi:10.1037/1040-3590.13.3.319 · Cited by 521 · see citing works
Nierse, C. J., & Abma, T. (2011) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2011.01388.x · Cited by 75 · see citing works
Antaki, C., & Rapley, M. (1996) · Journal of Intellectual Disability Research · doi:10.1046/j.1365-2788.1996.779779.x · Cited by 72 · see citing works
Hoole, L., & Morgan, S. (2010) · British Journal of Learning Disabilities · doi:10.1111/j.1468-3156.2009.00563.x · Cited by 55 · see citing works
How employment support and social integration programmes are viewed by the intellectually disabled
Cramm, J. M., Finkenflügel, H., Kuijsten, R., & van Exel, J. N. A. (2009) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.2009.01168.x · Cited by 49 · see citing works
Total tooth loss and complete denture use in older adults with intellectual disabilities in I reland
Phadraig, C. M. G., McCallion, P., Cleary, E., McGlinchey, E., Burke, E. A., McCarron, M., & Nunn, J. (2014) · Journal of Public Health Dentistry · doi:10.1111/jphd.12077 · Cited by 46 · see citing works
Self-citation‘Standing up for my human rights’: a group’s journey beyond consultation towards co‐production
Roberts, A., Greenhill, B., Talbot, A., & Cuzak, M. (2011) · British Journal of Learning Disabilities · doi:10.1111/j.1468-3156.2011.00711.x · Cited by 37 · see citing works
Smith, G., Rooney, Y. M., & Nunn, J. (2010) · PubMed · Cited by 34 · see citing works
Self-citationInclusion and healthcare choices: the experiences of adults with learning disabilities
Ferguson, M., Jarrett, D., & Terras, M. (2011) · British Journal of Learning Disabilities · doi:10.1111/j.1468-3156.2010.00620.x · Cited by 33 · see citing works
Bollard, M. (2003) · Journal of Learning Disabilities · doi:10.1177/1469004703007002005 · Cited by 30 · see citing works
Copeland, S. R., Luckasson, R. A., & Shauger, R. (2014) · Journal of Intellectual Disability Research · doi:10.1111/jir.12114 · Cited by 25 · see citing works
Contextualism in intellectual disability research: the case of choice behaviour
Cullen, C. (1999) · Journal of Intellectual Disability Research · doi:10.1046/j.1365-2788.1999.00238.x · Cited by 21 · see citing works
Phadraig, C. M. G., Nunn, J., Dougall, A., O’Neill, E., McLoughlin, J., & Guérin, S. (2014) · PLoS ONE · doi:10.1371/journal.pone.0113393 · Cited by 18 · see citing works
Self-citationLarsson, G., & Wilde‐Larsson, B. (2001) · Mental Retardation · doi:10.1352/0047-6765(2001)039 · Cited by 18 · see citing works
Antaki, C., & Rapley, M. (1996) · Journal of Intellectual Disability Research · doi:10.1111/j.1365-2788.1996.tb00649.x · Cited by 18 · see citing works
The organisation of dental care for groups of mentally handicapped persons.
Tj, H., & O'Mullane, D. (1990) · PubMed · Cited by 16 · see citing works
Dental caries experience and barriers to care in young children with disabilities in Ireland.
Sagheri, D., McLoughlin, J., & Nunn, J. H. (2013) · PubMed · doi:10.3290/j.qi.a28927 · Cited by 15 · see citing works
Self-citationDental attendance among older adults with intellectual disabilities in Ireland
Phadraig, C. M. G., Burke, E. A., McCallion, P., McGlinchey, E., Nunn, J., & McCarron, M. (2014) · Special Care in Dentistry · doi:10.1111/scd.12067 · Cited by 13 · see citing works
Self-citationCosts in providing facilities for treatment of handicapped patients under general anaesthesia.
Holland, T. J., Lucey, S., Kavanagh, C., & O'Mullane, D. (1997) · PubMed · Cited by 5 · see citing works
Oral health promotion for children with disabilities in the Republic of Ireland
Owens, J. (2011) · Global Health Promotion · doi:10.1177/1757975910393583 · Cited by 3 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Doherty, A. J., Atherton, H., Boland, P., Hastings, R., Hives, L., Hood, K., James-Jenkinson, L., Leavey, R., Randell, E., Reed, J., et al. (2020) · BJGP Open · doi:10.3399/bjgpopen20x101030 · Cited by 244 · see citing works
Wilson, N. J., Lin, Z., Villarosa, A. R., Lewis, P., Philip, P., Sumar, B., & George, A. (2019) · BMC Public Health · doi:10.1186/s12889-019-7863-1 · Cited by 118 · see citing works
Geddis‐Regan, A. R., Gray, D., Buckingham, S., Misra, U., Boyle, C., & the British Society for Disability and Oral Health (2022) · Special Care in Dentistry · doi:10.1111/scd.12652 · Cited by 65 · see citing works
Education/Training Interventions to Improve Oral Health of Adults with Intellectual Disability
Kangutkar, T., Calache, H., Watson, J., Taylor, S., & Balandin, S. (2022) · Healthcare · doi:10.3390/healthcare10102061 · Cited by 19 · see citing works
Phadraig, C. M. G., Nunn, J., Carroll, R. E., McCarron, M., & McCallion, P. (2016) · Journal of Prosthodontic Research · doi:10.1016/j.jpor.2016.04.005 · Cited by 14 · see citing works
Self-citationExperiences of dentists and caregivers of patients with special care needs–A qualitative study
Tobis, R. M., Cardoso, E., Yarascavitch, C., Tenenbaum, H. C., Azarpazhooh, A., & Sale, J. E. M. (2023) · Special Care in Dentistry · doi:10.1111/scd.12903 · Cited by 6 · see citing works
Establishing an empirical conceptual model of oral health in dependent adults: Systematic review
BaHammam, F. A., Akhil, J., Stewart, M. C. H., Abdulmohsen, B., Durham, J., McCracken, G., & Wassall, R. R. (2023) · Special Care in Dentistry · doi:10.1111/scd.12842 · Cited by 3 · see citing works
Edgar, H., McMeel, A., McWilliams, G., Gormley, G. J., & Adams, V. (2026) · European Journal Of Dental Education · doi:10.1111/eje.70179 · Cited by 1 · see citing works
Oral health and supporting people with intellectual disabilities to get access to dental treatment
Hartnett, L., & McNamara, M. S. (2021) · Learning Disability Practice · doi:10.7748/ldp.2021.e2123
Structural Ableism in Dentistry
Scambler, S., & Diedericks, L. (2026) · Community Dentistry And Oral Epidemiology · doi:10.1111/cdoe.70133
- Authors
- Mac Giolla Phadraig, C., Dougall, A., Stapleton, S., McGeown, D., Nunn, J., & Guerin, S.
- Affiliations
- Department of Child and Public Dental Health Trinity College Dublin Dublin Dental University Hospital Lincoln Place Dublin 2 Ireland
- Trinity College Dublin (IE)
- School of Psychology University College Dublin Stillorgan Road Dublin 4 Ireland
- Venue
- British Journal of Learning Disabilities
- Publisher
- Wiley
- Published
- 2015-11-21
- Volume
- 44
- Issue
- 4
- Pages
- 259-268
- ISSN
- 0261-9997 (ISSN-L)
- 1354-4187
- 1468-3156
- OpenAlex
- W2173931418
- Cited by
- 10
- References
- 21
- Citations by year
- 2026: 2 · 2023: 2 · 2022: 2 · 2021: 1 · 2020: 1 · 2019: 1 · 2016: 1
- FWCI
- 0.45
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- British Journal of Learning Disabilities (publishedVersion)
- Topics
- Health Sciences › Dentistry › Periodontics › Dental Health and Care Utilization
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Down syndrome and intellectual disability research
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Keywords
- learning disabilities, dental services, oral health, priority setting, inclusive healthcare, patient empowerment, service user involvement, access to dental care, Ireland
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review