Perceptions and experiences of living with coexisting type 2 diabetes and severe mental illness: a scoping review
Open accessAbstract
Aims: To map existing research‐based knowledge of everyday life and illness management among people with coexisting type 2 diabetes and severe mental illness, and to identify study designs, aims, populations and themes. Methods: A systematic literature search was performed on 16 April 2019 using Medline, Embase, PsycINFO, Cinahl, the Cochrane Library, and the Web of Science to conduct a scoping review. Included studies were summarized with regard to the quantity of research, the study designs, aims, populations and themes Results: From 3406 records, we included 23 studies about everyday life and illness management among people with coexisting type 2 diabetes and severe mental illness. Four studies were qualitative (observations, interviews and focus groups), and 19 were quantitative (observational and interventions) and used questionnaires. Five themes emerged in the findings: (1) diet and exercise, but not other diabetes self‐care activities, are consistently compromised in the target group; (2) psychiatric exacerbation diminishes diabetes self‐care; (3) social support and high self‐efficacy improve diabetes self‐care; (4) use of healthcare services is compromised; and (5) quality of life and well‐being is poor. Conclusions: The limited research into the studied population’s experiences with coexisting type 2 diabetes and severe mental illness is characterized by its heterogeneity in aims and methods and a strong focus on diabetes management and treatment. Further research focusing on the management of both conditions in everyday life is needed to improve specialized and integrated care targeting the population.
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Mental distress from managing and living with diabetes (type 1 or type 2) impacts daily living and social experiences.
“Unsurprisingly, the mental distress from managing and living with diabetes (type 1 or type 2) impacts daily living and social experiences [6, 7].”
From Emotional, Psychological, and Social Well-being Experience of Long-Term Living with Type 1 Diabetes Mellitus: A Patient–Psychiatrist–Endocrinologist Perspective (2024) · cites this paper as [7]
The Diabetes distress section reports that higher distress predicted less healthy dieting, exercise and medication-taking, supporting an effect on everyday self-care. The review concerns people with type 2 diabetes and severe mental illness; it does not establish the claim for type 1 diabetes or show that diabetes-related distress affects social experiences. No page numbers are available in our copy. (LLM, conf=0.84)
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Cites
PRISMA Extension for Scoping Reviews (PRISMA-ScR): Checklist and Explanation
Tricco, A. C., Lillie, E., Zarin, W., O'Brien, K. K., Colquhoun, H., Levac, D., Moher, D., Peters, M. D. J., Horsley, T., Weeks, L., et al. (2018) · Annals of Internal Medicine · doi:10.7326/m18-0850 · Cited by 43,565 · see citing works
A typology of reviews: an analysis of 14 review types and associated methodologies
Grant, M. J., & Booth, A. (2009) · Health Information & Libraries Journal · doi:10.1111/j.1471-1842.2009.00848.x · Cited by 10,817 · see citing works
Methods for the thematic synthesis of qualitative research in systematic reviews
Thomas, J., & Harden, A. (2008) · BMC Medical Research Methodology · doi:10.1186/1471-2288-8-45 · Cited by 9,312 · see citing works
Quality of Life: The assessment, analysis and interpretation of patient-reported outcomes
Fayers, P. M., & Machin, D. (2007) · Cited by 1,419 · see citing works
Relationship of Depression and Diabetes Self-Care, Medication Adherence, and Preventive Care
Lin, E. H. B., Katon, W., Von Korff, M., Rutter, C., Simon, G. E., Oliver, M., Ciechanowski, P., Ludman, E. J., Bush, T., & Young, B. (2004) · Diabetes Care · doi:10.2337/diacare.27.9.2154 · Cited by 1,146 · see citing works
Quality of Life: The Assessment, Analysis and Interpretation of Patient‐Reported Outcomes
Fayers, P. M., & Machin, D. (2007) · doi:10.1002/9780470024522 · Cited by 865 · see citing works
Vancampfort, D., Correll, C. U., Galling, B., Probst, M., De Hert, M., Ward, P. B., Rosenbaum, S., Gaughran, F., Lally, J., & Stubbs, B. (2016) · World Psychiatry · doi:10.1002/wps.20309 · Cited by 659 · see citing works
Depression, Self-Care, and Medication Adherence in Type 2 Diabetes
Gonzalez, J. S., Safren, S. A., Cagliero, E., Wexler, D. J., Delahanty, L., Wittenberg, E., Blais, M. A., Meigs, J. B., & Grant, R. W. (2007) · Diabetes Care · doi:10.2337/dc07-0158 · Cited by 579 · see citing works
Mitchell, A. J., Malone, D., & Carney, C. P. (2009) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.107.045732 · Cited by 359 · see citing works
Heterogeneity in psychiatric diagnostic classification
Allsopp, K., Read, J., Corcoran, R., & Kinderman, P. (2019) · Psychiatry Research · doi:10.1016/j.psychres.2019.07.005 · Cited by 323 · see citing works
McKibbin, C., Patterson, T., Norman, G., Patrick, K., Jin, H., Roesch, S. C., Mudaliar, S., Barrio, C., O'Hanlon, K. M., Griver, K., et al. (2006) · Schizophrenia Research · doi:10.1016/j.schres.2006.05.010 · Cited by 216 · see citing works
Suijkerbuijk, Y. B., Schaafsma, F. G., van Mechelen, J., Ojajärvi, A., Corbière, M., & Anema, J. R. (2017) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd011867.pub2 · Cited by 215 · see citing works
Lean, M., Fornells-Ambrojo, M., Milton, A., Lloyd-Evans, B., Harrison-Stewart, B., Yesufu-Udechuku, A., Kendall, T., & Johnson, S. (2019) · The British Journal of Psychiatry · doi:10.1192/bjp.2019.54 · Cited by 211 · see citing works
Robinson, D. J., Coons, M., Haensel, H., Vallis, M., & Yale, J.-F. (2018) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2017.10.031 · Cited by 209 · see citing works
Diabetes mellitus and severe mental illness: mechanisms and clinical implications
Holt, R. I. G., & Mitchell, A. J. (2014) · Nature Reviews Endocrinology · doi:10.1038/nrendo.2014.203 · Cited by 181 · see citing works
Lloyd, C. E., Nouwen, A., Sartorius, N., Ahmed, H. U., Alvarez, A. M., Bahendeka, S., Basangwa, D., Bobrov, A. E., Boden, S., Bulgari, V., et al. (2018) · Diabetic Medicine · doi:10.1111/dme.13611 · Cited by 154 · see citing works
The epidemiology of diabetes in psychotic disorders
Ward, M., & Druss, B. G. (2015) · The Lancet Psychiatry · doi:10.1016/s2215-0366(15)00007-3 · Cited by 151 · see citing works
The effect of depression on quality of life of patients with type II diabetes mellitus
Eren, İ., Erdi, Ö., & Şahin, M. (2007) · Depression and Anxiety · doi:10.1002/da.20288 · Cited by 139 · see citing works
Gonzalez, J. S., Delahanty, L. M., Safren, S. A., Meigs, J. B., & Grant, R. W. (2008) · Diabetologia · doi:10.1007/s00125-008-1113-x · Cited by 117 · see citing works
Bell, M., Fiszdon, J., Richardson, R., Lysaker, P., & Bryson, G. (2007) · Psychiatry Research · doi:10.1016/j.psychres.2006.04.012 · Cited by 116 · see citing works
Diabetes and Cardiovascular Care Among People with Severe Mental Illness: A Literature Review
Mangurian, C. V., Newcomer, J. W., Modlin, C., & Schillinger, D. (2016) · Journal of General Internal Medicine · doi:10.1007/s11606-016-3712-4 · Cited by 116 · see citing works
Effects of severe mental illness on survival of people with diabetes
Vinogradova, Y., Coupland, C. A. C., Hippisley‐Cox, J., Whyte, S., & Penny, C. (2010) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.109.074674 · Cited by 109 · see citing works
Reliable Self-Report of Health Service Use by Individuals With Serious Mental Illness
Goldberg, R. W., Seybolt, D. C., & Lehman, A. F. (2002) · Psychiatric Services · doi:10.1176/appi.ps.53.7.879 · Cited by 101 · see citing works
Barriers to effective diabetes management–a survey of people with severe mental illness
Mulligan, K., McBain, H., Lamontagne-Godwin, F., Chapman, J., Flood, C., Haddad, M., Jones, J., & Simpson, A. (2018) · BMC Psychiatry · doi:10.1186/s12888-018-1744-5 · Cited by 68 · see citing works
Self management interventions for type 2 diabetes in adult people with severe mental illness
McBain, H. B., Mulligan, K., Haddad, M., Flood, C., Jones, J., & Simpson, A. (2016) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd011361.pub2 · Cited by 67 · see citing works
Risk of Acute Complications of Diabetes Among People With Schizophrenia in Ontario, Canada
Becker, T., & Hux, J. E. (2010) · Diabetes Care · doi:10.2337/dc10-1139 · Cited by 65 · see citing works
Diabetes Knowledge Among Persons With Serious Mental Illness and Type 2 Diabetes
Dickerson, F., Goldberg, R. W., Brown, C. H., Kreyenbuhl, J. A., Wohlheiter, K. A., Fang, L., Medoff, D. R., & Dixon, L. B. (2005) · Psychosomatics · doi:10.1176/appi.psy.46.5.418 · Cited by 64 · see citing works
Sajatovic, M., Gunzler, D. D., Kanuch, S. W., Cassidy, K. A., Tatsuoka, C. M., McCormick, R., Blixen, C. E., Perzynski, A. T., Einstadter, D., Thomas, C. L., et al. (2017) · Psychiatric Services · doi:10.1176/appi.ps.201600377 · Cited by 55 · see citing works
Chen, S., Chien, Y., Kang, C., Jeng, C., & Chang, W. (2013) · Journal of Psychiatric and Mental Health Nursing · doi:10.1111/jpm.12101 · Cited by 45 · see citing works
Barriers and enablers of type 2 diabetes self‐management in people with severe mental illness
Mulligan, K., McBain, H. B., Lamontagne-Godwin, F., Chapman, J., Haddad, M., Jones, J., Flood, C., Thomas, D. A., & Simpson, A. (2017) · Health Expectations · doi:10.1111/hex.12543 · Cited by 44 · see citing works
Timar, B., Mut-Vitcu, G., Timar, R. Z., Oancea, C. I., & Cîtu, C. (2016) · Clinical Interventions in Aging · doi:10.2147/cia.s104083 · Cited by 43 · see citing works
Kreyenbuhl, J., Leith, J. E., Medoff, D., Fang, L.-J., Dickerson, F., Brown, C. H., Goldberg, R. W., Potts, W., & Dixon, L. (2011) · Psychiatry Research · doi:10.1016/j.psychres.2011.03.013 · Cited by 39 · see citing works
Quality of Life in Individuals With Serious Mental Illness and Type 2 Diabetes
Dickerson, F., Brown, C. H., Fang, L., Goldberg, R. W., Kreyenbuhl, J. A., Wohlheiter, K. A., & Dixon, L. B. (2008) · Psychosomatics · doi:10.1176/appi.psy.49.2.109 · Cited by 37 · see citing works
Nicolau, J., Rivera, R., Francés, C., Chacártegui, B., & Masmiquel, L. (2013) · Diabetes Research and Clinical Practice · doi:10.1016/j.diabres.2013.05.009 · Cited by 33 · see citing works
Ogawa, M., Miyamoto, Y., & Kawakami, N. (2010) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2010.06.002 · Cited by 29 · see citing works
Symptoms of Mental Illness and Their Impact on Managing Type 2 Diabetes in Adults
Cimo, A., & Dewa, C. S. (2017) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2017.08.256 · Cited by 29 · see citing works
Knyahnytska, Y., Williams, C. C., Dale, C., & Webster, F. (2018) · Canadian Journal of Diabetes · doi:10.1016/j.jcjd.2018.02.001 · Cited by 22 · see citing works
Price, H. C., Ismail, K., & Care, T. J. B. D. S. (. F. I. (2018) · Diabetic Medicine · doi:10.1111/dme.13673 · Cited by 20 · see citing works
Aftab, A., Bhat, C., Gunzler, D. D., Cassidy, K. A., Thomas, C. L., McCormick, R., Dawson, N. V., & Sajatovic, M. (2017) · The International Journal of Psychiatry in Medicine · doi:10.1177/0091217417749795 · Cited by 19 · see citing works
Lally, J., Loughlin, A. O., Stubbs, B., Guérandel, A., O'Shea, D. B., & Gaughran, F. (2018) · Expert Review of Clinical Pharmacology · doi:10.1080/17512433.2018.1445968 · Cited by 18 · see citing works
İnce, S. Ç., Günüşen, N. P., Özerdem, A., & Özışık, S. (2017) · Archives of Psychiatric Nursing · doi:10.1016/j.apnu.2017.04.011 · Cited by 16 · see citing works
Clinic Appointment Attendance in Adults with Serious Mental Illness and Diabetes
Gunzler, D. D., Morris, N. J., Dalton, J. E., McCormick, R., Dawson, N. V., Thomas, C. L., Kanuch, S. W., Cassidy, K. A., Athey, M., Fuentes‐Casiano, E., et al. (2017) · American Journal of Health Behavior · doi:10.5993/ajhb.41.6.15 · Cited by 14 · see citing works
Essentials of Physical Health in Psychiatry
Rowlands, P. (2013) · British Journal of Hospital Medicine · doi:10.12968/hmed.2013.74.5.297 · Cited by 12 · see citing works
Depression and Type 2 Diabetes
Castagneto‐Gissey, L., Mariolo, J. R. C., Mingrone, G., et al. (2018) · Oxford University Press eBooks · doi:10.1093/med/9780198789284.001.0001 · Cited by 7 · see citing works
Davis, W. A., STARKSTEIN, S. E., Bruce, D. G., & Davis, T. M. E. (2015) · Journal of Diabetes and its Complications · doi:10.1016/j.jdiacomp.2015.08.019 · Cited by 5 · see citing works
Aakre, J. M., Medoff, D. R., Dixon, L. B., & Kreyenbuhl, J. A. (2012) · Patient Preference and Adherence · doi:10.2147/ppa.s30975 · Cited by 5 · see citing works
Smith, K. J., Gariépy, G., & Schmitz, N. (2013) · Public Health · doi:10.1016/j.puhe.2013.06.001 · Cited by 4 · see citing works
Flagged first, then by citations
Research works printed but not linked: 2
- Goueslard K, Petit J-M, Cottenet J, Chauvet-Gelinier J-C, Jollant F, Quantin C. Increased risk of rehospitalization for acute diabetes complications and suicide attempts in patients with Type 1 diabetes and comorbid schizophrenia. Diabetes Care 2018;41:2316-2321.
- Sajatovic M, Gunzler D, Kanuch S, Cassidy K, Tatsuoka C, McCormich R et al. A 60-week prospective randomized controlled trial of Targeted Training in Illness Management vs. treatment as usual in individuals with serious mental illness and diabetes mellitus. Psychiatr Serv 2017;68:883-890.
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Ashraf, M. N., Cheng, A. Y. Y., & Robinson, D. J. (2024) · Diabetes Therapy · doi:10.1007/s13300-023-01527-w · Cited by 14 · see citing works
- Authors
- Rønne, S. T., Zabell, V., Joensen, L. E., Jørgensen, R., Gæde, P. H., & Hemmingsen Arnfred, S. M.
- Affiliations
- University of Copenhagen (DK)
- Steno Diabetes Center Copenhagen (DK)
- Aalborg University Hospital (DK)
- University of Southern Denmark (DK)
- Psychiatric Research Unit West Slagelse Region Zealand Denmark
- Venue
- Diabetic Medicine
- Publisher
- Wiley
- Published
- 2020-07-25
- Volume
- 37
- Issue
- 10
- Pages
- 1627-1639
- ISSN
- 0742-3071 (ISSN-L)
- 1464-5491
- OpenAlex
- W3026260434
- Cited by
- 24
- References
- 47
- Citations by year
- 2026: 1 · 2025: 6 · 2024: 5 · 2023: 6 · 2022: 3 · 2021: 1 · 2020: 1
- FWCI
- 0.42
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Diabetic Medicine (publishedVersion)
- PubMed (publishedVersion)
- VBN Forskningsportal (Aalborg Universitet) (publishedVersion, other-oa)
- Research at the University of Copenhagen (University of Copenhagen) (acceptedVersion, other-oa)
- University of Southern Denmark Research Portal (University of Southern Denmark) (submittedVersion, other-oa)
- Funders
- Steno Diabetes Center Copenhagen (SDCC HP 2. A. Diabetes Mgmt Res)
- Region Sjælland
- Novo Nordisk Fonden (NNF18SA0035194-1)
- Topics
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Research
- Health Sciences › Medicine › Epidemiology › Chronic Disease Management Strategies
- Keywords
- type 2 diabetes, severe mental illness, comorbidities, diabetes self-care, diet and exercise, social support, self-efficacy, health care utilization, quality of life, well-being, integrated care, everyday life
- MeSH terms
- Self-Management, Mental Disorders, Bipolar Disorder, Depressive Disorder, Major, Major Depressive Disorder, Diabetes Mellitus, Type 2, Diet, Health Services, Humans, Mental Health Services, Personality Disorders, Psychotic Disorders, Quality of Life, Schizophrenia, Schizophrenic Psychology, Self Care, Social Support, Exercise, Disease Progression, Self Efficacy
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