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Altered body image: appearance‐related concerns of people with visible disfigurement
Open accessAbstract
Aim. The aim of this paper is to report a study to establish the extent and type of psychosocial needs of outpatients attending for treatment of a wide range of disfiguring conditions. Background. Visible disfigurements can be associated with extensive psychosocial difficulties. The majority of research to date has been carried out with people identified by themselves or others as experiencing difficulties. Little is known about levels of distress in the broader population of patients receiving treatment for a range of disfiguring conditions. Methods. A cross‐sectional survey was conducted, with a convenience sample. Participants ( n = 458) drawn from 15 outpatient clinics completed standardized measures of anxiety and depression (Hospital Anxiety and Depression Scale), social anxiety and avoidance (Derriford Appearance Scale short‐form) and quality of life (World Health Organization Quality of Life Brief Scale). A semi‐structured interview was used to generate further quantitative and qualitative data about individual concerns, and satisfaction with the provision of care. Staff views about levels of psychosocial distress were elicited through group discussions. Results. The results revealed high levels of psychological distress in the sample, compared with normative values. The majority of difficulties related to problems experienced in social situations. Patient satisfaction with care was generally high; however, and 71% of participants expressed a moderate to strong desire for a health care professional with training to deal with their appearance‐related concerns. Nursing staff felt unable to address patients’ appearance‐related difficulties because of time constraints, lack of an environment conducive to the discussion of patients’ concerns, and lack of appropriate knowledge and training. Conclusion. A significant proportion of participants experienced psychosocial distress in relation to their visible difference. Psychosocial needs were poorly met in current outpatient care provision, and a range of options could be considered to address these more effectively.
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“Difficulties adjusting to an altered appearance can lead to anxiety, shame, reduced self-worth, social avoidance and isolation which can significantly interfere with social, occupational and relational functioning, lowering quality of life for some individuals [8-12].”
From The role of psychological flexibility in appearance anxiety in people who have experienced a visible burn injury. (2019) · cites this paper as [9]
Experimental — accuracy not yet measuredIn the citing paper
“It is critical to recognize that body image experiences are inherently subjective and not necessarily congruent with objective body changes readily observed by others.”
From Multidimensional analysis of body image concerns among newly diagnosed patients with oral cavity cancer (2010) · cites this paper as [11]
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Metadata
- Authors
- Rumsey, N., Clarke, A., White, P., Wyn‐Williams, M., & Garlick, W.
- Affiliations
- University of the West of England (GB)
- Venue
- Journal of Advanced Nursing
- Publisher
- Wiley
- Published
- 2004-11-03
- Volume
- 48
- Issue
- 5
- Pages
- 443-453
- ISSN
- 0309-2402 (ISSN-L)
- 1365-2648
- OpenAlex
- W2067644418
- Cited by
- 286
- References
- 22
- Citations by year
- 2026: 9 · 2025: 10 · 2024: 6 · 2023: 11 · 2022: 14 · 2021: 19 · 2020: 17 · 2019: 13 · 2018: 27 · 2017: 12 · 2016: 11 · 2015: 8 · 2014: 11 · 2013: 13 · 2012: 26
- FWCI
- 8.51
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- Journal of Advanced Nursing (publishedVersion)
- PubMed (publishedVersion)
- UWE Research Repository (UWE Bristol) (submittedVersion, cc-by)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Body Image and Dysmorphia Studies
- Health Sciences › Medicine › Dermatology › Dermatologic Treatments and Research
- Health Sciences › Medicine › Psychiatry and Mental health › Mental Health Treatment and Access
- Keywords
- body image, psychosocial distress, social anxiety, social avoidance, quality of life, patient satisfaction, nursing staff training, psychosocial needs, outpatient care, anxiety and depression
- MeSH terms
- Congenital Abnormalities, Adolescent, Adult, Aged, Aged, 80 and over, Analysis of Variance, Anxiety, Body Image, Cross-Sectional Studies, England, Female, Humans, Life Style, Male, Middle Aged, Quality of Life, Stress, Psychological, Wounds and Injuries, Patient Satisfaction
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