Body image concerns in patients with an implantable cardioverter defibrillator: a scoping review
Open accessAbstract
BACKGROUND: Patients with an implantable cardioverter defibrillator (ICD) retain a scar and a bump at the site of implant. This may lead to body image concerns (BICs) that influence patients' quality of life. Few studies have examined the prevalence and impact of BICs postimplant, prompting us to conduct a scoping review of the field. METHODS: We searched the Medline, Embase, PsycINFO, and Cinahl databases in August 2016 and repeated in May 2017. Included were studies reporting on patients ≥ 18 years, an ICD implant (transvenous, subcutaneous, or ICD with cardiac resynchronization therapy [CRT-D]), reporting on BICs, and published in peer-reviewed English-language journals. We excluded nonsystematic reviews, opinion pieces/letters, case studies, conference abstracts, PhD dissertations, protocol papers, studies of ICD shock treatment of atrial fibrillation, and of abdominally or submammary implanted ICDs. RESULTS: A total of 40 articles were included: 16 qualitative and 24 quantitative. None of the included studies had BICs as their primary endpoint. Results showed that BICs are present in various degrees in the ICD population and can be attributed to the visibility of the ICD (the scar and bump). Women and younger patients had greater problems with BICs, although men also had concerns. Two items of the "Florida Patient Acceptance Survey" were the most frequently used to assess BICs. CONCLUSION: BICs were present among ICD patients, but the degree of impact on their lives varied. There is a need for developing a BICs questionnaire to examine the prevalence of BICs and the potential impact on patients' lives in longitudinal studies.
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Cites
Qualitative research in health care: Analysing qualitative data
Pope, C. (2000) · BMJ · doi:10.1136/bmj.320.7227.114 · Cited by 8,131 · see citing works
Guidance for conducting systematic scoping reviews
Peters, M. D. J., Godfrey, C. M., Khalil, H., McInerney, P., Parker, D., & Soares, C. B. (2015) · International Journal of Evidence-Based Healthcare · doi:10.1097/xeb.0000000000000050 · Cited by 7,472 · see citing works
Moss, A. J., Zaręba, W., Hall, W. J., Klein, H., Wilber, D. J., Cannom, D. S., Daubert, J. P., Higgins, S. L., Brown, M. W., & Andrews, M. L. (2002) · New England Journal of Medicine · doi:10.1056/nejmoa013474 · Cited by 6,885 · see citing works
Amiodarone or an Implantable Cardioverter–Defibrillator for Congestive Heart Failure
Bardy, G. H., Lee, K. L., Mark, D. B., Poole, J. E., Packer, D. L., Boineau, R., Domanski, M., Troutman, C., Anderson, J., Johnson, G., et al. (2005) · New England Journal of Medicine · doi:10.1056/nejmoa043399 · Cited by 6,552 · see citing works
Validating the SF-36 health survey questionnaire: new outcome measure for primary care.
Brazier, J. E., Harper, R., Jones, N. M., O’Cathain, A., Thomas, K. J., Usherwood, T. P., & Westlake, L. (1992) · BMJ · doi:10.1136/bmj.305.6846.160 · Cited by 4,660 · see citing works
DiMatteo, M. R., Lepper, H. S., & Croghan, T. W. (2000) · Archives of Internal Medicine · doi:10.1001/archinte.160.14.2101 · Cited by 4,177 · see citing works
The AVID Investigators (1997) · New England Journal of Medicine · doi:10.1056/nejm199711273372202 · Cited by 3,221 · see citing works
A scoping review on the conduct and reporting of scoping reviews
Tricco, A. C., Lillie, E., Zarin, W., O’Brien, K., Colquhoun, H., Kastner, M., Levac, D., Ng, C., Sharpe, J. P., Wilson, K., et al. (2016) · BMC Medical Research Methodology · doi:10.1186/s12874-016-0116-4 · Cited by 2,250 · see citing works
Grabe, S., Ward, L. M., & Hyde, J. S. (2008) · Psychological Bulletin · doi:10.1037/0033-2909.134.3.460 · Cited by 2,053 · see citing works
Mond, H. G., & Proclemer, A. (2011) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2011.03150.x · Cited by 992 · see citing works
Raatikainen, M. J. P., Arnar, D. O., Merkely, B. P., Nielsen, J. C., Hindricks, G., Heidbüchel, H., & Camm, A. J. (2017) · EP Europace · doi:10.1093/europace/eux258 · Cited by 323 · see citing works
Altered body image: appearance‐related concerns of people with visible disfigurement
Rumsey, N., Clarke, A., White, P., Wyn‐Williams, M., & Garlick, W. (2004) · Journal of Advanced Nursing · doi:10.1111/j.1365-2648.2004.03227.x · Cited by 286 · see citing works
Carr, T., Moss, T., & Harris, D. (2005) · British Journal of Health Psychology · doi:10.1348/135910705x27613 · Cited by 248 · see citing works
Carroll, C., Booth, A., & Lloyd-Jones, M. (2012) · Qualitative Health Research · doi:10.1177/1049732312452937 · Cited by 248 · see citing works
Raatikainen, M. J. P., Arnar, D. O., Zeppenfeld, K., et al. (2015) · EP Europace · doi:10.1093/europace/euu300 · Cited by 180 · see citing works
Bilge, A. K., Özben, B., Demircan, S., CINAR, M., Yılmaz, E., & Adalet, K. (2006) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2006.00409.x · Cited by 179 · see citing works
Measuring Patient Acceptance of Implantable Cardiac Device Therapy:
BURNS, J. L., Serber, E. R., Keim, S. G., & Sears, S. F. (2005) · Journal of Cardiovascular Electrophysiology · doi:10.1046/j.1540-8167.2005.40134.x · Cited by 170 · see citing works
Psychosocial Outcome after ICD Implantation: A Current Perspective
Heller, S. S., Ormont, M. A., Lidagoster, L., Sciacca, R. R., & Steinberg, J. S. (1998) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.1998.tb00179.x · Cited by 166 · see citing works
Participatory Design, User Involvement and Health IT Evaluation
Andre, K., & Christian, N. (2016) · Studies in Health Technology and Informatics · doi:10.3233/978-1-61499-635-4-139 · Cited by 166 · see citing works
Hegel, M. T., Griegel, L. E., Black, C., Goulden, L., & Ozahowski, T. (1997) · The International Journal of Psychiatry in Medicine · doi:10.2190/1g9v-eqmd-mtlq-e0bw · Cited by 138 · see citing works
Thorne, S. E. (2016) · Qualitative Health Research · doi:10.1177/1049732316679370 · Cited by 134 · see citing works
Duru, F., Büchi, S., Klaghofer, R., Mattmann, H., Sensky, T., Buddeberg, C., & Candinas, R. (2001) · Heart · doi:10.1136/heart.85.4.375 · Cited by 128 · see citing works
Quality of life in implanted cardioverter defibrillator recipients: The impact of a device shock
Carroll, D. L., & Hamilton, G. A. (2005) · Heart & Lung · doi:10.1016/j.hrtlng.2004.10.002 · Cited by 127 · see citing works
Quality‐of‐Life in Patients Receiving Implantable Cardioverter Defibrillators At or Before Age 40
Dubin, A. M., Batsford, W. P., LEWIS, R. J., & Rosenfeld, L. E. (1996) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.1996.tb03180.x · Cited by 108 · see citing works
An updated review of implantable cardioverter/defibrillators, induced anxiety, and quality of life.
Bostwick, J. M., & Sola, C. L. (2007) · Psychiatric Clinics of North America · doi:10.1016/j.psc.2007.07.002 · Cited by 101 · see citing works
Patient Perceptions, Physician Communication, and the Implantable Cardioverter-Defibrillator
Hauptman, P. J., Chibnall, J. T., Guild, C., & Armbrecht, E. S. (2013) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2013.3171 · Cited by 94 · see citing works
Jørgensen, C. H. R., Thomsen, T. G., Ross, L., Dietz, S. M., Therkildsen, S., Grøenvold, M., Rasmussen, C. L., & Johnsen, A. T. (2017) · Qualitative Health Research · doi:10.1177/1049732317721477 · Cited by 92 · see citing works
Tagney, J., James, J. E., & Albarran, J. W. (2003) · European Journal of Cardiovascular Nursing · doi:10.1016/s1474-5151(03)00061-6 · Cited by 83 · see citing works
James, C. A., Tichnell, C., Murray, B., Daly, A., Sears, S. F., & Calkins, H. (2012) · Circulation: Cardiovascular Genetics · doi:10.1161/circgenetics.111.960898 · Cited by 72 · see citing works
Patient and spouse acceptance and adaptation to implantable cardioverter defibrillators
Pycha, C., Calabrese, J. R., Gulledge, A. D., et al. (1990) · Cleveland Clinic Journal of Medicine · doi:10.3949/ccjm.57.5.441 · Cited by 69 · see citing works
Dougherty, C. M., Benoliel, J. Q., & Bellin, C. (2000) · Heart & Lung · doi:10.1067/mhl.2000.105759 · Cited by 68 · see citing works
Piotrowicz, K., Noyes, K., Lyness, J. M., McNitt, S., Andrews, M. L., Dick, A., Hall, W. J., Moss, A. J., & Zareba, W. (2006) · European Heart Journal · doi:10.1093/eurheartj/ehl485 · Cited by 68 · see citing works
Gender Differences in Anxiety and Concerns about the Cardioverter Defibrillator
Spindler, H., Johansen, J. B., Andersen, K., Mortensen, P. T., & Pedersen, S. S. (2009) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2009.02334.x · Cited by 66 · see citing works
Self-citationWalker, R. L., Campbell, K. A., Sears, S. F., Glenn, B. A., SOTILE, R. O., Curtis, A. B., & CONTI, J. B. (2004) · Clinical Cardiology · doi:10.1002/clc.4960271019 · Cited by 65 · see citing works
Jesus, A. Y. D., Ricciardelli, L. A., Frisén, A., Smolak, L., Yager, Z., Fuller‐Tyszkiewicz, M., Diedrichs, P. C., Franko, D. L., & Gattario, K. H. (2015) · Eating Behaviors · doi:10.1016/j.eatbeh.2015.04.004 · Cited by 63 · see citing works
Vazquez, L. D., Kuhl, E. A., Shea, J. B., Kirkness, A., Lemon, J., Whalley, D. W., CONTI, J. B., & Sears, S. F. (2008) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2008.01223.x · Cited by 62 · see citing works
Luyster, F. S., Hughes, J. W., Waechter, D., & Josephson, R. (2006) · Psychosomatic Medicine · doi:10.1097/01.psy.0000227722.92307.35 · Cited by 61 · see citing works
Mastenbroek, M. H., Versteeg, H., Zijlstra, W. P., Meine, M., Spertus, J. A., & Pedersen, S. S. (2014) · European Journal of Heart Failure · doi:10.1002/ejhf.55 · Cited by 59 · see citing works
Self-citationPedersen, S. S., Spindler, H., Johansen, J. B., Mortensen, P. T., & Sears, S. F. (2008) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2008.01158.x · Cited by 58 · see citing works
Self-citationGroeneveld, P. W., Matta, M. A., Suh, J. J., YANG, F., & Shea, J. A. (2007) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2007.00694.x · Cited by 53 · see citing works
VAZQUEZ, L. D., CONTI, J. B., & SEARS, S. F. (2010) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2010.02787.x · Cited by 51 · see citing works
Burke, L. J. (1996) · Heart & Lung · doi:10.1016/s0147-9563(96)80077-x · Cited by 51 · see citing works
Fridlund, Lindgren, E., Ivarsson, et al. (2000) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.2000.00335.x · Cited by 50 · see citing works
Living with an implantable cardioverter defibrillator: The patients' experience.
Humphreys, N. K., Lowe, R., Rance, J., & Bennett, P. (2016) · Heart & lung : the journal of critical care · doi:10.1016/j.hrtlng.2015.10.001 · Cited by 48 · see citing works
Stressors and coping strategies of patients with automatic implantable cardioverter defibrillators
Kuiper, R., & Nyamathi, A. (1991) · The Journal of Cardiovascular Nursing · doi:10.1097/00005082-199104000-00009 · Cited by 47 · see citing works
Bedair, R., Babu‐Narayan, S. V., Dimopoulos, K., Quyam, S., Doyle, A., Swan, L., Gatzoulis, M. Α., & Wong, T. (2014) · International Journal of Cardiology · doi:10.1016/j.ijcard.2014.12.028 · Cited by 43 · see citing works
Quality of life predicts one-year survival in patients with implantable cardioverter defibrillators
Kao, C., Friedmann, E., & Thomas, S. A. (2010) · Quality of Life Research · doi:10.1007/s11136-010-9596-6 · Cited by 42 · see citing works
Sowell, L. V., Kuhl, E. A., Sears, S. F., Klodell, C. T., & CONTI, J. B. (2006) · Journal of Women s Health · doi:10.1089/jwh.2006.15.830 · Cited by 42 · see citing works
The Experience of Interferon-Based Treatments for Hepatitis C Infection
Hopwood, M., & Treloar, C. (2005) · Qualitative Health Research · doi:10.1177/1049732304273932 · Cited by 41 · see citing works
McDonough, A. (2009) · European Journal of Cardiovascular Nursing · doi:10.1016/j.ejcnurse.2009.03.002 · Cited by 40 · see citing works
Versteeg, H., Starrenburg, A., Denollet, J., van der Palen, J. A. M., Sears, S. F., & Pedersen, S. S. (2012) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2011.03299.x · Cited by 39 · see citing works
Self-citationOoi, S. L., He, H. G., Dong, Y., & Wang, W. (2016) · Health and Quality of Life Outcomes · doi:10.1186/s12955-016-0561-0 · Cited by 38 · see citing works
Starrenburg, A., Pedersen, S. S., van den Broek, K., Kraaier, K., SCHOLTEN, M. F., & van der Palen, J. A. M. (2014) · Pacing and Clinical Electrophysiology · doi:10.1111/pace.12357 · Cited by 37 · see citing works
Self-citationUncertainty is a major concern for patients with implantable cardioverter defibrillators
Flemme, I., Hallberg, U. E., Ingela, J., & Strömberg, A. (2011) · Heart & Lung · doi:10.1016/j.hrtlng.2011.02.003 · Cited by 35 · see citing works
Brouwers, C. J., van den Broek, K. C., Denollet, J., & Pedersen, S. S. (2011) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2011.03084.x · Cited by 35 · see citing works
Self-citationHabibović, M., van den Broek, K. C., Theuns, D. A. M. J., Jordaens, L. J. L. M., Alings, M., van der Voort, P. H., & Pedersen, S. S. (2011) · EP Europace · doi:10.1093/europace/eur252 · Cited by 34 · see citing works
Self-citationSubmammary Pacemakers and ICDs in Women: Long-Term Follow-up and Patient Satisfaction
GIUDICI, M. C., CARLSON, J. I., KRUPA, R. K., et al. (2010) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2010.02871.x · Cited by 32 · see citing works
Rahmawati, A., Chishaki, A. S., Sawatari, H., Tsuchihashi‐Makaya, M., Ohtsuka, Y., Nakai, M., Miyazono, M., Hashiguchi, N., Sakurada, H., Takemoto, M., et al. (2013) · Circulation Journal · doi:10.1253/circj.cj-12-1116 · Cited by 32 · see citing works
Pre-ICD Illness Beliefs Affect Postimplant Perceptions of Control and Patient Quality of Life
Hallas, C., BURKE, J. L., White, D. G., et al. (2009) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2009.02641.x · Cited by 31 · see citing works
Flemme, I., Bolse, K., Ivarsson, A., et al. (2001) · Journal of Clinical Nursing · doi:10.1046/j.1365-2702.2001.00494.x · Cited by 31 · see citing works
Pedersen, S. S., Brouwers, C. J., & Versteeg, H. (2012) · Expert Review of Medical Devices · doi:10.1586/erd.12.31 · Cited by 31 · see citing works
Self-citationGender Differences in Implantable Cardioverter‐Defibrillator Patients at the Time of Insertion
Smith, G., Dunbar, S. B., Valderrama, A. L., & Viswanathan, B. (2006) · Progress in Cardiovascular Nursing · doi:10.1111/j.0889-7204.2006.04843.x · Cited by 30 · see citing works
Decision Making at the Time of ICD Generator Change
Lewis, K. B., Nery, P. B., & BIRNIE, D. H. (2014) · JAMA Internal Medicine · doi:10.1001/jamainternmed.2014.3435 · Cited by 30 · see citing works
Psychological and clinical problems in young adults with implantable cardioverter-defibrillators.
Wójcicka, M., Lewandowski, M., Bąk, E. S., et al. (2008) · PubMed · Cited by 30 · see citing works
Birnie, D. H., Sears, S. F., Green, M. S., Lemery, R., Gollob, M. H., & AMYOTTE, B. (2008) · EP Europace · doi:10.1093/europace/eun317 · Cited by 26 · see citing works
Çınar, F. İ., Tosun, N., & Köse, S. (2013) · Journal of Clinical Nursing · doi:10.1111/jocn.12201 · Cited by 25 · see citing works
Marshall, P., Malecki-Ketchell, A., & Maclean, J. (2011) · European Journal of Cardiovascular Nursing · doi:10.1016/j.ejcnurse.2011.06.010 · Cited by 25 · see citing works
Ladwig, K., Deisenhofer, I., Simon, H., Schmitt, C., & Baumert, J. J. (2005) · Pacing and Clinical Electrophysiology · doi:10.1111/j.1540-8159.2005.09509.x · Cited by 24 · see citing works
Disease-Specific Quality of Life—Patient Acceptance
Wilson, M. H., Engelke, M. K., Sears, S. F., et al. (2013) · The Journal of Cardiovascular Nursing · doi:10.1097/jcn.0b013e31824e072e · Cited by 21 · see citing works
Self-reported Adjustment to Implanted Cardiac Devices
Beery, T. A., Baas, L. S., & Henthorn, C. (2007) · The Journal of Cardiovascular Nursing · doi:10.1097/01.jcn.0000297390.11324.46 · Cited by 20 · see citing works
A woman's experience: living with an implantable cardioverter defibrillator
Conelius, J. (2014) · Applied Nursing Research · doi:10.1016/j.apnr.2014.11.002 · Cited by 18 · see citing works
Aesthetic Subpectoral Placement of Implantable Cardioverter Defibrillators
Persichetti, P., Brunetti, B., Cagli, B., et al. (2012) · Annals of Plastic Surgery · doi:10.1097/sap.0b013e3182590a0f · Cited by 18 · see citing works
Illness experience: living with arrhythmia and implantable cardioverter defibrillator.
Saito, N., Taru, C., & Miyawaki, I. (2012) · PubMed · doi:10.24546/81005030 · Cited by 17 · see citing works
Miller, J., Thylén, I., & Moser, D. K. (2015) · Pacing and Clinical Electrophysiology · doi:10.1111/pace.12786 · Cited by 16 · see citing works
Submammary Device Implantation in Women: A Step‐by‐Step Approach
GIUDICI, M. C., MEIERBACHTOL, C. J., PAUL, D. L., et al. (2012) · Journal of Cardiovascular Electrophysiology · doi:10.1111/jce.12033 · Cited by 15 · see citing works
Experiences of Young Adults With Pacemakers and/or Implantable Cardioverter Defibrillators
Larimer, K. A., Durmus, J., & Florez, E. (2015) · The Journal of Cardiovascular Nursing · doi:10.1097/jcn.0000000000000280 · Cited by 15 · see citing works
Development of the Implanted Devices Adjustment Scale
Beery, T. A., Baas, L. S., Matthews, H., et al. (2005) · Dimensions of Critical Care Nursing · doi:10.1097/00003465-200509000-00012 · Cited by 12 · see citing works
Long-term performance of submammary defibrillator system
Obeyesekere, M., Kamberi, S., Youngs, N., et al. (2010) · EP Europace · doi:10.1093/europace/euq152 · Cited by 12 · see citing works
Implantable cardioverter defibrillators: even better than we thought?: Table 1
Buckley, U., & Shivkumar, K. (2015) · European Heart Journal · doi:10.1093/eurheartj/ehv158 · Cited by 7 · see citing works
Complaints concerning communication reported by users of healthcare in a specific region in Sweden
Hadziabdic, E., & Higginbottom, G. A. (2015) · Journal of Hospital Administration · doi:10.5430/jha.v4n3p39 · Cited by 5 · see citing works
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Self-citation
- Authors
- Frydensberg, V. S., Skovbakke, S. J., Pedersen, S. S., & Kok, R. N.
- Affiliations
- Odense University Hospital (DK)
- University of Southern Denmark (DK)
- Corresponding author
- Pedersen, Susanne S.
- Venue
- Pacing and Clinical Electrophysiology
- Publisher
- Wiley
- Published
- 2018-08-06
- Volume
- 41
- Issue
- 9
- Pages
- 1235-1260
- ISSN
- 0147-8389 (ISSN-L)
- 1540-8159
- OpenAlex
- W2808776372
- Cited by
- 32
- References
- 80
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 3 · 2023: 5 · 2022: 4 · 2021: 6 · 2020: 6 · 2019: 2 · 2018: 1 · 2015: 1
- FWCI
- 0.70
- Type
- journal article
- Language
- en
- Open access
- Licence
- Locations
- Pacing and Clinical Electrophysiology (publishedVersion)
- PubMed (publishedVersion)
- University of Southern Denmark Research Portal (University of Southern Denmark) (acceptedVersion, cc-by-nc)
- Topics
- Health Sciences › Medicine › Cardiology and Cardiovascular Medicine › Cardiac pacing and defibrillation studies
- Social Sciences › Psychology › Clinical Psychology › Body Image and Dysmorphia Studies
- Health Sciences › Medicine › Cardiology and Cardiovascular Medicine › Cardiac Health and Mental Health
- Keywords
- implantable cardioverter-defibrillator, body image concern, quality of life, CRT-D, patient acceptance, sex differences, age differences, body image questionnaire
- MeSH terms
- Body Image, Cicatrix, Humans, Quality of Life, Defibrillators, Implantable
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