Cited by 208Mental Health and Patient InvolvementCommunity Health and DevelopmentHealth Policy Implementation Science

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Health researchers’ attitudes towards public involvement in health research

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Thompson, Jill, Barber, Rosemary, Ward, Paul R., Boote, Jonathan D., Cooper, Cindy L., Armitage, Christopher J., Jones, Georgina·2009·Health Expectations

DOI 10.1111/j.1369-7625.2009.00532.xPMC PMC5060486

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Abstract

OBJECTIVE: To investigate health researchers' attitudes to involving the public in research. BACKGROUND: Public involvement in research is encouraged by the Department of Health in the UK. Despite this, the number of health researchers actively involving the public in research appears to be limited. There is little research specifically addressing the attitudes of health researchers towards involving the public: how they interpret the policy, what motivates and de-motivates them and what their experiences have been to date. DESIGN: A qualitative research design, using semi-structured telephone interviews. SETTING AND PARTICIPANTS: Fifteen purposively sampled UK-based University health researchers were the participants. Interviews were conducted over the telephone. FINDINGS: The participants suggested varying constructions of public involvement in research. Arguments based on moral and political principles and consequentialist arguments for involving the public in research were offered and most participants highlighted the potential benefits of involving the public. However, feelings of apprehension expressed by some participants imply that a number of researchers may still be uncomfortable with involving the public, as it presents a different way of working.

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Additional file 3 of Patient and public involvement in randomised clinical trials: a mixed-methods study of a clinical trials unit to identify good practice, barriers and facilitators
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Additional file 1 of Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation
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Additional file 1 of What motivates public collaborators to become and stay involved in health research?
Røssvoll, T. B., Liabo, K., Hanssen, T. A., Rosenvinge, J. H., Sundkvist, E., & Pettersen, G. (2024) · Figshare · doi:10.6084/m9.figshare.25210486
Additional file 2 of Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation
Pierce, M., Foley, L., Kiely, B., Croke, A., Larkin, J., Smith, S. M., Clyne, B., & Murphy, E. (2024) · Figshare · doi:10.6084/m9.figshare.26644618
Additional file 1 of Patient and public involvement in randomised clinical trials: a mixed-methods study of a clinical trials unit to identify good practice, barriers and facilitators
Selman, L. E., Clement, C., Douglas, M., Douglas, K. C., Taylor, J., Metcalfe, C., Lane, J. A., & Horwood, J. (2021) · Figshare · doi:10.6084/m9.figshare.16863841
Additional file 4 of Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation
Pierce, M., Foley, L., Kiely, B., Croke, A., Larkin, J., Smith, S. M., Clyne, B., & Murphy, E. (2024) · Figshare · doi:10.6084/m9.figshare.26644624
Additional file 3 of Embedding formal and experiential public and patient involvement training in a structured PhD programme: process and impact evaluation
Pierce, M., Foley, L., Kiely, B., Croke, A., Larkin, J., Smith, S. M., Clyne, B., & Murphy, E. (2024) · Figshare · doi:10.6084/m9.figshare.26644621

Authors: Thompson, J., Barber, R., Ward, P. R., Boote, J. D., Cooper, C. L., Armitage, C. J., & Jones, G.
Affiliations: University of Sheffield (GB)
Flinders University (AU)
Corresponding author: Thompson, Jill
ORCID: Thompson, Jill
Barber, Rosemary
Ward, Paul R.
Boote, Jonathan D.
Cooper, Cindy L.
Armitage, Christopher J.
Jones, Georgina
Venue: Health Expectations
Publisher: Wiley
Published: 2009-05-18
Volume: 12
Issue: 2
Pages: 209-220
ISSN: 1369-6513 (ISSN-L)
1369-7625
DOI: 10.1111/j.1369-7625.2009.00532.x
PMC: PMC5060486
OpenAlex: W2161157810
Cited by: 208
References: 46
Citations by year: 2026: 7 · 2025: 11 · 2024: 9 · 2023: 15 · 2022: 15 · 2021: 25 · 2020: 16 · 2019: 20 · 2018: 13 · 2017: 8 · 2016: 9 · 2015: 9 · 2014: 14 · 2013: 13 · 2012: 7
FWCI: 14.52
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: onlinelibrary.wiley.com/termsAndConditions#vor (vor)
Locations: Health Expectations (publishedVersion)
Europe PMC (PubMed Central) (publishedVersion)
PubMed Central (publishedVersion)
PubMed (publishedVersion)
Research Explorer (The University of Manchester) (publishedVersion)
Flinders Academic Commons (Flinders University) (submittedVersion)
University of Hertfordshire Research Archive (University of Hertfordshire) (submittedVersion)
Topics: Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Community Health and Development
Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
Keywords: public involvement in research, citizen participation, research ethics, health research policy
MeSH terms: Attitude, Community Participation, Female, United Kingdom, Health Services Research, Humans, Interviews as Topic, Male, Research Personnel

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