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Cited by 47Mental Health and Patient InvolvementCommunity Health and DevelopmentPatient Satisfaction in Healthcare

Patient involvement and the politics of methodology

Kreindler, Sara A.·2009·Canadian Public Administration
DOI 10.1111/j.1754-7121.2009.00062.x
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Abstract

Abstract: The idea of including patient perspectives in health‐services planning and evaluation is increasingly embraced by Canadian health authorities. This article argues that the validity of a particular method is not simply a matter of its scientific rigour; rather, it depends on what one considers to be the meaning and purpose of patient involvement. Perspectives on patient involvement can be conceptualized in terms of a continuum from consumerism (patients as customers who deserve to be satisfied) to participatory democracy (patients as citizens with a right to participate in shaping public services). These ideologies are associated with different methods (market research versus participatory research) and, crucially, yield different results. Evidence from diverse sources suggests that, as methods move across the continuum towards participatory democracy, 1) participants move from expressing simple opinions to considering broader issues, context and complexity, and 2) participants' perspectives shift from individualism (personal interest) towards collectivism (common interest). As well, different approaches have different strengths and risks in terms of the ultimate goal of patient involvement: change to services. This article outlines the implications of the “politics of methodology” for decisions about how best to involve patients in the design and evaluation of health services. Sommaire : L'inclusion des perspectives des patients dans la planification et l'évaluation des services de santé est une idée à laquelle adhèrent de plus en plus les autorités sanitaires canadiennes. Le présent article soutient que la validité d'une méthode particulière ne dépend pas simplement de sa rigueur scientifique, mais plutôt de ce que l'on considère être la signification et le but de la participation des patients. Les perspectives sur la participation des patients peuvent être conceptualisées en termes d'un continuum, allant du consommateurisme (les patients étant considérés comme des clients qui méritent que l'on réponde à leurs besoins) à une démocratie participative (les patients étant considérés comme des citoyens ayant le droit de participer au façonnement des services publics). Ces idéologies sont associées à différentes méthodes (recherche de marché versus recherche participative) et, essentiellement, donnent lieu à des résultats différents. Comme le laissent entendre différentes sources, alors que les méthodes progressent dans la direction d'une démocratie participative, 1) les participants délaissent l'expression de simples opinions pour aborder des questions, un contexte et une complexité plus vastes, et 2) les perspectives des participants passent de l'individualisme (intérêts personnels) au collectivisme (intérêt commun). En outre, différentes approches présentent des points forts et des risques différents pour ce qui est de l'objectif ultime de la participation des patients, à savoir les changements à apporter aux services. Le présent article décrit brièvement les implications de la « politique de méthodologie » pour ce qui est des décisions concernant le meilleur moyen de faire intervenir les patients dans la conception et l'évaluation des services de santé.

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Crossref · 10.1111/j.1754-7121.2009.00062.x

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  • Kreindler argues that the consumer paradigm is predicated on consumer satisfaction, so that methods for implementing PPI will centre on feedback.

    “Kreindler 27 also argues that the consumer paradigm is predicated on consumer satisfaction, so that methods for implementing PPI will centre on feedback.”

    From ReseArch with Patient and Public invOlvement: a RealisT evaluation – the RAPPORT study (2015) · cites this paper as [27]

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Authors
Kreindler, S. A.
Corresponding author
Kreindler, Sara A.
ORCID
Kreindler, Sara A.
Venue
Canadian Public Administration
Publisher
Wiley
Published
2009-03
Volume
52
Issue
1
Pages
113-124
ISSN
  • 0008-4840 (ISSN-L)
  • 1754-7121
DOI
10.1111/j.1754-7121.2009.00062.x
OpenAlex
W2145010251
Cited by
47
References
38
Citations by year
2024: 1 · 2023: 1 · 2021: 24 · 2020: 1 · 2018: 1 · 2017: 1 · 2016: 2 · 2015: 5 · 2014: 4 · 2013: 3 · 2012: 2
FWCI
2.43
Type
journal article
Language
en
Open access
closed
Licence
onlinelibrary.wiley.com/termsAndConditions#vor (vor, 37 d)
Locations
Canadian Public Administration (publishedVersion)
Topics
  • Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
  • Health Sciences › Health Professions › General Health Professions › Community Health and Development
  • Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
Keywords
patient involvement, health planning, health service evaluation, consumerism, participatory democracy, market analysis, participatory research, individualism-collectivism, patient perspectives, health policy

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