Cited by 92Sexual function and dysfunction studiesObesity and Health PracticesSex and Gender in Healthcare

Perceived stereotyping and seeking care for chronic vulvar pain

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Nguyen, Ruby H. N., Turner, Rachael M., Rydell, Sarah A., MacLehose, Richard F., Harlow, Bernard L.·2013·Pain Medicine

Abstract

OBJECTIVES: We examined stereotyping of chronic pain sufferers among women aged 18-40 years and determined whether perceived stereotyping affects seeking care for women with chronic vulvar pain. DESIGN: Cross-sectional study using a community-based survey of vulvodynia asking if "Doctors think that people with chronic pain exaggerate their pain," and if "People believe that vulvar pain is used as an excuse to avoid having sex". SETTING AND PARTICIPANTS: Twelve thousand eight hundred thirty-four women aged 18-40 years in metropolitan Minneapolis/St. Paul, Minnesota. OUTCOME MEASURES: Women were considered to have a history of chronic vulvar pain if they reported vulvar burning lasting more than 3 months or vulvar pain on contact. RESULTS: Four thousand nine hundred eighty-seven (38.9%) women reported a chronic pain condition; 1,651 had chronic vulvar pain. Women experiencing chronic pain were more likely than those without to perceive stereotyping from both doctors and others; a dose-response with the number of pain conditions existed. Women with chronic vulvar pain were more likely to believe that people think vulvar pain is an excuse to avoid intercourse. Half of the women with chronic vulvar pain did not seek medical care for it; of these, 40.4% perceived stereotyping from doctors. However, it was women who actually sought care (45.1%) who were more likely to feel stigmatized by doctors (adjusted relative risk = 1.11, 95% confidence interval: 1.01-1.23). CONCLUSIONS: Perceived negative stereotyping among chronic pain sufferers is common, particularly negative perceptions about physicians. In fact, chronic vulvar pain sufferers who felt stigmatized were more likely to have sought care than those who did not feel stigmatized.

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  • Approximately 40% of women with vulvodynia refrain altogether from seeking help.

    “Approximately 40 % of women with vulvodynia refrain altogether from seeking help, in many cases because of stigma associated with the conditions [7, 19, 20]”

    From A feasibility trial of online Acceptance and Commitment Therapy for women with provoked vestibulodynia (2023) · cites this paper as [20]

    The Results report that 50.1% of women with chronic vulvar pain sought care, so about half—not approximately 40%—did not. More importantly, the Discussion says the data do not indicate that fear of physician stereotyping kept women from seeking care; perceived stereotyping was higher among women who sought care. The paper therefore contradicts the sentence’s suggested stigma explanation. (LLM, conf=0.88)

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  • The substantial stigma associated with vulvar pain may explain why MSP women, despite having access to care, were less likely to seek treatment.

    “This may emphasize the substantial stigma associated with vulvar pain given that these women choose to seek care for other medical problems,9 but apparently do not convey to their healthcare providers the presence of vulvar pain.”

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Authors
Nguyen, R. H. N., Turner, R. M., Rydell, S. A., MacLehose, R. F., & Harlow, B. L.
Affiliations
University of Minnesota (US)
Corresponding author
Nguyen, Ruby H. N.
Venue
Pain Medicine
Published
2013-10
Volume
14
Issue
10
Pages
1461-1467
ISSN
  • 1526-2375 (ISSN-L)
  • 1526-4637
OpenAlex
W2151650241
Cited by
92
References
36
Citations by year
2026: 3 · 2025: 6 · 2024: 8 · 2023: 11 · 2022: 8 · 2021: 8 · 2020: 7 · 2019: 7 · 2018: 8 · 2017: 11 · 2016: 6 · 2015: 4 · 2014: 4 · 2013: 1
FWCI
3.54
Type
journal article
Language
en
Open access
Locations
  • Pain Medicine (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
Funders
NIH/NICHD (R01-HD058608)
Topics
  • Health Sciences › Medicine › Psychiatry and Mental health › Sexual function and dysfunction studies
  • Health Sciences › Health Professions › Pharmacy › Obesity and Health Practices
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Sex and Gender in Healthcare
Keywords
chronic vulvar pain, vulvodynia, help-seeking, chronic pain, women's health, sexual avoidance
MeSH terms
Adolescent, Adult, Cross-Sectional Studies, Female, Humans, Stereotyping, Young Adult, Vulvodynia, Chronic Pain

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