Cited by 810Survey Methodology and NonresponseMedication Adherence and ComplianceElectronic Health Records Systems

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Patient non-compliance with paper diaries

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Stone, Arthur A, Shiffman, Saul, Schwartz, Joseph E, Broderick, Joan E, Hufford, Michael R·2002·BMJ

DOI 10.1136/bmj.324.7347.1193PMC PMC111114

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Abstract

Doctors often ask patients to recall recent health experiences, such as pain, fatigue, and quality of life. 1 Research has shown, however, that recall is unreliable and rife with inaccuracies and biases. 2 Recognition of recall's shortcomings has led to the use of diaries, which are intended to capture experiences close to the time of occurrence, thus limiting recall bias and producing more accurate data.3 The rationale for using diaries would be undermined if patients failed to complete diaries according to protocol.In this study we used a newly developed paper diary that could objectively record when patients made diary entries in order to compare patients' reported and actual compliance with diary keeping.For comparison, we also used an electronic diary designed to enhance compliance in order to assess what compliance rates might be achieved.

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Shiffman, 2001, Subject experience diaries in clinical research. Part 1. The patient experience movement, Appl Clin Trials, 10, 46

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Authors: Stone, A. A., Shiffman, S., Schwartz, J. E., Broderick, J. E., & Hufford, M. R.
Affiliations: Stony Brook University (US)
Corresponding author: Stone, Arthur A
ORCID: Stone, Arthur A
Broderick, Joan E
Venue: BMJ
Publisher: BMJ
Published: 2002-05-18
Volume: 324
Issue: 7347
Pages: 1193-1194
ISSN: 0007-1447 (ISSN-L)
0959-8138
1468-5833
DOI: 10.1136/bmj.324.7347.1193
PMC: PMC111114
OpenAlex: W2135374245
Semantic Scholar: fa7362653cde1df677f2bce06810aebf6ca6b177
Cited by: 810
References: 10
Citations by year: 2026: 12 · 2025: 17 · 2024: 19 · 2023: 18 · 2022: 36 · 2021: 25 · 2020: 40 · 2019: 27 · 2018: 43 · 2017: 26 · 2016: 34 · 2015: 43 · 2014: 44 · 2013: 41 · 2012: 38
FWCI: 135.02
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: www.bmj.com/company/legal-information/terms-conditions/legal-information/tdm-licencepolicy (tdm)
Locations: BMJ (publishedVersion)
PubMed Central (publishedVersion)
PubMed (publishedVersion)
Funders: National Cancer Institute (R01CA085819, CA-85819)
Topics: Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
Health Sciences › Medicine › Family Practice › Medication Adherence and Compliance
Health Sciences › Health Professions › Health Information Management › Electronic Health Records Systems
Keywords: medication adherence, paper diaries, electronic diary, recall bias, patient-reported outcomes, self-monitoring
MeSH terms: Adult, Humans, Medical Records, Intractable Pain, Treatment Refusal

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