Patient non-compliance with paper diaries

Handbook of Health Psychology

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The Science of Self-Report

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High-quality clinical databases: breaking down barriers

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Progress in Ambulatory Assessment

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Ecological Momentary Assessment: Real-world, real-time measurement of patient experience.

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Health Information Systems: Design Issues and Analytic Applications

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Clinical Data Bases???Accomplishments and Unrealized Potential

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The daily diary and the questionnaire are not equivalent for the evaluation of bowel habits

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Why brain banking should be regarded as a special type of biobanking: ethical, practical, and data-management challenges

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Measurement of Inflammatory Bowel Disease Symptoms

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Positive emotions from social company in women with persisting subclinical psychosis: lessons from daily life

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The effectiveness of web-based patient education and action and coping plans as an adjunct to patient treatment in physiotherapy: A randomized controlled trial

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The Flow Experiences of People with Chronic Pain

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Can Objective Measurements Improve Treatment Outcomes in Parkinson’s Disease?

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Exploring possibilities for shortening the 22‐item Sino‐Nasal Outcome Test (SNOT‐22) using item response theory

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MRI-Based Radiomic Signature Identifying Secondary Loss of Response to Infliximab in Crohn's Disease

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An Integrated mHealth App for Smoking Cessation in Black Smokers With Anxiety: Protocol for a Randomized Controlled Trial

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Fatigue and Sleep Assessment using Digital Sleep Trackers: Insights from a Multi-Device Pilot Study

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Attentional bias retraining in cigarette smokers attempting smoking cessation (ARTS): Study protocol for a double blind randomised controlled trial

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Mobile diaries – Benchmark against metered measurements: An empirical investigation

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On the Use of Personalization to Enhance Compliance in Experience Sampling

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Implementierung, Akzeptanz und Informationsgehalt eines Ecological Momentary Assessment (EMA)-Ansatzes bei Patienten mit Panikstörung und Agoraphobie

Helbig, S., Lang, T., Swendsen, J., Hoyer, J., & Wittchen, H.-U. (2009) · Zeitschrift für Klinische Psychologie und Psychotherapie · doi:10.1026/1616-3443.38.2.108 · Cited by 12

How to use experience‐sampling technology to understand daily functioning: A practical guide for mental health professionals

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Psychometric equivalence of electronic and telephone completion of the ICIQ modules

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Optimizing electronic capture of patient-reported outcome measures in oncology clinical trials: lessons learned from a qualitative study

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Triggers for Home Epinephrine-Treated Reactions During Oral Immunotherapy for Food Allergy

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Validation of a symptom diary for patients with gastro‐oesophageal reflux disease

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TelEMA: a low-cost and user-friendly telephone assessment platform

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The validity and acceptability of a text-based monitoring system for pediatric asthma studies

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Prospective Measurement of Daily Health Behaviors: Modeling Temporal Patterns in Missing Data, Sexual Behavior, and Substance Use in an Online Daily Diary Study of Gay and Bisexual Men

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Whole blood donors' post‐donation symptoms diminish quickly but are discouraging: Results from 6‐day symptom diaries

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Validity of a Computer Touch-Screen Questionnaire System in Back Patients

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Electroacupuncture for post-stroke overactive bladder: a multi-centre pilot randomized controlled trial

Chen, H., Wang, C., Zhou, M., Chan, P. Y., Yam, L. L., Lam, W. L., Leung, K.-P., Li, S.-W., Tsang, W.-Y., Ng, B. F. L., et al. (2020) · Acupuncture in Medicine · doi:10.1177/0964528420925488 · Cited by 11

Use of an electronic seizure diary in a randomized, controlled trial of natalizumab in adult participants with drug-resistant focal epilepsy

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Harder Than You Think: Misconceptions about Logging Food with Photos versus Text

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An electronic diary versus a paper diary in measuring gastrointestinal symptoms

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Effect of assessment administration method and timing on patient‐reported outcome measures completion and scores: Overview and recommendations

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Event marker compliance in actigraphy

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Association of digital measures and self-reported fatigue: a remote observational study in healthy participants and participants with chronic inflammatory rheumatic disease

Rao, C., Lascio, E. D., Demanse, D., Marshall, N. J., Sopala, M., & Luca, V. D. (2023) · Frontiers in Digital Health · doi:10.3389/fdgth.2023.1099456 · Cited by 12

Comparing the Retrospective Reports of Fatigue Using the Fatigue Symptom Index With Daily Diary Ratings in Women Receiving Chemotherapy for Gynecologic Cancer

Phillips, K. M., Faul, L. A., Small, B. J., Jacobsen, P. B., Apte, S. M., & Jim, H. (2012) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2012.08.008 · Cited by 11

Cognitive defusion versus experiential avoidance in the reduction of smoking behaviour: an experimental and preliminary investigation

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Reducing Avoidable Medication-Related Harm: What Will it Take?

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Collection of Post-treatment PRO Data in Oncology Clinical Trials

Lundy, J. J., Coon, C. D., Fu, A.-C., & Pawar, V. S. (2020) · Therapeutic Innovation & Regulatory Science · doi:10.1007/s43441-020-00195-3 · Cited by 10

The Sensor-Based Physical Analogue Scale as a Novel Approach for Assessing Frequent and Fleeting Events: Proof of Concept

Stieger, S., Schmid, I., Altenburger, P., & Lewetz, D. (2020) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2020.538122 · Cited by 9

Regulatory Acceptance of Patient-Reported Outcome (PRO) Data from Bring-Your-Own-Device (BYOD) Solutions to Support Medical Product Labeling Claims

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EVALUATING PDAS FOR DATA COLLECTION IN FAMILY RESEARCH WITH NON-PROFESSIONAL COUPLES

Bass, B. L., Linney, K. D., Butler, A. B., & Grzywacz, J. G. (2007) · Community Work & Family · doi:10.1080/13668800601110785 · Cited by 10

An assessment of the feasibility and utility of the MS Symptom and Impact Diary (MSSID)

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Collecting Data with Palm Technology: Comparing Preoperative Expectations and Postoperative Satisfaction in Patients Undergoing Total Knee Arthroplasty

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Daily patterns of symptom reporting in families with adolescent children

Michel, G. (2007) · British Journal of Health Psychology · doi:10.1348/135910706x102726 · Cited by 10

Assessment of pain beliefs, coping and function

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Development and Validation of a Bowel Diary for Fecal Incontinence: Comparison With a Questionnaire

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Neuroticism and momentary differentiation of positive and negative affect

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A scoping review of nausea, vomiting and retching measurement methods in children with cancer

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Reshaping the Management of Allergic Rhinitis in Primary Care: Lessons from the COVID-19 Pandemic

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Operationalizing Pain Treatment in the Biopsychosocial Model: Take a Daily “SWEM”—Socialize, Work, Exercise, Meditate

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Using PhenX toolkit measures and other tools to assess urban/rural differences in health behaviors: recruitment methods and outcomes

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Design of an ecological momentary assessment study of exposure to radiofrequency electromagnetic fields and non-specific physical symptoms

Bogers, R. P., Bolte, J. F. B., Houtveen, J. H., Lebret, E., Strien, R. T. V., Schipper, C. M. A., Alkadhimi, M., Baliatsas, C., & KAMP, I. V. (2013) · BMJ Open · doi:10.1136/bmjopen-2013-002933 · Cited by 9

Best Practices for Avoiding Paper Backup When Implementing Electronic Approaches to Patient-Reported Outcome Data Collection in Clinical Trials

Howry, C., Elash, C. A., Crescioni, M., Eremenco, S. L., O’Donohoe, P., & Rothrock, T. (2018) · Therapeutic Innovation & Regulatory Science · doi:10.1177/2168479018785160 · Cited by 9

Electronic Versus Traditional Data Collection: A Multicenter Randomized Controlled Perioperative Pain Trial

Khan, J. S., Jibb, L., Busse, J. W., Gilron, I., Choi, S., Paul, J., McGillion, M. H., Mackey, S., Buckley, D. N., Lee, S. F., et al. (2019) · Canadian Journal of Pain · doi:10.1080/24740527.2019.1587584 · Cited by 9

Comparison between electronic and paper versions of patient-reported outcome measures in subjects with chronic obstructive pulmonary disease: an observational study with a cross-over administration

Nishimura, K., Kusunose, M., Sanda, R., Tsuji, Y., Hasegawa, Y., & Oga, T. (2019) · BMJ Open · doi:10.1136/bmjopen-2019-032767 · Cited by 9

An idiographic approach to Idiopathic Environmental Intolerance attributed to Electromagnetic Fields (IEI-EMF) Part II. Ecological momentary assessment of three individuals with severe IEI-EMF

Dömötör, Z., Ruzsa, G., Thuróczy, G., Necz, P. P., Nordin, S., Köteles, F. G., & Szemerszky, R. (2022) · Heliyon · doi:10.1016/j.heliyon.2022.e09421 · Cited by 9

Double-blind placebo-controlled study of bepotastine besilate in pediatric patients with perennial allergic rhinitis

Okubo, K., Ichimura, M., Koyama, T., Susuta, Y., & Hitoshi, I. (2015) · Expert Opinion on Pharmacotherapy · doi:10.1517/14656566.2015.1085511 · Cited by 9

Prospective trial on telemonitoring of geriatric cancer patients using handheld devices

Buergy, D., Siefert, V., Neumaier, C., Ganslandt, T., Sperk, E., Blessing, M., Hesser, J., Welzel, G., Wenz, F. K., & Giordano, F. A. (2019) · Strahlentherapie und Onkologie · doi:10.1007/s00066-019-01548-0 · Cited by 9

Assessment of Pain After SCI in Clinical Trials

Bryce, T. N., & Dijkers, M. P. J. M. (2005) · Topics in Spinal Cord Injury Rehabilitation · doi:10.1310/bmq9-wvpa-ju7u-jpn0 · Cited by 9

Fisura de ano. Alteraciones de la continencia y de la calidad de vida durante la enfermedad y a los 6 meses de la esfinterotomía lateral interna subcutánea

Ortiz, H., Marzo, J. F. C., Armendariz, P., de-Miguel, M., & Blasi, M. L. (2005) · Cirugía Española · doi:10.1016/s0009-739x(05)70814-9 · Cited by 9

Assessment of circadian rhythm in pain and stiffness in rheumatic diseases according the EMA (Ecologic Momentary Assessment) method: patient compliance with an electronic diary

Salaffi, F., Stancati, A., Procaccini, R., Cioni, F., & Grassi, W. (2011) · Reumatismo · doi:10.4081/reumatismo.2005.238 · Cited by 9

Context-Aware Experience Sampling for the Design and Study of Ubiquitous Technologies

Rondoni, J. (2003) · DSpace@MIT (Massachusetts Institute of Technology) · Cited by 9

Under Which Circumstances Does Academic Workload Lead to Stress?: Explaining Intraindividual Differences by Using the Cortisol-Awakening Response as a Moderator

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Capturing Flow Experiences in Everyday Life: A Comparison of Recall and Momentary Measurement

Bartholomeyczik, K., Knierim, M. T., Weinhardt, C., Oettingen, G., & Ebner‐Priemer, U. (2024) · Journal of Happiness Studies · doi:10.1007/s10902-024-00776-1 · Cited by 11

Patient Perspective in the Development of Electronic Patient-Reported Outcomes (ePROs) in Seizure Disorders: A Patient-Centric Approach

Khan, A., Peechatka, A. L., Dias, N. R., Lima, V., Seddo, M., Inja, A., & Dallabrida, S. M. (2020) · Patient Preference and Adherence · doi:10.2147/ppa.s222642 · Cited by 8

Evaluation of mobile applications for patients with fecal incontinence using a modified APPLICATIONS scoring system

Vega, M., McKay, E., & Halani, P. K. (2021) · International Urogynecology Journal · doi:10.1007/s00192-021-04918-4 · Cited by 8

Evaluation of morning bradykinesia in Parkinson’s disease in a United States cohort using continuous objective monitoring

Isaacson, S., Pahwa, R., Pappert, E. J., & Torres‐Russotto, D. R. (2022) · Clinical Parkinsonism & Related Disorders · doi:10.1016/j.prdoa.2022.100145 · Cited by 8

“I've got a spring in my step” participants experience of action observation therapy and eccentric exercises, a telehealth study for mid‐portion Achilles Tendinopathy: a qualitative study

Ryan, D., Rio, E., O’Donoghue, G., & O'Sullivan, C. M. (2023) · Journal of Foot and Ankle Research · doi:10.1186/s13047-023-00619-x · Cited by 11

Laughter in everyday life: an event-based experience sampling method study using wrist-worn wearables

Stieger, S., Volsa, S., Willinger, D., Lewetz, D., & Batinic, B. (2024) · Frontiers in Psychology · doi:10.3389/fpsyg.2024.1296955 · Cited by 8

Applying Rasch analysis to evaluate measurement equivalence of different administration formats of the Activity Limitation scale of the Cambridge Pulmonary Hypertension Outcome Review (CAMPHOR)

Twiss, J., McKenna, S. P., Graham, J., Swetz, K. M., Sloan, J., & Gomberg‐Maitland, M. (2016) · Health and Quality of Life Outcomes · doi:10.1186/s12955-016-0462-2 · Cited by 8

Valence and Motivation as Predictors of Student Time Use in Everyday Life: An Experience Sampling Study

Koudela-Hamila, S., Grund, A., Santangelo, P., & Ebner‐Priemer, U. (2019) · Frontiers in Psychology · doi:10.3389/fpsyg.2019.01430 · Cited by 7

Monitoring the recovery time of children after tonsillectomy using commercial activity trackers

Lambrechtse, P., Ziesenitz, V. C., Atkinson, A., Bos, E. J., Welzel, T., Gilgen, Y., Gürtler, N., Heuscher, S., Cohen, A. F., & van den Anker, J. N. (2021) · European Journal of Pediatrics · doi:10.1007/s00431-020-03900-4 · Cited by 9

Development and usability testing of an electronic patient-reported outcome (ePRO) solution for patients with inflammatory diseases in an Advanced Therapy Medicinal Product (ATMP) basket trial

McMullan, C., Retzer, A., Hughes, S., Aiyegbusi, O. L., Bathurst, C. L., Boyd, A., Coleman, J. J., Davies, E. H., Denniston, A. K., Dunster, H., et al. (2023) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-023-00634-3 · Cited by 8

Is a shorter hot flash diary just as good as a 7-day diary?

Grady, D. G., Macer, J. L., Kristof, M., Shen, H., Tagliaferri, M. A., & Creasman, J. M. (2009) · Menopause The Journal of The North American Menopause Society · doi:10.1097/gme.0b013e3181a4f558 · Cited by 8

Challenges during long-term follow-up of ICU patients with and without chronic disease

Davies, H. T., McKenzie, N., Williams, T. A., Leslie, G. D., McConigley, R., DOBB, G. J., & Aoun, S. M. (2015) · Australian Critical Care · doi:10.1016/j.aucc.2015.04.002 · Cited by 8

Reproducibility of a symptom response to omeprazole therapy in functional dyspepsia evaluated by a random‐starting‐day trial design

Madsen, L. G., & Bytzer, P. M. (2004) · Alimentary Pharmacology & Therapeutics · doi:10.1111/j.1365-2036.2004.02072.x · Cited by 8

Self-reported Occupational Health Problems among Libyan Dentists

Arheiam, A., & Ingafou, M. (2015) · The Journal of Contemporary Dental Practice · doi:10.5005/jp-journals-10024-1631 · Cited by 8

Electronic Patient-Reported Outcome Measures (ePROMs) in Rheumatology

Richter, J., Kampling, C., & Schneider, M. (2016) · Springer eBooks · doi:10.1007/978-3-319-32851-5_15 · Cited by 8

Data-Driven Learning in High-Resolution Activity Sampling From Patients With Bipolar Depression: Mixed-Methods Study

Rohani, D. A., Tuxen, N., Lopategui, A. Q., Kessing, L. V., & Bardram, J. E. (2018) · JMIR Mental Health · doi:10.2196/10122 · Cited by 8

Narratives of power : critical reflections on signed language interpreting

Mole, H. (2018) · Cited by 8

Understanding the psychological impact of identifying carrier status on young adults: A qualitative study exploring peer reactions

Bowen, E., Langston, J., Fletcher, H., Domek, J., & Ulph, F. (2024) · Journal of Genetic Counseling · doi:10.1002/jgc4.1903 · Cited by 7

Myelofibrosis symptom assessment form total symptom score version 4.0: measurement properties from the MOMENTUM phase 3 study

Daskalopoulou, C., Gorsh, B., Dumi, G., Deheshi, S., Gwaltney, C. J., Paty, J. A., Ellis, C. E., Kawashima, J., & Mesa, R. A. (2024) · Quality of Life Research · doi:10.1007/s11136-024-03855-1 · Cited by 7

Supporting the diagnosis of infantile colic by a point of care measurement of fecal calprotectin

Sommermeyer, H., Bernatek, M., Pszczoła, M., Krauss, H., & Piątek, J. (2022) · Frontiers in Pediatrics · doi:10.3389/fped.2022.978545 · Cited by 7

Within- and between-person associations of time-varying determinants with snacking in older adults: an ecological momentary assessment study

Cnudde, K., Vylder, F. D., Cardon, G., Maes, I., & Dyck, D. V. (2024) · British Journal Of Nutrition · doi:10.1017/s0007114524001004 · Cited by 8

Children's perspectives on pain-logging: Insights from a Co-Design Approach

Price, L., Rauf, I., Gooch, D., Katz, D., Pearce, O., & Price, B. A. (2024) · Designing Interactive Systems Conference · doi:10.1145/3643834.3661597 · Cited by 6

Preceding psychological factors and calorie intake in patients with type 2 diabetes: investigation by ecological momentary assessment

Inada, S., Iizuka, Y., Ohashi, K., Kikuchi, H., Yamamoto, Y., Kadowaki, T., & Yoshiuchi, K. (2019) · BioPsychoSocial Medicine · doi:10.1186/s13030-019-0161-4 · Cited by 7

Electronic Patient Diaries and Questionnaires – ePRO Now Delivering on the Promise?

Tiplady, B. (2010) · Patient · doi:10.2165/11537600-000000000-00000 · Cited by 7

Orders and obedience: structure and agency

Jackson, M. (2006) · International Journal of Sociology and Social Policy · doi:10.1108/01443330610680407 · Cited by 7

Sampling Human Experience in Naturalistic Settings

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A high-level specification for adaptive ecological momentary assessment: real-time assessment of drug craving, use and abstinence.

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Designing a PDA Interface for Dialysis Patients to Monitor Diet in their Everyday Life

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PD-Insighter: A Visual Analytics System to Monitor Daily Actions for Parkinson's Disease Treatment

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A multi‐level decomposition of variance in somatic symptom reporting in families with adolescent children

Michel, G. (2006) · British Journal of Health Psychology · doi:10.1348/135910705x53506 · Cited by 6

Pharmacist intervention in pain management following heart surgery

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Evaluation of Health-Related Quality-of-Life Measures in Oncology Drug Product Applications: Issues and Concerns

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Understanding patterns and correlates of daily pain using the Sickle cell disease Mobile Application to Record Symptoms via Technology ( SMART )

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Exploring Human-Data Interaction in Clinical Decision-making Using Scenarios: Co-design Study

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Validating of a Novel Method for Electronically Recording Overactive Bladder Symptoms in Men

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Gender Differences in Immediate Antecedents ofAd LibCigarette Smoking in Smokers with and without Posttraumatic Stress Disorder: A Preliminary Report

Dennis, M. F., Clancy, C. P., & Beckham, J. C. (2007) · Journal of Psychoactive Drugs · doi:10.1080/02791072.2007.10399887 · Cited by 6

Breaking through the invisible barrier of low functional literacy: implications for health communication

Eagle, L. C., Hawkins, J. C., Styles, E., & Reid, J. (2006) · UWE Research Repository (UWE Bristol) · Cited by 6

Coping with Stress in Undergraduate University Students: Development and Validation of the Coping Inventory for Academic Striving (CIAS) to Examine Key Educational Outcomes in Correlational and Experimental Studies

Thompson, A. (2015) · uO Research (University of Ottawa) · doi:10.20381/ruor-4763 · Cited by 6

[Ulcerative gastritis in long distance runners].

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Patient compliance with paper and electronic diaries

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Improving the use of clinical databases

Black, N. A., & Payne, M. (2002) · BMJ · doi:10.1136/bmj.324.7347.1194 · Cited by 20

Patient Compliance in an ePRO Environment: Methods for Consistent Compliance Management, Measurement and Reporting

Shields, A. L., Shiffman, S. S., & Stone, A. A. (2016) · Routledge eBooks · doi:10.4324/9781315580142-13 · Cited by 5

Patients say they use diaries, but they don't

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Paper and electronic diaries: Too early for conclusions on compliance rates and their effects--Comment on Green, Rafaeli, Bolger, Shrout, and Reis (2006).

Broderick, J. E., & Stone, A. A. (2006) · Psychological Methods · doi:10.1037/1082-989x.11.1.106 · Cited by 35