Cited by 328Health Systems, Economic Evaluations, Quality of LifePatient Satisfaction in HealthcareMental Health and Patient Involvement

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Maximising the impact of patient reported outcome assessment for patients and society

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Calvert, Melanie, Kyte, Derek, Price, Gary, Valderas, Jose M, Hjollund, Niels Henrik·2019·BMJ

DOI 10.1136/bmj.k5267

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Abstract

Patient reported outcome measures can help drive global patient centred healthcare reform, but we need a more efficient coordinated approach to assessment if we are to fully realise benefits for patients and society, say Melanie Calvert and colleagues

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O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.24980129
Additional file 3 of The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders
Rivera, S. C., McMullan, C., Jones, L., Kyte, D. G., Slade, A. L., & Calvert, M. (2020) · Figshare · doi:10.6084/m9.figshare.12607250
Self-citation
Additional file 3 of Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis
O’Brien, K. K., Dzingina, M. D., Harding, R., Gao, W., Namisango, E., Avery, L., & Davis, A. M. (2021) · Figshare · doi:10.6084/m9.figshare.13531846
Additional file 1 of Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis
O’Brien, K. K., Dzingina, M. D., Harding, R., Gao, W., Namisango, E., Avery, L., & Davis, A. M. (2021) · Figshare · doi:10.6084/m9.figshare.13531840
Additional file 4 of Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States
O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26666197
Additional file 1 of Predictors of health-related quality of life after cardiac surgery: a systematic review
Sanders, J., Bowden, T., Woolfe-Loftus, N., Sekhon, M., & Aitken, L. M. (2022) · Figshare · doi:10.6084/m9.figshare.19793402
Additional file 10 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status
Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655148
Additional file 5 of Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States
O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26666200
Additional file 6 of Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States
O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26666203
Additional file 1 of How to select and understand guidelines for patient-reported outcomes: a scoping review of existing guidance
Kaneyasu, T., Hoshino, E., Naito, M., Suzukamo, Y., Miyazaki, K., Kojima, S., Yamaguchi, T., Kawaguchi, T., Miyaji, T., Nakajima, T. E., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26692921
Additional file 2 of How to select and understand guidelines for patient-reported outcomes: a scoping review of existing guidance
Kaneyasu, T., Hoshino, E., Naito, M., Suzukamo, Y., Miyazaki, K., Kojima, S., Yamaguchi, T., Kawaguchi, T., Miyaji, T., Nakajima, T. E., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26692924
Additional file 1 of Development of a novel patient-reported outcome measure to assess signs and symptoms of COVID-19
DeMuro, C., Fehnel, S. E., Stoddard, J. J., SADOFF, J. C., Lewis, S., McNulty, P., Chan, E. K. H., Evans, E., Jamieson, C., Slagle, A. F., et al. (2022) · Figshare · doi:10.6084/m9.figshare.20408493
Additional file 1 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status
Zhang, X., & Krabbe, P. F. M. (2023) · Figshare · doi:10.6084/m9.figshare.24847131
Additional file 4 of Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis
O’Brien, K. K., Dzingina, M. D., Harding, R., Gao, W., Namisango, E., Avery, L., & Davis, A. M. (2021) · Figshare · doi:10.6084/m9.figshare.13531849
Additional file 4 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status
Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655130
Additional file 2 of User experiences on implementation of patient reported outcome measures (PROMs) in a Haematological outpatient clinic
Thestrup Hansen, S., Kjerholt, M., Friis Christensen, S., Brodersen, J., & Hølge‐Hazelton, B. (2020) · Figshare · doi:10.6084/m9.figshare.13161734
Additional file 7 of Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States
O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26666206
Additional file 9 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status
Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655145
Additional file 6 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status
Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655136
Additional file 3 of How to select and understand guidelines for patient-reported outcomes: a scoping review of existing guidance
Kaneyasu, T., Hoshino, E., Naito, M., Suzukamo, Y., Miyazaki, K., Kojima, S., Yamaguchi, T., Kawaguchi, T., Miyaji, T., Nakajima, T. E., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26692927
Additional file 3 of User experiences on implementation of patient reported outcome measures (PROMs) in a Haematological outpatient clinic
Thestrup Hansen, S., Kjerholt, M., Friis Christensen, S., Brodersen, J., & Hølge‐Hazelton, B. (2020) · Figshare · doi:10.6084/m9.figshare.13161737
Additional file 1 of Qualitative and psychometric approaches to evaluate the PROMIS pain interference and sleep disturbance item banks for use in patients with rheumatoid arthritis
Becker, B. D., Raymond, K., Hawkes, C., Foster, A. M., Lovley, A., Saucier, C. D., Rizio, A. A., Bjorner, J. B., & Kosinski, M. (2021) · Figshare · doi:10.6084/m9.figshare.14920796
Additional file 3 of Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States
O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.26666194
Additional file 2 of The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders
Rivera, S. C., McMullan, C., Jones, L., Kyte, D. G., Slade, A. L., & Calvert, M. (2020) · Figshare · doi:10.6084/m9.figshare.12607247
Self-citation
Additional file 5 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status
Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655133
Additional file 1 of The iBLAD study: patient-reported outcomes in bladder cancer during oncological treatment: a multicenter national randomized controlled trial
Taarnhøj, G. A., Johansen, C., Carus, A., Dahlrot, R. H., Dohn, L. H., Hjøllund, N. H., Knudsen, M. B., Tolver, A., Lindberg, H., & Pappot, H. (2024) · Figshare · doi:10.6084/m9.figshare.26624671
Additional file 5 of The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders
Rivera, S. C., McMullan, C., Jones, L., Kyte, D. G., Slade, A. L., & Calvert, M. (2020) · Figshare · doi:10.6084/m9.figshare.12607256
Self-citation

Authors: Calvert, M., Kyte, D., Price, G., Valderas, J. M., & Hjollund, N. H.
Affiliations: National Institute for Health and Care Research (GB)
Corresponding author: Calvert, Melanie
ORCID: Calvert, Melanie
Kyte, Derek
Venue: BMJ
Publisher: BMJ
Published: 2019-01-24
Volume: 364
Pages: k5267
ISSN: 1756-1833 (ISSN-L)
0959-8138
DOI: 10.1136/bmj.k5267
OpenAlex: W2913465166
Cited by: 328
References: 39
Citations by year: 2026: 20 · 2025: 37 · 2024: 63 · 2023: 43 · 2022: 52 · 2021: 41 · 2020: 50 · 2019: 21
FWCI: 51.18
Type: journal article
Language: en
Open access: bronze
doi.org
Licence: www.bmj.com/company/legal-information/terms-conditions/legal-information/tdm-licencepolicy (tdm)
Locations: BMJ (publishedVersion)
PubMed (publishedVersion)
Figshare (submittedVersion, cc-by-nc)
HighWire Press Open Archive (submittedVersion)
Open Research Exeter (University of Exeter) (submittedVersion, cc-by-nc)
Scopus (Elsevier) (submittedVersion, other-oa)
University of Birmingham Research Portal (University of Birmingham) (submittedVersion, other-oa)
Funders: World Health Organization
University Hospitals Birmingham NHS Foundation Trust
Cancer Research UK
National Institute for Health and Care Research (PDF-2016-09-009)
University of Birmingham
Astellas Pharma
Surgical Reconstruction and Microbiology Research Centre
Medical Research Council
Instituto de Salud Carlos III
Birmingham Biomedical Research Centre
Health Data Research UK
Topics: Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
Health Sciences › Health Professions › General Health Professions › Patient Satisfaction in Healthcare
Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
Keywords: patient-reported outcome measures, patient-centered care, health care reform, patient engagement, social impact
MeSH terms: Patient Reported Outcome Measures, Data Systems, Confidentiality, Humans, Patient Participation, Quality of Health Care

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Maximising the impact of patient reported outcome assessment for patients and society

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