Maximising the impact of patient reported outcome assessment for patients and society

Corrigendum to: 2021 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure: Developed by the Task Force for the diagnosis and treatment of acute and chronic heart failure of the European Society of Cardiology (ESC) With the special contribution of the Heart Failure Association (HFA) of the ESC.

McDonagh, T. A., Metra, M., Adamo, M., Gardner, R. S., Baumbach, A., Böhm, M., Burri, H., Butler, J., Čelutkienė, J., Chioncel, O. D., et al. (2021) · PubMed · doi:10.1093/eurheartj/ehab670 · Cited by 20,604

2016 ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure

Ponikowski, P., Voors, A. A., Anker, S. D., Bueno, H., Cleland, J. G. F., Coats, A. J. S., Falk, V., González-Juanatey, J. R., Harjola, V.-P., Jankowska, E. A., et al. (2016) · European Heart Journal · doi:10.1093/eurheartj/ehw128 · Cited by 11,429

Symptom Monitoring With Patient-Reported Outcomes During Routine Cancer Treatment: A Randomized Controlled Trial

Basch, E., Deal, A. M., Kris, M. G., Scher, H. I., Hudis, C. A., Sabbatini, P., Rogak, L., Bennett, A. V., Dueck, A. C., Atkinson, T. M., et al. (2016) · Journal of Clinical Oncology · doi:10.1200/jco.2015.63.0830 · Cited by 2,593

Overall survival results of a trial assessing patient-reported outcomes for symptom monitoring during routine cancer treatment

Basch, E., Deal, A. M., Dueck, A. C., Scher, H. I., Kris, M. G., Hudis, C., & Schrag, D. (2017) · JAMA · doi:10.1001/jama.2017.7156 · Cited by 2,302

Patient reported outcome measures could help transform healthcare

Black, N. (2013) · BMJ · doi:10.1136/bmj.f167 · Cited by 1,960

How to select outcome measurement instruments for outcomes included in a “Core Outcome Set”–a practical guideline

Prinsen, C. A. C., Vohra, S., Rose, M. R., Boers, M., Tugwell, P., Clarke, M., Williamson, P. R., & Terwee, C. B. (2016) · Trials · doi:10.1186/s13063-016-1555-2 · Cited by 1,106

Health-Related Quality-of-Life Assessments and Patient-Physician Communication: A Randomized Controlled Trial

Detmar, S. B., Muller, M. J., Schornagel, J. H., Wever, L. D. V., & Aaronson, N. K. (2002) · JAMA · doi:10.1001/jama.288.23.3027 · Cited by 1,011

Guidelines for Inclusion of Patient-Reported Outcomes in Clinical Trial Protocols: The SPIRIT-PRO Extension

Calvert, M., Kyte, D., Mercieca-Bebber, R., Slade, A., Chan, A.-W., King, M. T., and the SPIRIT-PRO Group, Hunn, A., Bottomley, A., Regnault, A., et al. (2018) · JAMA · doi:10.1001/jama.2017.21903 · Cited by 814

Patient-Reported Outcomes — Harnessing Patients’ Voices to Improve Clinical Care

Basch, E. (2017) · New England Journal of Medicine · doi:10.1056/nejmp1611252 · Cited by 637

Long-term Patient-Reported Outcomes in Postmastectomy Breast Reconstruction

Santosa, K. B., Qi, J., Kim, H. M., Hamill, J. B., Wilkins, E. G., & Pusic, A. L. (2018) · JAMA Surgery · doi:10.1001/jamasurg.2018.1677 · Cited by 471

Additional file 1 of The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders

Rivera, S. C., McMullan, C., Jones, L., Kyte, D. G., Slade, A. L., & Calvert, M. (2020) · Figshare · doi:10.6084/m9.figshare.12607244

Additional file 3 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status

Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655127

Additional file 1 of Perceptions regarding the concept and definition of patient-reported outcomes among healthcare stakeholders in Japan with relation to quality of life: a cross-sectional study

Kaneyasu, T., Saito, S., Miyazaki, K., Suzukamo, Y., Naito, M., Kawaguchi, T., Nakajima, T. E., Yamaguchi, T., & Shimozuma, K. (2024) · Figshare · doi:10.6084/m9.figshare.25034368

Additional file 8 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status

Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655142

Additional file 4 of The impact of patient-reported outcome data from clinical trials: perspectives from international stakeholders

Rivera, S. C., McMullan, C., Jones, L., Kyte, D. G., Slade, A. L., & Calvert, M. (2020) · Figshare · doi:10.6084/m9.figshare.12607253

Additional file 2 of Developing a short-form version of the HIV Disability Questionnaire (SF-HDQ) for use in clinical practice: a Rasch analysis

O’Brien, K. K., Dzingina, M. D., Harding, R., Gao, W., Namisango, E., Avery, L., & Davis, A. M. (2021) · Figshare · doi:10.6084/m9.figshare.13531843

Additional file 11 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status

Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655151

Additional file 7 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status

Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.26655139

Additional file 2 of From simple to even simpler, but not too simple: a head-to-head comparison of the Better-Worse and Drop-Down methods for measuring patient health status

Zhang, X., & Krabbe, P. F. M. (2024) · Figshare · doi:10.6084/m9.figshare.24847191

Additional file 1 of Collection and use of EQ-5D for follow-up, decision-making, and quality improvement in health care - the case of the Swedish National Quality Registries

Ernstsson, O., Janssen, M. F., & Heintz, E. (2020) · Figshare · doi:10.6084/m9.figshare.12965649

Additional file 1 of User experiences on implementation of patient reported outcome measures (PROMs) in a Haematological outpatient clinic

Thestrup Hansen, S., Kjerholt, M., Friis Christensen, S., Brodersen, J., & Hølge‐Hazelton, B. (2020) · Figshare · doi:10.6084/m9.figshare.13161731

Additional file 1 of Episodic disability questionnaire (EDQ) measurement properties among adults living with HIV in Canada, Ireland, United Kingdom, and United States

O’Brien, K. K., Erlandson, K. M., Brown, D. A., Carusone, S. C., Vera, J. H., Bergin, C. J., Avery, L., Bayoumi, A. M., Hanna, S. E., Harding, R., et al. (2024) · Figshare · doi:10.6084/m9.figshare.24979582

Bridging the educational gap: a pilot study of integrating patient-reported outcome into orthopedic residency training

Huang, L., Yao, C., Zhong, Z., Zhu, H., Hu, H., & Xu, X. (2026) · Frontiers in Medicine · doi:10.3389/fmed.2025.1635610

Raising the patient’s voice in influenza research and care: a systematic review of patient-reported outcomes

Meda-Monzón, E., Muñoz-Aguirre, P., Flores-Aldana, B. A., Gwaltney, C. J., & Bartelt-Hofer, J. (2026) · BMC Infectious Diseases · doi:10.1186/s12879-026-12821-w

Individual Management Plan Outcome Score (IMP-OS): Psychometric Evaluation of an Adult Aural Rehabilitation Idiographic Patient-Reported Outcome Measure for Use in Audiology

Meyer, S., Wild, J., Hughes, S., Sheppard, P., & Bant, S. P. (2026) · SN Comprehensive Clinical Medicine · doi:10.1007/s42399-025-02236-0

Multi-stakeholder use of patient experience data (PED): current state and future opportunities for the application of PED to inform decision-making

Kanu, C., Abel, J. L., Knight, S. L., Williamson, N., Ho, C. N., Rodríguez, A. M., Johnson, C., Wac, K., Herzog, R., Vallow, S., et al. (2026) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-026-01030-3

Comprehension of and preferences for visualization of patient-reported outcome data to support clinical decision making: A systematic review

Kannan, S., Voorthuis, B. J., Groothuis‐Oudshoorn, C. G. M., de Ligt, K. M., & van Til, J. A. (2026) · Patient Education and Counseling · doi:10.1016/j.pec.2026.109628

World Health Organization disability assessment schedule 2.0 (WHODAS 2.0) and risk of readmission among older patients discharged from the ED – a prospective cohort study

Hovind, B., Oestergaard, L. G., Maribo, T., Kirkegaard, H., & Nielsen, L. M. (2026) · Geriatric Nursing · doi:10.1016/j.gerinurse.2026.104018

Outcome selection of randomized controlled trials in acute stroke: a comparative analysis between traditional Chinese medicine and Western medicine

Shi, X., Cheng, S., Yin, G. G., Huang, Y., Zhou, C., Liu, C.-P., Zhao, J., Fu, X., Zheng, X., Chen, S., et al. (2026) · Frontiers in Medicine · doi:10.3389/fmed.2026.1796071

A mixed-methods study comparing clinical and patient-reported perspectives on long COVID: insights from electronic health records and narrative journal entries

Ghosal, R., Gronowski, B., Fish, D. L., Rinaldi, J. B., & Vartanian, K. B. (2026) · BMC Infectious Diseases · doi:10.1186/s12879-026-13593-z

A FeAsibility items Checklist for assessing implementation characTeristics of patient-reported Outcome measures in Research, Regulation and Routine clinical care (FACTOR3): Development and evaluation

Bhatty, A., Wilkinson, C., Jeyalan, V., Wahab, A., Dwight, J., Rucinski, M., de Beurs, E., Calvert, M., Gale, R. P., Horton, M., et al. (2026) · Clinical Medicine · doi:10.1016/j.clinme.2026.100592

Bridging the gap: enhancing patient and public involvement in dermatology PRO research

Brookes, E., Zikos, E., Lucats, L., Notelet, L., Ferrari, G., Magnier, A., & Arnould, B. (2026) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-026-01069-2

Wider stakeholders’ perspectives on successfully implementing electronic patient-reported outcome systems across organisations: a qualitative study in kidney care

van der Veer, S. N., Ercia, A., Caskey, F. J., Farrington, K., Rees, M., & Knowles, S. E. (2026) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-026-01137-7

Lessons from the Danish Vascular (DanVasc) pilot survey: patient-reported outcomes following lower extremity, carotid and aortic artery disease

Dahl, M., Eiberg, J., Borregaard, B., Petersen, C., Budtz-Lilly, J. W., Shahidi, S. H., Jørgensen, T. M., Christensen, C. S., Lindholt, H., Damsgaard, B., et al. (2026) · Pilot and Feasibility Studies · doi:10.1186/s40814-026-01907-6

Self-reported outcome measures for assessing symptoms of anxiety and depression in patients with lower extremity artery disease: a scoping review

Donstrup, C. H., Borregaard, B., Nicolajsen, C. W., Lindholt, J. S., & Dahl, M. (2026) · Journal of Vascular Nursing · doi:10.1016/j.jvn.2026.08.005

Embedding patient voice within European healthcare: achievements and future directions of the health outcomes observatory

Long, P. A., Lalji, R., Andrews, M. R., Avgerinou, A., Alekseeva, O., Patalano, F., Kemenyash, N., Otto, L. R., Galan, G., Koppert, L., et al. (2026) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-026-01221-y

Quality of patient-reported outcome measures for the assessment of fatigue in individuals with post COVID-19 condition and post COVID-19 vaccination syndrome: A systematic review

Feißel, A., Blome, C., Donhauser, T., Apfelbacher, C., & Piontek, K. (2026) · Advances in Patient-Reported Outcomes · doi:10.1016/j.apro.2026.100356

Development and validation of the Ocular, Nasal, and Systemic Symptom Questionnaire (ONS-SQ) for comprehensive assessment of sick building syndrome

Mimura, T., Noma, H., Hasegawa, D., Nishijima, Y., & Uchio, E. (2026) · SN Comprehensive Clinical Medicine · doi:10.1007/s42399-026-02779-w

Additional file 2 of The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

Bonsel, J. M., Itiola, A. J., Huberts, A. S., Bonsel, G. J., & Penton, H. (2024) · Figshare · doi:10.6084/m9.figshare.27915583

Additional file 1 of The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

Bonsel, J. M., Itiola, A. J., Huberts, A. S., Bonsel, G. J., & Penton, H. (2024) · Figshare · doi:10.6084/m9.figshare.27915580

Additional file 3 of The use of patient-reported outcome measures to improve patient-related outcomes – a systematic review

Bonsel, J. M., Itiola, A. J., Huberts, A. S., Bonsel, G. J., & Penton, H. (2024) · Figshare · doi:10.6084/m9.figshare.27915586

Can Patient-Reported Outcome Measures Improve Clinical Management and Patient Care?

Hoffman, A. L., Thompson, Z. P., & Rogers, T. (2022) · PubMed

Improving quality of care through the OECD Patient Reported Indicator Surveys (PaRIS)

OECD (2026) · doi:10.1787/2a9d5b13-en