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Cited by 47

The DOI matches its Crossref record; 52 of the 52 references it cites were found in a registry or an index.

Trust, culture and communication: determinants of eye health and care among Indigenous people with diabetes in Australia

Yashadhana, Aryati, Fields, Ted, Blitner, Godfrey, Stanley, Ruby, Zwi, Anthony B·2020·BMJ Global Health
DOI 10.1136/bmjgh-2019-001999PMC PMC7042588
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Abstract

Introduction: Our study aimed to identify factors that influence access to eye care and eye health outcomes for remote Indigenous Australians living with diabetes. Methods: In collaboration with Indigenous Community-Based Researchers (CBR) and Aboriginal Community Controlled Health Services (ACCHS), a qualitative, participatory action research approach was taken, drawing on Indigenist and decolonising methodologies. The study was undertaken in four remote communities, in the Katherine region, Northern Territory and north-western New South Wales, Australia. Interviews and focus groups were undertaken with Indigenous adults aged ≥40 years living with diabetes (n=110), and primary care clinicians working in ACCHSs (n=37). A series of interviews with CBRs (n=13) were undertaken before and after data collection to add cultural insights and validation to participant accounts. Data were analysed inductively using grounded theory, in-depth discussion and NVivo V.11. Results: More than one-third of all patients had little to no knowledge of how diabetes affects eye health. Limited access to health information and interpreters, language barriers, distrust of health providers and services, and limited cultural responsivity among non-Indigenous clinicians, were identified as determining factors in eye health and care. Discussion: We outline a need to address gaps in trust and communication, through increased access to and resourcing of Indigenous language interpreters and cultural brokers, understandable and culturally sensitive diabetic eye health information and cultural responsivity training for non-Indigenous clinicians. Centring Indigenous cultures in healthcare practice will enable a shared understanding between clinicians and Indigenous patients, and subsequently more equitable eye health outcomes.

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Statistics

Figures

Figure 1 Patient responses to interview questions probing knowledge and perceptions of how diabetes affects eye health. Responses grouped into knowledge areas as per table 3 and disaggregated by community. Percentages are a value of the total interview sample for each community outlined in table 2.
Figure 1 Patient responses to interview questions probing knowledge and perceptions of how diabetes affects eye health. Responses grouped into knowledge areas as per table 3 and disaggregated by community. Percentages are a value of the total interview sample for each community outlined in table 2.CC BY-NC · PubMed Central

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Cites

Research works printed but not linked: 2

  1. Rigney, 1997, Internationalism of an Aboriginal or Torres Strait Islander anti-colonial cultural critique of research methodologies: a guide to Indigenist research methodology and its principles, Research and development in higher education: advancing international perspectives, 20, 629
  2. Freire, 1970, Pedagogy of the Oppressed (New York), Continuum, 72, 43

Cited by

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Metadata

Authors
Yashadhana, A., Fields, T., Blitner, G., Stanley, R., & Zwi, A. B.
Affiliations
  • School of Public Health and Community Medicine, University of New South Wales, Sydney, New South Wales, Australia
  • Vision Cooperative Research Centre, Sydney, New South Wales, Australia
  • Faculty of Arts and Social Sciences, School of Social Sciences, The University of New South Wales, Sydney, New South Wales, Australia
ORCID
Venue
BMJ Global Health
Publisher
BMJ
Published
2020-01
Volume
5
Issue
1
Pages
e001999
ISSN
2059-7908
DOI
10.1136/bmjgh-2019-001999
PMC
PMC7042588
Cited by
47
References
52
Language
en
Licence
creativecommons.org/licenses/by-nc/4.0/ (unspecified, 8 d)
Funders
Cooperative Research Centres, Australian Government Department of Industry

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