The interdependent roles of patients, families and professionals in cystic fibrosis: a system for the coproduction of healthcare and its improvement
Open accessAbstract
A quality healthcare system is coproduced by patients, families and healthcare professionals working interdependently to cocreate and codeliver care. Cystic fibrosis (CF) patients and families rely on healthcare professionals to provide the best possible care and timely, accurate information. They know that the care at home and in clinical settings needs to be seamless, using shared information and decisions. A parent's journey of better care begins with her son's diagnosis and moves to her involvement to improve the systems and processes of care for others. She reflects on this work and identifies five elements that contributed to the coproduction of improved care: (1) mental and emotional readiness to engage; (2) curiosity and the search for insight; (3) reframe challenges into opportunities for improvement; (4) listen and learn from everyone, bringing home what is relevant; and (5) personal participation. Joined with the reflections of an improvement scientist, they note that chronic care relies on informed, activated patients and prepared, proactive healthcare professionals working together and that it is more than ‘patient-centric’. They propose a model for the coimprovement of systems of care.
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Health care organizations could receive valuable experience-based health information from patients, saving organizational resources.
“In return, health care organizations could receive valuable experience-based health information from patients, saving organizational resources [32].”
From Improving the Theoretical Understanding Toward Patient-Driven Health Care Innovation Through Online Value Cocreation: Systematic Review (2020) · cites this paper as [32]
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- Authors
- Sabadosa, K. A., & Batalden, P. B.
- Affiliations
- Dartmouth Institute for Health Policy and Clinical Practice (US)
- Corresponding author
- Sabadosa, Kathryn A
- ORCID
- Batalden, Paul B
- Venue
- BMJ Quality & Safety
- Publisher
- BMJ
- Published
- 2014-03-07
- Volume
- 23
- Issue
- Suppl 1
- Pages
- i90-i94
- ISSN
- 1475-3898 (ISSN-L)
- 2044-5415
- 2044-5423
- OpenAlex
- W2127152066
- Cited by
- 79
- References
- 11
- Citations by year
- 2026: 3 · 2025: 1 · 2024: 3 · 2023: 5 · 2022: 6 · 2021: 6 · 2020: 14 · 2019: 11 · 2018: 10 · 2017: 6 · 2016: 4 · 2015: 7 · 2014: 3
- FWCI
- 12.03
- Type
- journal article
- Language
- en
- Open access
- bronze
- doi.org
- Locations
- BMJ Quality & Safety (publishedVersion)
- PubMed (publishedVersion)
- HighWire Press Open Archive (submittedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Mental Health and Patient Involvement
- Health Sciences › Medicine › Pulmonary and Respiratory Medicine › Cystic Fibrosis Research Advances
- Health Sciences › Health Professions › General Health Professions › Health Policy Implementation Science
- Keywords
- cystic fibrosis, patient engagement, family involvement, healthcare workers, patient activation, chronic care, shared decision-making, patient-centered care
- MeSH terms
- Adolescent, Adult, Child, Child, Preschool, Cystic Fibrosis, Female, Humans, Interpersonal Relations, Male, Nurse-Patient Relations, Physician-Patient Relations, Professional-Family Relations, Quality Assurance, Health Care, Role, United States, Delivery of Health Care, Integrated, Interdisciplinary Communication, Quality Improvement
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