Cited by 141Palliative Care and End-of-Life IssuesEthics and bioethics in healthcarePalliative and Oncologic Care

Advance euthanasia directives: a controversial case and its ethical implications

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Miller, David Gibbes, Dresser, Rebecca, Kim, Scott Y H·2019·Journal of Medical Ethics

Abstract

Authorising euthanasia and assisted suicide with advance euthanasia directives (AEDs) is permitted, yet debated, in the Netherlands. We focus on a recent controversial case in which a Dutch woman with Alzheimer's disease was euthanised based on her AED. A Dutch euthanasia review committee found that the physician performing the euthanasia failed to follow due care requirements for euthanasia and assisted suicide. This case is notable because it is the first case to trigger a criminal investigation since the 2002 Dutch euthanasia law was enacted. Thus far, only brief descriptions of the case have been reported in English language journals and media. We provide a detailed description of the case, review the main challenges of preparing and applying AEDs for persons with dementia and briefly assess the adequacy of the current oversight system governing AEDs.

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  • Some advance request EAS cases have been widely discussed, and one case led to the first prosecution of a doctor since the 2002 law was enacted.

    “Some of these advance request EAS cases have been widely discussed(4, 7–10) and one case led to the first prosecution of a doctor since the 2002 law was enacted (Box).(5)”

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  1. [6]Regional Euthanasia Review Committees, The Hague, the Netherlands Oordeel 2016 38 2017 https://www.euthanasiecommissie.nl/uitspraken/publicaties/oordelen/2016/uitzichtloos-en-ondraaglijk/oordeel-2016-38 (accessed 21 Dec 2017)
  2. [11]Regional Euthanasia Review Committees, The Hague, the Netherlands Code of Practice 2015 https://www.euthanasiecommissie.nl/de-toetsingscommissies/uitspraken/brochures/brochures/code-of-practice/1/code-of-practice (accessed 20 Jul 2017)
  3. [28]Regional Euthanasia Review Committees, The Hague, the Netherlands Annual Report 2013 https://www.euthanasiecommissie.nl/uitspraken/jaarverslagen/2013/nl-en-du-fr/nl-en-du-fr/jaarverslag-2013 (accessed 19 Sep 2016)
  4. [29]Regional Euthanasia Review Committees, The Hague, the Netherlands Oordeel 2016-85 2017 https://www.euthanasiecommissie.nl/uitspraken/publicaties/oordelen/2016/niet-gehandeld-overeenkomstig-de-zorgvuldigheidseisen/oordeel-2016-85 (accessed 21 Jul 2017)

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Authors
Miller, D. G., Dresser, R., & Kim, S. Y. H.
Affiliations
National Institutes of Health (US)
Corresponding author
Kim, Scott Y H
Venue
Journal of Medical Ethics
Publisher
BMJ
Published
2018-03-03
Volume
45
Issue
2
Pages
84-89
ISSN
  • 0306-6800 (ISSN-L)
  • 1473-4257
OpenAlex
W2790148491
Cited by
141
References
19
Citations by year
2026: 2 · 2025: 7 · 2024: 9 · 2023: 7 · 2022: 14 · 2021: 35 · 2020: 12 · 2019: 15 · 2018: 39
FWCI
24.08
Type
journal article
Language
en
Open access
Locations
  • Journal of Medical Ethics (publishedVersion)
  • PubMed (publishedVersion)
  • PubMed Central (acceptedVersion)
  • HighWire Press Open Archive (submittedVersion)
Funders
NIH Clinical Center
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics and bioethics in healthcare
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Keywords
euthanasia, assisted suicide, Alzheimer's disease, dementia, criminal investigation, euthanasia legislation
MeSH terms
Aged, Alzheimer Disease, Female, Humans, Netherlands, Advance Directives, Suicide, Assisted, Ethics Committees, Clinical, Euthanasia, Active, Voluntary

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