The DOI matches its Crossref record; 40 of the 42 references it cites were found in a registry or an index.
"I am just terrified of my future" Epistemic Violence in Disability Related Technology Research
Abstract
Technology for disabled people is often developed by non-disabled populations, producing an environment where the perspectives of disabled researchers - particularly when they clash with normative ways of approaching accessible technology - are denigrated, dismissed or treated as invalid. This epistemic violence has manifest material consequences for our lives as disabled researchers engaging with work on our own states of being. Through a series of vignettes, we illustrate our experiences and the associated pain that comes with such engagement as well as the consequences of pervasive dehumanization of ourselves through existing works. Our aim is to identify the epistemic injustice disabled people experience within HCI, to question the epistemological base of knowledge production leading to said injustice and to take ownership of a narrative that all too often is created without our participation.
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“Ignoring the long-tail communication patterns and needs thus reflects a broader pattern of epistemic injustice in AI [2, 111].”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [111]
In the citing paper
“HCI scholars note that existing work often overlooks the expertise of disabled people, with many studies consulting parents, caregivers, or doctors instead of individuals, perpetuating the medical model of disability [66].”
From Infrastructuring as Collective Resistance: How Disabled Students Negotiate Access Through Technology in Universities (2026) · cites this paper as [66]
Citations
Cites
Situated Knowledges: The Science Question in Feminism and the Privilege of Partial Perspective
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Tracking Epistemic Violence, Tracking Practices of Silencing
Dotson, K. (2011) · Hypatia · doi:10.1111/j.1527-2001.2011.01177.x · Cited by 2,150 · cited 1×
“Extending Spivak’s work, scholars such as Fricker, Medina and Dotson have articulated ideas of epistemic injustice and epistemic violence: harm done when one’s status as a knower, and, consequently, one’s personhood, is denied and delegitimized [14, 19, 33].”
BackgroundOn the ontological status of autism: the ‘double empathy problem’
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“, by setting priorities in research funding [40]), then the treatment of knowledge and who counts as someone producing valid knowledge has consequences.”
BackgroundDis/entangling Critical Disability Studies
Goodley, D. (2013) · Disability & Society · doi:10.1080/09687599.2012.717884 · Cited by 575
Epistemic Injustice: Power and the Ethics of Knowing
Jones, W. E. (2009) · Ratio · doi:10.1111/j.1467-9329.2009.00439.x · Cited by 518
Embodiment and sense-making in autism
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The Promise of Empathy: Design, Disability, and Knowing the "Other"
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Self-citation
Research works printed but not linked: 15
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- Rua M. Williams and LouAnne E. Boyd. 2019. Prefigurative Politics and Passionate Witnessing. In The 21st International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS '19). ACM, New York, NY, USA, 262--266.
- Rua M Williams and Juan E Gilbert. 2019. "Nothing About Us Without Us" Transforming Participatory Research and Ethics in Human Systems Engineering. In Advancing Diversity, Inclusion, and Social Justice Through Human Systems Engineering, Rod D. Roscoe, Erin K. Chiou, and Abigail R. Wooldridge (Eds.). CRC Press, Cleveland, OH, USA, chapter 9.
Cited by
Sorted by citations
Spiel, K., & Gerling, K. (2021) · ACM Transactions on Computer-Human Interaction · doi:10.1145/3432245 · Cited by 198
Self-citationLiving Disability Theory: Reflections on Access, Research, and Design
Hofmann, M., Kasnitz, D., Mankoff, J., & Bennett, C. L. (2020) · Proceedings of the 22nd International ACM SIGACCESS Conference on Computers and Accessibility · doi:10.1145/3373625.3416996 · Cited by 200
Self-citationADHD and Technology Research – Investigated by Neurodivergent Readers
Spiel, K., Hornecker, E., Williams, R. M., & Good, J. (2022) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3491102.3517592 · Cited by 150
Self-citationDas, M., Tang, J., Ringland, K. E., & Piper, A. M. (2021) · Proceedings of the ACM on Human-Computer Interaction · doi:10.1145/3449282 · Cited by 142
The Bodies of TEI – Investigating Norms and Assumptions in the Design of Embodied Interaction
Spiel, K. (2021) · International Conference on Tangible, Embedded, and Embodied Interaction (TEI) · doi:10.1145/3430524.3440651 · Cited by 141
Self-citation
Metadata
- Authors
- Ymous, A., Spiel, K., Keyes, O., Williams, R. M., Good, J., Hornecker, E., & Bennett, C. L.
- Affiliations
- University of Somewhere, Too Many Places, Denmark
- University of Vienna (AT)
- University of Washington (US)
- University of Florida, Gainesville, FL, USA
- University of Sussex (GB)
- Bauhaus-Universität Weimar (DE)
- Carnegie Mellon University (US)
- Venue
- Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems
- Publisher
- ACM
- Published
- 2020-04-25
- Pages
- 1-16
- OpenAlex
- W3030028481
- Cited by
- 160
- References
- 42
- Citations by year
- 2026: 25 · 2025: 28 · 2024: 25 · 2023: 27 · 2022: 21 · 2021: 30 · 2020: 4
- FWCI
- 21.26
- Type
- conference paper
- Language
- en
- Open access
- closed
- Locations
- CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) (publishedVersion)
- Funders
- Microsoft (Ada Lovelace Fellowship)
- Topics
- Social Sciences › Sociology and Political Science › Disability Rights and Representation
- Social Sciences › Sociology and Political Science › Feminist Epistemology and Gender Studies
- Social Sciences › Human Factors and Ergonomics › Digital Accessibility for Disabilities
- Keywords
- epistemic violence, epistemic injustice, disabled researchers, accessible technology, disability studies, human-computer interaction, dehumanization, knowledge production, researcher participation
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