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"I am just terrified of my future" Epistemic Violence in Disability Related Technology Research
Abstract
Technology for disabled people is often developed by non-disabled populations, producing an environment where the perspectives of disabled researchers - particularly when they clash with normative ways of approaching accessible technology - are denigrated, dismissed or treated as invalid. This epistemic violence has manifest material consequences for our lives as disabled researchers engaging with work on our own states of being. Through a series of vignettes, we illustrate our experiences and the associated pain that comes with such engagement as well as the consequences of pervasive dehumanization of ourselves through existing works. Our aim is to identify the epistemic injustice disabled people experience within HCI, to question the epistemological base of knowledge production leading to said injustice and to take ownership of a narrative that all too often is created without our participation.
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“Ignoring the long-tail communication patterns and needs thus reflects a broader pattern of epistemic injustice in AI [2, 111].”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [111]
In the citing paper
“HCI scholars note that existing work often overlooks the expertise of disabled people, with many studies consulting parents, caregivers, or doctors instead of individuals, perpetuating the medical model of disability [66].”
From Infrastructuring as Collective Resistance: How Disabled Students Negotiate Access Through Technology in Universities (2026) · cites this paper as [66]
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Materiality Matters in Computing Education: A Duoethnography of Two Digital Logic Educators
Mayhew, E. J., & Patitsas, E. (2021) · doi:10.21428/bf6fb269.19c98f37 · Cited by 6
Tang, X., Li, J., & Wu, S. (2026) · Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3772318.3790405 · Cited by 4
“Ignoring the long-tail communication patterns and needs thus reflects a broader pattern of epistemic injustice in AI [2, 111].”
Designing for Community Care: Reimagining Support for Equity & Well-being in Academia
Severes, B., Henriques, A. O., Clark, R. S., Bala, P., Carter, A. R. L., Williams, A., & Fitzpatrick, G. (2025) · Designing Interactive Systems Conference · doi:10.1145/3715668.3734177 · Cited by 4
Disability Theory in HCI: Research Reform through Community, Learning, and Play
Williams, A. (2025) · Research on Equity and Sustained Participation in Engineering, Computing, and Technology (RESPECT) · doi:10.1145/3704637.3734761 · Cited by 4
Taheri, A., Sra, M., Carrington, P., & Bigham, J. P. (2025) · International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS) · doi:10.1145/3663547.3749829 · Cited by 5
Disability Intimacy in HCI: Defining a Community-Driven Research Agenda
Osipova, E., Rodolitz, J., Crawford, K. A., Kender, K., Henriques, A. O., Park, C., Piedade, P., Wood, R. E., & Spiel, K. (2025) · International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS) · doi:10.1145/3663547.3748640 · Cited by 4
Self-citationYan, C. T. (2023) · Journal of the Society for Social Work and Research · doi:10.1086/725433 · Cited by 4
Griggio, C. F., Machuca, M. D. B., Wong-Villacrés, M., Gaytan-Lugo, L. S., Badillo-Urquiola, K. A., Garcia, A. A., Perusquía-Hernández, M., Felice, M. C., Cibrian, F. L., Thomas, M., et al. (2024) · ACM Conference on Computer Supported Cooperative Work (CSCW) · doi:10.1145/3678884.3681904 · Cited by 4
Tang, X., & Zhang, W. (2026) · Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3772318.3790464 · Cited by 3
“In accessible computing, autoethnographic studies have provided valuable insights into broader contexts shaping accessibility and informed the design of assistive technologies [2, 12, 37, 41, 50, 98, 99].”
Evil Autistic Master Plan For Academia: HCI Edition
Kender, K., & Osipova, E. (2025) · CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) · doi:10.1145/3706599.3716226 · Cited by 3
Piedade, P., Carter, A. R. L., Prada, R., & Nicolau, H. (2025) · CHI Conference on Human Factors in Computing Systems · doi:10.1145/3706598.3713539 · Cited by 5
Yousufi, M. Y. K., Alexander, C. S., & Parvin, N. (2025) · Proceedings of the ACM on Human-Computer Interaction · doi:10.1145/3757573 · Cited by 4
Pluriversal Approach to Co-designing Delivery Robots with People with Disabilities
Boadi-Agyemang, A., Moharana, S., Bennett, C. L., Carter, E. J., Carrington, P., & Steinfeld, A. M. (2026) · ACM/IEEE International Conference on Human-Robot Interaction (HRI) · doi:10.1145/3757279.3785567 · Cited by 3
Self-citationWalking and Talking, Rocking and Rolling: Moral Visibility in Contexts of Technology Development
Shew, A., & van Grunsven, J. (2024) · Kennedy Institute of Ethics journal · doi:10.1353/ken.2024.a958992 · Cited by 4
Metadata
- Authors
- Ymous, A., Spiel, K., Keyes, O., Williams, R. M., Good, J., Hornecker, E., & Bennett, C. L.
- Affiliations
- University of Somewhere, Too Many Places, Denmark
- University of Vienna (AT)
- University of Washington (US)
- University of Florida, Gainesville, FL, USA
- University of Sussex (GB)
- Bauhaus-Universität Weimar (DE)
- Carnegie Mellon University (US)
- Venue
- Extended Abstracts of the 2020 CHI Conference on Human Factors in Computing Systems
- Publisher
- ACM
- Published
- 2020-04-25
- Pages
- 1-16
- OpenAlex
- W3030028481
- Cited by
- 160
- References
- 42
- Citations by year
- 2026: 25 · 2025: 28 · 2024: 25 · 2023: 27 · 2022: 21 · 2021: 30 · 2020: 4
- FWCI
- 21.26
- Type
- conference paper
- Language
- en
- Open access
- closed
- Locations
- CHI Conference Extended Abstracts on Human Factors in Computing Systems (CHI EA) (publishedVersion)
- Funders
- Microsoft (Ada Lovelace Fellowship)
- Topics
- Social Sciences › Sociology and Political Science › Disability Rights and Representation
- Social Sciences › Sociology and Political Science › Feminist Epistemology and Gender Studies
- Social Sciences › Human Factors and Ergonomics › Digital Accessibility for Disabilities
- Keywords
- epistemic violence, epistemic injustice, disabled researchers, accessible technology, disability studies, human-computer interaction, dehumanization, knowledge production, researcher participation
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