Sharing Practices for Datasets Related to Accessibility and Aging
Open accessAbstract
Datasets sourced from people with disabilities and older adults play an important role in innovation, benchmarking, and mitigating bias for both assistive and inclusive AI-infused applications. However, they are scarce. We conduct a systematic review of 137 accessibility datasets manually located across different disciplines over the last 35 years. Our analysis highlights how researchers navigate tensions between benefits and risks in data collection and sharing. We uncover patterns in data collection purpose, terminology, sample size, data types, and data sharing practices across communities of focus. We conclude by critically reflecting on challenges and opportunities related to locating and sharing accessibility datasets calling for technical, legal, and institutional privacy frameworks that are more attuned to concerns from these communities.
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Prior efforts of disability-first datasets often focus on the data collection process.
“While prior efforts of disabilityfirst datasets often focus on the data collection process [36, 47, 63, 68, 88, 98], our study represents an important step in centering disabled people and their expertise throughout the AI development pipeline.”
From Disability-First AI Dataset Annotation: Co-designing Stuttered Speech Annotation Guidelines with People Who Stutter (2026) · cites this paper as [47]
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Tang, X., Li, J., & Wu, S. (2026) · Proceedings of the 2026 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3772318.3790405 · Cited by 4 · see citing works
“Extendingexistingaccessibilitydataresearch that has primarily focused on data collection [26, 36, 47, 48, 88 , 98], we explore a disability-first approach that enables PWS to shape the interpretation of data from the outset and throughout the annotation process.”
- Authors
- Kamikubo, R., Dwivedi, U., & Kacorri, H.
- Affiliations
- University of Maryland, College Park (US)
- Venue
- Proceedings of the 23rd International ACM SIGACCESS Conference on Computers and Accessibility
- Publisher
- ACM
- Published
- 2021-10-17
- Volume
- 1
- Pages
- 1-16
- PMC
- PMC8855358
- OpenAlex
- W3195689867
- Cited by
- 13
- References
- 8
- Citations by year
- 2025: 5 · 2024: 1 · 2023: 3 · 2022: 2 · 2021: 2
- FWCI
- 1.66
- Type
- conference paper
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- International ACM SIGACCESS Conference on Computers and Accessibility (ASSETS) (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- arXiv (Cornell University) (submittedVersion)
- arXiv (Cornell University)
- Funders
- National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR) (#90REGE0008)
- Topics
- Physical Sciences › Computer Science › Information Systems › Research Data Management Practices
- Social Sciences › Safety Research › Ethics and Social Impacts of AI
- Social Sciences › Human Factors and Ergonomics › Digital Accessibility for Disabilities
- Keywords
- data sharing, people with disabilities, older adults, aging, assistive technology, inclusive AI, data collection ethics, data privacy, sample size
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