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Cited by 11Innovative Human-Technology InteractionUsability and User Interface DesignInnovative Approaches in Technology and Social Development

MyCareBudget: Co-creating a Healthcare Digital Commons with and for Disabled Citizens and their Unpaid Carers

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Glick, Peter, Crivellaro, Clara·2023·Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems
DOI 10.1145/3544548.3580934
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Abstract

Supporting disabled populations and their unpaid carers through designing sustainable healthcare interventions and infrastructures, is an important, yet challenging, area in HCI research. We report on a collaboration with 23 disabled citizens, unpaid carers, and a care organisation, wishing to co-develop digital responses to challenges they face in the management of self-directed care budgets. We describe how leveraging participatory methods, including asynchronous and remote engagements, enabled the co-creation of a sustainable digital common-pool resource, used by over 5,000 people worldwide. This study contributes novel configurations of methods and tools for co-design with ‘seldom heard’ populations. Demonstrating how these enabled the collective articulation of what constitutes trust, governance, and responsibility, in the design of a digital commons, “MyCareBudget”, offering peer-produced care documents for use by disabled citizens and their unpaid carers. We discuss implications for HCI interested in co-designing sustainable socio-technical interventions with underserved and marginalised populations, in healthcare settings.

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  • Peer-generated content and moderation were more trusted by care recipients than official guidance.

    “For example, one study showed that peer-generated content and moderation were more trusted by care recipients than official guidance [17].”

    From Infrastructuring as Collective Resistance: How Disabled Students Negotiate Access Through Technology in Universities (2026) · cites this paper as [17]

    Section 5.2 says participants considered peers more trustworthy sources of care information than local health authorities and agreed that peers should moderate content. It does not compare trust in peer moderation with official moderation or guidance. Section 4.4 also shows that participants included unpaid carers and third-sector staff, not only care recipients. (LLM, conf=0.86)

    Experimental — accuracy not yet measured

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Cited by

Sorted by citations

Authors
Glick, P., & Crivellaro, C.
Affiliations
Newcastle University (GB)
ORCID
Venue
Proceedings of the 2023 CHI Conference on Human Factors in Computing Systems
Publisher
ACM
Published
2023-04-19
Pages
1-16
DOI
10.1145/3544548.3580934
OpenAlex
W4366547368
Cited by
11
References
5
Citations by year
2026: 4 · 2025: 6 · 2024: 1
FWCI
2.55
Type
conference paper
Language
en
Open access
Licence
Locations
CHI Conference on Human Factors in Computing Systems (publishedVersion, cc-by-nc-nd)
Funders
Engineering and Physical Sciences Research Council (EP/L016176/1)
Topics
  • Physical Sciences › Computer Science › Human-Computer Interaction › Innovative Human-Technology Interaction
  • Physical Sciences › Computer Science › Human-Computer Interaction › Usability and User Interface Design
  • Social Sciences › Business, Management and Accounting › Management of Technology and Innovation › Innovative Approaches in Technology and Social Development
Keywords
informal caregivers, co-design, digital commons, participatory design, socio-technical interventions, marginalised populations

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