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iCanCope with Pain™: User‐Centred Design of a Web‐ and Mobile‐Based Self‐Management Program for Youth with Chronic Pain Based on Identified Health Care Needs
Open accessAbstract
BACKGROUND: While there are emerging web‐based self‐management programs for children and adolescents with chronic pain, there is currently not an integrated web‐ and smartphone‐based app that specifically addresses the needs of adolescents with chronic pain. OBJECTIVES: To conduct a needs assessment to inform the development of an online chronic pain self‐management program for adolescents, called iCanCope with Pain™. METHODS: A purposive sample of adolescents (n=23; 14 to 18 years of age) was recruited from two pediatric chronic pain clinics in Ontario. Interdisciplinary health care providers were also recruited from these sites. Three focus groups were conducted with adolescents (n=16) and one with pediatric health care providers (n=7). Individual adolescent interviews were also conducted (n=7). RESULTS: Qualitative analysis uncovered four major themes: pain impact; barriers to care; pain management strategies; and transition to adult care. Pain impacted social, emotional, physical and role functioning, as well as future goals. Barriers to care were revealed at the health care system, patient and societal levels. Pain management strategies included support systems, and pharmacological, physical and psychological approaches. Transition subthemes were: disconnect between pediatric and adult systems; skills development; parental role; and fear/anxiety. Based on these identified needs, the iCanCope with Pain™ architecture will include the core theory‐based functionalities of: symptom self‐monitoring; personalized goal setting; pain coping skills training; peer‐based social support; and chronic pain education. CONCLUSIONS: The proposed iCanCope with Pain™ program aims to address the self‐management needs of adolescents with chronic pain by improving access to disease information, strategies to manage symptoms and social support.
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“Other mobile-based technologies have been developed to assist patients in remotely self-monitoring symptoms and deliver interventions involving goal-setting for improving functioning, coping skills training and practice, and social support via discussion boards, goal sharing, and group-based challenges [55].”
From Best-evidence for the rehabilitation of chronic pain part 1: Pediatric pain (2019) · cites this paper as [55]
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“Our focus on reviewing studies of mHealth apps for self-managing chronic conditions may explain this finding, as these interventions encourage users to systematically record data and capture the variability of their disease state over time [84].”
From A Library of Analytic Indicators to Evaluate Effective Engagement with Consumer mHealth Apps for Chronic Conditions: Scoping Review (2019) · cites this paper as [84]
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Self-citation
Metadata
- Authors
- Stinson, J. N., Lalloo, C., Harris, L., Isaac, L., Campbell, F., Brown, S., Ruskin, D., Gordon, A., Galonski, M., Pink, L. R., Buckley, N., Henry, J. L., White, M., & Karim, A.
- Affiliations
- University of Toronto (CA)
- McMaster University (CA)
- Mount Sinai Hospital (CA)
- Corresponding author
- Stinson, Jennifer N
- ORCID
- Venue
- Pain Research and Management
- Publisher
- Wiley
- Published
- 2014-01
- Volume
- 19
- Issue
- 5
- Pages
- 257-265
- ISSN
- 1203-6765 (ISSN-L)
- 1918-1523
- PMC
- PMC4197753
- OpenAlex
- W88007950
- Cited by
- 149
- References
- 65
- Citations by year
- 2026: 4 · 2025: 11 · 2024: 6 · 2023: 17 · 2022: 16 · 2021: 22 · 2020: 16 · 2019: 14 · 2018: 15 · 2017: 10 · 2016: 10 · 2015: 6 · 2014: 2
- FWCI
- 8.77
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Pain Research and Management (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- TSpace (University of Toronto) (submittedVersion, cc-by-nc)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Canadian Pain Society
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Keywords
- chronic pain, adolescents, self-management program, user-centered design, online intervention, mobile health apps, needs assessment, barriers to care, transition to adult care, pain coping skills training, peer support, symptom self-monitoring, goal setting
- MeSH terms
- Adolescent, Child, Female, Humans, Male, Self Care, Needs Assessment, Internet, Chronic Pain, Pain Management, Mobile Applications
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