The DOI matches its Crossref record; 65 of the 65 references it cites were found in a registry or an index.
iCanCope with Pain™: User‐Centred Design of a Web‐ and Mobile‐Based Self‐Management Program for Youth with Chronic Pain Based on Identified Health Care Needs
Open accessAbstract
BACKGROUND: While there are emerging web‐based self‐management programs for children and adolescents with chronic pain, there is currently not an integrated web‐ and smartphone‐based app that specifically addresses the needs of adolescents with chronic pain. OBJECTIVES: To conduct a needs assessment to inform the development of an online chronic pain self‐management program for adolescents, called iCanCope with Pain™. METHODS: A purposive sample of adolescents (n=23; 14 to 18 years of age) was recruited from two pediatric chronic pain clinics in Ontario. Interdisciplinary health care providers were also recruited from these sites. Three focus groups were conducted with adolescents (n=16) and one with pediatric health care providers (n=7). Individual adolescent interviews were also conducted (n=7). RESULTS: Qualitative analysis uncovered four major themes: pain impact; barriers to care; pain management strategies; and transition to adult care. Pain impacted social, emotional, physical and role functioning, as well as future goals. Barriers to care were revealed at the health care system, patient and societal levels. Pain management strategies included support systems, and pharmacological, physical and psychological approaches. Transition subthemes were: disconnect between pediatric and adult systems; skills development; parental role; and fear/anxiety. Based on these identified needs, the iCanCope with Pain™ architecture will include the core theory‐based functionalities of: symptom self‐monitoring; personalized goal setting; pain coping skills training; peer‐based social support; and chronic pain education. CONCLUSIONS: The proposed iCanCope with Pain™ program aims to address the self‐management needs of adolescents with chronic pain by improving access to disease information, strategies to manage symptoms and social support.
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“Other mobile-based technologies have been developed to assist patients in remotely self-monitoring symptoms and deliver interventions involving goal-setting for improving functioning, coping skills training and practice, and social support via discussion boards, goal sharing, and group-based challenges [55].”
From Best-evidence for the rehabilitation of chronic pain part 1: Pediatric pain (2019) · cites this paper as [55]
Experimental — accuracy not yet measuredIn the citing paper
“Our focus on reviewing studies of mHealth apps for self-managing chronic conditions may explain this finding, as these interventions encourage users to systematically record data and capture the variability of their disease state over time [84].”
From A Library of Analytic Indicators to Evaluate Effective Engagement with Consumer mHealth Apps for Chronic Conditions: Scoping Review (2019) · cites this paper as [84]
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Cited by
Sorted by citations
Lalloo, C., Jibb, L. A., Rivera, J., Agarwal, A., & Stinson, J. N. (2015) · The Clinical Journal of Pain · doi:10.1097/ajp.0000000000000171 · Cited by 257
Majeed-Ariss, R., Baildam, E., Campbell, M., Chieng, A., Fallon, D., Hall, A., McDonagh, J. E., Stones, S. R., Thomson, W., & Swallow, V. (2015) · Journal of Medical Internet Research · doi:10.2196/jmir.5043 · Cited by 251
Slater, H., Campbell, J. M., Stinson, J. N., Burley, M. M., & Briggs, A. M. (2017) · Journal of Medical Internet Research · doi:10.2196/jmir.8888 · Cited by 155
“Recent efforts address some of these gaps, providing evidence for how mHealth apps can improve the access of young people with chronic pain to disease information, facilitate symptom management and social support [4], and support their self-management of cancer pain [14,15].”
Self-citationBest-evidence for the rehabilitation of chronic pain part 1: Pediatric pain
Harrison, L. E., Pate, J. W., Richardson, P. A., Ickmans, K., Wicksell, R. K., & Simons, L. E. (2019) · Journal of Clinical Medicine · doi:10.3390/jcm8091267 · Cited by 140
“…al., 2017a [47]; Kempert et al., 2017b [45] Desensitization Sherry et al., 1999 [48] Internet and mobile applications Bonnert et al., 2019 [53]; Palermo et al., 2018 [54];Stinson et al., 2014 [55] Virtual Reality Won et al., 2015 [56] *; Won et al., 2017 [57] Note: Tame the Beast and What is Pain?”
BackgroundPham, Q., Graham, G., Carrion, C., Morita, P. P., Seto, E., Stinson, J. N., & Cafazzo, J. A. (2019) · JMIR mHealth and uHealth · doi:10.2196/11941 · Cited by 131
Self-citation
Metadata
- Authors
- Stinson, J. N., Lalloo, C., Harris, L., Isaac, L., Campbell, F., Brown, S., Ruskin, D., Gordon, A., Galonski, M., Pink, L. R., Buckley, N., Henry, J. L., White, M., & Karim, A.
- Affiliations
- University of Toronto (CA)
- McMaster University (CA)
- Mount Sinai Hospital (CA)
- Corresponding author
- Stinson, Jennifer N
- ORCID
- Venue
- Pain Research and Management
- Publisher
- Wiley
- Published
- 2014-01
- Volume
- 19
- Issue
- 5
- Pages
- 257-265
- ISSN
- 1203-6765 (ISSN-L)
- 1918-1523
- PMC
- PMC4197753
- OpenAlex
- W88007950
- Cited by
- 149
- References
- 65
- Citations by year
- 2026: 4 · 2025: 11 · 2024: 6 · 2023: 17 · 2022: 16 · 2021: 22 · 2020: 16 · 2019: 14 · 2018: 15 · 2017: 10 · 2016: 10 · 2015: 6 · 2014: 2
- FWCI
- 8.77
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- Locations
- Pain Research and Management (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by-nc)
- PubMed (publishedVersion)
- TSpace (University of Toronto) (submittedVersion, cc-by-nc)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion)
- Funders
- Canadian Pain Society
- Topics
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Adolescent and Pediatric Healthcare
- Keywords
- chronic pain, adolescents, self-management program, user-centered design, online intervention, mobile health apps, needs assessment, barriers to care, transition to adult care, pain coping skills training, peer support, symptom self-monitoring, goal setting
- MeSH terms
- Adolescent, Child, Female, Humans, Male, Self Care, Needs Assessment, Internet, Chronic Pain, Pain Management, Mobile Applications
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