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Factors underlying caregiver stress in frontotemporal dementia and Alzheimer's disease
Abstract
BACKGROUND: Frontotemporal dementia (FTD) has devastating effects on patients and caregivers, yet the factors underlying caregiver stress are poorly understood. METHODS: 108 caregivers (79 = FTD, 29 = Alzheimer's disease) participated in a postal survey. Self-report measures of perceived stress, depression, social networks, as well as patient-based measures of behaviour change and activities of daily living were completed. RESULTS: Depression was a cardinal feature in FTD caregivers, and it accounted for more than 58% of stress scores. Both depression and stress were significantly higher than in AD. Neither the severity of behaviour changes nor functional disability explained caregiver stress. CONCLUSION: Caregiver stress is a multidimensional construct, and FTD caregivers should receive more support than currently available. Depression plays a key role in coping ability.
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“It has been found that frontotemporal dementia can lead to greater carer burden and depression than Alzheimer's disease (Mioshi et al. , 2009; Nunnemann et al. , 2012)”
From Which interventions work for dementia family carers?: an updated systematic review of randomized controlled trials of carer interventions. (2018) · cites this paper as Mioshi et al., 2009
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Metadata
- Authors
- Mioshi, E., Bristow, M., Cook, R., & Hodges, J. R.
- Affiliations
- Neuroscience Research Australia (AU)
- Anglia Ruskin University (GB)
- MRC Cognition and Brain Sciences Unit (GB)
- Venue
- Dementia and Geriatric Cognitive Disorders
- Publisher
- S. Karger AG
- Published
- 2009
- Volume
- 27
- Issue
- 1
- Pages
- 76-81
- ISSN
- 1420-8008 (ISSN-L)
- 1421-9824
- OpenAlex
- W2059976515
- Cited by
- 133
- References
- 20
- Citations by year
- 2025: 3 · 2024: 4 · 2023: 12 · 2022: 4 · 2021: 4 · 2020: 3 · 2019: 7 · 2018: 5 · 2017: 9 · 2016: 11 · 2015: 11 · 2014: 14 · 2013: 16 · 2012: 9
- FWCI
- 6.17
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Dementia and Geriatric Cognitive Disorders (publishedVersion)
- PubMed (publishedVersion)
- UEA Digital Repository (University of East Anglia) (submittedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- caregiver stress, frontotemporal dementia, Alzheimer's disease, caregiver depression, perceived stress, social networks, behavior change, activities of daily living, functional disability, coping, caregiver support
- MeSH terms
- Activities of Daily Living, Aged, Alzheimer Disease, Behavior, Dementia, Depression, Female, Humans, Male, Psychometrics, Sex Factors, Social Support, Stress, Psychological, Caregivers
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