Cited by 133Dementia and Cognitive Impairment ResearchNursing care and researchFamily Caregiving in Mental Illness

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Factors underlying caregiver stress in frontotemporal dementia and Alzheimer's disease

Mioshi, Eneida, Bristow, Matt, Cook, Rachel, Hodges, John R.·2009·Dementia and Geriatric Cognitive Disorders

DOI 10.1159/000193626

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Abstract

BACKGROUND: Frontotemporal dementia (FTD) has devastating effects on patients and caregivers, yet the factors underlying caregiver stress are poorly understood. METHODS: 108 caregivers (79 = FTD, 29 = Alzheimer's disease) participated in a postal survey. Self-report measures of perceived stress, depression, social networks, as well as patient-based measures of behaviour change and activities of daily living were completed. RESULTS: Depression was a cardinal feature in FTD caregivers, and it accounted for more than 58% of stress scores. Both depression and stress were significantly higher than in AD. Neither the severity of behaviour changes nor functional disability explained caregiver stress. CONCLUSION: Caregiver stress is a multidimensional construct, and FTD caregivers should receive more support than currently available. Depression plays a key role in coping ability.

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Authors: Mioshi, E., Bristow, M., Cook, R., & Hodges, J. R.
Affiliations: Neuroscience Research Australia (AU)
Anglia Ruskin University (GB)
MRC Cognition and Brain Sciences Unit (GB)
ORCID: Mioshi, Eneida
Bristow, Matt
Hodges, John R.
Venue: Dementia and Geriatric Cognitive Disorders
Publisher: S. Karger AG
Published: 2009
Volume: 27
Issue: 1
Pages: 76-81
ISSN: 1420-8008 (ISSN-L)
1421-9824
DOI: 10.1159/000193626
OpenAlex: W2059976515
Cited by: 133
References: 20
Citations by year: 2025: 3 · 2024: 4 · 2023: 12 · 2022: 4 · 2021: 4 · 2020: 3 · 2019: 7 · 2018: 5 · 2017: 9 · 2016: 11 · 2015: 11 · 2014: 14 · 2013: 16 · 2012: 9
FWCI: 6.17
Type: journal article
Language: en
Open access: closed
Licence: www.karger.com/Services/SiteLicenses (vor)
www.karger.com/Services/SiteLicenses (tdm)
Locations: Dementia and Geriatric Cognitive Disorders (publishedVersion)
PubMed (publishedVersion)
UEA Digital Repository (University of East Anglia) (submittedVersion)
Topics: Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
Health Sciences › Nursing › Research and Theory › Nursing care and research
Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
Keywords: caregiver stress, frontotemporal dementia, Alzheimer's disease, caregiver depression, perceived stress, social networks, behavior change, activities of daily living, functional disability, coping, caregiver support
MeSH terms: Activities of Daily Living, Aged, Alzheimer Disease, Behavior, Dementia, Depression, Female, Humans, Male, Psychometrics, Sex Factors, Social Support, Stress, Psychological, Caregivers

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Factors underlying caregiver stress in frontotemporal dementia and Alzheimer's disease

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