The DOI matches its Crossref record; 41 of the 41 references it cites were found in a registry or an index.
Timeliness of Autism Spectrum Disorder Diagnosis and Use of Services Among U.S. Elementary School–Aged Children
Open accessAbstract
OBJECTIVE: This study assessed the relationship of timeliness of autism spectrum disorder (ASD) diagnosis with current use of ASD-related services in a nationally representative sample of U.S. children. METHODS: The Centers for Disease Control's (CDC's) Survey of Pathways to Diagnosis and Services was used to assess experiences of 722 children ages six to 11 with ASD. Bivariate and multivariate analyses were used to explore associations between age at ASD diagnosis and delay in ASD diagnosis and use of health services. Health services included current use of behavioral intervention (BI) therapy, school-based therapy, complementary and alternative medicine (CAM), and psychotropic medications. RESULTS: Mean age at ASD diagnosis was 4.4 years, and mean diagnostic delay was 2.2 years. In adjusted analysis, older age at diagnosis (≥4 versus <4) was associated with lower likelihood of current BI or school-based therapy use and higher likelihood of current psychotropic medication use. Analyses that treated age at diagnosis as a continuous variable found that likelihood of current psychotropic medication use increased with older age at diagnosis. A delay of two or more years between parents' first discussion of concerns with a provider and ASD diagnosis was associated with higher likelihood of current CAM use. Likelihood of current CAM use increased as delay in diagnosis became longer. CONCLUSIONS: Both older age at diagnosis and longer delay in diagnosis were associated with different health services utilization patterns among younger children with ASD. Prompt and early diagnosis may be associated with increased use of evidence-based therapies for ASD.
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“Early diagnosis and treatment have been linked to greater reduction in the core symptoms of ASD, higher likelihood of receiving behavioral therapy, and a reduction in the use of psychotropic medication.”
From Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood (2022) · cites this paper as [63]
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Baio, J., Wiggins, L., Christensen, D. L., Maenner, M. J., Daniels, J., Warren, Z., Kurzius-Spencer, M., Zahorodny, W., Robinson, C., Rosenberg, et al. (2018) · MMWR. Surveillance Summaries · doi:10.15585/mmwr.ss6706a1 · Cited by 6,078
Identification and Evaluation of Children With Autism Spectrum Disorders
Johnson, C. P., Myers, S. M., & and the Council on Children With Disabilities (2007) · Pediatrics · doi:10.1542/peds.2007-2361 · Cited by 2,011 · cited 2×
“Although major pediatric organizations recommend routine ASD screening (12,13), only around half of PCPs screen for ASD (14–16).”
Cochrane Database of Systematic Reviews
Lyons, R. (2006) · Progress in Neurology and Psychiatry · doi:10.1002/pnp.208 · Cited by 1,907
Naarden Braun, K. V., Lopez, M., White, T., et al. (2023) · Carolina Digital Repository (University of North Carolina at Chapel Hill) · doi:10.17615/y3kk-5x30 · Cited by 1,381
Management of Children With Autism Spectrum Disorders
Myers, S. M., Johnson, C. P., & the Council on Children With Disabilities (2007) · Pediatrics · doi:10.1542/peds.2007-2362 · Cited by 1,125 · cited 1×
“Other services address ASD comorbidities, such as attention problems and anxiety (19).”
Meta-Analysis of Early Intensive Behavioral Intervention for Children With Autism
Eldevik, S., Hastings, R. P., Hughes, J. C., Jahr, E., Eikeseth, S., & Cross, S. (2009) · Journal of Clinical Child & Adolescent Psychology · doi:10.1080/15374410902851739 · Cited by 747
Kogan, M. D., Strickland, B. B., Blumberg, S. J., Singh, G. K., Perrin, J. M., & van Dyck, P. C. (2008) · PEDIATRICS · doi:10.1542/peds.2008-1057 · Cited by 662 · cited 1×
“Child and family factors previously associated with age at ASD diagnosis and utilization of ASD-related health services served as covariates (33,34).”
Reichow, B., Barton, E. E., Boyd, B. A., & Hume, K. (2012) · Cochrane Database of Systematic Reviews · doi:10.1002/14651858.cd009260.pub2 · Cited by 577
Disparities in Diagnoses Received Prior to a Diagnosis of Autism Spectrum Disorder
Mandell, D. S., Ittenbach, R. F., Levy, S. E., & Pinto-Martin, J. A. (2007) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0314-8 · Cited by 533 · cited 1×
“Families may experience delays in diagnosis because of misdiagnosis of another condition, such as attention-deficit hyperactivity disorder, and, therefore, may use therapy or pharmacological treatments for the other condition (23).”
The diagnosis of autism and Asperger syndrome: findings from a survey of 770 families
Howlin, P., & Asgharian, A. (1999) · Developmental Medicine & Child Neurology · doi:10.1017/s0012162299001656 · Cited by 500
WIGGINS, L. D., BAIO, J., & RICE, C. (2006) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/00004703-200604002-00005 · Cited by 411 · cited 1×
“Delays may be related to lack of family knowledge about ASD and the health care system, disability stigma, difficulties in understanding how the health and education systems communicate or authorize treatment, long waiting periods for evaluations, and geographic or transportation barriers (15,17,18).”
Behavioral treatments in autism spectrum disorder: what do we know?
Vismara, L. A., & Rogers, S. J. (2010) · Annual Review of Clinical Psychology · doi:10.1146/annurev.clinpsy.121208.131151 · Cited by 376
Access to Diagnosis and Treatment Services Among Latino Children With Autism Spectrum Disorders
Magaña, S., Lopez, K., Aguinaga, A., & Morton, H. (2013) · Intellectual and Developmental Disabilities · doi:10.1352/1934-9556-51.3.141 · Cited by 375 · cited 1×
“We studied four measures of ASD-related health services use; each has previously varied among children with ASD (34,37,38) or related conditions (39).”
Guthrie, W., Swineford, L. B., Nottke, C., & Wetherby, A. M. (2013) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.12008 · Cited by 366
Barriers to detection, help-seeking, and service use for children with ADHD symptoms
Bussing, R., Zima, B. T., Gary, F. A., & Garvan, C. W. (2003) · The Journal of Behavioral Health Services & Research · doi:10.1007/bf02289806 · Cited by 303 · cited 1×
“We studied four measures of ASD-related health services use; each has previously varied among children with ASD (34,37,38) or related conditions (39).”
The onset of autism: patterns of symptom emergence in the first years of life
Ozonoff, S., Heung, K., Byrd, R., Hansen, R., & Hertz‐Picciotto, I. (2008) · Autism Research · doi:10.1002/aur.53 · Cited by 293 · cited 1×
“Signs of ASD usually develop in the first two years of life (3,4).”
Parental Recognition of Developmental Problems in Toddlers with Autism Spectrum Disorders
Chawarska, K., Paul, R., Klin, A., Hannigen, S., Dichtel, L. E., & Volkmar, F. (2007) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-006-0330-8 · Cited by 279
Sensory Integration Therapies for Children With Developmental and Behavioral Disorders
MEDICINE, S. O. C. A. I., Zimmer, M., Desch, L. W., Rosen, L. D., Bailey, M. L., Becker, D. K., CULBERT, T. P., McClafferty, H. H., Sahler, O. J. Z., Vohra, S., et al. (2012) · PEDIATRICS · doi:10.1542/peds.2012-0876 · Cited by 254 · cited 1×
“Other therapies—such as sensory integration therapy, complementary and alternative medicine (CAM), and psychopharmacological treatments for ASD—are more controversial (8,21,22).”
Pediatrician Identification of Latino Children at Risk for Autism Spectrum Disorder
Zuckerman, K. E., Mattox, K., Donelan, K., Batbayar, O., Baghaee, A., & Bethell, C. (2013) · Pediatrics · doi:10.1542/peds.2013-0383 · Cited by 231 · cited 1×
“Delays may be related to lack of family knowledge about ASD and the health care system, disability stigma, difficulties in understanding how the health and education systems communicate or authorize treatment, long waiting periods for evaluations, and geographic or transportation barriers (15,17,18).”
Self-citationComplementary and Alternative Medicine Treatments for Children with Autism Spectrum Disorders
Levy, S. E., & Hyman, S. L. (2008) · Child and Adolescent Psychiatric Clinics of North America · doi:10.1016/j.chc.2008.06.004 · Cited by 218
Parental Concerns, Provider Response, and Timeliness of Autism Spectrum Disorder Diagnosis
Zuckerman, K. E., Lindly, O. J., & Sinche, B. K. (2015) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2015.03.007 · Cited by 215 · cited 2×
“Nonetheless, some PCPs give false reassurance (9) or fail to direct families to diagnostic resources when valid parental concerns exist (10,11).”
Self-citationBolton, P. F., Golding, J., Emond, A., & Steer, C. D. (2012) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2011.12.009 · Cited by 193 · cited 1×
“Signs of ASD usually develop in the first two years of life (3,4).”
Morgan, P. L., Farkas, G., Hillemeier, M., & Maczuga, S. (2012) · Educational Research · doi:10.3102/0013189x12459678 · Cited by 134 · cited 1×
“Timeliness of diagnosis may affect families’ use of governmentfunded services that depend on a child’s age, for example, early intervention services provided under Part C of the Individuals With Disabilities Education Act (24).”
Parish, S. L., Magaña, S., Rose, R. A., Timberlake, M. T., & Swaine, J. G. (2012) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-117.4.304 · Cited by 119 · cited 1×
“We studied four measures of ASD-related health services use; each has previously varied among children with ASD (34,37,38) or related conditions (39).”
Validity of Maternal Report of Acute Health Care Use for Children Younger Than 3 Years
D’Souza-Vazirani, D., Minkovitz, C. S., & Strobino, D. M. (2005) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.159.2.167 · Cited by 118
Treatment choices in autism spectrum disorder: The role of parental illness perceptions
Anbar, N. N. A., Dardennes, R. M., Prado-Netto, A., Kaye, K., & Contejean, Y. (2010) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2010.02.007 · Cited by 117 · cited 1×
“Parents’ beliefs about ASD may play a role in subsequent treatment decisions (34,41); research exploring parents’ beliefs regarding treatment or longitudinal studies following families’ treatment decisions may elucidate these findings.”
Service and Treatment Use Among Children Diagnosed With Autism Spectrum Disorders
Zablotsky, B., Pringle, B. A., Colpe, L. J., Kogan, M. D., Rice, C. E., & Blumberg, S. J. (2015) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000127 · Cited by 115 · cited 2×
“ASD-related service use varies by type (for example, occupational therapy and prescribedmedication) and amount (for example, hours perweek and medication dose) (20).”
Taking Stock of the CSHCN Screener: A Review of Common Questions and Current Reflections
Bethell, C. D., Blumberg, S. J., Stein, R. E. K., Strickland, B. B., Robertson, J., & Newacheck, P. W. (2014) · Academic Pediatrics · doi:10.1016/j.acap.2014.10.003 · Cited by 112 · cited 1×
“Functional limitations status, a sensitive indicator of elevated health services use, was used as a severity marker (36) and was defined as an affirmative response to the CSHCN Screener functional limitations items (“Child is limited in any way in his/her ability to do things most children of the same age can do” beca…”
Carbone, P. S., Murphy, N. A., Norlin, C., Azor, V., Sheng, X., & Young, P. C. (2013) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-012-1640-7 · Cited by 91
Jimenez, M. E., Barg, F. K., Guevara, J. P., Gerdes, M., & Fiks, A. G. (2012) · Academic Pediatrics · doi:10.1016/j.acap.2012.08.006 · Cited by 89 · cited 1×
“Delays may be related to lack of family knowledge about ASD and the health care system, disability stigma, difficulties in understanding how the health and education systems communicate or authorize treatment, long waiting periods for evaluations, and geographic or transportation barriers (15,17,18).”
Complementary and Alternative Medicine Treatments for Children with Autism Spectrum Disorders
Levy, S. E., & Hyman, S. L. (2014) · Child and Adolescent Psychiatric Clinics of North America · doi:10.1016/j.chc.2014.09.004 · Cited by 85 · cited 1×
“Other therapies—such as sensory integration therapy, complementary and alternative medicine (CAM), and psychopharmacological treatments for ASD—are more controversial (8,21,22).”
Zuckerman, K. E., Lindly, O. J., Sinche, B., & Nicolaidis, C. (2015) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0000000000000136 · Cited by 79 · cited 3×
“Child and family factors previously associated with age at ASD diagnosis and utilization of ASD-related health services served as covariates (33,34).”
Self-citationRyan, S., & Salisbury, H. (2012) · British Journal of General Practice · doi:10.3399/bjgp12x641500 · Cited by 76 · cited 1×
“Nonetheless, some PCPs give false reassurance (9) or fail to direct families to diagnostic resources when valid parental concerns exist (10,11).”
Management of Autism Spectrum Disorders in Primary Care
Myers, S. M. (2009) · Pediatric Annals · doi:10.3928/00904481-20090101-08 · Cited by 62 · cited 1×
“Although the optimal type and amount of ASD therapy remain unclear, there is growing consensus that early therapy benefits children and families (40).”
Diagnosis of autism spectrum disorders in 2‐year‐olds: a study of community practice
Corsello, C. M., Akshoomoff, N. A., & Stahmer, A. C. (2012) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2012.02607.x · Cited by 56
Daniels, A. M., & Mandell, D. S. (2013) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-013-1831-x · Cited by 49
Parents as Partners in Obtaining the Medication History
Porter, S. C. (2005) · Journal of the American Medical Informatics Association · doi:10.1197/jamia.m1713 · Cited by 46
Parents as direct contributors to the medical record: Validation of their electronic input
Porter, S. C., Silvia, M. T., FLEISHER, G. R., Kohane, I. S., Homer, C. J., & Mandl, K. D. (2000) · Annals of Emergency Medicine · doi:10.1016/s0196-0644(00)70052-7 · Cited by 38
Ungar, W. J., Davidson-Grimwood, S. R., & Cousins, M. A. (2007) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2007.02.002 · Cited by 28
Weiss, K. B. (2002) · Ambulatory Pediatrics · doi:10.1367/1539-4409(2002)002 · Cited by 4
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Tackling healthcare access barriers for individuals with autism from diagnosis to adulthood
Malik-Soni, N., Shaker, A., Luck, H., Mullin, A. E., Wiley, R. E., Lewis, M. E. S., Fuentes, J., & Frazier, T. W. (2022) · Pediatric Research · doi:10.1038/s41390-021-01465-y · Cited by 309
Rahman, K. K. M., & Subashini, M. M. (2022) · Brain Sciences · doi:10.3390/brainsci12010094 · Cited by 151
RetractedTreatment patterns in children with autism in the United States
Monz, B. U., Houghton, R., Law, K., & Loss, G. J. (2019) · Autism Research · doi:10.1002/aur.2070 · Cited by 94
Barriers to early identification of autism in Brazil
Ribeiro, S. H. B., Paula, C. S., Bordini, D., Mari, J. D. J., & Caetano, S. C. (2017) · Brazilian Journal of Psychiatry · doi:10.1590/1516-4446-2016-2141 · Cited by 87
Hosozawa, M., Sacker, A., Mandy, W., Midouhas, E., Flouri, E., & Cable, N. (2020) · Autism · doi:10.1177/1362361320913671 · Cited by 73
“Early identification is essential to improve their prognosis through timely intervention (Dawson, 2008; Zuckerman et al., 2017) and adequate support at school and at home (Reed & Osborne, 2012; Ruiz Calzada et al., 2012).”
Metadata
- Authors
- Zuckerman, K., Lindly, O. J., & Chavez, A. E.
- Affiliations
- Oregon State University (US)
- Venue
- Psychiatric Services
- Published
- 2017-01-01
- Volume
- 68
- Issue
- 1
- Pages
- 33-40
- ISSN
- 0022-1597 (ISSN-L)
- 1075-2730
- 1557-9700
- PMC
- PMC5205571
- OpenAlex
- W2495737468
- Cited by
- 109
- References
- 40
- Citations by year
- 2026: 12 · 2025: 17 · 2024: 9 · 2023: 15 · 2022: 14 · 2021: 16 · 2020: 11 · 2019: 9 · 2018: 4 · 2017: 2
- FWCI
- 3.18
- Type
- journal article
- Language
- en
- Open access
- green
- www.ncbi.nlm.nih.gov
- Locations
- Psychiatric Services (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (acceptedVersion)
- Funders
- National Institute of Mental Health (K23MH095828)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Keywords
- autism spectrum disorder, delayed diagnosis, age at diagnosis, behavioral interventions, school-based treatment, complementary and alternative medicine, psychotropic drugs, early diagnosis, elementary school students
- MeSH terms
- Autism Spectrum Disorder, Complementary Therapies, Behavior Therapy, Centers for Disease Control and Prevention, U.S., Child, Child Health Services, Female, Humans, Male, Psychotropic Drugs, School Health Services, United States, Health Care Surveys, Delayed Diagnosis
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