Parent and pediatrician perspectives regarding the primary care of children with autism spectrum disorders
Abstract
Parents of children with autism spectrum disorders (ASD) (n = 144) and primary care providers (PCPs) (n = 144) completed similar surveys assessing the ability of the PCP to address ASD-specific needs. Parents also rated their PCP's ability to deliver family-centered care. A majority of parents rated their PCP's ability as "not good" in addressing 14 of 17 ASD-specific needs, while a majority of PCPs rated themselves as "good" in addressing 10 of 17 areas. On 7 of 17 items, parents rated their PCPs lower than PCPs rated themselves. Parents who reported receiving family-centered care were more likely to rate the PCP's ability to meet ASD specific needs as "good". Both parents and PCPs identified areas for improvement in caring for children with ASD.
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HCPs may not recognise the need to increase their knowledge and skills for working with children with autism.
“suggests that HCPs may not recognise the need to increase their knowledge and skills for working with children with autism.”
From A meta‐synthesis of how parents of children with autism describe their experience of accessing and using routine healthcare services for their children (2021) · cites this paper as Carbone et al., 2013
Families may become discouraged or disengaged during long referral processes, contributing to lower follow-through rates.
“Moreover, families may become discouraged or disengaged during long referral processes, contributing to lower follow-through rates (Carbone et al., 2010).”
From Navigating the Challenges: A Commentary on Barriers to Autism Screening in Childcare Centers (2026) · cites this paper as Carbone et al., 2010
Parents of children with ASD generally do not expect recommendations regarding ASD treatment from their PCP and consistently report that accessible, ASD-specific care is limited.
“Relatedly, parents of children with ASD generally do not expect recommendations regarding ASD treatment from their PCP and consistently report that accessible, ASD-specific care is limited [29, 30].”
From Pharmacological treatment in autism: a proposal for guidelines on common co-occurring psychiatric symptoms (2025) · cites this paper as [29]
Parents rated their PCP's ability to care for their children's ASD-specific needs as "not good".
“Parents rated their PCP’s ability to care for their children’s ASD-specific needs as “not good” [29].”
From Pharmacological treatment in autism: a proposal for guidelines on common co-occurring psychiatric symptoms (2025) · cites this paper as [29]
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- Authors
- Carbone, P. S., Murphy, N. A., Norlin, C., Azor, V., Sheng, X., & Young, P. C.
- Affiliations
- University of Utah (US)
- Corresponding author
- Carbone, Paul S.
- Venue
- Journal of Autism and Developmental Disorders
- Published
- 2012-09-05
- Volume
- 43
- Issue
- 4
- Pages
- 964-972
- ISSN
- 0162-3257 (ISSN-L)
- 1573-3432
- OpenAlex
- W2093864494
- Cited by
- 91
- References
- 56
- Citations by year
- 2026: 7 · 2025: 7 · 2024: 5 · 2023: 4 · 2022: 5 · 2021: 8 · 2020: 14 · 2019: 7 · 2018: 9 · 2017: 4 · 2016: 10 · 2015: 4 · 2014: 5 · 2013: 2
- FWCI
- 1.80
- Type
- journal article
- Language
- en
- Open access
- closed
- Licence
- www.springer.com/tdm (tdm)
- Locations
- Journal of Autism and Developmental Disorders (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
- Keywords
- autism spectrum disorder, primary care, family-centered care, parental attitudes, pediatricians' perspectives, pediatric care quality
- MeSH terms
- Adult, Child, Child Development Disorders, Pervasive, Child, Preschool, Female, Humans, Male, Parents, Pediatrics, Primary Health Care, Surveys and Questionnaires, Patient Satisfaction, Physicians, Primary Care
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