The DOI matches its Crossref record; 87 of the 87 references it cites were found in a registry or an index; 1 of the 28 sources its claims cite were checked for support.
The Social Construction of Illness: Key Insights and Policy Implications
Abstract
The social construction of illness is a major research perspective in medical sociology. This article traces the roots of this perspective and presents three overarching constructionist findings. First, some illnesses are particularly embedded with cultural meaning—which is not directly derived from the nature of the condition—that shapes how society responds to those afflicted and influences the experience of that illness. Second, all illnesses are socially constructed at the experiential level, based on how individuals come to understand and live with their illness. Third, medical knowledge about illness and disease is not necessarily given by nature but is constructed and developed by claims-makers and interested parties. We address central policy implications of each of these findings and discuss fruitful directions for policy-relevant research in a social constructionist tradition. Social constructionism provides an important counterpoint to medicine’s largely deterministic approaches to disease and illness, and it can help us broaden policy deliberations and decisions.
Overview
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Written from the paper’s full text.
TL;DR
This article reviews the social construction of illness perspective in medical sociology, tracing its roots and synthesizing three key findings: cultural meanings of illness, the socially constructed illness experience, and socially constructed medical knowledge. It argues these findings have policy implications and can broaden policy deliberations by countering medicine’s largely deterministic approaches.
Key findings
- Some illnesses carry cultural meanings not directly derived from biology, shaping social responses and the experience of illness; examples include stigmatized illnesses (e.g., epilepsy, HIV/AIDS), contested illnesses (e.g., chronic fatigue syndrome, fibromyalgia, irritable bowel syndrome, multiple chemical sensitivity), and disability as socially constructed. Policy implication: shift emphasis from biomedically fixing individuals toward changing the social and cultural context that gives illnesses negative meaning.
- All illnesses are socially constructed at the experiential level: people enact illness, construct identity, and manage daily life. Research uses in-depth interviews and insider views; Charmaz describes how chronic illness can shrink worlds, and millions of American women identify as breast cancer survivors and activists. Policy implications include moving from “compliance” to context-centered strategies, using illness narratives in pain management, and addressing lay knowledge and illness identities.
- Medical knowledge is socially constructed by claims-makers and interested parties. Feminist, science studies, and medicalization research show how medical ideas can reproduce gender, class, and racial-ethnic inequality and how diagnoses and markets expand—e.g., male impotence was renamed “erectile dysfunction” in the late 1990s, the FDA approved Viagra in 1998, and Pfizer marketed it to a broader audience. Policy implication: critically examine how problems are framed, because definitions shape policy and can authorize social control.
Methods
- Design: conceptual/review article, not an empirical study; it traces intellectual roots and synthesizes constructionist literature over the last 50 years.
- Data/sample: no original data or sample; it draws on prior sociological, historical, and feminist scholarship and case examples.
- Analysis: organizes key findings under three themes—cultural meanings of illness, illness experience, and medical knowledge—then discusses policy implications and future research directions.
Limitations
- The paper states it does not showcase criticisms of social constructionism, though it acknowledges important critiques: that it may deny the natural world, ignore whether some ideas better represent the world, and reproduce a false binary between real and socially constructed (Hacking 1999). It also notes criticisms/limitations of the disease/illness distinction (Timmermans and Haas 2008) and states its amalgam approach “minimizes important differences between various types of social constructionism.”
- Evident from the text: as a review/essay, it presents no systematic review protocol, no empirical data, and no tested policy outcomes; policy implications are illustrative and drawn from cited literature rather than evaluated here.
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Claims the paper makes
13 Sources not found · 3 Own interpretation · 3 No basis given · 2 No full text of the sources · 2 Not checked yet · 1 Partly supported · accuracy not yet measured
None of the sources cited for this claim have been checked yet.
In the paper
“Second, all illnesses are socially constructed at the experiential level, based on how individuals come to understand and live with their illness.”
- Also stated in: § Illness Experience as Socially Constructed · p. 5 · plain
“Another key insight of constructionism is that the illness experience is socially constructed.”
What the sources say
- Not matchedcites Charmaz 1991
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Not checked — no full text of the sourcecites Bury 1982 source
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
- Also stated in: § Illness Experience as Socially Constructed · p. 5 · plain
None of the sources cited for this claim could be matched to a paper in Crossref, so there is nothing to check it against.
In the paper
“Third, medical knowledge about illness and disease is not necessarily given by nature but is constructed and developed by claims-makers and interested parties.”
- Also stated in: § Medical Knowledge as Socially Constructed · p. 7 · hedged
“Eliot Freidson (1970) was probably the first medical sociologist to articulate how medical knowledge is socially constructed.”
What the sources say
- Not matchedcites Freidson 1970
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Not matchedcites Foucault 1977
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
- Also stated in: § Medical Knowledge as Socially Constructed · p. 7 · hedged
None of the sources cited for this claim could be matched to a paper in Crossref, so there is nothing to check it against.
In the paper
“The research of medical sociologists in the subfield of science studies also reveals how medical knowledge is conditioned by the social context in which it is developed.”
What the sources say
- Not matchedcites Joyce 2008
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Not matchedcites Timmermans 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
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- Not matched
The paper states this without a source or data behind it here, so there is nothing to check it against. The quote shows it is in the paper.
In the paper
“Likewise, the engines of medicalization have expanded beyond medical professionals, social movements, and organizations to biotechnology, consumers, and the insurance industry.”
plain- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
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In the paper
“In an earlier book, Epstein (1996) similarly underscored the politics of knowledge by demonstrating how the science regarding the cause and treatment of HIV/AIDS is best understood as an amalgam that was constructed and contested by different constituencies (e.g., scientists, doctors, drug companies, patients, and activists) rather than the outcome of 'pure' science.”
What the sources say
- Not matchedcites Epstein 1996
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
boosteddirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
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- Not matched
In the paper
“Even as this new paradigm offers potential tools for addressing nagging questions about health disparities-e.g., why do black women with breast cancer have higher mortality rates than their white counterparts?-it has the consequence of reifying the categories of race and gender as biological realities.”
What the sources say
- Not matchedcites Epstein 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
- Not matched
In the paper
“In a recent book Epstein (2007) analyzes the emergence, beginning in the mid-1980s, of a new paradigm of biomedical research that proactively included individuals from underrepresented social groups (e.g., women and racial and ethnic minorities) in clinical studies, with an eye toward understanding the differences between groups with respect to disease processes and treatment outcomes.”
What the sources say
- Not matchedcites Epstein 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plain- Asserted: passes — The authors put it forward as true.
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- Not matched
In the paper
“Epstein explains how the knowledge it produces about race and gender are in part the outcome of social and political conflicts and negotiations, as opposed to essential truths found in nature.”
What the sources say
- Not matchedcites Epstein 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
- Not matched
None of the sources cited for this claim have been checked yet.
In the paper
“Over the years, sociologists have shown that women's natural reproductive functions (e.g., pregnancy, childbirth, menstruation) are routinely medicalized (Barker 1998; Riessman 1983; Riska 2003).”
What the sources say
- Not checked — no full text of the sourcecites Barker 1998 source
- Not checked — no full text of the sourcecites Riessman 1983
- Not matchedcites Riska 2003
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
boosted- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: unclear — It is unclear whether the paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
A conclusion the paper draws from its own results — it cites no other source for it, so there is none to check. The quote shows it is in the paper.
In the paper
“When medical perspectives increasingly define obesity as an illness (rather than a risk factor for diseases such as diabetes, cardiovascular disease, etc.), policies focus on solutions such as gastric bypass surgeries, rather than examining the role of product promotion by the food industry or the availability of healthy foods in neighborhoods with high rates of obesity.”
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
- It may state two separate claims as one. 7
- Probably not a substantial claim. 5
The cited sources support only part of this claim — read each source’s verdict below.
In the paper
“First, some illnesses are particularly embedded with cultural meaning-which is not directly derived from the nature of the condition-that shapes how society responds to those afflicted and influences the experience of that illness.”
- Also stated in: § Cultural Meanings of Illness · p. 3 · plain
“certain illnesses have particular social or cultural meanings attributed to them. These meanings adhere to the illness and may have independent consequences on patients and health care.”
What the sources say
- Not checked — no full text of the sourcecites Sontag 1978
- Partly supportedcites Barry et al. 2009 sourceExperimental — accuracy not yet measured
The introductory discussion of illness metaphors and the “Reasoning by Metaphor” section show how meanings attached to health conditions shape public attitudes and policy responses. The “Obesity Metaphors” section also describes how people who are overweight may be treated badly in work and social settings. The paper does not establish the broader claim that such meanings are independent of a condition’s nature or generally shape the experience of illness. Page numbers were unavailable in our copy. (LLM, conf=0.82)
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
- Also stated in: § Cultural Meanings of Illness · p. 3 · plain
In the paper
“A social constructionist approach to illness is rooted in the widely recognized conceptual distinction between disease (the biological condition) and illness (the social meaning of the condition) (Eisenberg 1977).”
What the sources say
- Not checked — no full text of the sourcecites Eisenberg 1977 source
boosteddirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
Probably not a substantial claim.
None of the sources cited for this claim could be matched to a paper in Crossref, so there is nothing to check it against.
In the paper
“Contested illnesses, including chronic fatigue syndrome, fibromyalgia syndrome, irritable bowel syndrome, and multiple chemical sensitivity are medically suspect because they are not associated with any known physical abnormality.”
- Also stated in: § Cultural Meanings of Illness · p. 4 · plain
“contested illness sufferers are burdened by the cultural meaning of a medically invisible condition in an era of high-tech biomedicine”
What the sources say
- Not matchedcites Barker 2005
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Not matchedcites Brown 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Not matchedcites Kroll-Smith and Floyd 1997
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
- Also stated in: § Cultural Meanings of Illness · p. 4 · plain
None of the sources cited for this claim could be matched to a paper in Crossref, so there is nothing to check it against.
In the paper
“Because the attributes that are deemed disabilities, and the very meaning of being disabled, vary across time and space, disability cannot be reduced to a mere biological problem located in an individual's body”
- Also stated in: § Cultural Meanings of Illness · p. 4 · plain
“the body has an impairment (e.g., loss of limb) while society creates the disability”
What the sources say
- Not matchedcites Barnes, Mercer, and Shakespeare 1999
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
- Not matchedcites Oliver 1996
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
- Also stated in: § Cultural Meanings of Illness · p. 4 · plain
In the paper
“there is nothing inherent about a condition that makes it stigmatizing; rather, it is the social response to the condition and some of its manifestations, or the type of individuals who suffer from it, that make a condition stigmatized”
What the sources say
- Not matchedcites Conrad 1987
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
- Not matched
In the paper
“The emphasis is on how meanings of phenomena do not necessarily inhere in the phenomena themselves but develop through interaction in a social context.”
What the sources say
- Not matchedcites Berger and Luckman 1966
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
Probably not a substantial claim.
- Not matched
A conclusion the paper draws from its own results — it cites no other source for it, so there is none to check. The quote shows it is in the paper.
In the paper
“After all, any policy response to a problem is determined by how the problem is defined or framed in the first place.”
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: fails — It may be too vague to check against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: fails — The paper may give no reason why it holds.
Probably not a substantial claim. It may be too vague to check against evidence. The paper may give no reason why it holds.
In the paper
“Warnings about the risks of fetal alcohol syndrome effectively blame individual women and deflect attention away from the well-established links among class, race, and birth outcomes (Armstrong 2003).”
What the sources say
- Not checked — no full text of the sourcecites Armstrong 2003
boosteddirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
In the paper
“Both the boundaries of the ED diagnosis and the markets for ED drugs expanded enormously (Conrad 2007).”
What the sources say
- Not matchedcites Conrad 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaincorrelational- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
- Not matched
In the paper
“When the solution is to mandate that federally funded clinical studies include individuals from underrepresented subgroups, we inadvertently cast the problem as rooted in biological differences between racial and ethnic groups and downplay the role of socially structured inequalities (Epstein 2007).”
What the sources say
- Not matchedcites Epstein 2007
Couldn’t be matched to a paper in Crossref, so it can’t be checked.
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
It may state two separate claims as one.
- Not matched
The paper states this without a source or data behind it here, so there is nothing to check it against. The quote shows it is in the paper.
In the paper
“For example, Prempro, a widely prescribed hormone replacement drug, is just the latest in the ongoing effort to medically 'treat' menopausal 'symptoms,' despite the fact that changes associated with menopause are a common and ordinary aspect of women's reproductive lives.”
plain- Asserted: passes — The authors put it forward as true.
- Checkable: passes — It can be checked against evidence.
- Load-bearing: fails — The paper’s conclusions may not depend on it.
- Based: passes — The paper gives a reason why it holds.
Probably not a substantial claim. The paper’s conclusions may not depend on it.
- Rests on an assumption: Changes associated with menopause are a common and ordinary aspect of women's reproductive lives.
A conclusion the paper draws from its own results — it cites no other source for it, so there is none to check. The quote shows it is in the paper.
In the paper
“Framing anger in women as evidence of the disease PMS, to be treated with antidepressants, trivializes the impact of gender inequality on women's daily lives.”
plaindirect- Asserted: passes — The authors put it forward as true.
- Checkable: fails — It may be too vague to check against evidence.
- Load-bearing: passes — The paper’s conclusions depend on it.
- Based: passes — The paper gives a reason why it holds.
Probably not a substantial claim. It may be too vague to check against evidence.
The paper relies on this without support.
Changes associated with menopause are a common and ordinary aspect of women's reproductive lives.
“despite the fact that changes associated with menopause are a common and ordinary aspect of women's reproductive lives.”
The paper relies on this without support.
There is a social predilection toward treating human problems as individual or clinical rather than addressing the underlying causes for complex social problems and human suffering.
“It seems that we have a social predilection toward treating human problems as individual or clinical—whether it be obesity, substance abuse, learning difficulties, aging, or alcoholism—rather than addressing the underlying causes for complex social problems and human suffering.”
The paper relies on this without support.
Compared to 50 years ago, physicians have experienced a relative decline in professional authority.
“Compared to 50 years ago, physicians have experienced a relative decline in professional authority.”
The paper relies on this without support.
Laypeople with illness have a greater voice, and there is greater recognition of that voice.
“Both reflecting and reinforcing this trend, laypeople with illness have a greater voice, and there is also greater recognition of that voice.”
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BackgroundFoucauldian Discourse Analysis: Moving Beyond a Social Constructionist Analytic
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“Impairment in HRQOL is a complex construct of influences including physical, mental, and social well-being(3) – thus illness is experienced by individuals, yet cannot be understood independently of the societies in which people live.(4) Although a biological definition of TB infection (i.”
BackgroundLiving With a Contested, Stigmatized Illness
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“Contested illnesses, such as FM and chronic fatigue syndrome, are disorders that “are medically suspect because they are not associated with any known physical abnormality” (Conrad & Barker, 2010, p. S70).”
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“We must be aware of the way our language demonstrates the limits of our medical knowledge and in turn reflects and reproduces social inequality.(19) On the positive side, language can be leveraged to combat illness by reframing our understanding of disease and its root causes.”
BackgroundMoyer, C. A., Adongo, P. B., Aborigo, R. A., Hodgson, A., Engmann, C. M., & DeVries, R. (2014) · Maternal and Child Health Journal · doi:10.1007/s10995-013-1240-y · Cited by 111
“Social factors—drawing upon the medical sociological tradition that sees social structure, social interaction, and culture as critical to understanding health, illness, and care seeking [19–23]—may include such things as community and family hierarchies that require women to seek permission before they can go to a fac…”
BackgroundHintz, E. A. (2023) · Health Communication · doi:10.1080/10410236.2022.2081046 · Cited by 106
“…Thompson & Duerringer, 2020; Thompson et al., 2020, 2021), it is prevalent for female-dominant pain syndromes (e.g., Krebs & Schoenbauer, 2020) which are contested, where pain is “medically suspect because they are not associated with any known physical abnormality” (Conrad & Barker, 2010, p. 70).”
BackgroundLovatt, M., Eadie, D. R., Meier, P. S., Li, J., Bauld, L., Hastings, G., & Holmes, J. (2015) · Addiction · doi:10.1111/add.13072 · Cited by 104
“Lay epidemiology fits within a social constructivist ontology which considers social phenomena—in this case illness—not as biological or natural ‘givens’ as in objectivist understandings of the social world, but as concepts that emerge from social interactions, which hold different meanings depending on the cultural a…”
BackgroundTan, C. D. (2018) · Social Science & Medicine · doi:10.1016/j.socscimed.2017.12.008 · Cited by 122
“Within medical sociology, research on biographical self often focuses on experience with illness—interaction with the social meanings and consequences associated with a disease (Conrad and Barker, 2010).”
BackgroundSupport amid uncertainty: Long COVID illness experiences and the role of online communities
Russell, D., Spence, N. J., Chase, J. D., Schwartz, T., Tumminello, C. M., & Bouldin, E. D. (2022) · SSM - Qualitative Research in Health · doi:10.1016/j.ssmqr.2022.100177 · Cited by 93
Fibromyalgia Syndrome Pain in Men and Women: A Scoping Review
Ruschak, I., Montesó-Curto, P., Rosselló, L., Aguilar Martín, C., Sánchez-Montesó, L., & Toussaint, L. (2023) · Healthcare · doi:10.3390/healthcare11020223 · Cited by 90
Phillips, M. J. (2023) · SN Social Sciences · doi:10.1007/s43545-023-00774-9 · Cited by 90
Weight stigma and narrative resistance evident in online discussions of obesity
Brún, A. D., McCarthy, M. B., McKenzie, K., & McGloin, A. F. (2013) · Appetite · doi:10.1016/j.appet.2013.09.022 · Cited by 87
Could it be colic? Horse-owner decision making and practices in response to equine colic
Scantlebury, C. E., Perkins, E., Pinchbeck, G. L., et al. (2014) · BMC Veterinary Research · doi:10.1186/1746-6148-10-s1-s1 · Cited by 87
“Conrad & Barker [28], in their examination of how people understand illness, identified three main premises; some illnesses are embedded in cultural meaning; all illnesses are socially constructed at the experiential level (i.”
BackgroundInfluentialMental Illness and the Criminal Justice System
Hiday, V. A., & Burns, P. J. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.029 · Cited by 79
Psychological Approaches to Mental Illness
Peterson, C. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.008 · Cited by 77
Medicalisation and Overdiagnosis: What Society Does to Medicine
van Dijk, W., Faber, M. J., Tanke, M. A. C., Jeurissen, P., & Westert, G. P. (2016) · International Journal of Health Policy and Management · doi:10.15171/ijhpm.2016.121 · Cited by 76
Diagnostic experience of patients with fibromyalgia – A meta-ethnography
Mengshoel, A. M., Sim, J., Ahlsen, B., & Madden, S. (2017) · Chronic Illness · doi:10.1177/1742395317718035 · Cited by 72
Miller, H. E., & Thomas, S. L. (2017) · Addiction Research & Theory · doi:10.1080/16066359.2017.1332182 · Cited by 71
Ayebare, E. O., Lavender, T., Mweteise, J., Nabisere, A., Nendela, A., Mukhwana, R., Wood, R., Wakasiaka, S., Omoni, G. M., Kagoda, B. S., et al. (2021) · BMC Pregnancy and Childbirth · doi:10.1186/s12884-021-03912-4 · Cited by 70
“Culture influences ‘norms’ for spirituality, social and gender roles, attitudes towards family, work, health and illness [5, 6] and individual responses to adverse life events [5] including illness or bereavement [7].”
BackgroundThe Stigma of Diseases: Unequal Burden, Uneven Decline
Best, R. K., & Arseniev‐Koehler, A. (2023) · American Sociological Review · doi:10.1177/00031224231197436 · Cited by 97
“Just as health issues are central to stigma research, stigma is a central concept for health research, highlighted in work on the social construction of illness and social determinants of health (Conrad and Barker 2010; Hatzenbuehler et al. 2013).”
BackgroundMarital Status and Mental Health
Williams, K., Frech, A., & Carlson, D. L. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.020 · Cited by 70
Chandratre, P., Mallen, C. D., Roddy, E., et al. (2015) · Clinical Rheumatology · doi:10.1007/s10067-015-3039-2 · Cited by 68
“This belief may be rooted within social constructionism (illnesses are socially constructed at an experiential level which is based upon the individual’s understanding of the disease and perceptions of his or her identity post diagnosis) [25].”
BackgroundGong, F., Xu, J., & Takeuchi, D. T. (2011) · Journal of Behavioral Medicine · doi:10.1007/s10865-011-9367-z · Cited by 74
“Second, self-reported health would be particularly useful if respondents suffer from sub-health condition (i.e., a state between health and disease) or contested illnesses (i.e., claimed illnesses that are not recognized or acknowledged by physicians) (Conrad & Barker, 2010).”
Assimilation and emerging health disparities among new generations of U.S. children
Hamilton, E. R., Cardoso, J. B., Hummer, R. A., & Padilla, Y. C. (2011) · Demographic Research · doi:10.4054/demres.2011.25.25 · Cited by 68
“The explanation of changing health practices receives support in medical sociology literature documenting the social and cultural bases of understandings of health (Conrad and Barker 2010).”
BackgroundThe Bodies Politic: Chronic Health Conditions and Voter Turnout in the 2008 Election
Gollust, S. E., & Rahn, W. M. (2015) · Journal of Health Politics Policy and Law · doi:10.1215/03616878-3424450 · Cited by 68
Schaepe, K. (2011) · Social Science & Medicine · doi:10.1016/j.socscimed.2011.06.038 · Cited by 74
“…into a distinctive area of research (Blaxter, 1978; Brown, 1995; Jutel, 2009), it has been studied extensively within the literature on the social construction of illness, the social construction of medical knowledge, and in the disease theory literature (Jutel, 2009; Conrad & Barker 2010).”
BackgroundThe invisible and visible stigmatization of Parkinson's disease
Hermanns, M. (2013) · Journal of the American Association of Nurse Practitioners · doi:10.1111/1745-7599.12008 · Cited by 64
“Unfortunately, society tends to stigmatize those who are weak in body (Conrad & Barker, 2010).”
BackgroundDieudonné, M. (2015) · Bioelectromagnetics · doi:10.1002/bem.21937 · Cited by 65
“…the sick role, and make the abnormality of their situation socially acceptable (some subjects managed to get diagnosed with a “contested illness” [Conrad and Barker, 2010] like fibromyalgia (6 subjects) or late Lyme disease (5 subjects), which proved of little avail as in France, these…”
BackgroundCulture, science and the changing nature of fibromyalgia
Wolfe, F., & Walitt, B. T. (2013) · Nature Reviews Rheumatology · doi:10.1038/nrrheum.2013.96 · Cited by 62
Observational study of quality of life of P arkinson's patients and their caregivers
Corallo, F., Cola, M. C. D., Buono, V. L., Lorenzo, G. D., Bramanti, P., & Marino, S. (2016) · Psychogeriatrics · doi:10.1111/psyg.12196 · Cited by 62
The origins of the 4 × 4 framework for noncommunicable disease at the World Health Organization
Schwartz, L. N., Shaffer, J. D., & Bukhman, G. (2021) · SSM - Population Health · doi:10.1016/j.ssmph.2021.100731 · Cited by 66
Terui, S. (2015) · Journal of Immigrant and Minority Health · doi:10.1007/s10903-015-0322-x · Cited by 62
“These difficulties in obtaining proper access to healthcare lead to delayed diagnoses [3] and may encourage individuals to focus on treatment for acute and chronic illness rather than having preventative care with regular sources of primary care [39, 41].”
Well-Being across the Life Course
Mirowsky, J., & Ross, C. E. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.023 · Cited by 60
Culturally prescribed beliefs about mental illness among the Akan of Ghana
Tutu, A. O., & Utsey, S. O. (2017) · Transcultural Psychiatry · doi:10.1177/1363461517708120 · Cited by 60
“Cultures have unique ways of constructing illness (Barg & Grier, 2008; Conrad & Barker, 2010; D’Andrade, 1995; Kleinman, Eisenberg, & Good, 1978) that influence perceptions, experience, and coping (Helman, 2001).”
BackgroundMissing Pieces: Engaging Sociology of Disability in Medical Sociology
Mauldin, L., & Brown, R. L. (2021) · Journal of Health and Social Behavior · doi:10.1177/00221465211019358 · Cited by 58
Kading, M. L., Hautala, D. S., Palombi, L. C., Aronson, B. D., Smith, R. C., & Walls, M. L. (2015) · Society and Mental Health · doi:10.1177/2156869315570480 · Cited by 61
Brady, S. R., Sawyer, J. M., & Perkins, N. H. (2019) · Critical and Radical Social Work · doi:10.1332/204986019x15668424193408 · Cited by 60
“This is what the truth is”: Provider-patient interactions serving as barriers to contraception
Berndt, V. K., & Bell, A. V. (2020) · Health An Interdisciplinary Journal for the Social Study of Health Illness and Medicine · doi:10.1177/1363459320969775 · Cited by 62
“Such objectivity stems from biomedicine’s origin in disease, that is, biological components, rather than illness, which encompasses social meanings of a condition (Conrad and Barker, 2010; Freidson, 1970).”
BackgroundAlper, M., Rauchberg, J. S., Simpson, E., Guberman, J., & Feinberg, S. (2023) · New Media & Society · doi:10.1177/14614448231193091 · Cited by 64
“Theories of medicalization, selfhood, and biosociality (Conrad and Barker, 2010; Rabinow, 1996) offer important insights into how diagnosis and disability identity are collectively and individually negotiated offline and online through platforms like TikTok.”
A Gestão Autônoma da Medicação: uma intervenção analisadora de serviços em saúde mental
Campos, R. T. O., Passos, E., Palombini, A. D. L., et al. (2013) · Ciência & Saúde Coletiva · doi:10.1590/s1413-81232013001000013 · Cited by 53
Rebman, A. W., Aucott, J. N., Weinstein, E. R., et al. (2015) · Qualitative Health Research · doi:10.1177/1049732315619380 · Cited by 53
“As previously described, contested illnesses represent a unique type of chronic illness (Conrad & Barker, 2010).”
BackgroundWright, P. J., Dawson, R. M., & Corbett, C. F. (2020) · Journal of Advanced Nursing · doi:10.1111/jan.14371 · Cited by 53
How medical technologies shape the experience of illness
Hofmann, B., & Svenaeus, F. (2018) · Life Sciences Society and Policy · doi:10.1186/s40504-018-0069-y · Cited by 52
“Third, medical knowledge about illness and underlying diseases is not necessarily given by nature but is constructed and developed by a range of stakeholders (Conrad and Barker, 2010).”
BackgroundSannon, S., Murnane, E. L., Bazarova, N. N., & Gay, G. (2019) · Proceedings of the 2019 CHI Conference on Human Factors in Computing Systems · doi:10.1145/3290605.3300583 · Cited by 56
“Some ICIs, such as chronic fatigue syndrome and fibromyalgia, are also "contested illnesses"—that is, both physicians and the public often question the validity of these illnesses, which further stigmatizes people’s illness experience [9].”
BackgroundDavies, F., Edwards, A., Brain, K. E., Edwards, A., Jones, R., Wallbank, R., Robertson, N. P., & Wood, F. (2015) · BMJ Open · doi:10.1136/bmjopen-2015-007674 · Cited by 50
Physical Illness in Gay, Lesbian, and Heterosexual Marriages
Umberson, D., Thomeer, M. B., Reczek, C., & Donnelly, R. (2016) · Journal of Health and Social Behavior · doi:10.1177/0022146516671570 · Cited by 49
Shipley, J., Luker, J. A., Thijs, V., & Bernhardt, J. A. (2018) · BMJ Open · doi:10.1136/bmjopen-2018-023525 · Cited by 54
“Therefore, while medicine presents ‘disease’ as an objective biological product that is invariant in time and place, constructionism supports that ‘illness’ is the experience and meaning of the condition and defined within particular social and cultural systems.(22) 23 In the arena of qualitative research, constructio…”
BackgroundMoreira, M. D. F., Gamboa, O. L., & Pinho Oliveira, M. A. (2022) · European Journal of Pain · doi:10.1002/ejp.1939 · Cited by 48
“…related to daily activities and social functioning acquired during pain and illness experience directly impact the Qol domains and stress levels (Conrad & Barker, 2010; Dezutter et al., 2017; Donatti et al., 2017) and does not necessarily change when the pain decreases (Lovibond et al., 2000;…”
BackgroundFerring, D., & Hausermann, H. (2019) · Annals of the American Association of Geographers · doi:10.1080/24694452.2018.1535885 · Cited by 47
“Failure to engage in protective behaviors, and continuation of illness, can be framed as a lack of responsibility or will (Conrad and Barker 2010; Holmes 2013).”
BackgroundWork and Unemployment as Stressors
Lennon, M. C., & Limonic, L. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.015 · Cited by 46
Hintz, E. A., & Tucker, R. V. (2023) · Human Communication Research · doi:10.1093/hcr/hqad004 · Cited by 52
Moloney, M. (2016) · Sociology of Health & Illness · doi:10.1111/1467-9566.12485 · Cited by 61
Taylor, B. L., Howard, L. M., Jackson, K., Johnson, S., Mantovani, N., Nath, S., Sokolova, A. Y., & Sweeney, A. (2021) · Journal of Clinical Medicine · doi:10.3390/jcm10112271 · Cited by 50
“We drew on social constructionist theory [27], taking the position that women’s subjective experiences of motherhood are created through social discourse.”
Method#ActuallyAutistic: Using Twitter to Construct Individual and Collective Identity Narratives
Egner, J. E. (2022) · Studies in Social Justice · doi:10.26522/ssj.v16i2.2675 · Cited by 44
Communication Challenges for Chronic Metastatic Cancer in an Era of Novel Therapeutics
Thorne, S. E., Oliffe, J. L., Oglov, V., & Gelmon, K. A. (2013) · Qualitative Health Research · doi:10.1177/1049732313483926 · Cited by 44
Melamed, O. C., Fernando, I., Soklaridis, S., Hahn, M., LeMessurier, K. W., & Taylor, V. H. (2019) · The Canadian Journal of Psychiatry · doi:10.1177/0706743719862980 · Cited by 49
“Therefore, individuals with a stigmatized illness are much more difficult to treat and manage because they are less likely to seek help for fear of being mistreated by clinicians.(21) Our study population—individuals with SMI who are also at risk of obesity and diabetes—could be considered a stigmatized group, given t…”
BackgroundBilardi, J., Hulme-Chambers, A., Chen, M. Y., Fairley, C. K., Huffam, S., & Tomnay, J. E. (2019) · PLoS ONE · doi:10.1371/journal.pone.0224616 · Cited by 44
“[17] Sexually transmitted infections (STI), and in particular, HIV, have considerable negative stigma associated with them[8, 18, 19] which can in turn impact on the ways in which people cope with, understand, manage and disclose their HIV diagnosis.”
BackgroundVincenten, C. M., Oudsten, B. L. D., Bos, P. K., Bolder, S. B. T., & Gosens, T. (2019) · Journal of Bone and Joint Infection · doi:10.7150/jbji.28390 · Cited by 42
“Studies on patient-reported outcomes measurements are important to evaluate the true impact of GRA in patients (13).”
BackgroundBergey, M. R., Chiri, G., Freeman, N. L. B., & Mackie, T. I. (2022) · Sociology of Health & Illness · doi:10.1111/1467-9566.13443 · Cited by 45
Medicalization: Sociological and Anthropological Perspectives
Conrad, P., & Bergey, M. R. (2015) · Elsevier eBooks · doi:10.1016/b978-0-08-097086-8.64020-5 · Cited by 40
Self-citation“But you don’t look sick:” Memorable messages of emerging adulthood autoimmune disease
Gunning, J. N. (2022) · Journal of Social and Personal Relationships · doi:10.1177/02654075221137548 · Cited by 39
“Many symptoms of autoimmune disease are invisible and difficult to detect on bloodwork and scans—such as fatigue, joint, muscle, and nerve pain, and dizziness—resulting in these physical experiences being “contested” by the medical community (Conrad & Barker, 2010).”
BackgroundHenshall, C. L., Greenfield, S., & Gale, N. K. (2016) · Qualitative Health Research · doi:10.1177/1049732316651252 · Cited by 45
“The interview narratives have illustrated the different ways cancer survivors struggle to make sense of their illness and reclaim their sense of self, as they attempt to come to terms with living with their disease (Conrad & Barker, 2010), so they can feel valued and integrated in society.”
BackgroundTheory of communicative (dis)enfranchisement: introduction, explication, and application
Hintz, E. A., & Scharp, K. M. (2024) · Journal of Communication · doi:10.1093/joc/jqae002 · Cited by 40
It’s not all bad: Women’s construction and lived experience of positive premenstrual change
King, M., & Ussher, J. M. (2012) · Feminism & Psychology · doi:10.1177/0959353512440351 · Cited by 38
“Email: marlee.king@uws.edu.au The social construction of illness is now a major research concern for medical sociologists and critical health psychologists, contributing to our understanding of the social dimensions of health and illness (Conrad and Barker, 2010).”
BackgroundPawson, M., & Grov, C. (2018) · Sociology of Health & Illness · doi:10.1111/1467-9566.12765 · Cited by 38
A Handbook for the Study of Mental Health
(2017) · Cambridge University Press eBooks · doi:10.1017/9781316471289 · Cited by 43
Horwitz, A. V. (2009) · Cambridge University Press eBooks · doi:10.1017/cbo9780511984945.004 · Cited by 40
Social Security Work Disability and Its Predictors in Patients With Fibromyalgia
Wolfe, F., Walitt, B. T., Katz, R. S., & Häuser, W. (2014) · Arthritis Care & Research · doi:10.1002/acr.22305 · Cited by 39
Wilson, C., & Cook, C. M. (2018) · Journal of Clinical Nursing · doi:10.1111/jocn.14319 · Cited by 37
“A social constructionist approach (Burr, 2003; Conrad & Barker, 2010) exposes the tacit gendered, sociocultural and historically located meanings that shape how motherhood is understood.”
BackgroundDietary responses to a multiple sclerosis diagnosis: a qualitative study
Russell, R., Black, L. J., Sherriff, J. L., & Begley, A. M. (2018) · European Journal of Clinical Nutrition · doi:10.1038/s41430-018-0252-5 · Cited by 36
“As the analysis progressed, the theoretical perspective of social constructivism was applied to the emerging themes, where illness is constructed through the understanding of social realities resulting in multiple realities about the meaning of a disease and impact on everyday life [35].”
BackgroundCoventry, P. A., Dickens, C. M., & Todd, C. J. (2014) · Social Science & Medicine · doi:10.1016/j.socscimed.2014.07.068 · Cited by 35
“The most mature expression of this embodied brand of sociology is found in the sociology of health and illness, especially in relation to accounts about the consequences of living with chronic illness for self and self-identity (Conrad and Barker, 2010).”
‘Just choose the easy option’: students talk about alcohol use and social influence
Hepworth, J., McVittie, C., Schofield, T., et al. (2015) · Journal of Youth Studies · doi:10.1080/13676261.2015.1059928 · Cited by 35
Prosen, M., & Krajnc, M. T. (2013) · Revija za sociologiju · doi:10.5613/rzs.43.3.3 · Cited by 35
Context and complexity: the meaning of self‐management for older adults with heart disease
Moore, L., Frost, J., & Britten, N. (2015) · Sociology of Health & Illness · doi:10.1111/1467-9566.12316 · Cited by 36
The Social Construction of Inflammatory Bowel Disease Using Social Media Technologies
Frohlich, D. O. (2016) · Health Communication · doi:10.1080/10410236.2015.1077690 · Cited by 35
“Social constructionists believe that there is “nothing inherent about a condition that makes it stigmatizing” (Conrad & Barker, 2010, p. S69).”
BackgroundBey, G., Waring, M. E., Jesdale, B. M., & Person, S. D. (2018) · American Journal of Orthopsychiatry · doi:10.1037/ort0000301 · Cited by 34
“…supporting a strong association between psychological trauma and chronic strain resulting from structural inequity (Chae, Lincoln, & Jackson, 2011; Conrad & Barker, 2010; Langner & Michael, 1963; Meyer, 2003) points to the potential role of social stratification in causing race, gender, and class…”
BackgroundParticipatory appraisal of the impact of epizootic lymphangitis in Ethiopia
Scantlebury, C. E., Zerfu, A., Pinchbeck, G. P., et al. (2015) · Preventive Veterinary Medicine · doi:10.1016/j.prevetmed.2015.03.012 · Cited by 33
Maley, M., Warren, B. S., & Devine, C. M. (2013) · Journal of Nutrition Education and Behavior · doi:10.1016/j.jneb.2012.10.009 · Cited by 33
Understanding stigma in chronic health conditions: Implications for nursing
Engebretson, J. C. (2013) · Journal of the American Association of Nurse Practitioners · doi:10.1111/1745-7599.12009 · Cited by 33
“Conrad and Barker (2010) described two other contemporary models: contested illness and disability empowerment.”
BackgroundInfluentialPTSD in the U.S. military, and the politics of prevalence
Fisher, M. (2014) · Social Science & Medicine · doi:10.1016/j.socscimed.2014.05.051 · Cited by 33
“I place particular emphasis on the cultural meaningsdmost notably, perceptions of prevalencedattached to PTSD via the actions of claims-makers and interested parties who influence and construct the disorder (Conrad and Barker, 2010).”
BackgroundThe politics of securing borders and the identities of disease
Taylor, R. C. R. (2013) · Sociology of Health & Illness · doi:10.1111/1467-9566.12009 · Cited by 32
Neave, P. E., Behrens, R. H., & Jones, C. O. H. (2014) · Malaria Journal · doi:10.1186/1475-2875-13-287 · Cited by 32
“That is, the approaches to malaria prevention and responses to an episode of malaria illness are socially constructed [24,25].”
Background
Metadata
- Authors
- Conrad, P., & Barker, K. K.
- Affiliations
- Brandeis University (US)
- Oregon State University (US)
- ORCID
- Barker, Kristin K.
- Venue
- Journal of Health and Social Behavior
- Publisher
- SAGE Publications
- Published
- 2010-03
- Volume
- 51
- Issue
- 1_suppl
- Pages
- S67-S79
- ISSN
- 0022-1465 (ISSN-L)
- 2150-6000
- OpenAlex
- W2105392510
- Semantic Scholar
- daba8e41984f917378dc8db2be9f01f2883d3625
- Cited by
- 888
- References
- 82
- Citations by year
- 2026: 38 · 2025: 66 · 2024: 48 · 2023: 65 · 2022: 77 · 2021: 81 · 2020: 54 · 2019: 79 · 2018: 57 · 2017: 95 · 2016: 52 · 2015: 60 · 2014: 38 · 2013: 30 · 2012: 20
- FWCI
- 13.12
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Health and Social Behavior (publishedVersion)
- PubMed (publishedVersion)
- Research Portal (Queen's University Belfast) (submittedVersion)
- Topics
- Social Sciences › Arts and Humanities › History and Philosophy of Science › Medicine, History, and Philosophy
- Health Sciences › Health Professions › General Health Professions › Health, Medicine and Society
- Social Sciences › Education › Qualitative research in health
- Keywords
- social construction of illness, medical sociology, illness experience, claims-making, health policy, policy-relevant research
- MeSH terms
- Culture, Disease, Health Policy, Health Services Research, Humans, Public Opinion, Social Problems, Sociology, Medical, Knowledge
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