The DOI matches its Crossref record; 34 of the 34 references it cites were found in a registry or an index.
Informed Refusal: Toward a Justice-based Bioethics
Abstract
“Informed consent” implicitly links the transmission of information to the granting of permission on the part of patients, tissue donors, and research subjects. But what of the corollary, informed refusal? Drawing together insights from three moments of refusal, this article explores the rights and obligations of biological citizenship from the vantage point of biodefectors—those who attempt to resist technoscientific conscription. Taken together, the cases expose the limits of individual autonomy as one of the bedrocks of bioethics and suggest the need for a justice-oriented approach to science, medicine, and technology that reclaims the epistemological and political value of refusal.
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Cites
Journal of the National Medical Association
(2010) · Journal of the National Medical Association · doi:10.1016/s0027-9684(15)30622-2 · Cited by 5,325
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Power, Action and Belief. A New Sociology of Knowledge?
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Life Exposed: Biological Citizens After Chernobyl
Remennick, L. (2003) · JAMA: The Journal of the American Medical Association · doi:10.1001/jama.289.19.2579-a · Cited by 1,503
TallBear, K. (2010) · University of Minnesota Press eBooks · doi:10.5749/9780816685776 · Cited by 1,113
Fatal invention: how science, politics, and big business re-create race in the twenty-first century
(2011) · Choice Reviews Online · doi:10.5860/choice.49-2029 · Cited by 1,028
Two Bits: The Cultural Significance of Free Software
Kelty, C. M. (2008) · doi:10.2307/j.ctv1198vx9 · Cited by 774
When Nature Goes Public: The Making and Unmaking of Bioprospecting in Mexico
Hayden, C. (2006) · Journal of Latin American Anthropology · doi:10.1525/jlat.2006.11.2.449 · Cited by 744
Two Bits: The Cultural Significance of Free Software
(2008) · Choice Reviews Online · doi:10.5860/choice.46-2158 · Cited by 709
Complete Khoisan and Bantu genomes from southern Africa
Schuster, S. C., Miller, W., Ratan, A., Tomsho, L. P., Giardine, B., Kasson, L. R., Harris, R. S., Petersen, D. C., Zhao, F., Qi, J., et al. (2010) · Nature · doi:10.1038/nature08795 · Cited by 499
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Perseverations of the academy: a survey of wearable technologies applied to autism intervention
Williams, R. M., & Gilbert, J. E. (2020) · International Journal of Human-Computer Studies · doi:10.1016/j.ijhcs.2020.102485 · Cited by 74
The emotional labor of surveillance: Digital control in Fast fashion retail
Van Oort, M. (2019) · Critical Sociology · doi:10.1177/0896920518778087 · Cited by 60
Garcia (2020) · doi:10.1145/3406865.3419014 · Cited by 51
Algorithmic harms and digital ageism in the use of surveillance technologies in nursing homes
Berridge, C., & Grigorovich, A. (2022) · Frontiers in Sociology · doi:10.3389/fsoc.2022.957246 · Cited by 47
“Using the lens of refusal from critical race and feminist scholarship (Benjamin, 2016; Hoffmann, 2021), we see that many residents in the sensor system study refused the limiting solutions on offer.”
BackgroundTowards responsible implementation of monitoring technologies in institutional care
Grigorovich, A., & Kontos, P. (2020) · The Gerontologist · doi:10.1093/geront/gnz190 · Cited by 29
Metadata
- Authors
- Benjamin, R.
- Venue
- Science, Technology, & Human Values
- Publisher
- SAGE Publications
- Published
- 2016-08-02
- Volume
- 41
- Issue
- 6
- Pages
- 967-990
- ISSN
- 0162-2439 (ISSN-L)
- 1552-8251
- OpenAlex
- W2461848948
- Cited by
- 265
- References
- 34
- FWCI
- 11.79
- Type
- journal article
- Language
- en
- Open access
- closed
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Bibliographic data: Semantic Scholar, OpenAlex, Crossref.
Contains information from the Semantic Scholar Academic Graph Datasets, made available under the ODC Attribution License (ODC-BY 1.0).
Semantic Scholar’s data is described in: Kinney, R., et al. (2023). The Semantic Scholar Open Data Platform. arXiv:2301.10140.
