Support needs and barriers to accessing support: Baseline results of a mixed-methods national survey of people bereaved during the COVID-19 pandemic
Open accessPublished version of a preprint
Abstract
Background: The COVID-19 pandemic is a mass bereavement event which has profoundly disrupted grief experiences. Understanding support needs and access to support among people bereaved at this time is crucial to ensuring appropriate bereavement support infrastructure. Aim: To investigate grief experiences, support needs and use of formal and informal bereavement support among people bereaved during the pandemic. Design: Baseline results from a longitudinal survey. Support needs and experiences of accessing support are reported using descriptive statistics and thematic analysis of free-text data. Setting/participants: 711 adults bereaved in the UK between March and December 2020, recruited via media, social media, national associations and community/charitable organisations. Results: High-level needs for emotional support were identified. Most participants had not sought support from bereavement services (59%, n = 422) or their General-Practitioner (60%, n = 428). Of participants who had sought such support, over half experienced difficulties accessing bereavement services (56%, n = 149)/General-Practitioner support (52%, n = 135). About 51% reported high/severe vulnerability in grief; among these, 74% were not accessing bereavement or mental-health services. Barriers included limited availability, lack of appropriate support, discomfort asking for help and not knowing how to access services. About 39% ( n = 279) experienced difficulties getting support from family/friends, including relational challenges, little face-to-face contact and disrupted collective mourning. The perceived uniqueness of pandemic bereavement and wider societal strains exacerbated their isolation. Conclusions: People bereaved during the pandemic have high levels of support needs alongside difficulties accessing support. We recommend increased provision and tailoring of bereavement services, improved information on support options and social/educational initiatives to bolster informal support and ameliorate isolation.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
Bereavement support needs increased during the COVID-19 pandemic, with many people reporting severe grief and difficulties accessing support.
“Bereavement support needs increased during the COVID-19 pandemic, with many people reporting severe grief and difficulties accessing support.11,12”
From Acceptance and Commitment Therapy (ACT) for people with advanced progressive illness, their caregivers and staff involved in their care: A scoping review. (2023) · cites this paper as [12]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414 · see citing works
Eysenbach, G. (2004) · Journal of Medical Internet Research · doi:10.2196/jmir.6.3.e34 · Cited by 6,480 · see citing works
Bereavement and Mental Health after Sudden and Violent Losses: A Review
Kristensen, P., Weisæth, L., & Heir, T. (2012) · Psychiatry · doi:10.1521/psyc.2012.75.1.76 · Cited by 497 · see citing works
Complicated grief after death of a relative in the intensive care unit
Kentish-Barnes, N., Chaize, M., Seegers, V., Legriel, S., Cariou, A., Jaber, S., Lefrant, J.-Y., Floccard, B., Renault, A., Vinatier, I., et al. (2015) · European Respiratory Journal · doi:10.1183/09031936.00160014 · Cited by 347 · see citing works
Who needs bereavement support? A population based survey of bereavement risk and support need
Aoun, S. M., Breen, L. J., Howting, D. A., Rumbold, B., McNamara, B., & Hegney, D. (2015) · PLOS ONE · doi:10.1371/journal.pone.0121101 · Cited by 306 · see citing works
Prolonged grief disorder following the coronavirus (COVID-19) pandemic
Eisma, M. C., Boelen, P. A., & Lenferink, L. I. M. (2020) · Psychiatry Research · doi:10.1016/j.psychres.2020.113031 · Cited by 278 · see citing works
Eisma, M. C., Tamminga, A., Smid, G. E., & Boelen, P. A. (2021) · Journal of Affective Disorders · doi:10.1016/j.jad.2020.09.049 · Cited by 249 · see citing works
Grief literacy: A call to action for compassionate communities
Breen, L. J., 川島, 大., Joy, K., Cadell, S., Roth, D., Chow, A. Y. M., & Macdonald, M. E. (2020) · Death Studies · doi:10.1080/07481187.2020.1739780 · Cited by 184 · see citing works
Aoun, S. M., Breen, L. J., White, I., Rumbold, B., & Kellehear, A. (2018) · Palliative Medicine · doi:10.1177/0269216318774995 · Cited by 180 · see citing works
A public health approach to bereavement support services in palliative care
Aoun, S. M., Breen, L. J., O’Connor, M., Rumbold, B. D., & Nordstrom, C. (2012) · Australian and New Zealand Journal of Public Health · doi:10.1111/j.1753-6405.2012.00825.x · Cited by 152 · see citing works
Family and social networks after bereavement: experiences of support, change and isolation
Breen, L. J., & O’Connor, M. (2010) · Journal of Family Therapy · doi:10.1111/j.1467-6427.2010.00495.x · Cited by 147 · see citing works
A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic
Hanna, J. R., Rapa, E., Dalton, L. J., Hughes, R., McGlinchey, T., Bennett, K. M., Donnellan, W. J., Mason, S. R., & Mayland, C. R. (2021) · Palliative Medicine · doi:10.1177/02692163211004210 · Cited by 147 · see citing works
Kun, P., Han, S., Chen, X., & Yao, L. (2009) · Depression and Anxiety · doi:10.1002/da.20612 · Cited by 137 · see citing works
Dumont, I., Dumont, S., & Mongeau, S. (2008) · Qualitative Health Research · doi:10.1177/1049732308320110 · Cited by 101 · see citing works
Pearce, C., Honey, J. R., Lovick, R., Creamer, N. Z., Henry, C., Langford, A., Stobert, M., & Barclay, S. I. G. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-046872 · Cited by 94 · see citing works
Smith, K. V., Wild, J., & Ehlers, A. (2020) · Clinical Psychological Science · doi:10.1177/2167702620902748 · Cited by 78 · see citing works
Self-citationSelman, L. E., Chamberlain, C., Sowden, R., Chao, D., Selman, D., Taubert, M., & Braude, P. (2021) · Palliative Medicine · doi:10.1177/02692163211017026 · Cited by 77 · see citing works
Self-citationHarrop, E. J., Morgan, F. M., Longo, M., Semedo, L., Fitzgibbon, J., Pickett, S., Scott, H., Seddon, K., Sivell, S., Nelson, A., et al. (2020) · Palliative Medicine · doi:10.1177/0269216320920533 · Cited by 75 · see citing works
Self-citationHarrop, E. J., Morgan, F. M., Byrne, A., & Nelson, A. (2016) · BMC Palliative Care · doi:10.1186/s12904-016-0165-9 · Cited by 72 · see citing works
Self-citationMayland, C. R., Hughes, R., Lane, S., McGlinchey, T., Donnellan, W. J., Bennett, K. M., Hanna, J. R., Rapa, E., Dalton, L. J., & Mason, S. R. (2021) · Palliative Medicine · doi:10.1177/02692163211019885 · Cited by 70 · see citing works
Sanderson, C. R., Lobb, E. A., Mowll, J., Butow, P. N., McGowan, N., & Price, M. A. (2013) · Palliative Medicine · doi:10.1177/0269216313483663 · Cited by 63 · see citing works
Death and dying during the pandemic
Yardley, S. J., & Rolph, M. (2020) · BMJ · doi:10.1136/bmj.m1472 · Cited by 62 · see citing works
Harrop, E., Scott, H., Sivell, S., Seddon, K., Fitzgibbon, J., Morgan, F., Pickett, S., Byrne, A., Nelson, A., & Longo, M. (2020) · BMC Palliative Care · doi:10.1186/s12904-020-0532-4 · Cited by 61 · see citing works
Self-citationHarrop, E. J., Mann, M. K., Semedo, L., Chao, D., Selman, L. E., & Byrne, A. (2020) · Palliative Medicine · doi:10.1177/0269216320946273 · Cited by 55 · see citing works
Self-citationBuilding Community Capacity in Bereavement Support
Breen, L. J., Aoun, S. M., Rumbold, B. D., McNamara, B. A., Howting, D. A., & Mancini, V. O. (2015) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909115615568 · Cited by 53 · see citing works
The impact of bereavement support on wellbeing: a comparative study between Australia and Ireland
Aoun, S. M., Keegan, O., Roberts, A., & Breen, L. J. (2020) · Palliative Care and Social Practice · doi:10.1177/2632352420935132 · Cited by 53 · see citing works
Identifying vulnerability in grief: psychometric properties of the Adult Attitude to Grief Scale
Sim, J., Machin, L., & Bartlam, B. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0551-1 · Cited by 41 · see citing works
Self-citationMayland, C. R., Powell, R. A., Clarke, G., Ebenso, B., & Allsop, M. J. (2021) · PLoS ONE · doi:10.1371/journal.pone.0252188 · Cited by 39 · see citing works
Claessen, S., Francke, A. L., Sixma, H., de Veer, A. J. E., & Deliëns, L. (2012) · Journal of Pain and Symptom Management · doi:10.1016/j.jpainsymman.2012.05.007 · Cited by 27 · see citing works
Cognitive-behavioral factors in adjustment to adult bereavement
Powers, L. E., & Wampold, B. E. (1994) · Death Studies · doi:10.1080/07481189408252640 · Cited by 25 · see citing works
Islam, I., Nelson, A., Longo, M., & Byrne, A. (2021) · BMC Palliative Care · doi:10.1186/s12904-021-00806-2 · Cited by 24 · see citing works
Self-citationHarnessing social support for bereavement now and beyond the COVID-19 pandemic
Breen, L. J. (2021) · Palliative Care and Social Practice · doi:10.1177/2632352420988009 · Cited by 24 · see citing works
Mental health support through primary care during and after covid-19
Mughal, F., Hossain, M. Z., Brady, A., Samuel, J., & Chew-Graham, C. A. (2021) · BMJ · doi:10.1136/bmj.n1064 · Cited by 22 · see citing works
Inequalities in awareness and availability of bereavement services in North-East England
Wakefield, D., Fleming, E., Howorth, K., Waterfield, K., Kavanagh, E., Billett, H. C., Kiltie, R., Robinson, L. J., Rowley, G., Brown, J., et al. (2020) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2020-002422 · Cited by 12 · see citing works
Flagged first, then by citations
Cited by
Sorted by citations
Selman, L. E., FARNELL, D. J. J., Longo, M., Goss, S., Seddon, K., Torrens‐Burton, A., Mayland, C. R., Wakefield, D., Johnston, B. M., Byrne, A., et al. (2022) · Palliative Medicine · doi:10.1177/02692163221074876 · Cited by 71 · see citing works
Self-citationTorrens‐Burton, A., Goss, S., Sutton, E. J., Barawi, K., Longo, M., Seddon, K., Carduff, E., FARNELL, D. J. J., Nelson, A., Byrne, A., et al. (2022) · Palliative Care and Social Practice · doi:10.1177/26323524221092456 · Cited by 71 · see citing works
Self-citationHarrop, E. J., Medeiros, R., Goss, S., Longo, M., Byrne, A., FARNELL, D. J. J., Seddon, K., Penny, A., Machin, L., Sivell, S., et al. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1215881 · Cited by 50 · see citing works
Self-citationThe Effect of the COVID-19 Pandemic on Grief Experiences of Bereaved Relatives: An Overview Review
van Schaik, T., Brouwer, M. A., Knibbe, N. E., Knibbe, H. J. J., & Teunissen, S. C. C. M. (2022) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228221143861 · Cited by 38 · see citing works
Harrop, E. J., Goss, S., Longo, M., Seddon, K., Torrens‐Burton, A., Sutton, E. J., FARNELL, D. J. J., Penny, A., Nelson, A., Byrne, A., et al. (2022) · BMC Palliative Care · doi:10.1186/s12904-022-01066-4 · Cited by 36 · see citing works
Self-citationGibson Watt, T., Gillanders, D., Spiller, J. A., & Finucane, A. M. (2023) · Palliative Medicine · doi:10.1177/02692163231183101 · Cited by 32 · see citing works
Self-citationSelman, L. E., Sutton, E. J., Medeiros, R., Stone, T. J., Gilbert, E., Rolston, Y., Murray, K., Longo, M., Seddon, K., Penny, A., et al. (2022) · Palliative Medicine · doi:10.1177/02692163221133665 · Cited by 31 · see citing works
Self-citationA Scoping Review of Interventions for Family Bereavement Care during the COVID-19 Pandemic
Laranjeira, C., Moura, D. R. D. O., Salci, M. A., Carreira, L., Covre, E. R., Jaques, A. E., Cuman, R. K. N., Marcon, S. S., & Querido, A. (2022) · Behavioral Sciences · doi:10.3390/bs12050155 · Cited by 26 · see citing works
Breen, L. J., Lee, S. A., Mancini, V. O., Willis, M., & Neimeyer, R. A. (2022) · British Journal of Guidance and Counselling · doi:10.1080/03069885.2022.2075540 · Cited by 25 · see citing works
A rapid review of the evidence for online interventions for bereavement support
Finucane, A., Canny, A., Mair, A. P. A., Harrop, E. J., Selman, L. E., Swash, B., Wakefield, D., & Gillanders, D. T. (2024) · Palliative Medicine · doi:10.1177/02692163241285101 · Cited by 23 · see citing works
Self-citationSelman, L. E., FARNELL, D. J. J., Longo, M., Goss, S., Torrens‐Burton, A., Seddon, K., Mayland, C. R., Machin, L., Byrne, A., & Harrop, E. J. (2022) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228221144925 · Cited by 25 · see citing works
Self-citationWoodward, K. P., Yu, Z., Chen, W., Chen, T., Jackson, D. B., Powell, T. W., & Wang, L. (2023) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph20054631 · Cited by 17 · see citing works
Supportive and non-supportive social experiences following suicide loss: a qualitative study
Marek, F., & Oexle, N. (2024) · BMC Public Health · doi:10.1186/s12889-024-18545-3 · Cited by 15 · see citing works
Selman, L. E. (2021) · BMJ · doi:10.1136/bmj.n1803 · Cited by 14 · see citing works
Self-citationPerinatal bereavement care during COVID-19 in Australian maternity settings
Boyle, F. M., Horey, D., Dean, J. H., Lohan, A., Middleton, P., & Flenady, V. (2022) · Journal of Perinatal Medicine · doi:10.1515/jpm-2021-0441 · Cited by 12 · see citing works
Cook, S. (2025) · Mortality · doi:10.1080/13576275.2025.2451093 · Cited by 12 · see citing works
Denckla, C. A., Hahn, J., Cowden, R. G., Ho, S., Gao, K. J., Dice, A. L. E., Jha, S. C., Kang, J. H., & Shear, M. K. (2023) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2023.06.012 · Cited by 11 · see citing works
Narratives of loss: the impact of COVID-19 lockdown on experiences of loss, grief, and bereavement
Dew, R., Heath, L., & Egan, R. (2022) · Journal of Primary Health Care · doi:10.1071/hc22090 · Cited by 11 · see citing works
Benkel, I., Skoglund, J., Enstedt, D., af Segerstad, Y. H., Öhlén, J., & Nyblom, S. (2024) · Palliative Care and Social Practice · doi:10.1177/26323524241275699 · Cited by 13 · see citing works
Bereavement during the Covid-19 pandemic in the UK: What do we know so far?
Harrop, E. J., & Selman, L. E. (2022) · Bereavement · doi:10.54210/bj.2022.18 · Cited by 10 · see citing works
Self-citationBüssing, A., & Baumann, K. (2023) · Frontiers in Public Health · doi:10.3389/fpubh.2023.1230198 · Cited by 9 · see citing works
Lapenskie, J., Anderson, K., Lawlor, P. G., Kabir, M., Noël, C., Heidinger, B. A., Parsons, H. A., Cohen, L., Gratton, V., Besserer, E., et al. (2024) · Palliative Medicine · doi:10.1177/02692163231223394 · Cited by 9 · see citing works
Torrens‐Burton, A., Goss, S., Sutton, E. J., Barawi, K., Longo, M., Seddon, K., Carduff, E., FARNELL, D. J. J., Nelson, A., Byrne, A., et al. (2021) · medRxiv · doi:10.1101/2021.12.06.21267354 · Cited by 9 · see citing works
Self-citationFacing death differently: revolutionising our approach to death and grief
Selman, L. E. (2024) · BMJ · doi:10.1136/bmj.q2815 · Cited by 10 · see citing works
Self-citationHarrop, E. J., Barawi, K., Mazzaschi, F., Torrens‐Burton, A., Sutton, E. J., Gilbert, E., Wakefield, D., Goss, S., Seddon, K., Longo, M., et al. (2025) · Social Science & Medicine · doi:10.1016/j.socscimed.2025.118518 · Cited by 7 · see citing works
Self-citationBurton, L., Goss, S., Sivell, S., Selman, L. E., & Harrop, E. J. (2024) · BMC Palliative Care · doi:10.1186/s12904-024-01619-9 · Cited by 7 · see citing works
Self-citationHanauer, C., Telaar, B., Al-Dawaf, N., Rosner, R., & Doering, B. K. (2023) · European Journal of Psychotraumatology · doi:10.1080/20008066.2023.2183006 · Cited by 7 · see citing works
Death Unpreparedness Due to the COVID-19 Pandemic: A Concept Analysis
Costeira, C. R. B., Dixe, M. D. A., Querido, A., Rocha, A., Vitorino, J., Santos, C., & Laranjeira, C. (2024) · Healthcare · doi:10.3390/healthcare12020188 · Cited by 8 · see citing works
Selman, L. E., FARNELL, D. J. J., Longo, M., Goss, S., Torrens‐Burton, A., Seddon, K., Mayland, C. R., Machin, L., Byrne, A., & Harrop, E. J. (2022) · medRxiv · doi:10.1101/2022.02.07.22270593 · Cited by 7 · see citing works
Self-citationProlonged grief reactions and help-seeking in bereaved adults during the COVID-19 pandemic
Maccallum, F., Breen, L. J., Ivynian, S. E., DiGiacomo, M. L., Luckett, T., & Lobb, E. A. (2025) · Journal of Affective Disorders · doi:10.1016/j.jad.2025.01.056 · Cited by 6 · see citing works
The educational value of sense of coherence for grief care
Tei, S., & Fujino, J. (2022) · Frontiers in Psychology · doi:10.3389/fpsyg.2022.1037637 · Cited by 6 · see citing works
Selman, L. E., Turner, N. L., Dawson, L., Chamberlain, C., Mustan, A., Rivett, A. C., & Fox, F. E. (2023) · Palliative Care and Social Practice · doi:10.1177/26323524231189523 · Cited by 6 · see citing works
Self-citationDewhurst, F., Turner, R. L., Barrett, L. M., Westhead, E., Wakefield, D., & Hanratty, B. (2025) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228251345033 · Cited by 5 · see citing works
Selman, L. E., Birchall, J., Sutton, E. J., Stone, T. J., Medeiros, R., Gilbert, E., Longo, M., Seddon, K., Finucane, A., Penny, A., et al. (2025) · Palliative Medicine · doi:10.1177/02692163251383324 · Cited by 5 · see citing works
Self-citationVagnini, D., Natalucci, V., Moi, S., Vallorani, L., Pietrelli, A., Panico, A. R., Marini, C. F., Lucertini, F., Annibalini, G., Sisti, D., et al. (2024) · PLoS ONE · doi:10.1371/journal.pone.0296163 · Cited by 5 · see citing works
Support needs of Australians bereaved during the COVID-19 pandemic: A cross-sectional survey study
Ivynian, S. E., Maccallum, F., Chang, S., Breen, L. J., Phillips, J. L., Agar, M. R., Hosie, A., Tieman, J., DiGiacomo, M. L., Luckett, T., et al. (2024) · PLoS ONE · doi:10.1371/journal.pone.0304025 · Cited by 5 · see citing works
Chan, W. C. H., Li, Y., Yick, D.-Y., & Tse, H. W. Y. (2025) · Death Studies · doi:10.1080/07481187.2025.2454492 · Cited by 4 · see citing works
Dönmez, Ç. F., Toygar, İ., & Mum, S. (2025) · BMJ Open · doi:10.1136/bmjopen-2024-088551 · Cited by 4 · see citing works
Scott, H. R., Sivell, S., Longo, M., Seddon, K., Fitzgibbon, J., Nelson, A., Byrne, A., & Harrop, E. J. (2022) · Bereavement · doi:10.54210/bj.2022.1078 · Cited by 4 · see citing works
Self-citationSelman, L. E., Sutton, E. J., Medeiros, R., Stone, T. J., Gilbert, E., Rolston, Y., Murray, K., Longo, M., Seddon, K., Penny, A., et al. (2022) · medRxiv · doi:10.1101/2022.05.12.22274992 · Cited by 4 · see citing works
Self-citationButt, A., Shahzad, M. F., Lodhi, R. N., Shahzad, M., & Nigar, N. (2025) · Current Psychology · doi:10.1007/s12144-025-07278-0 · Cited by 3 · see citing works
Grief and grief support needs in Canada: A mixed methods protocol
Cadell, S., Wright, D. K., Dosani, N., Cherblanc, J., Breen, L. J., Aoun, S. M., Sequeira, L., Kortes-Miller, K., Arya, A., Anthony, K., et al. (2025) · Palliative Care and Social Practice · doi:10.1177/26323524251334180 · Cited by 4 · see citing works
Gill, G. K., Pankratz, L., Pirzada, S., Papineau, K., Hensel, J. M., Bolton, J. M., Kredenster, M. S., El-Gabalawy, R. M., Rivière, C. L., Hiebert, T., et al. (2025) · Death Studies · doi:10.1080/07481187.2025.2514162 · Cited by 4 · see citing works
Schwalbach, T., Riguzzi, M., Köhler, M., & Naef, R. (2025) · Journal of Advanced Nursing · doi:10.1111/jan.70193 · Cited by 6 · see citing works
Vlckova, K. H., Poláková, K., Houska, A., Zindulková, M., & Loučka, M. (2024) · BMC Palliative Care · doi:10.1186/s12904-024-01551-y · Cited by 3 · see citing works
Beyond grief: Quantifying bereavement needs of rural family caregivers
Vanderboom, C. E., Holland, D. E., Ingram, C. J., Kaufman, B. G., Gustavson, A. M., Mandrekar, J. N., Dose, A. M., Wild, E., Stiles, C. J., & Griffin, J. M. (2025) · Palliative & Supportive Care · doi:10.1017/s1478951525100205 · Cited by 2 · see citing works
Wray, A., Whitfield, C., Murtagh, F. E. M., & Boland, J. W. (2026) · Death Studies · doi:10.1080/07481187.2026.2628740 · Cited by 2 · see citing works
Goethem, J. V., Verschaeve, M., Peters, S., & Smeets, M. (2022) · Death Studies · doi:10.1080/07481187.2022.2119307 · Cited by 2 · see citing works
Köhler, M., Thaqi, Q., Kuske, S., Schwalbach, T., Riguzzi, M., & Naef, R. (2025) · International Journal of Nursing Studies Advances · doi:10.1016/j.ijnsa.2025.100305 · Cited by 2 · see citing works
What functions do palliative care bereavement services deliver? A scoping review
Jurgens, K. E., Currow, D. C., & Tieman, J. (2025) · Palliative Care and Social Practice · doi:10.1177/26323524251326947 · Cited by 2 · see citing works
Gillanders, D. T., Canny, A., Harrop, E. J., Hulbert-Williams, N., Neilson, A. R., Selman, L. E., Spiller, J. A., Swash, B., Buckle, P., Wakefield, D., et al. (2025) · Progress in Palliative Care · doi:10.1080/09699260.2025.2538935 · Cited by 2 · see citing works
Self-citationZammit, T., Mancini, V. O., Reid, C., Singer, J., Staniland, L., & Breen, L. J. (2024) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228241257306 · Cited by 2 · see citing works
Joseph‐Williams, N., Cooper, A., Lewis, R., Greenwell, J., Doe, E., Gal, M., Pearson, N., Kunmar, R., Law, R., & Edwards, A. (2023) · Research Square · doi:10.21203/rs.3.rs-3286253/v1 · Cited by 2 · see citing works
Bagaimana Tahapan Kedukaan Pasca Kehilangan Orang Tercinta Selama Covid-19?
Muqoddam, F., & Pires, C. D. A. (2023) · Jurnal Psikologi · doi:10.24014/jp.v19i2.22361 · Cited by 3 · see citing works
Williams, J., Wingfield, H. L., & Chater, A. (2024) · OMEGA - Journal of Death and Dying · doi:10.1177/00302228241263632 · Cited by 1 · see citing works
The Pandemic Grief Scale and Pandemic Grief Risk Factors
Redondo-Armenteros, A., Fernández‐Alcántara, M., Pérez‐Marfil, M. N., Cabañero‐Martínez, M. J., Neimeyer, R. A., & Cruz‐Quintana, F. (2025) · European Journal of Psychology Open · doi:10.1024/2673-8627/a000082 · Cited by 1 · see citing works
Näppä, U. (2025) · International Journal of Palliative Nursing · doi:10.12968/ijpn.2024.0006 · Cited by 1 · see citing works
Bereavement service deserts: A 2024 statewide assessment of bereavement services
Giang, C. W., Kcomt, L., Truchan, J., Dickinson, K., Evans‐Polce, R. J., & McCabe, S. E. (2025) · Death Studies · doi:10.1080/07481187.2025.2595997 · Cited by 2 · see citing works
Collins, T. L., Allen, S., Scarbrough-Jelfs, C., Klidzia, S., Lai, F. H., & Wilson, G. (2025) · Death Studies · doi:10.1080/07481187.2025.2603969 · Cited by 1 · see citing works
Goss, S., Barawi, K., Sutton, E., Oates, R., Seddon, K., Sivell, S., Longo, M., Penny, A., Selman, L. E., & Harrop, E. J. (2026) · Frontiers in Public Health · doi:10.3389/fpubh.2026.1784477 · Cited by 1 · see citing works
Self-citationToyama, M., Mori, H., Kuriyama, A., Sano, M., Imura, H., Nishimura, M., & Nakayama, T. (2024) · BMJ Open Quality · doi:10.1136/bmjoq-2023-002548 · Cited by 1 · see citing works
Covid-19: the impact of the pandemic and resulting support needs of children and young people
Hughes, B., & Jones, K. (2024) · Bereavement · doi:10.54210/bj.2024.1118 · Cited by 1 · see citing works
Alshehadeh, A. R., Refae, G. A. E., Qirem, I. A. E., Al-Khawaja, H. A., & Hatamleh, H. M. (2024) · International Journal of ADVANCED AND APPLIED SCIENCES · doi:10.21833/ijaas.2024.10.015 · Cited by 1 · see citing works
Loss and Bereavement: In Children
Sabagh, K., Nodeh, M. H. A., & Naderifar, M. (2025) · Iranian Journal of Pediatrics · doi:10.5812/ijp-150107 · Cited by 1 · see citing works
Welzel, F. D., Pabst, A., Stein, J., Bleck, F., Riedel-Heller, S. G., & Löbner, M. (2025) · Journal of Medical Internet Research · doi:10.2196/68662 · Cited by 1 · see citing works
Canny, A., Gillanders, D. T., Burnett, T., Swash, B., Spiller, J. A., Harrop, E. J., Selman, L. E., Reed, N., & Finucane, A. (2025) · PLoS ONE · doi:10.1371/journal.pone.0337321 · Cited by 1 · see citing works
Self-citationWe wept and we waited-but what can we learn from the week we mourned the Queen?
Harrop, E. J., & Caroline, P. (2022) · Bereavement · doi:10.54210/bj.2022.1109 · Cited by 1 · see citing works
Self-citationBurton, L., Goss, S., Sivell, S., Selman, L. E., & Harrop, E. J. (2024) · Research Square · doi:10.21203/rs.3.rs-4268511/v1 · Cited by 1 · see citing works
Self-citationIone, A. (2024) · Springer eBooks · doi:10.1007/978-3-031-55440-7_1
Venuleo, C., Marinaci, T., Piccirillo, L., Colucci, E., Barbosa, E., & Nogueira, D. C. O. A. (2024) · SSRN Electronic Journal · doi:10.2139/ssrn.4963594
Grief in Children in the Aftermath of the COVID-19 Pandemic
Billard, P., François, T. L., Razafimandimby, A., Niel, E., Guenolé, F., Revet, A., & Bui, É. (2024) · Current Psychiatry Reports · doi:10.1007/s11920-024-01559-4
Hoffstädt, H. E., Verhoef, M., Akkermans, A. A., van der Steen, J. T., Brinkman‐Stoppelenburg, A., de Vries, S., de Graaf, E., Teunissen, S. C. C. M., Hartog, I. D., & van der Linden, Y. M. (2024) · PLoS ONE · doi:10.1371/journal.pone.0310624
Morais, J. C. C., de Arruda, G. H. B., Melo, C. D. F., & Martins, J. C. D. O. (2024) · Revista Portuguesa de Investigação Comportamental e Social · doi:10.31211/rpics.2024.10.2.340
Susanti, H., Mudiyanselage, S. P. K., Indrayani, N. L. D., Ariani, T. A., Tsai, H., Keliat, B. A., & Lin, M. (2025) · Family Process · doi:10.1111/famp.70022 · Cited by 2 · see citing works
Alcalde-Castro, J., Hannon, B. L., & Zimmermann, C. (2025) · doi:10.1093/9780191924644.003.0014
Jitjum, S., Jayathavaj, V., & Khanthong, P. (2025) · Community and Social Development Journal · doi:10.57260/csdj.2025.269034
Nicolai, M., Ullrich, A., Ruck, J., Jaspers, B., Bialobrzeski, A., Degutsch, R., Oechsle, K., Radbruch, L., Gágyor, I., & Hettich-Damm, N. (2025) · BMC Palliative Care · doi:10.1186/s12904-025-01860-w
Prolonged grief disorder and associated factors among general population
Mirhosseini, S., Vejdani, H., Kordi, Z., Khajeh, M., Hosseini, F. S., Grimwood, S., Mohammadi, M., & Ebrahimi, H. (2025) · Journal of Research Development in Nursing and Midwifery · doi:10.61882/jgbfnm.22.2.28
Worlds apart: using technology to alleviate grief-related loneliness in young people
Weinstock, L., Jeayes, A., Kurze, H., & Albuquerque, S. (2025) · Mental Health and Digital Technologies · doi:10.1108/mhdt-01-2025-0011
Harrop, E. J., Goss, S., Longo, M., Seddon, K., Torrens‐Burton, A., Sutton, E. J., FARNELL, D. J. J., Penny, A., Nelson, A., Byrne, A., et al. (2022) · Figshare · doi:10.6084/m9.figshare.21303616
Self-citationTan, P., Lin, A. M., & Zen, J. A. (2026) · The Arts in Psychotherapy · doi:10.1016/j.aip.2026.102426
Finucane, A. M., Canny, A., Harrop, E. J., Selman, L. E., Swash, B., Spiller, J. A., Neilson, A., Hulbert-Williams, N., Wakefield, D., Owen, R., et al. (2025) · Progress in Palliative Care · doi:10.1080/09699260.2026.2637281
Self-citationMachin, L. (2026) · Frontiers in Psychology · doi:10.3389/fpsyg.2026.1656741 · Cited by 2 · see citing works
Self-citationLunardini, M. M., & Levesque, D. A. (2026) · BMC Public Health · doi:10.1186/s12889-026-27605-9
Licht-Handler, A. S., Lin, C., Stelzer, E., & Killikelly, C. (2026) · JMIR Research Protocols · doi:10.2196/87021
Kurotori, I., Kawaguchi, K., Sunohara, S., Kondo, K., & Tamakoshi, A. (2026) · Death Studies · doi:10.1080/07481187.2026.2690127
Designing for Grief: Bereaved Adults’ Perspectives on Conversational Support
Kayesu, A., Lalwani, H., & Salam, H. (2026) · ACM Conference on Conversational User Interfaces (CUI) · doi:10.1145/3816046.3816279
Agha, E., Miller, C., Downing, K. K., James, K., McNicholas, A., Newton, S., Wershil, S.-J., & Michelson, K. N. (2026) · Death Studies · doi:10.1080/07481187.2026.2704574
Assumptions and principles for responsible AI development and use in grief and bereavement care
Lunardini, M. M., Hall, C., Hjorth, L., Kosminsky, P. S., Massdorp, V., Ho, A. H. Y., & Dying and Bereavement (IWG) on behalf of the International Work Group on Death (2026) · Death Studies · doi:10.1080/07481187.2026.2721402
Valverde, F. M. D. S., Neto, M. F. D. S., de Oliveira, A. M. R. R., Marcicano, P. C., Covello, L. H. S., Sanches, L. C., & Amêndola, C. P. (2026) · Psicologia e Saúde em Debate · doi:10.22289/2446-922x.v12a2a16
Psychosocial Interventions for Bereaved Families: Scoping Review
Sholikhah, A. N. H., Dewani, S. K., Pratiwi, R. M., & Kaloeti, D. V. S. (2026) · Journal of Psychosocial Rehabilitation and Mental Health · doi:10.1007/s40737-026-00550-x
Miller, E., Sanderson, L., Brien, J. O., Bradford, N., Holland‐Batt, S., Bartlett, S. E., Scharoun, L., Caldwell, G. A., & Guihot, M. (2026) · Journal of Responsible Technology · doi:10.1016/j.jrt.2026.100193
- Authors
- Harrop, E., Goss, S., Farnell, D., Longo, M., Byrne, A., Barawi, K., Torrens-Burton, A., Nelson, A., Seddon, K., Machin, L., Sutton, E., Roulston, A., Finucane, A., Penny, A., Smith, K. V., Sivell, S., & Selman, L. E.
- Affiliations
- Cardiff University (GB)
- PRIME Centre, Division of Population Medicine, Cardiff University, Cardiff, UK
- Keele University (GB)
- University of Bristol (GB)
- Queen's University Belfast (GB)
- University of Edinburgh (GB)
- Childhood Bereavement Network (GB)
- University of Oxford (GB)
- Corresponding author
- Harrop, Emily
- ORCID
- Venue
- Palliative Medicine
- Publisher
- SAGE Publications
- Published
- 2021-10-22
- Volume
- 35
- Issue
- 10
- Pages
- 1985-1997
- ISSN
- 0269-2163 (ISSN-L)
- 1477-030X
- PMC
- PMC8637353
- OpenAlex
- W3172502655
- Cited by
- 92
- References
- 34
- Citations by year
- 2026: 13 · 2025: 29 · 2024: 21 · 2023: 9 · 2022: 18 · 2021: 2
- FWCI
- 8.52
- Type
- journal article
- Language
- en
- Open access
- hybrid
- doi.org
- Licence
- Locations
- Palliative Medicine (publishedVersion, cc-by)
- medRxiv (acceptedVersion, cc-by-nc)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- ORCA Online Research @Cardiff (Cardiff University) (acceptedVersion)
- Bristol Research (University of Bristol) (acceptedVersion, cc-by)
- Keele Research Repository (Keele University) (submittedVersion, cc-by)
- Research Portal (Queen's University Belfast) (submittedVersion, cc-by)
- Edinburgh Research Explorer (University of Edinburgh) (submittedVersion, cc-by)
- Funders
- uk research and innovation (ES/V012053/1)
- marie curie (MCCC-FCO-11-C)
- Topics
- Social Sciences › Psychology › Clinical Psychology › Grief, Bereavement, and Mental Health
- Social Sciences › Psychology › Clinical Psychology › COVID-19 and Mental Health
- Social Sciences › Anthropology › Death, Funerary Practices, and Mourning
- Keywords
- bereavement, COVID-19 pandemic, grief, support needs, barriers to support, informal support, general practitioner support, bereavement services, social isolation, mental health services, family and friend support
- MeSH terms
- COVID-19, SARS-CoV-2, Adult, Bereavement, Grief, Humans, Social Support, Pandemics
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review
