The DOI matches its Crossref record; 5 of the 5 references it cites were found in a registry or an index.
Factors Associated with Caregiver Burden among Caregivers of Terminally Ill Patients with Cancer
Abstract
Objective To identify factors associated with caregiver burden among those caring for terminally ill patients with cancer. Design Cross-sectional study of interviews with primary caregivers (n = 206) of consecutive patients with cancer enrolled in the largest hospice in Connecticut. Methods Data were collected on the caregivers' sociodemographic characteristics, social network index, and number of restrictions in their own activities due to their caregiving role. The outcome was a nine-item questionnaire adapted from the Zarit Burden Inventory. Results The highest burden was reported among caregivers with more limited social networks (OR 1.38, Cl 1.02-1.87), more restrictions in their daily activities (OR 1.35, Cl 1.13-1.61), and who were younger (OR 1.46, Cl 1.10-1.93). Conclusions Variations exist in the intensity of caregiver burden based on subjective experiences and social support, rather than on the amount of assistance provided. Clinicians should consider factors such as these when targeting caregivers for interventions to alleviate burden.
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“A limitation of the study is that we did not study all factors that had been found to contribute to CB in other studies like the social network index of caregivers and their activity restriction [28].”
From Caregiver burden among family caregivers of incurable cancer patients in two eastern Mediterranean countries (2021) · cites this paper as [28]
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“Goldstein et al. included in their study caregivers of patients with terminal cancer and found no significant association between the number of ADLs the caregivers assist with and higher CB [28].”
From Caregiver burden among family caregivers of incurable cancer patients in two eastern Mediterranean countries (2021) · cites this paper as [28]
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“Variations exist in the intensity of caregiver burden based on subjective experiences and social support; therefore, clinicians need to consider individual need, and design interventions to target these issues (Goldstein et al., 2004).”
BackgroundFamily Caregiver Perception of Hospice Support
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Fjose, M., Eilertsen, G., Kirkevold, M., & Grov, E. K. (2019) · Clinical Nursing Studies · doi:10.5430/cns.v7n4p1 · Cited by 1
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Abdi, M., Mohammadian, R., Abbasi, P., Asadi, M., Mohajer, E., & Piri, S. (2019) · Journal of Client-centered Nursing Care · doi:10.32598/jccnc.5.2.105 · Cited by 2
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Factors Related to the Caregiving Burden on Families of Korean Patients With Lung Cancer
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Metadata
- Authors
- Goldstein, N. E., Concato, J., Fried, T. R., Kasl, S. V., Johnson-Hurzeler, R., & Bradley, E. H.
- Affiliations
- Yale University (US)
- Connecticut Hospice, Branford
- Venue
- Journal of Palliative Care
- Publisher
- SAGE Publications
- Published
- 2004-03
- Volume
- 20
- Issue
- 1
- Pages
- 38-43
- ISSN
- 0825-8597 (ISSN-L)
- 2369-5293
- OpenAlex
- W16285977
- Cited by
- 190
- References
- 0
- Citations by year
- 2026: 2 · 2025: 7 · 2024: 3 · 2023: 5 · 2022: 7 · 2021: 10 · 2020: 8 · 2019: 11 · 2018: 7 · 2017: 8 · 2016: 8 · 2015: 14 · 2014: 14 · 2013: 4 · 2012: 16
- FWCI
- 8.19
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Palliative Care (publishedVersion)
- PubMed (publishedVersion)
- Funders
- National Institute on Aging (K02AG20113, K02AG020113, P30 AG21342, P30AG021342)
- Topics
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
- Health Sciences › Nursing › Research and Theory › Nursing care and research
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
- Keywords
- caregiver burden, terminal cancer, hospice care, family caregivers, social support networks, activity limitation, Zarit Burden Inventory, sociodemographic factors, young carers
- MeSH terms
- Activities of Daily Living, Adaptation, Psychological, Adult, Aged, Aged, 80 and over, Analysis of Variance, Attitude to Health, Connecticut, Cross-Sectional Studies, Family, Female, Humans, Male, Middle Aged, Neoplasms, Quality of Life, Surveys and Questionnaires, Social Support, Socioeconomic Factors, Stress, Psychological, Logistic Models, Caregivers, Hospice Care, Cost of Illness, Needs Assessment
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