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Cited by 190Palliative Care and End-of-Life IssuesNursing care and researchPalliative and Oncologic Care

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Factors Associated with Caregiver Burden among Caregivers of Terminally Ill Patients with Cancer

Goldstein, Nathan E., Concato, John, Fried, Terri R., Kasl, Stanislav V., Johnson-Hurzeler, Rosemary, Bradley, Elizabeth H.·2004·Journal of Palliative Care
DOI 10.1177/082585970402000108
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Abstract

Objective To identify factors associated with caregiver burden among those caring for terminally ill patients with cancer. Design Cross-sectional study of interviews with primary caregivers (n = 206) of consecutive patients with cancer enrolled in the largest hospice in Connecticut. Methods Data were collected on the caregivers' sociodemographic characteristics, social network index, and number of restrictions in their own activities due to their caregiving role. The outcome was a nine-item questionnaire adapted from the Zarit Burden Inventory. Results The highest burden was reported among caregivers with more limited social networks (OR 1.38, Cl 1.02-1.87), more restrictions in their daily activities (OR 1.35, Cl 1.13-1.61), and who were younger (OR 1.46, Cl 1.10-1.93). Conclusions Variations exist in the intensity of caregiver burden based on subjective experiences and social support, rather than on the amount of assistance provided. Clinicians should consider factors such as these when targeting caregivers for interventions to alleviate burden.

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Metadata

Authors
Goldstein, N. E., Concato, J., Fried, T. R., Kasl, S. V., Johnson-Hurzeler, R., & Bradley, E. H.
Affiliations
  • Yale University (US)
  • Connecticut Hospice, Branford
ORCID
Venue
Journal of Palliative Care
Publisher
SAGE Publications
Published
2004-03
Volume
20
Issue
1
Pages
38-43
ISSN
  • 0825-8597 (ISSN-L)
  • 2369-5293
DOI
10.1177/082585970402000108
OpenAlex
W16285977
Cited by
190
References
0
Citations by year
2026: 2 · 2025: 7 · 2024: 3 · 2023: 5 · 2022: 7 · 2021: 10 · 2020: 8 · 2019: 11 · 2018: 7 · 2017: 8 · 2016: 8 · 2015: 14 · 2014: 14 · 2013: 4 · 2012: 16
FWCI
8.19
Type
journal article
Language
en
Open access
closed
Licence
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations
  • Journal of Palliative Care (publishedVersion)
  • PubMed (publishedVersion)
Funders
National Institute on Aging (K02AG20113, K02AG020113, P30 AG21342, P30AG021342)
Topics
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative Care and End-of-Life Issues
  • Health Sciences › Nursing › Research and Theory › Nursing care and research
  • Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Palliative and Oncologic Care
Keywords
caregiver burden, terminal cancer, hospice care, family caregivers, social support networks, activity limitation, Zarit Burden Inventory, sociodemographic factors, young carers
MeSH terms
Activities of Daily Living, Adaptation, Psychological, Adult, Aged, Aged, 80 and over, Analysis of Variance, Attitude to Health, Connecticut, Cross-Sectional Studies, Family, Female, Humans, Male, Middle Aged, Neoplasms, Quality of Life, Surveys and Questionnaires, Social Support, Socioeconomic Factors, Stress, Psychological, Logistic Models, Caregivers, Hospice Care, Cost of Illness, Needs Assessment

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