Change in Social Engagement among Incident Caregivers and Controls: Findings from the Caregiving Transitions Study
Open accessAbstract
Objectives:We aimed to compare incident family caregivers and matched controls on change in social network variables and satisfaction with social activities. Methods: A total of 479 participants from the Caregiving Transitions Study were included in the analysis, 244 (50.9%) of whom began substantial and sustained caregiving between baseline and follow-up interviews. We assessed associations between incident caregiving and change in social network size, change in monthly social contact, and satisfaction with social activities. Results: Incident caregivers reported lower satisfaction with social activities and greater decline in social network size than controls. Among only the caregivers, dementia caregivers reported greater decline in social network size while caregivers who were spouses, experienced higher strain, and provided more hours of care reported lower satisfaction with social activities. Discussion: Social engagement declined more among incident caregivers than controls. Future studies should aim to understand why subgroups of caregivers reported lower social engagement.
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Compared with non-dementia caregivers, dementia caregivers report a greater decrease in their social networks.
“Compared with non-dementia caregivers, dementia caregivers indicate a greater decrease in their social networks.495”
From 2023 Alzheimer's disease facts and figures (2023) · cites this paper as [495]
The Abstract’s Results state that dementia caregivers reported a greater decline in social network size. But the Results and Discussion report the opposite after covariate adjustment: dementia caregivers had less decline than nondementia caregivers. The citing sentence omits this consequential qualification. (LLM, conf=0.88)
Experimental — accuracy not yet measuredCompared with non-dementia caregivers, dementia caregivers indicate a greater decrease in their social networks.
“Compared with non‐dementia caregivers, dementia caregivers indicate a greater decrease in their social networks (e.g., other relatives, friends, acquaintances). 539”
From 2024 Alzheimer's disease facts and figures (2024) · cites this paper as [539]
The Abstract’s Results state that dementia caregivers reported a greater decline in social network size. However, the Results and Discussion report the opposite after covariate adjustment: dementia caregivers had less decline than nondementia caregivers. The unqualified claim omits this important distinction. (LLM, conf=0.87)
Experimental — accuracy not yet measured
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Cites
Pinquart, M., & Sörensen, S. (2003) · Psychology and Aging · doi:10.1037/0882-7974.18.2.250 · Cited by 2,857 · see citing works
Social and emotional patterns in adulthood: Support for socioemotional selectivity theory
Carstensen, L. L. (1992) · Psychology and Aging · doi:10.1037/0882-7974.7.3.331 · Cited by 2,174 · see citing works
Cacioppo, J. T., Hawkley, L. C., & Thisted, R. A. (2010) · Psychology and Aging · doi:10.1037/a0017216 · Cited by 1,757 · see citing works
Loneliness in Older Persons: A Predictor of Functional Decline and Death
Perissinotto, C. M., Stijacic Cenzer, I., & Covinsky, K. E. (2012) · Archives of Internal Medicine · doi:10.1001/archinternmed.2012.1993 · Cited by 1,269 · see citing works
Assessing social networks among elderly populations
Lubben, J. E. (1988) · Family & Community Health · doi:10.1097/00003727-198811000-00008 · Cited by 1,189 · see citing works
The Reasons for Geographic and Racial Differences in Stroke Study: Objectives and Design
Howard, V. J., Cushman, M., Pulley, L., Gomez, C. R., Go, R. C. P., Prineas, R. J., Graham, A., Moy, C. S., & Howard, G. (2005) · Neuroepidemiology · doi:10.1159/000086678 · Cited by 1,175 · see citing works
Self-citationOry, M. G., Hoffman, R. R., Yee, J. L., Tennstedt, S., & Schulz, R. (1999) · The Gerontologist · doi:10.1093/geront/39.2.177 · Cited by 991 · see citing works
Pinquart, M., & Sörensen, S. (2011) · Psychology and Aging · doi:10.1037/a0021863 · Cited by 947 · see citing works
The Convoy Model: Explaining Social Relations From a Multidisciplinary Perspective
Antonucci, T. C., Ajrouch, K. J., & Birditt, K. S. (2013) · The Gerontologist · doi:10.1093/geront/gnt118 · Cited by 943 · see citing works
The Social Connectedness of Older Adults: A National Profile
Cornwell, B., Laumann, E. O., & Schumm, L. P. (2008) · American Sociological Review · doi:10.1177/000312240807300201 · Cited by 941 · see citing works
Issues of Race, Ethnicity, and Culture in Caregiving Research: A 20-Year Review (1980-2000)
Dilworth‐Anderson, P., Williams, I. C., & Gibson, B. E. (2002) · The Gerontologist · doi:10.1093/geront/42.2.237 · Cited by 757 · see citing works
Improving caregiver well-being delays nursing home placement of patients with Alzheimer disease
Mittelman, M. S., Haley, W. E., Clay, O. J., & Roth, D. L. (2006) · Neurology · doi:10.1212/01.wnl.0000242727.81172.91 · Cited by 602 · see citing works
Self-citationHaley, W. E., Levine, E. G., Brown, S. L., & Bartolucci, A. A. (1987) · Psychology and Aging · doi:10.1037//0882-7974.2.4.323 · Cited by 587 · see citing works
Self-citationAnnual Review of Gerontology and Geriatrics
(1990) · Springer eBooks · doi:10.1007/978-3-662-40455-3 · Cited by 532 · see citing works
Social Networks Among Blacks and Whites: The Interaction Between Race and Age
Ajrouch, K. J., Antonucci, T. C., & Janevic, M. R. (2001) · The Journals of Gerontology Series B · doi:10.1093/geronb/56.2.s112 · Cited by 426 · see citing works
Haley, W. E., Levine, E. G., Brown, S. L., et al. (1987) · Psychology and Aging · doi:10.1037/0882-7974.2.4.323 · Cited by 421 · see citing works
Self-citationHaley, W. E., West, C. A. C., Wadley, V. G., Ford, G. R., White, F. A., Barrett, J. J., Harrell, L. E., & Roth, D. L. (1995) · Psychology and Aging · doi:10.1037/0882-7974.10.4.540 · Cited by 265 · see citing works
Self-citationCognitive Aging: Progress in Understanding and Opportunities for Action
Wallace, R. B. (2016) · American Journal of Geriatric Psychiatry · doi:10.1016/j.jagp.2016.01.048 · Cited by 246 · see citing works
Roth, D. L., Perkins, M. M., Wadley, V. G., Temple, E. M., & Haley, W. E. (2009) · Quality of Life Research · doi:10.1007/s11136-009-9482-2 · Cited by 242 · see citing works
Self-citationAntonucci, T., Fuhrer, R., & Dartigues, J. (1997) · Psychology and Aging · doi:10.1037/0882-7974.12.1.189 · Cited by 208 · see citing works
Antonucci, T. C., Fuhrer, R., & Dartigues, J. (1997) · Psychology and Aging · doi:10.1037//0882-7974.12.1.189 · Cited by 193 · see citing works
Roth, D. L., Mittelman, M. S., Clay, O. J., Madan, A., & Haley, W. E. (2005) · Psychology and Aging · doi:10.1037/0882-7974.20.4.634 · Cited by 191 · see citing works
Self-citationHoward, G., Cushman, M., Moy, C. S., Oparil, S., Muntner, P., Lackland, D. T., Manly, J. J., Flaherty, M. L., Judd, S. E., Wadley, V. G., et al. (2018) · JAMA · doi:10.1001/jama.2018.13467 · Cited by 180 · see citing works
Self-citationBurgio, L. D., Stevens, A. B., Guy, D., Roth, D. L., & Haley, W. E. (2003) · The Gerontologist · doi:10.1093/geront/43.4.568 · Cited by 163 · see citing works
Self-citationBick, D. (1994) · JAMA · doi:10.1001/jama.1994.03510410095046 · Cited by 154 · see citing works
Sheehan, O. C., Haley, W. E., Howard, V. J., Huang, J., Rhodes, J. D., & Roth, D. L. (2021) · The Gerontologist · doi:10.1093/geront/gnaa108 · Cited by 146 · see citing works
Self-citationEmployment status, social ties, and caregivers’ mental health
Cannuscio, C. C., Colditz, G. A., Rimm, E. B., Berkman, L. F., Jones, C. P., & Kawachi, I. I. (2003) · Social Science & Medicine · doi:10.1016/s0277-9536(03)00317-4 · Cited by 146 · see citing works
Long-term impact of stroke on family caregiver well-being
Haley, W. E., Roth, D. L., Hovater, M. K., & Clay, O. J. (2015) · Neurology · doi:10.1212/wnl.0000000000001418 · Cited by 138 · see citing works
Self-citationClay, O. J., Roth, D. L., Wadley, V. G., & Haley, W. E. (2008) · International Journal of Geriatric Psychiatry · doi:10.1002/gps.1996 · Cited by 131 · see citing works
Self-citationContributors to the Excess Stroke Mortality in Rural Areas in the United States
Howard, G., Kleindorfer, D., Cushman, M., Long, D. L., Jasne, A. S., Judd, S. E., Higginbotham, J. C., & Howard, V. J. (2017) · Stroke · doi:10.1161/strokeaha.117.017089 · Cited by 120 · see citing works
Self-citationFredman, L., Bertrand, R. M., Martire, L. M., Hochberg, M., & Harris, E. L. (2006) · Preventive Medicine · doi:10.1016/j.ypmed.2006.04.009 · Cited by 116 · see citing works
Measurement of leisure time satisfaction in family caregivers
Stevens, A. B., Coon, D. W., Wisniewski, S. R., Vance, D. E., Argüelles, S., Belle, S. H., Mendelsohn, A. B., Ory, M. G., & Haley, W. E. (2004) · Aging & Mental Health · doi:10.1080/13607860410001709737 · Cited by 99 · see citing works
Self-citationAssessment of Social Network Change in a National Longitudinal Survey
Cornwell, B. T., Schumm, L. P., Laumann, E. O., Kim, J., & Kim, Y. J. (2014) · The Journals of Gerontology Series B · doi:10.1093/geronb/gbu037 · Cited by 91 · see citing works
Adams, K. B. (2007) · International Psychogeriatrics · doi:10.1017/s1041610207006278 · Cited by 78 · see citing works
Rigby, T., Ashwill, R., Johnson, D. K., & Galvin, J. E. (2019) · Innovation in Aging · doi:10.1093/geroni/igz027 · Cited by 74 · see citing works
Caring for Caregivers During COVID ‐19
Dang, S., Penney, L., TRIVEDI, R. B., Noël, P. H., Pugh, M. J., Finley, E. P., Pugh, J. A., Houtven, C. H. V., & Leykum, L. K. (2020) · Journal of the American Geriatrics Society · doi:10.1111/jgs.16726 · Cited by 74 · see citing works
Cox, C. (1993) · American Journal of Alzheimer s Disease & Other Dementias® · doi:10.1177/153331759300800305 · Cited by 50 · see citing works
Litzelman, K., Skinner, H. G., Gangnon, R. E., Nieto, F. J., Malecki, K. M. C., & Witt, W. P. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0598-z · Cited by 46 · see citing works
Dementia caregiver burden association with community participation aspect of social capital
Papastavrou, E., Andreou, P., Middleton, N., Tsangari, H., & Papacostas, S. (2015) · Journal of Advanced Nursing · doi:10.1111/jan.12762 · Cited by 43 · see citing works
Black/White Family Comparisons in Helping and Decision-Making Networks of Impaired Elderly
Smerglia, V. L., Deimling, G. T., & Barresi, C. M. (1988) · Family Relations · doi:10.2307/584567 · Cited by 42 · see citing works
The effect on lifestyle activities of caring for a person with dementia
Clark, M. S. G., & Bond, M. J. (2000) · Psychology Health & Medicine · doi:10.1080/135485000105972 · Cited by 41 · see citing works
Badawy, P. J., Schafer, M. H., & Sun, H. (2018) · Research on Aging · doi:10.1177/0164027518774805 · Cited by 35 · see citing works
Emotional reactions and life changes of caregivers of demented patients when home caregiving ends
Eloniemi-Sulkava, U. R., Rahkonen, T., Suihkonen, M., Halonen, P., Hentinen, M., & Sulkava, R. O. (2002) · Aging & Mental Health · doi:10.1080/1360786021000006965 · Cited by 32 · see citing works
Perceived support from a caregiver's social ties predicts subsequent care-recipient health
Kelley, D., Lewis, M. A., & Southwell, B. G. (2017) · Preventive Medicine Reports · doi:10.1016/j.pmedr.2017.08.001 · Cited by 31 · see citing works
Roth, D. L., Haley, W. E., Rhodes, J. D., Sheehan, O. C., Huang, J., Blinka, M. D., Yuan, Y., Irvin, M. R., Jenny, N. S., Durda, P., et al. (2019) · Aging Clinical and Experimental Research · doi:10.1007/s40520-019-01370-9 · Cited by 31 · see citing works
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- Authors
- Liu, C., Fabius, C. D., Howard, V. J., Haley, W. E., & Roth, D. L.
- Affiliations
- Johns Hopkins University (US)
- University of Alabama at Birmingham (US)
- University of South Florida (US)
- Corresponding author
- Liu, Chelsea
- Venue
- Journal of Aging and Health
- Publisher
- SAGE Publications
- Published
- 2020-09-23
- Volume
- 33
- Issue
- 1-2
- Pages
- 114-124
- ISSN
- 0898-2643 (ISSN-L)
- 1552-6887
- PMC
- PMC12488221
- OpenAlex
- W3088275190
- Cited by
- 29
- References
- 42
- Citations by year
- 2026: 6 · 2025: 7 · 2024: 6 · 2023: 4 · 2022: 3 · 2021: 3
- FWCI
- 3.86
- Type
- journal article
- Language
- en
- Open access
- green
- pmc.ncbi.nlm.nih.gov
- Locations
- Journal of Aging and Health (publishedVersion)
- PubMed (publishedVersion)
- PubMed Central (publishedVersion)
- Europe PMC (PubMed Central) (acceptedVersion)
- Funders
- National Institute of Neurological Disorders and Stroke (U01 NS041588)
- National Institute on Aging (RF1 AG050609)
- Topics
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Sociology and Political Science › Intergenerational Family Dynamics and Caregiving
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Keywords
- family caregivers, social engagement, social networks, social network size, social contact, dementia caregiving, caregiver burden, caregiver hours
- MeSH terms
- Aged, Female, Humans, Male, Middle Aged, Personal Satisfaction, Social Isolation, Social Support, United States, Urban Population, Case-Control Studies, Caregivers, Spouses, Social Participation
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