Online Solutions to Support Needs and Preferences of Parents of Children with Asthma and Allergies
Abstract
Many families of children with asthma and allergies experience support deficits and isolation. However, support interventions have not been designed to meet their needs. Consequently, parents' intervention preferences were elicited, and an online peer support group intervention was designed based on these preferences and piloted in the study described. In-depth interviews with 44 parents elicited preferences for support interventions for both children and parents. Many said they felt alone and wanted support from others in similar situations. Based on the parents' preferences for accessible online peer support groups, a pilot online intervention was designed and implemented. Parents received information and reassurance from other parents in peer support sessions. Parents appreciated the accessibility and anonymity of the online support group. This innovative online peer support intervention, informed by parents' preferences, could be adapted and tested in intervention trials and guide programs and practice for families affected by asthma, allergies, and other chronic conditions.
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The literature suggests that parent caregivers are an at-risk population.
“The literature suggests that parent caregivers are an at-risk population, reinforcing the relevance of studying their experiences from their own perspective [48].”
From “The Key Is to Value Every Little Achievement”: A Qualitative Study of the Psychological Experience of Parent Caregivers in Paediatric Palliative Care (2023) · cites this paper as [48]
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- Authors
- Stewart, M., Letourneau, N., Masuda, J. R., Anderson, S., & McGhan, S.
- Affiliations
- University of Alberta, Edmonton, Alberta, Canada
- University of New Brunswick (CA)
- University of Manitoba (CA)
- University of Alberta (CA)
- Venue
- Journal of Family Nursing
- Publisher
- SAGE Publications
- Published
- 2011-08
- Volume
- 17
- Issue
- 3
- Pages
- 357-379
- ISSN
- 1074-8407 (ISSN-L)
- 1552-549X
- OpenAlex
- W2147039811
- Cited by
- 41
- References
- 43
- Citations by year
- 2026: 2 · 2025: 1 · 2024: 2 · 2023: 7 · 2022: 2 · 2021: 2 · 2020: 4 · 2019: 2 · 2018: 1 · 2017: 2 · 2016: 2 · 2015: 3 · 2014: 5 · 2013: 5 · 2012: 1
- FWCI
- 6.53
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Journal of Family Nursing (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
- Keywords
- asthma, allergy, parental support, online peer support groups, parental preferences, family isolation, children with chronic illness, intervention design, anonymity, online intervention
- MeSH terms
- Adolescent, Adult, Asthma, Child, Child, Preschool, Female, Health Services Needs and Demand, Humans, Hypersensitivity, Interviews as Topic, Male, Middle Aged, Online Systems, Parents, Peer Group, Pilot Projects, Social Support
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