The DOI matches its Crossref record; 23 of the 23 references it cites were found in a registry or an index.
‘I just don’t fit anywhere’: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood
Abstract
The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome.
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In the citing paper
“Adults and parents described that professionals not recognising signs of autism and multiple referrals resulted in delays before and during assessment (Bargiela et al., 2016; Griffith et al., 2012; Jones et al., 2014; Raymond-Barker et al., 2018).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012
In the citing paper
“Lack of clear pathways to formal support after diagnosis was well-documented from the perspectives of autistic adults, families, and service providers (e.g. Crane et al., 2018; Griffith et al., 2012; Lewis, 2017b; Raymond-Barker et al., 2018).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012
In the citing paper
“Some autistic adults asserted that autism is a positive intrinsic difference (e.g. Lewis, 2016b; Tan, 2018), but others viewed autism more negatively and separated it from their identities (Griffith et al., 2012; Hickey et al., 2018).”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012
In the citing paper
“As autistic adults often have difficulties with employment (e.g. Griffith et al., 2012; Marriage et al., 2009), training employers on supporting autistic adults' occupational needs may also be beneficial.”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012
In the citing paper
“had difficulties obtaining a diagnosis and suitable support”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al. (2012)
In the citing paper
“Adults viewed health professionals as unhelpful and lacking knowledge in AS”
From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al. (2012)
In the citing paper
“Previous research has found that lack of societal understanding of autism and feeling misunderstood may contribute to stress, isolation, and depression among autistic adults (Cage et al., 2018;Gotham et al., 2014;Griffith et al., 2012;Han et al., 2022).”
From A mixed methods study of autistic adults' mental health therapy experiences (2023) · cites this paper as Griffith et al., 2012
In the citing paper
“when interviewed about their experiences of acceptance from society, adults on the autism spectrum reported that a lack of public understanding was contributing to their experiences of social isolation and anxiety (Griffith et al. 2012).”
From Experiences of autism acceptance and mental health in autistic adults (2018) · cites this paper as Griffith et al. 2012
Citations
Cites
Diagnostic and Statistical Manual of Mental Disorders
Williams, J. B. W., & First, M. B. (2013) · Oxford University Press eBooks · doi:10.1093/acrefore/9780199975839.013.104 · Cited by 109,845
Baron-Cohen, S., & Wheelwright, S. (2004) · Journal of Autism and Developmental Disorders · doi:10.1023/b:jadd.0000022607.19833.00 · Cited by 4,093
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Siegel, L. J., & Fletcher‐Janzen, E. (2014) · Wiley eBooks · doi:10.1002/9781118660584.ese0728 · Cited by 3,438
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Elliott, R., Fischer, C. T., & Rennie, D. L. (1999) · British Journal of Clinical Psychology · doi:10.1348/014466599162782 · Cited by 2,491
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Willig, C. (2008) · Cited by 2,291
Doing Interpretative Phenomenological Analysis
Smith, J., Jarman, M., & Osborn, M. (1999) · SAGE Publications Ltd eBooks · doi:10.4135/9781446217870.n14 · Cited by 1,904
Adult outcome for children with autism
Howlin, P., Goode, S., Hutton, J., & Rutter, M. (2004) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2004.00215.x · Cited by 1,813
Comparing Telephone and Face-to-Face Qualitative Interviewing: a Research Note
Sturges, J. E., & Hanrahan, K. J. (2004) · Qualitative Research · doi:10.1177/1468794104041110 · Cited by 1,577
Brocki, J. M., & Wearden, A. J. (2006) · Psychology & Health · doi:10.1080/14768320500230185 · Cited by 1,433
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Rosaline, B. (2008) · SAGE Publications Ltd eBooks · doi:10.4135/9780857029034 · Cited by 1,071
Research works printed but not linked: 4
- Department of Health, 2010, Fulfilling and Rewarding Lives
- Harker M, 2004, Tomorrow’s Big Problem: Housing Options for People with Autism: A Guide for Service Commissioners, Providers and Families
- Howard B, 2006, Autism, 33, 489
- Powell A, 2002, Taking Responsibility: Good Practice Guidelines for Services for Adults with Asperger Syndrome
Cited by
Sorted by citations
Deficit, difference, or both? Autism and neurodiversity.
Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013) · Developmental Psychology · doi:10.1037/a0028353 · Cited by 1,263
Experiences of autism acceptance and mental health in autistic adults
Cage, E., Di Monaco, J., & Newell, V. (2018) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3342-7 · Cited by 538
Whose Expertise Is It? Evidence for Autistic Adults as Critical Autism Experts
Gillespie-Lynch, K., Kapp, S. K., Brooks, P. J., Pickens, J., & Schwartzman, B. (2017) · Frontiers in Psychology · doi:10.3389/fpsyg.2017.00438 · Cited by 384
Van Hees, V., Moyson, T., & Roeyers, H. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2324-2 · Cited by 387
Leedham, A. T., Thompson, A. R., Smith, R. S., & Freeth, M. (2019) · Autism · doi:10.1177/1362361319853442 · Cited by 443
Metadata
- Authors
- Griffith, G. M., Totsika, V., Nash, S., & Hastings, R. P.
- Affiliations
- Bangor University (GB)
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2011-05-24
- Volume
- 16
- Issue
- 5
- Pages
- 532-546
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2118012655
- Cited by
- 180
- References
- 23
- Citations by year
- 2026: 5 · 2025: 10 · 2024: 20 · 2023: 15 · 2022: 13 · 2021: 16 · 2020: 19 · 2019: 12 · 2018: 14 · 2017: 13 · 2016: 10 · 2015: 14 · 2014: 11 · 2013: 4 · 2012: 4
- FWCI
- 3.08
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
- Social Sciences › Education › Disability Education and Employment
- Keywords
- Asperger syndrome, midlife, support services, employment, anxiety, depression, communication difficulties, independence, individualized support, autism spectrum disorder
- MeSH terms
- Adult, Anxiety, Depression, Employment, Female, Health Services Needs and Demand, Humans, Male, Mental Health Services, Middle Aged, Social Work, Asperger Syndrome, Qualitative Research
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