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Cited by 180Autism Spectrum Disorder ResearchFamily and Disability Support ResearchDisability Education and Employment

The DOI matches its Crossref record; 23 of the 23 references it cites were found in a registry or an index.

‘I just don’t fit anywhere’: support experiences and future support needs of individuals with Asperger syndrome in middle adulthood

Griffith, Gemma M., Totsika, Vasiliki, Nash, Susie, Hastings, Richard P.·2012·Autism
DOI 10.1177/1362361311405223
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Abstract

The experiences of individuals in middle adulthood with Asperger syndrome have been the subject of little previous research, especially in terms of their experience of support services. In the present research, 11 adults with Asperger syndrome were interviewed. Interpretative phenomenological analysis (IPA) was used to interpret the interviews. Four themes emerged from the analysis: living with Asperger syndrome; employment issues; experiences with mainstream support; and future steps towards supporting adults with Asperger syndrome. The findings highlighted the anxiety, depression, and communication difficulties that people with Asperger syndrome may experience. Much of the available support is perceived as unsuitable for individuals with Asperger syndrome. All participants wanted to remain as independent as possible, and believed an individualized approach to support would be greatly beneficial. Recommendations are made for future practice to help support adults with Asperger syndrome.

Overview

Integrity signals

Registry

Crossref · 10.1177/1362361311405223

Cites

23 of 23 references verified0 citation errors · 0 not checkable

Statistics

Recomputing p-values needs the paper’s full text.

Verification

Claims the paper makes

This paper’s full text isn’t openly available, so its claims and self-check weren’t run. The registry and citation checks still apply.

Claims other papers make about this one

Each is checked against this paper’s own text: does it say what the citing paper says it does?

  • Adults and parents described that professionals not recognising signs of autism and multiple referrals resulted in delays before and during assessment.

    “Adults and parents described that professionals not recognising signs of autism and multiple referrals resulted in delays before and during assessment (Bargiela et al., 2016; Griffith et al., 2012; Jones et al., 2014; Raymond-Barker et al., 2018).”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012

  • Lack of clear pathways to formal support after diagnosis was well-documented from the perspectives of autistic adults, families, and service providers.

    “Lack of clear pathways to formal support after diagnosis was well-documented from the perspectives of autistic adults, families, and service providers (e.g. Crane et al., 2018; Griffith et al., 2012; Lewis, 2017b; Raymond-Barker et al., 2018).”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012

  • Some autistic adults asserted that autism is a positive intrinsic difference, but others viewed autism more negatively and separated it from their identities.

    “Some autistic adults asserted that autism is a positive intrinsic difference (e.g. Lewis, 2016b; Tan, 2018), but others viewed autism more negatively and separated it from their identities (Griffith et al., 2012; Hickey et al., 2018).”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012

  • As autistic adults often have difficulties with employment, training employers on supporting autistic adults' occupational needs may also be beneficial.

    “As autistic adults often have difficulties with employment (e.g. Griffith et al., 2012; Marriage et al., 2009), training employers on supporting autistic adults' occupational needs may also be beneficial.”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al., 2012

  • They had difficulties obtaining a diagnosis and suitable support.

    “had difficulties obtaining a diagnosis and suitable support”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Griffith et al. (2012)

Citations

Cites

Flagged first, then by citations

Research works printed but not linked: 4

  1. Department of Health, 2010, Fulfilling and Rewarding Lives
  2. Harker M, 2004, Tomorrow’s Big Problem: Housing Options for People with Autism: A Guide for Service Commissioners, Providers and Families
  3. Howard B, 2006, Autism, 33, 489
  4. Powell A, 2002, Taking Responsibility: Good Practice Guidelines for Services for Adults with Asperger Syndrome

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Related

Metadata

Authors
Griffith, G. M., Totsika, V., Nash, S., & Hastings, R. P.
Affiliations
Bangor University (GB)
ORCID
Venue
Autism
Publisher
SAGE Publications
Published
2011-05-24
Volume
16
Issue
5
Pages
532-546
ISSN
  • 1362-3613 (ISSN-L)
  • 1461-7005
DOI
10.1177/1362361311405223
OpenAlex
W2118012655
Cited by
180
References
23
Citations by year
2026: 5 · 2025: 10 · 2024: 20 · 2023: 15 · 2022: 13 · 2021: 16 · 2020: 19 · 2019: 12 · 2018: 14 · 2017: 13 · 2016: 10 · 2015: 14 · 2014: 11 · 2013: 4 · 2012: 4
FWCI
3.08
Type
journal article
Language
en
Open access
closed
Licence
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations
  • Autism (publishedVersion)
  • PubMed (publishedVersion)
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Family and Disability Support Research
  • Social Sciences › Education › Disability Education and Employment
Keywords
Asperger syndrome, midlife, support services, employment, anxiety, depression, communication difficulties, independence, individualized support, autism spectrum disorder
MeSH terms
Adult, Anxiety, Depression, Employment, Female, Health Services Needs and Demand, Humans, Male, Mental Health Services, Middle Aged, Social Work, Asperger Syndrome, Qualitative Research

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