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Cited by 83Autism Spectrum Disorder ResearchPsychology and Mental HealthChild Nutrition and Feeding Issues

A retrospective chart study: The pathway to a diagnosis for adults referred for ASD assessment

Geurts, Hilde M., Jansen, Marcel D.·2012·Autism
DOI 10.1177/1362361311421775
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Abstract

Charts of 125 adults (18 to 82 years), referred to an autism expert team for Autism Spectrum Disorder (ASD) assessment, were reviewed to explore the pathway to an adulthood ASD diagnosis. The participants first contacted the mental health care clinic at a median age of 19 years (range 2 to 78 years). Men contacted the clinic slightly earlier than women. The main referral reasons were social problems, feelings of anxiety and mood disturbances. The most common earlier diagnoses were anxiety and mood disorders or psychosis-related disorders. These diagnoses were more common in women than in men. Surprisingly few differences emerged between those who finally received an ASD diagnosis and those who did not. However, those with an ASD diagnosis contacted the clinic a mean of 15 years earlier and less frequently received different former diagnoses, although the type of diagnoses did not differ. The diagnostic criteria that were prevalent during early childhood of these adults did not influence their diagnostic history. A quarter of these clients were known with social problems within the mental health care system, but ASD was not assessed. Hence, the current study shows that the pathways to an adulthood ASD diagnosis are very heterogeneous.

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Crossref · 10.1177/1362361311421775

Cites

16 of 16 references verified0 citation errors · 0 not checkable

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  • Adults undergoing autism assessment first contacted the mental health clinic system at a median age of 19.

    “Adults first contacted the mental health clinic system at a median age of 19”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Geurts and Jansen (2012)

  • Birth cohorts did not affect the diagnostic pathway.

    “Birth cohorts did not affect diagnostic pathway.”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Geurts and Jansen (2012)

  • 36% of the diagnosed group were assessed as having a co-occurring condition.

    “36% of diagnosed group were assessed as having a co-occurring condition.”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Geurts and Jansen (2012)

  • They were assessed for autism at age 31.

    “were assessed for autism at age 31”

    From Diagnosis of autism in adulthood: A scoping review (2020) · cites this paper as Geurts and Jansen (2012)

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Authors
Geurts, H. M., & Jansen, M. D.
Affiliations
  • University of Amsterdam (NL)
  • Dr Leo Kannerhuis, The Netherlands
ORCID
Geurts, Hilde M.
Venue
Autism
Publisher
SAGE Publications
Published
2011-09-26
Volume
16
Issue
3
Pages
299-305
ISSN
  • 1362-3613 (ISSN-L)
  • 1461-7005
DOI
10.1177/1362361311421775
OpenAlex
W2138674918
Cited by
83
References
16
Citations by year
2026: 2 · 2025: 6 · 2024: 4 · 2023: 9 · 2022: 8 · 2021: 19 · 2020: 6 · 2019: 7 · 2018: 4 · 2017: 3 · 2016: 5 · 2015: 6 · 2014: 2 · 2013: 2
FWCI
0.65
Type
journal article
Language
en
Open access
closed
Licence
journals.sagepub.com/page/policies/text-and-data-mining-license (tdm)
Locations
  • Autism (publishedVersion)
  • PubMed (publishedVersion)
  • UvA-DARE (University of Amsterdam) (publishedVersion)
  • UvA-DARE (University of Amsterdam) (submittedVersion)
  • Data Archiving and Networked Services (DANS) (submittedVersion)
Funders
University of California, Davis
Topics
  • Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
  • Social Sciences › Psychology › Clinical Psychology › Psychology and Mental Health
  • Health Sciences › Medicine › Psychiatry and Mental health › Child Nutrition and Feeding Issues
Keywords
autism spectrum disorder, adult diagnosis, diagnostic pathway, mental health services, referral reasons, anxiety disorders, mood disorders, psychosis, sex differences, diagnostic history, social problems
MeSH terms
Adult, Aged, Child, Child Development Disorders, Pervasive, Diagnosis, Differential, Female, Humans, Male, Medical Records, Middle Aged, Psychiatric Status Rating Scales, Retrospective Studies, Prevalence, Statistics, Nonparametric, Delayed Diagnosis

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