The DOI matches its Crossref record; 77 of the 78 references it cites were found in a registry or an index.
‘I definitely feel more in control of my life’: The perspectives of young autistic people and their parents on emerging adulthood
Open accessAbstract
Long-term outcomes studies often paint a discouraging picture of the lives lived by autistic adults. Yet, their outcomes are often measured against normative markers of traditional adult roles, which may not apply to autistic people making the transition to adulthood. Here, we investigated the transition experiences of a group of young autistic people who were followed from childhood. Twenty-six young people and their parents ( n = 28) participated in semistructured interviews on the process of transition and their aspirations for the future. Parents often voiced serious concerns about the ongoing support their children would require and the severe lack of services designed to support them as adults. Yet, overall, young people reported feeling more in control of their own lives, including developing a sense of identity and personal autonomy, both of which may be rooted in young autistic people’s executive skills and their ability to develop and maintain trusting relationships with others – two potential candidate areas for targeted support. These results call into question whether the traditional standards to which we often hold young autistic people are developmentally appropriate and suggest that the pressures of striving towards more normative ways of engaging in the world may be detrimental to their well-being.
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“Studies with young autistic people in particular have found that they often construe themselves as ‘different’ to neurotypical people in a negative way (Cribb, Kenny, & Pellicano, 2019; Humphrey & Lewis, 2008; Shattuck et al., 2014; Williams, Gleeson, & Jones, 2019).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Cribb, Kenny, & Pellicano, 2019
In the citing paper
“In the face of this constant negative messaging, especially combined with more generalised discrimination against disabled people, it is unsurprising that considerable stigma is associated with the autism label.”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Cribb, Kenny, & Pellicano, 2019
Citations
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Cited by
Sorted by citations
Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science
Pellicano, E., & den Houting, J. (2022) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13534 · Cited by 744
“They label themselves as a ‘freak’, ‘mentally disabled’ and as ‘having a bad brain’ (Humphrey & Lewis, 2008), and often just want to be ‘as normal as possible’, actively hiding their autistic-ness (Cribb et al., 2019).”
BackgroundSelf-citationA capabilities approach to understanding and supporting autistic adulthood
Pellicano, E., Fatima, U., Hall, G., Heyworth, M., Lawson, W., Lilley, R., Mahony, J., & Stears, M. (2022) · Nature Reviews Psychology · doi:10.1038/s44159-022-00099-z · Cited by 237
Self-citationThe Foundations of Autistic Flourishing
Pellicano, E., & Heyworth, M. (2023) · Current Psychiatry Reports · doi:10.1007/s11920-023-01441-9 · Cited by 101
Self-citationSex Differences in Mental Health Problems and Psychiatric Hospitalization in Autistic Young Adults
Martini, M. I., Kuja‐Halkola, R., Butwicka, A., Rietz, E. D., D'Onofrio, B. M., Happe, F. G. E., Kanina, A., Larsson, H., Lundström, S., Martin, J., et al. (2022) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2022.3475 · Cited by 98
Lam, G. Y. H., Holden, E., Fitzpatrick, M., Mendez, L. M. R., & Berkman, K. A. (2020) · Autism · doi:10.1177/1362361319898961 · Cited by 88
Metadata
- Authors
- Cribb, S., Kenny, L., & Pellicano, E.
- Affiliations
- The University of Western Australia (AU)
- University College London (GB)
- Macquarie University (AU)
- Corresponding author
- Pellicano, Elizabeth
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2019-02-28
- Volume
- 23
- Issue
- 7
- Pages
- 1765-1781
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2918237446
- Cited by
- 103
- References
- 78
- Citations by year
- 2026: 6 · 2025: 13 · 2024: 23 · 2023: 17 · 2022: 14 · 2021: 14 · 2020: 13 · 2019: 3
- FWCI
- 6.41
- Type
- journal article
- Language
- en
- Open access
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- UWA Profiles and Research Repository (UWA) (submittedVersion, other-oa)
- UCL Discovery (University College London) (submittedVersion)
- Funders
- University of Western Australia (N/A)
- Leverhulme Trust (2015 Philip Leverhulme Prize)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Education › Disability Education and Employment
- Social Sciences › Sociology and Political Science › Youth Education and Societal Dynamics
- Keywords
- emerging adulthood, coming of age, parents of autistic children, individual autonomy, sense of identity, executive function, trust relationships, well-being, developmental appropriateness
- MeSH terms
- Adolescent, Autistic Disorder, Female, Humans, Interviews as Topic, Longitudinal Studies, Male, Parents, Adolescent Development, Young Adult
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