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‘I definitely feel more in control of my life’: The perspectives of young autistic people and their parents on emerging adulthood
Open accessAbstract
Long-term outcomes studies often paint a discouraging picture of the lives lived by autistic adults. Yet, their outcomes are often measured against normative markers of traditional adult roles, which may not apply to autistic people making the transition to adulthood. Here, we investigated the transition experiences of a group of young autistic people who were followed from childhood. Twenty-six young people and their parents ( n = 28) participated in semistructured interviews on the process of transition and their aspirations for the future. Parents often voiced serious concerns about the ongoing support their children would require and the severe lack of services designed to support them as adults. Yet, overall, young people reported feeling more in control of their own lives, including developing a sense of identity and personal autonomy, both of which may be rooted in young autistic people’s executive skills and their ability to develop and maintain trusting relationships with others – two potential candidate areas for targeted support. These results call into question whether the traditional standards to which we often hold young autistic people are developmentally appropriate and suggest that the pressures of striving towards more normative ways of engaging in the world may be detrimental to their well-being.
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“Studies with young autistic people in particular have found that they often construe themselves as ‘different’ to neurotypical people in a negative way (Cribb, Kenny, & Pellicano, 2019; Humphrey & Lewis, 2008; Shattuck et al., 2014; Williams, Gleeson, & Jones, 2019).”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Cribb, Kenny, & Pellicano, 2019
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“In the face of this constant negative messaging, especially combined with more generalised discrimination against disabled people, it is unsurprising that considerable stigma is associated with the autism label.”
From Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science (2022) · cites this paper as Cribb, Kenny, & Pellicano, 2019
Citations
Cites
Using thematic analysis in psychology
Braun, V., & Clarke, V. (2006) · Qualitative Research in Psychology · doi:10.1191/1478088706qp063oa · Cited by 194,414
Diagnostic and Statistical Manual of Mental Disorders
American Psychiatric Association (2013) · doi:10.1176/appi.books.9780890425596 · Cited by 116,369
Emerging adulthood: A theory of development from the late teens through the twenties.
Arnett, J. J. (2000) · American Psychologist · doi:10.1037/0003-066x.55.5.469 · Cited by 16,843
Lord, C., Rutter, M., & Le Couteur, A. (1994) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02172145 · Cited by 9,065
Human Groups and Social Categories: Studies in Social Psychology.
Rose, A. W., & Tajfel, H. (1983) · Contemporary Sociology A Journal of Reviews · doi:10.2307/2066820 · Cited by 4,111
The Perceived Competence Scale for Children
Harter, S. (1982) · Child Development · doi:10.2307/1129640 · Cited by 3,639
Thielke, S. M. (2004) · Psychiatric Services · doi:10.1176/appi.ps.55.9.1071 · Cited by 3,069
Introducing Qualitative Research in Psychology
Willig, C. (2001) · Cited by 3,012
Emerging adulthood: What is it, and what is it good For?
Arnett, J. J. (2007) · Child Development Perspectives · doi:10.1111/j.1750-8606.2007.00016.x · Cited by 2,242
Vineland Adaptive Behavior Scales
Sparrow, S. S. (2010) · Springer eBooks · doi:10.1007/978-0-387-79948-3_1602 · Cited by 1,984
Which terms should be used to describe autism? Perspectives from the UK autism community
Kenny, L., Hattersley, C., Molins, B., Buckley, C., Povey, C., & Pellicano, E. (2016) · Autism · doi:10.1177/1362361315588200 · Cited by 1,941
Self-citationMasten, A. S., & Cicchetti, D. (2010) · Development and Psychopathology · doi:10.1017/s0954579410000222 · Cited by 1,800
“Putting on My Best Normal”: Social Camouflaging in Adults with Autism Spectrum Conditions
Hull, L., Petrides, K. V., Allison, C., Smith, P., Baron-Cohen, S., Lai, M.-C., & Mandy, W. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3166-5 · Cited by 1,365
THE MEASUREMENT OF SOCIAL CLASS IN EPIDEMIOLOGY
Liberatos, P., Link, B. G., & Kelsey, J. L. (1988) · Epidemiologic Reviews · doi:10.1093/oxfordjournals.epirev.a036030 · Cited by 1,338
Postsecondary education and employment among youth with an autism spectrum disorder
Shattuck, P. T., Narendorf, S. C., Cooper, B., Sterzing, P. R., Wagner, M., & Taylor, J. L. (2012) · PEDIATRICS · doi:10.1542/peds.2011-2864 · Cited by 1,110
Conceptions of the Transition to Adulthood: Perspectives From Adolescence Through Midlife
Arnett, J. J. (2001) · Journal of Adult Development · doi:10.1023/a:1026450103225 · Cited by 881
Evaluating the theory of executive dysfunction in autism
Hill, E. L. (2004) · Developmental Review · doi:10.1016/j.dr.2004.01.001 · Cited by 846
Billstedt, E., Gillberg, C., & Gillberg, C. (2005) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-005-3302-5 · Cited by 783 · cited 1×
“…‘objective’ criteria in the domains of employment, relationships and independent living to determine the ‘success’ of autistic adults’ outcomes (Billstedt et al., 2005; Eaves & Ho, 2008; Farley et al., 2009; Howlin, Moss, Savage, & Rutter, 2013; see Henninger & Taylor, 2012, for review)…”
BackgroundLadd, G. W., & Troop-Gordon, W. (2003) · Child Development · doi:10.1111/1467-8624.00611 · Cited by 717
Young Adult Outcome of Autism Spectrum Disorders
Eaves, L. C., & Ho, H. H. (2008) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-007-0441-x · Cited by 683
Autism as an executive disorder
Jarrold, C. (1997) · Oxford University Press eBooks · Cited by 662
Preadolescent Friendship and Peer Rejection as Predictors of Adult Adjustment
Bagwell, C. L., Newcomb, A. F., & Bukowski, W. M. (1998) · Child Development · doi:10.1111/j.1467-8624.1998.tb06139.x · Cited by 631
The Ethics of Care, Dependence, and Disability*
Kittay, E. F. (2011) · Ratio Juris · doi:10.1111/j.1467-9337.2010.00473.x · Cited by 603
Social Networks and Friendships at School: Comparing Children With and Without ASD
Kasari, C. L., Locke, J. J., Gulsrud, A. C., & Rotheram-Fuller, E. J. (2010) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-010-1076-x · Cited by 553
Hus, V., & Lord, C. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-014-2080-3 · Cited by 547
Twenty‐year outcome for individuals with autism and average or near‐average cognitive abilities
Farley, M. A., McMahon, W. M., Fombonne, E., Jenson, W. R., Miller, J., Gardner, M., Block, H., Pingree, C. B., Ritvo, E. R., Ritvo, R. A., et al. (2009) · Autism Research · doi:10.1002/aur.69 · Cited by 515
Conceptions of the Transition to Adulthood Among Emerging Adults in American Ethnic Groups
Arnett, J. J. (2003) · New Directions for Child and Adolescent Development · doi:10.1002/cd.75 · Cited by 500
Editorial Perspective: The use of person‐first language in scholarly writing may accentuate stigma
Gernsbacher, M. A. (2017) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.12706 · Cited by 486
Howlin, P., Moss, P., Savage, S., & Rutter, M. L. (2013) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2013.02.017 · Cited by 462
Autism spectrum disorder: outcomes in adulthood
Howlin, P., & Magiati, I. (2017) · Current Opinion in Psychiatry · doi:10.1097/yco.0000000000000308 · Cited by 457
The passage to adulthood: Challenges of late adolescence
Zarrett, N. R., & Eccles, J. S. (2006) · New Directions for Youth Development · doi:10.1002/yd.179 · Cited by 423
Social Participation Among Young Adults with an Autism Spectrum Disorder
Orsmond, G. I., Shattuck, P. T., Cooper, B. P., Sterzing, P. R., & Anderson, K. A. (2013) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-013-1833-8 · Cited by 415
Boulter, C., Freeston, M., South, M., & Rodgers, J. (2014) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-013-2001-x · Cited by 401
‘Something needs to change’: Mental health experiences of young autistic adults in England
Crane, L., Adams, F., Harper, G., Welch, J., & Pellicano, E. (2019) · Autism · doi:10.1177/1362361318757048 · Cited by 397
Self-citationGeneration, Youth and Social Change in Australia
Wyn, J., & Woodman, D. (2006) · Journal of Youth Studies · doi:10.1080/13676260600805713 · Cited by 397
Executive functions in young children with autism
Griffith, E. M., Pennington, B. F., Wehner, E. A., & Rogers, S. J. (1999) · Child Development · doi:10.1111/1467-8624.00059 · Cited by 385
Social involvement of children with autism spectrum disorders in elementary school classrooms
Rotheram-Fuller, E. J., Kasari, C. L., Chamberlain, B., & Locke, J. J. (2010) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2010.02289.x · Cited by 368
Agency: its role in mental development
(1996) · Choice Reviews Online · doi:10.5860/choice.34-2464 · Cited by 364
Daily living skills in individuals with autism spectrum disorder from 2 to 21 years of age
Bal, V. H., Kim, S. H., Cheong, D., & Lord, C. (2015) · Autism · doi:10.1177/1362361315575840 · Cited by 351
Post–High School Service Use Among Young Adults With an Autism Spectrum Disorder
Shattuck, P. T., Wagner, M., Narendorf, S., Sterzing, P., & Hensley, M. (2011) · Archives of Pediatrics & Adolescent Medicine · doi:10.1001/archpediatrics.2010.279 · Cited by 337
Bullying of children and adolescents with autism spectrum conditions: a ‘state of the field’ review
Humphrey, N., & Hebron, J. (2014) · International Journal of Inclusive Education · doi:10.1080/13603116.2014.981602 · Cited by 319
Calder, L., Hill, V., & Pellicano, E. (2012) · Autism · doi:10.1177/1362361312467866 · Cited by 317
Self-citationTransition From School to Adulthood for Youth With Autism Spectrum Disorder
Wehman, P., Schall, C., Carr, S. E., Targett, P., West, M. D., & Cifu, G. (2014) · Journal of Disability Policy Studies · doi:10.1177/1044207313518071 · Cited by 316
Furstenberg, F. F., Rumbaut, R. G., & Settersten, R. A. (2005) · University of Chicago Press eBooks · doi:10.7208/chicago/9780226748924.003.0001 · Cited by 303
Pellicano, E. (2010) · Developmental Psychology · doi:10.1037/a0018287 · Cited by 301
Self-citationServices for Adults with an Autism Spectrum Disorder
Shattuck, P. T., Roux, A. M., Hudson, L. E., Taylor, J. L., Maenner, M. J., & Trani, J.-F. (2012) · The Canadian Journal of Psychiatry · doi:10.1177/070674371205700503 · Cited by 289
Aspects of quality of life in adults diagnosed with autism in childhood
Billstedt, E., Gillberg, I. C., & Gillberg, C. (2010) · Autism · doi:10.1177/1362361309346066 · Cited by 268
Outcomes in adults with autism spectrum disorders: a historical perspective
Henninger, N. A., & Taylor, J. L. (2013) · Autism · doi:10.1177/1362361312441266 · Cited by 267 · cited 2×
“Indeed, orthodox normative approaches to autistic adult outcomes, those focused on rates of employment or postsecondary education, living independently and having friends, have repeatedly shown that autistic people struggle in this transition (Henninger & Taylor, 2012; Wyn & Woodman, 2006).”
BackgroundParticipation in Social Activities among Adolescents with an Autism Spectrum Disorder
Shattuck, P. T., Orsmond, G. I., Wagner, M. M., & Cooper, B. P. (2011) · PLoS ONE · doi:10.1371/journal.pone.0027176 · Cited by 266
Cadman, T., Eklund, H., Howley, D., Hayward, H., Clarke, H., Findon, J., Xenitidis, K., Murphy, D., Asherson, P., & Glaser, K. (2012) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2012.06.017 · Cited by 264
A follow-up study of high-functioning autistic children
Szatmari, P., Bartolucci, G., Bremner, R., Bond, S., & Rich, S. (1989) · Journal of Autism and Developmental Disorders · doi:10.1007/bf02211842 · Cited by 257
PELLICANO, E., MAYBERY, M., DURKIN, K., & MALEY, A. (2006) · Development and Psychopathology · doi:10.1017/s0954579406060056 · Cited by 253
Self-citationTaylor, J. L., Henninger, N. A., & Mailick, M. R. (2015) · Autism · doi:10.1177/1362361315585643 · Cited by 249
Social Policy and Disability: Some Theoretical Issues
Oliver, M. (1986) · Disability & Society · doi:10.1080/02674648666780021 · Cited by 242
The Development of Executive Function in Autism
Pellicano, E. (2012) · Autism Research and Treatment · doi:10.1155/2012/146132 · Cited by 223
Self-citationThe persistence and stability of psychiatric problems in adolescents with autism spectrum disorders
Simonoff, E., Jones, C. R. G., Baird, G., Pickles, A., Happé, F., & Charman, T. (2013) · Journal of Child Psychology and Psychiatry · doi:10.1111/j.1469-7610.2012.02606.x · Cited by 208
Neil, L., Olsson, N. C., & Pellicano, E. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2721-9 · Cited by 201
Self-citationThe Cascading Development of Autonomy and Relatedness From Adolescence to Adulthood
Oudekerk, B. A., Allen, J. P., Hessel, E. T., & Molloy, L. E. (2014) · Child Development · doi:10.1111/cdev.12313 · Cited by 149
Williams, E., Gleeson, K., & Jones, B. (2017) · Autism · doi:10.1177/1362361317723836 · Cited by 143
Bishop-Fitzpatrick, L., Hong, J., Smith, L. E., Makuch, R. A., Greenberg, J. S., & Mailick, M. R. (2016) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-016-2816-3 · Cited by 142
Oswald, T. M., Winder‐Patel, B., Ruder, S., Xing, G., Stahmer, A. C., & Solomon, M. (2017) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-017-3421-9 · Cited by 140
Hedley, D., & Young, R. (2006) · Autism · doi:10.1177/1362361306062020 · Cited by 139
Parents’ and young adults’ perspectives on transition outcomes for young adults with autism
Sosnowy, C. D., Silverman, C., & Shattuck, P. T. (2017) · Autism · doi:10.1177/1362361317699585 · Cited by 138
Social policy and disability: Some theoretical issues
Oliver, M. (2006) · Routledge eBooks · doi:10.4324/9780203965030-9 · Cited by 129
Friedman, N., Warfield, M. E., & Parish, S. (2013) · Neuropsychiatry · doi:10.2217/npy.13.13 · Cited by 118
Chou, Y.-C., Wehmeyer, M. L., Palmer, S. B., & Lee, J. (2016) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357615625059 · Cited by 116
Executive function predicts school readiness in autistic and typical preschool children
Pellicano, E., Kenny, L., Brede, J., Klaric, E., Lichwa, H., & McMillin, R. (2017) · Cognitive Development · doi:10.1016/j.cogdev.2017.02.003 · Cited by 106
Self-citationAn Alternative View of Outcome in Autism
Ruble, L. A., & Dalrymple, N. J. (1996) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/108835769601100102 · Cited by 99
Disability Identification and Self-Efficacy among College Students on the Autism Spectrum
Shattuck, P. T., Steinberg, J., Yu, J., Wei, X., Cooper, B. P., Newman, L., & Roux, A. M. (2014) · Autism Research and Treatment · doi:10.1155/2014/924182 · Cited by 95
Kenny, L., Cribb, S. J., & Pellicano, E. (2019) · Journal of Abnormal Child Psychology · doi:10.1007/s10802-018-0493-8 · Cited by 88
Self-citationBerger, H. J. C., Aerts, F. H. T. M., Spaendonck, K. P. M. V., Cools, A. R., & Teunisse, J.-P. (2003) · Journal of Clinical and Experimental Neuropsychology · doi:10.1076/jcen.25.4.502.13870 · Cited by 83
Karney, B. R., Beckett, M. K., Collins, R. L., & Shaw, R. (2007) · RAND Corporation eBooks · doi:10.7249/tr488 · Cited by 70
Pellicano, E. (2013) · Autism Research · doi:10.1002/aur.1286 · Cited by 62
Self-citationEducator perspectives on the postsecondary transition difficulties of students with autism
Elias, R., Muskett, A., & White, S. (2017) · Autism · doi:10.1177/1362361317726246 · Cited by 50
Conceptualizing Transitions to Adulthood
Wyn, J. (2014) · New Directions for Adult and Continuing Education · doi:10.1002/ace.20100 · Cited by 42
Participation in Daily Activities of Young Adults with High Functioning Autism Spectrum Disorder
McCollum, M., LaVesser, P., & Berg, C. (2015) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-015-2642-z · Cited by 32
Müller, E., & Cannon, L. (2014) · Focus on Autism and Other Developmental Disabilities · doi:10.1177/1088357614528800 · Cited by 16
Research works printed but not linked: 4
- Bruner J., 1990, Acts of meaning
- Lord C., 2012, Autism Diagnostic Observation Schedule – 2nd edition (ADOS-2)
- Rutter M., 2003, The Social Communication Questionnaire: Manual
- Wechsler D., 2011, Wechsler Abbreviated Scale of Intelligence – Second edition manual
Cited by
Sorted by citations
Annual Research Review: Shifting from ‘normal science’ to neurodiversity in autism science
Pellicano, E., & den Houting, J. (2022) · Journal of Child Psychology and Psychiatry · doi:10.1111/jcpp.13534 · Cited by 744
“They label themselves as a ‘freak’, ‘mentally disabled’ and as ‘having a bad brain’ (Humphrey & Lewis, 2008), and often just want to be ‘as normal as possible’, actively hiding their autistic-ness (Cribb et al., 2019).”
BackgroundSelf-citationA capabilities approach to understanding and supporting autistic adulthood
Pellicano, E., Fatima, U., Hall, G., Heyworth, M., Lawson, W., Lilley, R., Mahony, J., & Stears, M. (2022) · Nature Reviews Psychology · doi:10.1038/s44159-022-00099-z · Cited by 237
Self-citationThe Foundations of Autistic Flourishing
Pellicano, E., & Heyworth, M. (2023) · Current Psychiatry Reports · doi:10.1007/s11920-023-01441-9 · Cited by 101
Self-citationSex Differences in Mental Health Problems and Psychiatric Hospitalization in Autistic Young Adults
Martini, M. I., Kuja‐Halkola, R., Butwicka, A., Rietz, E. D., D'Onofrio, B. M., Happe, F. G. E., Kanina, A., Larsson, H., Lundström, S., Martin, J., et al. (2022) · JAMA Psychiatry · doi:10.1001/jamapsychiatry.2022.3475 · Cited by 98
Lam, G. Y. H., Holden, E., Fitzpatrick, M., Mendez, L. M. R., & Berkman, K. A. (2020) · Autism · doi:10.1177/1362361319898961 · Cited by 88
Metadata
- Authors
- Cribb, S., Kenny, L., & Pellicano, E.
- Affiliations
- The University of Western Australia (AU)
- University College London (GB)
- Macquarie University (AU)
- Corresponding author
- Pellicano, Elizabeth
- Venue
- Autism
- Publisher
- SAGE Publications
- Published
- 2019-02-28
- Volume
- 23
- Issue
- 7
- Pages
- 1765-1781
- ISSN
- 1362-3613 (ISSN-L)
- 1461-7005
- OpenAlex
- W2918237446
- Cited by
- 103
- References
- 78
- Citations by year
- 2026: 6 · 2025: 13 · 2024: 23 · 2023: 17 · 2022: 14 · 2021: 14 · 2020: 13 · 2019: 3
- FWCI
- 6.41
- Type
- journal article
- Language
- en
- Open access
- Locations
- Autism (publishedVersion)
- PubMed (publishedVersion)
- UWA Profiles and Research Repository (UWA) (submittedVersion, other-oa)
- UCL Discovery (University College London) (submittedVersion)
- Funders
- University of Western Australia (N/A)
- Leverhulme Trust (2015 Philip Leverhulme Prize)
- Topics
- Life Sciences › Neuroscience › Cognitive Neuroscience › Autism Spectrum Disorder Research
- Social Sciences › Education › Disability Education and Employment
- Social Sciences › Sociology and Political Science › Youth Education and Societal Dynamics
- Keywords
- emerging adulthood, coming of age, parents of autistic children, individual autonomy, sense of identity, executive function, trust relationships, well-being, developmental appropriateness
- MeSH terms
- Adolescent, Autistic Disorder, Female, Humans, Interviews as Topic, Longitudinal Studies, Male, Parents, Adolescent Development, Young Adult
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