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A Quality Study of a Medical Birth Registry
Abstract
A quality control study was made of the Swedish Medical Birth Registry. This registry used one mode of data collection during 1973-1981 and another from 1982 onwards. The number of errors in the register was checked by comparing register information with a sample of the original medical records, and the variability in the use of diagnoses between hospitals was studied. Different types of errors were identified and quantified and the efficiency of the two methods of data collection evaluated.
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“We based our study on the Swedish Medical Birth Register (MBR), which contains approximately 99% of all deliveries occurring in the country [28].”
From The effect of swedish snuff (snus) on offspring birthweight: a sibling analysis (2013) · cites this paper as [28]
In the citing paper
“Our analyses are based on a nationwide birth registry covering nearly 99% of the deliveries occurring in Sweden [28].”
From The effect of swedish snuff (snus) on offspring birthweight: a sibling analysis (2013) · cites this paper as [28]
Citations
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“The quality of MBR has been evaluated three times, in 1976, in 1988 (Cnattingius et al., 1990) and in 2001 (www.socialstyrelsen.se/ publikationer2002/2002-112-4).”
BackgroundInfluentialNeonatal Outcome in Pregnancies From Ovarian Stimulation
Källén, B. A. J., Olausson, P. O., & Nygren, K. G. (2002) · Obstetrics and Gynecology · doi:10.1016/s0029-7844(02)02069-0 · Cited by 88
“Data on congenital malformations were obtained both from the Medical Birth Registry and From Tornblad Institute, University of Lund, Lund, Sweden; Centre for Epidemiology, National Board of Health and Welfare, Stockholm, Sweden; and Sophiahemmet, Stockholm, Sweden.”
BackgroundInfluentialSelf-citationFetal growth and onset of delivery: A nationwide population-based study of preterm infants
Morken, N., Källén, K., & Jacobsson, B. (2006) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2006.01.019 · Cited by 87
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Self-citationMaternal complications in women with chronic hypertension: a population-based cohort study
Zetterström, K., Lindeberg, S., Haglund, B., & Hanson, U. (2005) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1111/j.0001-6349.2005.00508.x · Cited by 86
“One strength of this population-based study is that the population is nationwide and that losses to follow up are almost non-existent as home delivery is very rare in Sweden.”
BackgroundInfluentialMaternal smoking and congenital heart defects
Källén, K. (1999) · European Journal of Epidemiology · doi:10.1023/a:1007671631188 · Cited by 87
DeVilbiss, E. A., Magnusson, C., Gardner, R. M., Rai, D., Newschaffer, C. J., Lyall, K., Dalman, C., & Lee, B. K. (2017) · BMJ · doi:10.1136/bmj.j4273 · Cited by 93
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“1) <20 9 (4) 1052 (3) 20–24 70 (30) 7088 (22) 25–29 84 (35) 11 685 (37) 30–34 47 (20) 8183 (26) 35–39 20 (8) 3209 (10) 40+ 7 (3) 558 (2) Maternal smoking status Not known 8 (3) 1026 (3) Non-smoking 143 (62) 22 532 (73) <10 cigarettes ⁄ day 41 (18) 4834 (16) ‡10 cigarettes ⁄ day 45 (20) 3383 (11) Mother born outside Sw…”
Waldenström, U., Aasheim, V., Nilsen, A. B. V., Rasmussen, S., Pettersson, H. J., & Schytt, E. (2013) · Obstetrics and Gynecology · doi:10.1097/aog.0000000000000062 · Cited by 86
Nordic Medical Birth Registers in epidemiological research
Gissler, M., Louhiala, P., & Hemminki, E. (1997) · European Journal of Epidemiology · doi:10.1023/a:1007379029182 · Cited by 85
“For Sweden, the evaluation is based on published data [ 14 ].”
MethodTime of Birth and Risk of Intrapartum and Early Neonatal Death
Stephansson, O., Dickman, P. W., Johansson, A. L. V., Kieler, H., & Cnattingius, S. (2003) · Epidemiology · doi:10.1097/01.ede.0000037975.55478.c7 · Cited by 84
Self-citationMaternal use of swedish snuff (snus) and risk of stillbirth
Wikström, A.-K., Cnattingius, S., & Stephansson, O. (2010) · Epidemiology · doi:10.1097/ede.0b013e3181f20d7e · Cited by 83
“The Birth Register contains data on more than 99% of all births in Sweden, including demographic data, information on reproductive history and complications during pregnancy, delivery, and the neonatal period.(15) Using each person’s unique national registration number, the Birth Register can be linked with other Swed…”
BackgroundSelf-citationPregnancy Complications and Risk of Cardiovascular Disease Later in Life: A Nationwide Cohort Study
Cederlöf, E. T., Lundgren, M., Lindahl, B., & Christersson, C. (2022) · Journal of the American Heart Association · doi:10.1161/jaha.121.023079 · Cited by 86
Björkenstam, E., Hjern, A., Mittendorfer‐Rutz, E., Vinnerljung, B., Hallqvist, J., & Ljung, R. (2013) · PLoS ONE · doi:10.1371/journal.pone.0053551 · Cited by 84
“Also, hospital admissions account for only a small part of all psychiatric interventions in Sweden, as most services are delivered in outpatient care.”
BackgroundInfluentialPregnancy outcomes by mode of delivery among term breech births: swedish experience 1987–1993
Roman, J. (1998) · Obstetrics and Gynecology · doi:10.1016/s0029-7844(98)00326-3 · Cited by 83
“Information regarding highest level of formal education was gathered through individual record linkage to the Education Register, kept by Statistics Sweden.”
BackgroundInfluentialEkéus, C., Nilsson, E. M. E., & Gottvall, K. (2008) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1080/00016340802030629 · Cited by 83
Sariaslan, A., Långström, N., D'Onofrio, B. M., Hallqvist, J., Franck, J., & Lichtenstein, P. (2013) · International Journal of Epidemiology · doi:10.1093/ije/dyt066 · Cited by 83
Mollazadegan, K., Kugelberg, M., Montgomery, S. M., Sanders, D. S., Ludvigsson, J., & Ludvigsson, J. F. (2013) · Diabetes Care · doi:10.2337/dc12-0766 · Cited by 82
Bröms, G., Granath, F. N., Ekbom, A., Hellgren, K. E., Pedersen, L. H., Sørensen, H. T., Stephansson, O., & Kieler, H. (2015) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2015.08.039 · Cited by 82
Preterm Delivery, Level of Care, and Infant Death in Sweden: A Population-Based Study
Johansson, S., Montgomery, S., Ekbom, A., Olausson, P. O., Granath, F. N., Norman, M., & Cnattingius, S. (2004) · PEDIATRICS · doi:10.1542/peds.113.5.1230 · Cited by 81
Self-citationComplications From Inflammatory Bowel Disease During Pregnancy and Delivery
Bröms, G., Granath, F. N., Linder, M., Stephansson, O., Elmberg, M., & Kieler, H. (2012) · Clinical Gastroenterology and Hepatology · doi:10.1016/j.cgh.2012.08.018 · Cited by 80
Albertsson-Wikland, K. G., Mårtensson, A., Savendahl, L. S., Niklasson, A., Bang, P., Dahlgren, J., Gustafsson, J., Kriström, B., Norgren, S., Pehrsson, N.-G., et al. (2016) · The Journal of Clinical Endocrinology & Metabolism · doi:10.1210/jc.2015-3951 · Cited by 81
Use of Multivitamins and Folic Acid in Early Pregnancy and Multiple Births in Sweden
Ericson, A., Källén, B. A. J., & Åberg, A. (2001) · Twin Research · doi:10.1375/1369052012155 · Cited by 80
Self-citationApgar Scores at 5 Minutes After Birth in Relation to School Performance at 16 Years of Age
Stuart, A., Olausson, P. O., & Källén, K. (2011) · Obstetrics and Gynecology · doi:10.1097/aog.0b013e31822200eb · Cited by 79
Pregnancy outcome after maternal organ transplantation in Sweden
Källén, B. A. J., Westgren, M., Åberg, A., & Olausson, P. O. (2005) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.2005.00607.x · Cited by 79
“of medical documents from antenatal care centres, delivery units and the paediatric examination of the newborn infants.(14,15) Women are identified with the abovementioned PIN to enable linkage with the Hospital Discharge Register.”
BackgroundSelf-citationHuman fertility does not decline: evidence from Sweden
Akre, O., Cnattingius, S., Bergström, R., Kvist, U., Trichopoulos, D., & Ekbom, A. (1999) · Fertility and Sterility · doi:10.1016/s0015-0282(99)00115-6 · Cited by 79
Self-citationChildhood adversity and psychiatric disorder in young adulthood: An analysis of 107,704 Swedes
Björkenstam, E., Burström, B., Vinnerljung, B., & Kosidou, K. (2016) · Journal of Psychiatric Research · doi:10.1016/j.jpsychires.2016.02.018 · Cited by 77
“The study population was defined as all individuals born in Stockholm County, Sweden between 1987 and 1991 (n ¼ 116,087), recorded in the Medical Birth Register (Cnattingius et al., 1990).”
BackgroundMaternal Cancer During Pregnancy and Risks of Stillbirth and Infant Mortality
Lu, D., Ludvigsson, J. F., Smedby, K. E. E., Fall, K., Valdimarsdóttir, U. A., Cnattingius, S., & Fang, F. (2017) · Journal of Clinical Oncology · doi:10.1200/jco.2016.69.9439 · Cited by 77
Self-citationPregnancy Characteristics and Maternal Risk of Breast Cancer
Cnattingius, S. (2005) · JAMA · doi:10.1001/jama.294.19.2474 · Cited by 77
“The Birth Register includes information collected prospectively on more than 99% of all births in Sweden.(12) Information about placental weight was included in the Birth Register between 1982 and 1989.”
BackgroundInfluentialSelf-citationKVARNSTRAND, L., Milsom, I., Lekander, T., Druid, H., & Jacobsson, B. (2008) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1080/00016340802302184 · Cited by 77
“The Birth Register contains data on more than 99% of all births in Sweden (10).”
BackgroundYork, T. P., Eaves, L. J., Lichtenstein, P., Neale, M. C., Svensson, A. C., Latendresse, S. J., Långström, N., & Strauss, J. F. (2013) · American Journal of Epidemiology · doi:10.1093/aje/kwt005 · Cited by 77
“The prevalence of preterm birth in singleton pregnancies was 4.5% as obtained from the initial data linking of the Swedish Multigenerational Register with the Medical Birth Register.”
BackgroundInfluentialPregnancy Weight Gain Before Diagnosis and Risk of Preeclampsia
Hutcheon, J. A., Stephansson, O., Cnattingius, S., Bodnar, L. M., Wikström, A., & Johansson, K. (2018) · Hypertension · doi:10.1161/hypertensionaha.118.10999 · Cited by 77
Self-citationCongenital melanocytic naevi and cutaneous melanoma
Berg, P., & f, B. L. (2003) · Melanoma Research · doi:10.1097/00008390-200310000-00002 · Cited by 77
Risk Factors for Obstetric Brachial Plexus Palsy Among Neonates Delivered by Vacuum Extraction
Mollberg, M., Hagberg, H., Bager, B., Lilja, H., & Ladfors, L. (2005) · Obstetrics and Gynecology · doi:10.1097/01.aog.0000183595.32077.83 · Cited by 76
The epidemiology of anophthalmia and microphthalmia in Sweden
Källén, B. A. J., & Törnqvist, K. (2005) · European Journal of Epidemiology · doi:10.1007/s10654-004-6880-1 · Cited by 76
Self-citationTuvemo, T., Cnattingius, S., & Jönsson, B. (1999) · Pediatric Research · doi:10.1203/00006450-199911000-00001 · Cited by 76
Self-citationD'Onofrio, B. M., Rickert, M. E., Långström, N., Donahue, K., Coyne, C. A., Larsson, H., Ellingson, J. M., Hulle, C. A. V., Iliadou, A. N., Rathouz, P. J., et al. (2012) · Archives of General Psychiatry · doi:10.1001/archgenpsychiatry.2011.2107 · Cited by 73
Addison’s Disease in Women Is a Risk Factor for an Adverse Pregnancy Outcome
Björnsdóttir, S., Cnattingius, S., Brandt, L., Nordenström, A., Ekbom, A., Kämpe, O., & Bensing, S. (2010) · The Journal of Clinical Endocrinology & Metabolism · doi:10.1210/jc.2010-0108 · Cited by 74
“We linked data to the Swedish Medical Birth Register, which includes prospectively collected and validated information from the pregnancy, delivery, and neonatal period on more than 99% of all births in Sweden since 1973 (17).”
MethodSelf-citationBreast cancer in Swedish women before age 50: evidence of a dual effect of completed pregnancy
Leon, D. A., Carpenter, L. M., Broeders, M. J. M., Gunnarskog, J., & Murphy, M. F. (1995) · Cancer Causes & Control · doi:10.1007/bf00051403 · Cited by 74
Self-citationSwedish Inflammatory Bowel Disease Register (SWIBREG) – a nationwide quality register
Ludvigsson, J. F., Andersson, M., Bengtsson, J., Eberhardson, M., Fagerberg, U. L., Grip, O., Halfvarson, J., Hjortswang, H., Jäghult, S., Karling, P., et al. (2019) · Scandinavian Journal of Gastroenterology · doi:10.1080/00365521.2019.1660799 · Cited by 74
“With the exception of the Medical Birth Register [36], none”
BackgroundInfluentialLawesson, S. S., Swahn, E., Pihlsgård, M., Andersson, T., Angerås, O., Brolin, E. B., Bergdahl, E., Blomberg, M. I., Christersson, C., Gonçalves, I., et al. (2023) · JAMA · doi:10.1001/jama.2022.24093 · Cited by 74
Advanced Maternal Age and Stillbirth Risk in Nulliparous and Parous Women
Waldenström, U., Cnattingius, S., Norman, M., & Schytt, E. (2015) · Obstetrics and Gynecology · doi:10.1097/aog.0000000000000947 · Cited by 73
“The study was based on data from the Swedish Medical Birth Register, which includes more than 98% of all births in Sweden and is validated annually against the National Population Register using the mother’s and neonate’s unique personal identification numbers.(16,17) Starting from the first antenatal visit, informati…”
MethodSelf-citationPerinatal Depression and Risk of Suicidal Behavior
Yu, H., Shen, Q., Bränn, E., Yang, Y., Öberg, A. S., Valdimarsdóttir, U. A., & Lu, D. (2024) · JAMA Network Open · doi:10.1001/jamanetworkopen.2023.50897 · Cited by 76
Brooks, D. R., Mucci, L. A., Hatch, E. E., & Cnattingius, S. (2004) · Cancer Causes & Control · doi:10.1007/s10552-004-1123-z · Cited by 72
“In this study, we evaluate the effect of maternal smoking during pregnancy on subsequent risk of brain cancer in the offspring based on linked Registry data for more than 1.4 million births in Sweden during 1983–1997, which represents the largest populationbased study to date with prospectively collected information o…”
BackgroundInfluentialSelf-citationFagerberg, M. C., Maršál, K., & Källén, K. (2015) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2015.02.031 · Cited by 72
“The MBR contains information on practically all deliveries in Sweden [25].”
BackgroundMaternal Stress and Infant Mortality
Class, Q. A., Khashan, A. S., Lichtenstein, P., Långström, N., & D'Onofrio, B. M. (2013) · Psychological Science · doi:10.1177/0956797612468010 · Cited by 72
Prenatal Stress and Risk of Asthma Hospitalization in the Offspring
Khashan, A. S., Wicks, S., Dalman, C., Henriksen, T. B., Li, J., Mortensen, P. B., & Kenny, L. C. (2012) · Psychosomatic Medicine · doi:10.1097/psy.0b013e31825ac5e7 · Cited by 75
“The MBR was established in 1973, and it includes more than 99% of all births in Sweden and is maintained by the Swedish National Board of Health and Welfare.”
MethodInfluentialAnanth, C. V., & Cnattingius, S. (2007) · American Journal of Epidemiology · doi:10.1093/aje/kwm073 · Cited by 71
Self-citationIn vitro fertilization and risk of childhood leukemia in Greece and Sweden
Petridou, E. T., Sergentanis, T. Ν., Panagopoulou, P., Moschovi, M. A., Polychronopoulou, S., Baka, M., Pourtsidis, A. G., Athanassiadou, F., Kalmanti, M., Sidi, V., et al. (2011) · Pediatric Blood & Cancer · doi:10.1002/pbc.23194 · Cited by 71
“The MBR includes more than 98% of births in Sweden [24], and prospectively collects information on demographics, reproductive history, complications during pregnancy, delivery, and the neonatal period.”
BackgroundJuárez, S., & Merlo, J. (2013) · PLoS ONE · doi:10.1371/journal.pone.0061734 · Cited by 75
Risk factors for cardiovascular malformation - a study based on prospectively collected data
Cedergren, M. I., Selbing, A., & Källén, B. A. J. (2002) · Scandinavian Journal of Work Environment & Health · doi:10.5271/sjweh.641 · Cited by 71
“For each case, two referents were selected from the Medical Birth Register (8) from among infants born in the region the same year as the case and with maternal age as close as possible to that of the case.”
MethodSelf-citationRecurrence of prolonged pregnancy
Mogren, I., Stenlund, H. C., & Högberg, U. (1999) · International Journal of Epidemiology · doi:10.1093/ije/28.2.253 · Cited by 71
Maternal Smoking and Childhood Leukemia and Lymphoma Risk among 1,440,542 Swedish Children
Mucci, L. A., Granath, F., & Cnattingius, S. (2004) · Cancer Epidemiology Biomarkers & Prevention · doi:10.1158/1055-9965.1528.13.9 · Cited by 71
“The Swedish Medical Birth and Cancer Registers include 99% of all births and 96% of cancer cases in Sweden (17, 18), respectively.”
BackgroundSelf-citationMode of delivery in breech presentation at term: Increased neonatal morbidity with vaginal delivery
Herbst, A., & Thorngren‐Jerneck, K. (2001) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1034/j.1600-0412.2001.080008731.x · Cited by 70
“A quality analysis of the birth registry has been published (15).”
BackgroundVågerö, D. H., Koupilová, I., Leon, D. A., & Lithell, U. (1999) · Acta Paediatrica · doi:10.1111/j.1651-2227.1999.tb01138.x · Cited by 70
“rated these variables to be of acceptable quality, in agreement with what was recorded at the antenatal visit or on admission for delivery (14).”
BackgroundResultInfluence of smoking and snuff cessation on risk of preterm birth
Baba, S., Wikström, A.-K., Stephansson, O., & Cnattingius, S. (2012) · European Journal of Epidemiology · doi:10.1007/s10654-012-9676-8 · Cited by 69
Self-citationMonfils, W. G., Josefsson, A., Selling, K. E., & Sydsjö, G. (2008) · Acta Psychiatrica Scandinavica · doi:10.1111/j.1600-0447.2008.01267.x · Cited by 69
“The quality of information on gestational length and birth weight has been found acceptable and good (31).”
BackgroundCesta, C. E., Viktorin, A., Olsson, H., Johansson, V., Sjölander, A., Bergh, C., Skalkidou, A., Nygren, K., Cnattingius, S., & Iliadou, A. N. (2016) · Fertility and Sterility · doi:10.1016/j.fertnstert.2016.01.036 · Cited by 69
“Women undergoing cycles recorded in the Q-IVF were linked to the following national population registers: the Total Population Register, the National Patient Register (36), the Prescribed Drug Register (37), the Longitudinal Integration Database for Health Insurance and Labor Market Studies (containing socioeconomic d…”
MethodSelf-citationPerinatal depression and risk of mortality: Nationwide, register-based study in Sweden
Hagatulah, N., Bränn, E., Oberg, A. S., Valdimarsdóttir, U. A., Shen, Q., & Lu, D. (2024) · BMJ · doi:10.1136/bmj-2023-075462 · Cited by 72
Adverse reproduction outcomes among employees working in biomedical research laboratories
Wennborg, H., Bonde, J. P., Stenbeck, M., & Olsen, J. (2002) · Scandinavian Journal of Work Environment & Health · doi:10.5271/sjweh.640 · Cited by 68
“The reproductive history of the women was taken from the National Medical Birth Register, whose quality has been shown to be high (13).”
BackgroundSchool performance in singletons born after assisted reproductive technology
Norrman, E., Petzold, M., Bergh, C., & Wennerholm, U. (2018) · Human Reproduction · doi:10.1093/humrep/dey273 · Cited by 78
Confirmed association between neonatal phototherapy or neonatal icterus and risk of childhood asthma
Aspberg, S., Dahlquist, G. G., Kahan, T., & Källén, B. A. J. (2010) · Pediatric Allergy and Immunology · doi:10.1111/j.1399-3038.2010.01038.x · Cited by 67
“Since 1982, the information is based on copies of medical records from the antenatal care units, the delivery units, and from the paediatric examination of the newborns (18, 19).”
BackgroundSelf-citationMaternal carbamazepine and infant spina bifida
Källén, A. (1994) · Reproductive Toxicology · doi:10.1016/0890-6238(94)90003-5 · Cited by 67
Maternal smoking during pregnancy and intellectual performance in young adult Swedish male offspring
Lundberg, F. E., Cnattingius, S., D'Onofrio, B. M., Altman, D., Lambe, M. P., Hultman, C. M., & Iliadou, A. N. (2009) · Paediatric and Perinatal Epidemiology · doi:10.1111/j.1365-3016.2009.01073.x · Cited by 67
Self-citationHerbst, A., & Källén, K. (2006) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/j.ejogrb.2006.07.049 · Cited by 67
“The present study was based on information from the Swedish Medical Birth Registry (MBR), containing medical information on 99% of deliveries in Sweden [12,13].”
MethodHesselman, S., Högberg, U., Råssjö, E.-B., Schytt, E., Löfgren, M., & Jonsson, M. (2017) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.14708 · Cited by 71
“The included variables from the national health registers are considered reliable and have been validated in numerous publications.(16,23) To estimate the direct effect of abdominal delivery on adhesion formation, we excluded women with a history of other abdominal surgeries or inflammatory disease in the abdomen.”
MethodPregnancy Outcome of Personnel in Swedish Biomedical Research Laboratories
Wennborg, H., Bodin, L., Vainio, H., & Axelsson, G. (2000) · Journal of Occupational and Environmental Medicine · doi:10.1097/00043764-200004000-00022 · Cited by 65
Induction of labor and the risk for emergency cesarean section in nulliparous and multiparous women
Thorsell, M., Lyrenäs, S., Andolf, E. G., & Kaijser, M. (2011) · Acta Obstetricia Et Gynecologica Scandinavica · doi:10.1111/j.1600-0412.2011.01213.x · Cited by 65
“The Swedish Medical Birth Registry contains information on >99% of all pregnancies and deliveries in the country (14).”
BackgroundPrevious pregnancy loss: Risks related to severity of preterm delivery
Buchmayer, S., Sparén, P., & Cnattingius, S. (2004) · American Journal of Obstetrics and Gynecology · doi:10.1016/j.ajog.2004.02.066 · Cited by 65
Self-citationUse of omeprazole during pregnancy — no hazard demonstrated in 955 infants exposed during pregnancy
Källén, B. A. J. (2001) · European Journal of Obstetrics & Gynecology and Reproductive Biology · doi:10.1016/s0301-2115(00)00388-2 · Cited by 65
Self-citationKullberg, G., Lindeberg, S., & Hanson, U. (2002) · Hypertension in Pregnancy · doi:10.1081/prg-120002906 · Cited by 65
“This register covers more than 99% of all births in Sweden (7).”
BackgroundRylander, L., Strömberg, U., & Hagmar, L. (1996) · Scandinavian Journal of Work Environment & Health · doi:10.5271/sjweh.140 · Cited by 65
Källén, B. A. J. (1998) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.1998.tb10233.x · Cited by 65
Self-citationHirschberg, A. L., Gidlöf, S., Falhammar, H., Frisén, L., Almqvist, C., Nordenskjöld, A., & Nordenström, A. (2021) · The Journal of Clinical Endocrinology & Metabolism · doi:10.1210/clinem/dgaa801 · Cited by 65
Antiseizure medication use during pregnancy and risk of ASD and ADHD in children
Wiggs, K. K., Rickert, M. E., Sujan, A. C., Quinn, P. D., Larsson, H., Lichtenstein, P., Öberg, A. S., & D'Onofrio, B. M. (2020) · Neurology · doi:10.1212/wnl.0000000000010993 · Cited by 66
“We used information from the Medical Birth Register, which contains information on >98% of births since 1973, including data from all antenatal visits, the delivery, and pediatric examination.(28,29) The first antenatal visit typically occurs between the 8th and 12th week of pregnancy.”
MethodSchizophrenia and offspring's risk for adverse pregnancy outcomes and infant death
Nilsson, E. M. E., Hultman, C. M., Cnattingius, S., Olausson, P. O., Björk, C., & Lichtenstein, P. (2008) · The British Journal of Psychiatry · doi:10.1192/bjp.bp.107.045146 · Cited by 64
Self-citationBody Dimensions of Infants Exposed to Antiepileptic Drugs In Utero: Observations Spanning 25 Years
Wide, K., Winbladh, B., Tomson, T., & Källén, B. A. J. (2000) · Epilepsia · doi:10.1111/j.1528-1157.2000.tb00253.x · Cited by 64
Self-citationEnvironmental pollution and delivery outcome in southern Sweden: a study with central registries
Landgren, O. (1996) · Acta Paediatrica · doi:10.1111/j.1651-2227.1996.tb13926.x · Cited by 64
Association of Parathyroid Adenoma and Pregnancy with Preeclampsia
Hultin, H., Hellman, P., Lundgren, E., Olovsson, M., Ekbom, A., Rastad, J., & Montgomery, S. (2009) · The Journal of Clinical Endocrinology & Metabolism · doi:10.1210/jc.2009-0012 · Cited by 63
Lawlor, D. A., Hübinette, A., Tynelius, P., Leon, D. A., Smith, G. D., & Rasmussen, F. E. (2007) · Circulation · doi:10.1161/circulationaha.106.646661 · Cited by 63
Reproductive outcome among female hairdressers
Rylander, L., Axmon, A., Torén, K., & Albin, M. C. (2002) · Occupational and Environmental Medicine · doi:10.1136/oem.59.8.517 · Cited by 63
“Both cohorts were linked to the Swedish Medical Birth Register (MBR), which includes almost every infant born in Sweden since 1973.”
Preliminary Evaluation of an Electromagnetic Three-Dimensional Digitizer in Facial Anthropometry
Ferrario, V. F., Sforza, C., Poggio, C. E., Cova, M., & Tartaglia, G. M. (1998) · The Cleft Palate-Craniofacial Journal · doi:10.1597/1545-1569(1998)035 · Cited by 106
Self-citationMaternal smoking during pregnancy and limb reduction malformations in Sweden.
Källén, K. (1997) · American Journal of Public Health · doi:10.2105/ajph.87.1.29 · Cited by 63
Autism risk following antidepressant medication during pregnancy
Viktorin, A., Uher, R., Reichenberg, A., Levine, S. Z., & Sandin, S. (2017) · Psychological Medicine · doi:10.1017/s0033291717001301 · Cited by 62
“Offspring and mothers were identified in the Swedish Medical Birth Register that covers 99% of all births nation-wide since 1973 and provides information on gestational age at birth that were used to calculate the beginning of pregnancy (Cnattingius et al. 1990).”
MethodBrief report: maternal smoking during pregnancy and autism spectrum disorders
Lee, B. K., Gardner, R. M., Dal, H., Svensson, A., Galanti, M. R., Rai, D., Dalman, C., & Magnusson, C. (2012) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-011-1425-4 · Cited by 61
“The data are validated and data quality is considered high (Cnattingius et al. 1990; National Board on Health and Welfare 2003).”
Thurn, L., Wikman, A. T., Westgren, M., & Lindqvist, P. G. (2019) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1111/1471-0528.15927 · Cited by 61
Ahlsson, F., Gustafsson, J., Tuvemo, T., & Lundgren, M. (2007) · Acta Paediatrica · doi:10.1111/j.1651-2227.2006.00141.x · Cited by 60
“All births and deaths are validated every year against the Register of the Total Population (kept by Statistics Sweden), using the mother’s and the infant’s unique personal identification number, a number that is assigned to each Swedish resident at birth.”
BackgroundInfluentialPerinatal exposure to infection and risk of childhood leukemia
Naumburg, E., Bellocco, R., Cnattingius, S., Jonzon, A., & Ekbom, A. (2002) · Medical and Pediatric Oncology · doi:10.1002/mpo.10084 · Cited by 60
Self-citationCnattingius, S., & Haglund, B. (1997) · American Journal of Public Health · doi:10.2105/ajph.87.3.410 · Cited by 60
Self-citationNjotto, L. L., Simin, J., Fornes, R., Odsbu, I., Mussche, I., Callens, S. F. J., Engstrand, L. G., Bruyndonckx, R., & Brusselaers, N. (2023) · Drug Safety · doi:10.1007/s40264-023-01297-1 · Cited by 68
“The Medical Birth Registry (established in 1973) contains data on > 99% of births including information from all antenatal visits, delivery, and early-life paediatric examinations [21, 22].”
BackgroundPsoralen Photochemotherapy (PUVA) and Pregnancy
Gunnarskog, J. (1993) · Archives of Dermatology · doi:10.1001/archderm.1993.01680240060006 · Cited by 59
Self-citationSafety of birth centre care: perinatal mortality over a 10‐year period
Gottvall, K., Grünewald, C., & Waldenström, U. (2003) · BJOG An International Journal of Obstetrics & Gynaecology · doi:10.1046/j.1471-0528.2003.00017.x · Cited by 59
“* Correspondence: Ms K. Gottvall, Department of Nursing, Karolinska Institutet, 23300, 141 83 Huddinge, Sweden.”
MethodInfluentialAspberg, S., Dahlquist, G. G., Kahan, T., & Källén, B. A. J. (2007) · Pediatric Allergy and Immunology · doi:10.1111/j.1399-3038.2006.00518.x · Cited by 59
“The information is (since 1982) based on copies of medical records from the antenatal care units, the delivery units, and the pediatric examinations of the newborns (19, 20).”
BackgroundSelf-citationTumour incidence in Swedish women who gave birth following IVF treatment
Kristiansson, P., Björ, O., & Wramsby, H. (2006) · Human Reproduction · doi:10.1093/humrep/del411 · Cited by 59
“The proportion of deliveries not reported to the registry was estimated to be 0.5–2% per year (Cnattingius et al., 1990).”
BackgroundInfluentialMorken, N., Vogel, I., Källén, K., Skjærven, R., Langhoff‐Roos, J., Kesmodel, U. S., & Jacobsson, B. (2008) · BMC Women s Health · doi:10.1186/1472-6874-8-16 · Cited by 59
“A quality analysis of the register has previously been conducted [13].”
BackgroundIntrauterine Exposure to Diagnostic X Rays and Risk of Childhood Leukemia Subtypes
Naumburg, E., Bellocco, R., Cnattingius, S., Hall, P. N., Boice, J. D., & Ekbom, A. (2001) · Radiation Research · doi:10.1667/0033-7587(2001)156[0718:ietdxr]2.0.co;2 · Cited by 59
“These records were retrieved in a uniform way and are of high quality (35).”
BackgroundSelf-citationEffect of Swedish snuff (snus) on preterm birth
Wikström, A., Cnattingius, S., Galanti, M., Kieler, H., & Stephansson, O. (2010) · BJOG: An International Journal of Obstetrics & Gynaecology · doi:10.1111/j.1471-0528.2010.02575.x · Cited by 60
Self-citationMulti-Fetal Pregnancy, Preeclampsia, and Long-Term Cardiovascular Disease
Bergman, L., Callbo, P. N., Wikström, A.-K., Snowden, J. M., Hesselman, S., Bonamy, A. K. E., & Sandström, A. (2020) · Hypertension · doi:10.1161/hypertensionaha.120.14860 · Cited by 60
“The register includes prospectively collected information on demographic data, reproductive history, and information from the pregnancy, delivery, and neonatal period using standardized prenatal, obstetric, and neonatal records.(18) Diagnoses classified according to the Swedish version of the International Classificat…”
Metadata
- Authors
- Cnattingius, S., Ericson, A., Gunnarskog, J., & Källén, B.
- Affiliations
- National Board of Health and Welfare (SE)
- Lund University (SE)
- Venue
- Scandinavian Journal of Social Medicine
- Publisher
- SAGE Publications
- Published
- 1990-06
- Volume
- 18
- Issue
- 2
- Pages
- 143-148
- ISSN
- 0300-8037 (ISSN-L)
- OpenAlex
- W2035263233
- Cited by
- 972
- References
- 14
- Citations by year
- 2026: 6 · 2025: 10 · 2024: 27 · 2023: 27 · 2022: 26 · 2021: 32 · 2020: 46 · 2019: 31 · 2018: 26 · 2017: 34 · 2016: 36 · 2015: 39 · 2014: 38 · 2013: 45 · 2012: 44
- FWCI
- 31.65
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Scandinavian Journal of Social Medicine (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Health Professions › Health Information Management › Medical Coding and Health Information
- Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
- Physical Sciences › Computer Science › Information Systems › Data Quality and Management
- Keywords
- medical birth registry, data quality, data errors, medical records, hospital diagnoses, interhospital variation, data collection methods, quality control
- MeSH terms
- Birth Certificates, Diagnosis, Humans, Infant, Newborn, Medical Records, Quality Control, Registries, Sweden
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