The experience of family carers of people with dementia who are hospitalised
Abstract
Hospital admission of a person with dementia can have a significant impact on the family carer, who temporarily relinquishes caring to health professionals. A descriptive qualitative design using in-depth interviews with a conversational approach was used to elicit data. Adjusting to the change in the carer’s role can be challenging and result in feelings of helplessness, loneliness, loss of control and being undervalued. Family support can assist with the transition but family conflict increases anxiety. Good communication between clinicians and the carer is vital. The carer should be included in decision-making as the ‘expert' in the care of the person with dementia. This article discusses findings of a larger study specifically related to the emotional support required for the carers of people with dementia, who are admitted to hospital. The carer and the patient must be considered as a dyad in relation to discharge planning.
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Families expressed concerns about standards of care in hospitals, in particular with assumptions being made about the psychosocial needs of the patient, the person's level of function, and involvement of the family.
“Families expressed concerns about standards of care in hospitals, in particular with assumptions being made about the psychosocial needs of the patient, the person’s level of function, (such as maintaining activities of daily living whilst in hospital) and involvement of the family [28, 30, 35].”
From Stakeholder perspectives of care for people living with dementia moving from hospital to care facilities in the community: a systematic review (2019) · cites this paper as [30]
Families often filled the gaps in the care system and were noted to be actively involved in providing advocacy, facilitating communication, helping with personal care, providing much needed stimulation and helping to prepare the environment.
“Families often filled the gaps in the care system and were noted to be actively involved in providing advocacy, facilitating communication, helping with personal care, providing much needed stimulation and helping to prepare the environment [30, 32, 35].”
From Stakeholder perspectives of care for people living with dementia moving from hospital to care facilities in the community: a systematic review (2019) · cites this paper as [30]
Five studies included the perspective of family members and four studies sought the views of health and social care professionals.
“Using interviews and or focus groups, five studies included the perspective of family members [28–30, 32, 35, 36] and four studies sought the views of health and social care professionals [32–34, 36].”
From Stakeholder perspectives of care for people living with dementia moving from hospital to care facilities in the community: a systematic review (2019) · cites this paper as [30]
Tension and family conflict about decisions were common, and conflicts of interests between patients and relatives regarding funding care were noted.
“Tension and family conflict about decisions were common [30] and conflicts of interests between patients and relatives regarding funding care were noted [32].”
From Stakeholder perspectives of care for people living with dementia moving from hospital to care facilities in the community: a systematic review (2019) · cites this paper as [30]
Family carers found the time leading up to discharge within the hospital environment, the associated decision making about moving into a care facility, and the care processes and systems particularly stressful.
“Family carers found the time leading up to discharge within the hospital environment, the associated decision making about moving into a care facility, the care processes and systems particularly stressful. [28–30, 32].”
From Stakeholder perspectives of care for people living with dementia moving from hospital to care facilities in the community: a systematic review (2019) · cites this paper as [30]
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Potentially preventable hospitalizations in dementia: family caregiver experiences
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Health care transitions for persons living with dementia and their caregivers
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- Authors
- Bloomer, M., Digby, R., Tan, H., Crawford, K., & Williams, A.
- Affiliations
- Monash University (AU)
- Corresponding author
- Bloomer, Melissa
- Venue
- Dementia
- Publisher
- SAGE Publications
- Published
- 2016-07-27
- Volume
- 15
- Issue
- 5
- Pages
- 1234-1245
- ISSN
- 1471-3012 (ISSN-L)
- 1741-2684
- OpenAlex
- W2317354173
- Cited by
- 42
- References
- 18
- Citations by year
- 2026: 2 · 2025: 2 · 2024: 2 · 2023: 2 · 2022: 5 · 2021: 10 · 2020: 2 · 2019: 5 · 2018: 3 · 2017: 7 · 2015: 2
- FWCI
- 2.29
- Type
- journal article
- Language
- en
- Open access
- closed
- Locations
- Dementia (publishedVersion)
- PubMed (publishedVersion)
- Topics
- Health Sciences › Medicine › Psychiatry and Mental health › Dementia and Cognitive Impairment Research
- Health Sciences › Health Professions › Pharmacy › Nursing care and research
- Social Sciences › Psychology › Clinical Psychology › Family Caregiving in Mental Illness
- Keywords
- family caregivers, hospitalization, emotional support, helplessness, family conflict, discharge planning
- MeSH terms
- Adult, Aged, Aged, 80 and over, Dementia, Female, Hospitalization, Humans, Male, Middle Aged, Professional-Patient Relations, Social Support, Caregivers, Qualitative Research
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