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Cited by 33Ovarian function and disordersReproductive Health and TechnologiesEndometriosis Research and Treatment

Diagnostic and treatment characteristics of polycystic ovary syndrome: descriptive measurements of patient perception and awareness from 657 confidential self-reports

Open access
Sills, E Scott, Perloe, Mark, Tucker, Michael J, Kaplan, Carolyn R, Genton, Marc Georges, Schattman, Glenn L·2001·BMC Women's Health
DOI 10.1186/1472-6874-1-3PMC PMC55341
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Abstract

BACKGROUND: This investigation was undertaken to describe patient perception and awareness of the polycystic ovary syndrome (PCOS), the most common cause of anovulation/oligoovulation among women of reproductive age. METHODS: Fifteen parameters were evaluated by a computer-based research instrument accessed by a large, unscreened population. Incomplete questionnaires were not entered, and responses were electronically tabulated to block duplicate submissions. RESULTS: From 657 participants, the majority (63%) were between 26-34 years old; mean BMI was 30.4 kg/m2. 343 of 657 had at least one pregnancy and 61% of the study group had taken fertility medicine (any type) at least once. Physicians were the most common provider of PCOS information for all study participants, irrespective of age. Patient emotions associated with the diagnosis of PCOS included "frustration" (67%), "anxiety" (16%), "sadness" (10%), and "indifference" (2%). Self-reported patient aptitude regarding PCOS was scored as high or "very aware" in >60% of women. Respondents were also asked: "If your PCOS could be safely and effectively helped by something else besides fertility drugs or birth control pills, would that interest you?" Interest in alternative PCOS treatments was expressed by 99% of the sample (n = 648). CONCLUSIONS: In our study population, most women associated negative emotions with PCOS although the self-reported knowledge level for the disorder was high. While these women regarded their obstetrician-gynecologist as integral to their PCOS education, traditional PCOS therapies based on oral contraceptives or ovulation induction agents were regarded as unsatisfactory by most women.

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Crossref · 10.1186/1472-6874-1-3

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  • Women report gaining some or most of their information about PCOS from specialists and the Internet.

    “Women report gaining some or most of their information about PCOS from specialists and the Internet (18, 19, 33) and that the quality of available PCOS information varies (17, 19, 33).”

    From Delayed Diagnosis and a Lack of Information Associated With Dissatisfaction in Women With Polycystic Ovary Syndrome (2016) · cites this paper as [18]

    The Results report that physicians provided a significant amount of PCOS counseling to respondents aged 26–34, and the Discussion describes doctors as important to patient education. But the paper’s mention of internet use concerns how participants accessed the questionnaire; the passages do not establish that respondents obtained PCOS information from the Internet. (LLM, conf=0.85)

    Experimental — accuracy not yet measured

  • Information needs have been investigated in PCOS, but studies have been small or limited in scope.

    “Information needs have been investigated in PCOS (16–19), but studies have been small or limited in scope.”

    From Delayed Diagnosis and a Lack of Information Associated With Dissatisfaction in Women With Polycystic Ovary Syndrome (2016) · cites this paper as [18]

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Research works printed but not linked: 2

  1. Cronin L Guyatt G Griffith L Development of a health related quality of life questionnaire for women with polycystic ovary syndrome (PCOS). J Clin Endocrinol Metab 1998 83 1976 87 9626128
  2. Jakubowicz DJ Seppala M Jakubowicz S Insulin reduction with metformin increases luteal phase glycodelin and insulin-like growth factor-binding protein 1 concentrations and enhances uterine vascularity and blood flow in the polycystic ovary syndrome. J Clin Endocrinol Metab 2001 86 1126 33 11238496

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Authors
Sills, E. S., Perloe, M., Tucker, M. J., Kaplan, C. R., Genton, M. G., & Schattman, G. L.
Affiliations
  • Massachusetts Institute of Technology (US)
  • NewYork–Presbyterian Hospital (US)
Corresponding author
Sills, E Scott
ORCID
Venue
BMC Women's Health
Publisher
Springer Science and Business Media LLC
Published
2001-08-22
Volume
1
Issue
1
Pages
3-3
ISSN
1472-6874 (ISSN-L)
DOI
10.1186/1472-6874-1-3
PMC
PMC55341
OpenAlex
W1488619665
Cited by
14
References
7
Citations by year
2023: 1 · 2022: 2 · 2021: 4 · 2020: 1 · 2019: 1 · 2017: 1 · 2015: 1 · 2014: 1 · 2012: 1
FWCI
0.00
Type
journal article
Language
en
Open access
Licence
www.springer.com/tdm (unspecified)
Locations
  • BMC Women s Health (publishedVersion)
  • Europe PMC (PubMed Central) (publishedVersion, other-oa)
  • PubMed Central (publishedVersion, other-oa)
  • PubMed (publishedVersion)
  • DSpace@MIT (Massachusetts Institute of Technology) (submittedVersion, cc-by)
  • BioMed Central Ltd
Topics
  • Health Sciences › Medicine › Reproductive Medicine › Ovarian function and disorders
  • Health Sciences › Medicine › Reproductive Medicine › Reproductive Health and Technologies
  • Health Sciences › Medicine › Reproductive Medicine › Endometriosis Research and Treatment
Keywords
polycystic ovary syndrome, patient perspectives, patient awareness, emotional impact of diagnosis, PCOS knowledge, alternative treatment, fertility drugs, ovulation induction, oral contraceptives, obstetricians and gynecologists, women of reproductive age

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