Health-related quality of life as a predictor of pediatric healthcare costs: A two-year prospective cohort analysis
Open accessAbstract
Background: The objective of this study was to test the primary hypothesis that parent proxy-report of pediatric health-related quality of life (HRQL) would prospectively predict pediatric healthcare costs over a two-year period. The exploratory hypothesis tested anticipated that a relatively small group of children would account for a disproportionately large percent of healthcare costs. Methods: 317 children (157 girls) ages 2 to 18 years, members of a managed care health plan with prospective payment participated in a two-year prospective longitudinal study. At Time 1, parents reported child HRQL using the Pediatric Quality of Life Inventory™ (PedsQL™ 4.0) Generic Core Scales, and chronic health condition status. Costs, based on health plan utilization claims and encounters, were derived for 6, 12, and 24 months. Results: In multiple linear regression equations, Time 1 parent proxy-reported HRQL prospectively accounted for significant variance in healthcare costs at 6, 12, and 24 months. Adjusted regression models that included both HRQL scores and chronic health condition status accounted for 10.1%, 14.4%, and 21.2% of the variance in healthcare costs at 6, 12, and 24 months. Parent proxy-reported HRQL and chronic health condition status together defined a 'high risk' group, constituting 8.7% of the sample and accounting for 37.4%, 59.2%, and 62% of healthcare costs at 6, 12, and 24 months. The high risk group's per member per month healthcare costs were, on average, 12 times that of other enrollees' at 24 months. Conclusions: While these findings should be further tested in a larger sample, our data suggest that parent proxy-reported HRQL can be used to prospectively predict healthcare costs. When combined with chronic health condition status, parent proxy-reported HRQL can identify an at risk group of children as candidates for proactive care coordination.
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Integrity signals
Registry
Cites
Statistics
Claims the paper makes
The claims and statistics of this paper haven’t been checked yet.
Run the check — free, no account needed. It reads the open-access text and checks the sources it cites.
Claims other papers make about this one
Each is checked against this paper’s own text: does it say what the citing paper says it does?
HRQOL has gained increasing status as a metric of treatment effectiveness.
“although HRQOL has gained increasing status as a metric of treatment effectiveness.11–14,20”
From MS quality of life, depression, and fatigue improve after mindfulness training: A randomized trial (2010) · cites this paper as [20]
Self-check
Percentages, sums and reported differences re-computed from the paper’s own numbers.
The self-check needs the paper’s full text.
Cites
Varni, J. W., Seid, M., & Kurtin, P. S. (2001) · Medical Care · doi:10.1097/00005650-200108000-00006 · Cited by 5,131 · see citing works
Self-citationThe PedsQL™: Measurement Model for the Pediatric Quality of Life Inventory
Varni, J. W., Seid, M., & Rode, C. A. (1999) · Medical Care · doi:10.1097/00005650-199902000-00003 · Cited by 3,291 · see citing works
Self-citation(1980) · Health Care Management Review · doi:10.1097/00004010-198005030-00017 · Cited by 2,529 · see citing works
Quality of life and pharmacoeconomics in clinical trials
Pater, J. L. (1996) · Controlled Clinical Trials · doi:10.1016/s0197-2456(97)82191-5 · Cited by 2,412 · see citing works
Quality of life and pharmacoeconomics in clinical trials
Spilker, B. (1996) · DigitalGeorgetown (Georgetown University Library) · Cited by 1,862 · see citing works
Miilunpalo, S., Vuori, I., Oja, P., Pasanen, M., & Urponen, H. (1997) · Journal of Clinical Epidemiology · doi:10.1016/s0895-4356(97)00045-0 · Cited by 1,473 · see citing works
The PedsQL™ in pediatric cancer
Varni, J. W., Burwinkle, T. M., Katz, E. R., Meeske, K., & Dickinson, P. E. (2002) · Cancer · doi:10.1002/cncr.10428 · Cited by 1,444 · see citing works
Self-citationRisk Adjustment for Measuring Healthcare Outcomes
Iezzoni, L. I. (1994) · Cited by 950 · see citing works
Quality-of-life measures in chronic diseases of childhood
Eiser, C., & Morse, R. (2001) · Health Technology Assessment · doi:10.3310/hta5040 · Cited by 872 · see citing works
Importance of Functional Measures in Predicting Mortality Among Older Hospitalized Patients
Inouye, S. K. (1998) · JAMA · doi:10.1001/jama.279.15.1187 · Cited by 771 · see citing works
A review of measures of quality of life for children with chronic illness
Eiser, C. (2001) · Archives of Disease in Childhood · doi:10.1136/adc.84.3.205 · Cited by 754 · see citing works
Childhood chronic illness: prevalence, severity, and impact.
Newacheck, P. W., & Taylor, W. R. (1992) · American Journal of Public Health · doi:10.2105/ajph.82.3.364 · Cited by 637 · see citing works
An Epidemiologic Profile of Children With Special Health Care Needs
Newacheck, P. W., Strickland, B. B., Shonkoff, J. P., Perrin, J. M., McPherson, M. G., McManus, M. A., Lauver, C. B., Fox, H. B., & Arango, P. (1998) · PEDIATRICS · doi:10.1542/peds.102.1.117 · Cited by 571 · see citing works
Risk adjustment for measuring health care outcomes
Allison, J. J. (1996) · Annals of Epidemiology · doi:10.1016/s1047-2797(96)90011-3 · Cited by 537 · see citing works
Varni, J. W., Seid, M., Smith Knight, T., Burwinkle, T., Brown, J., & Szer, I. S. (2002) · Arthritis & Rheumatism · doi:10.1002/art.10095 · Cited by 535 · see citing works
Self-citationVarni, J. W., Seid, M., Knight, T. S., Uzark, K. C., & Szer, I. S. (2002) · Journal of Behavioral Medicine · doi:10.1023/a:1014836921812 · Cited by 530 · see citing works
Self-citationStein, R. E. K., & Jessop, D. J. (1990) · Medical Care · doi:10.1097/00005650-199011000-00006 · Cited by 361 · see citing works
A noncategorical approach to chronic childhood illness.
Stein, R. E. K., & Jessop, D. J. (1982) · PubMed · Cited by 352 · see citing works
Measuring Prognosis and Case Mix in Hospitalized Elders The Importance of Functional Status
Covinsky, K. E., Justice, A. C., Rosenthal, G. E., Palmer, R. M., & Landefeld, C. S. (1997) · Journal of General Internal Medicine · doi:10.1046/j.1525-1497.1997.012004203.x · Cited by 300 · see citing works
Janicke, D. M., Finney, J. W., & Riley, A. W. (2001) · Medical Care · doi:10.1097/00005650-200109000-00009 · Cited by 285 · see citing works
Framework for identifying children who have chronic conditions: The case for a new definition
Stein, R. E. K., Bauman, L. J., Westbrook, L. E., Coupey, S. M., & Ireys, H. T. (1993) · The Journal of Pediatrics · doi:10.1016/s0022-3476(05)83414-6 · Cited by 282 · see citing works
The Adolescent Child Health and Illness Profile
Starfield, B. H., Riley, A. W., Green, B. F., Ensminger, M. E., Ryan, S. A., Kelleher, K. J., Harris, S. K., Johnston, D., & Vogel, K. (1995) · Medical Care · doi:10.1097/00005650-199505000-00008 · Cited by 277 · see citing works
Depressive Symptoms and 3-Year Mortality in Older Hospitalized Medical Patients
Covinsky, K. E., Kahana, E., Chin, M. H., Palmer, R. M., Fortinsky, R. H., & Landefeld, C. S. (1999) · Annals of Internal Medicine · doi:10.7326/0003-4819-130-7-199904060-00004 · Cited by 265 · see citing works
Dancey, J. E., Zee, B. C.-Y., Osoba, D., Whitehead, M., Lu, F., Kaizer, L., Latreille, J., & Pater, J. L. (1997) · Quality of Life Research · doi:10.1023/a:1026442201191 · Cited by 242 · see citing works
Adolescent Health Status Measurement: Development of the Child Health and Illness Profile
Starfield, B. H., Ensminger, M. E., Riley, A. G., McGauhey, P. J., Skinner, A., Kim, S., Bergner, M., Ryan, S. A., & Green, B. F. (1993) · PEDIATRICS · doi:10.1542/peds.91.2.430 · Cited by 225 · see citing works
Child Health Services Research
Forrest, C. B. (1997) · JAMA · doi:10.1001/jama.1997.03540460051032 · Cited by 221 · see citing works
Bastiaansen, D., Koot, H. M., Bongers, I. L., Varni, J. W., & Verhulst, F. C. (2004) · Quality of Life Research · doi:10.1023/b:qure.0000018483.01526.ab · Cited by 179 · see citing works
Self-citationReduction in Resource Utilization by an Asthma Outreach Program
Greineder, D. K. (1995) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.1995.02170160069010 · Cited by 152 · see citing works
Hornbrook, M. C., & Goodman, M. J. (1996) · Europe PMC (PubMed Central) · Cited by 146 · see citing works
Fowles, J. B. (1996) · JAMA · doi:10.1001/jama.276.16.1316 · Cited by 130 · see citing works
Mayer‐Oakes, S. A., Oye, R. K., & Leake, B. (1991) · Journal of the American Geriatrics Society · doi:10.1111/j.1532-5415.1991.tb04452.x · Cited by 123 · see citing works
Evaluation of a Self-Report Screening Instrument to Predict Frailty Outcomes in Aging Populations
Brody, K. K., Johnson, R. E., & Ried, L. D. (1997) · The Gerontologist · doi:10.1093/geront/37.2.182 · Cited by 108 · see citing works
Seid, M., Varni, J. W., Bermúdez, L. O., Zivkovic, M., Far, M. D., Nelson, M., & Kurtin, P. S. (2001) · PEDIATRICS · doi:10.1542/peds.108.2.264 · Cited by 94 · see citing works
Self-citationSeid, M., Sobo, E. J., Gelhard, L. R., & Varni, J. W. (2004) · Ambulatory Pediatrics · doi:10.1367/a03-198r.1 · Cited by 92 · see citing works
Self-citationVarni, J. W. (1992) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.1992.02160130105030 · Cited by 88 · see citing works
Self-citationPatient reports of health status as predictors of physiologic health measures in chronic disease
Kaplan, S. H. (1987) · Journal of Chronic Diseases · doi:10.1016/s0021-9681(87)80029-2 · Cited by 80 · see citing works
Taking Health Status Into Account When Setting Capitation Rates
Fowles, J. B. (1996) · JAMA · doi:10.1001/jama.1996.03540160038030 · Cited by 78 · see citing works
The Impact of Asthma on the Health Status of Adolescents
Forrest, C. B., Starfield, B. H., Riley, A. W., & Kang, M. (1997) · PEDIATRICS · doi:10.1542/peds.99.2.e1 · Cited by 65 · see citing works
Characteristics of Adult Primary Care Patients as Predictors of Future Health Services Charges
Parkerson, G. R., Harrell, F. E., Hammond, W. E., & Wang, X.-Q. (2001) · Medical Care · doi:10.1097/00005650-200111000-00004 · Cited by 47 · see citing works
Capitation Adjustment for Pediatric Populations
Fowler, E. J., & Anderson, G. F. (1996) · PEDIATRICS · doi:10.1542/peds.98.1.10 · Cited by 47 · see citing works
Profiling the Health Service Needs of Populations Using diagnosis-based Classification Systems
Muldoon, J. H., Neff, J. M., & Gay, J. C. (1997) · Journal of Ambulatory Care Management · doi:10.1097/00004479-199707000-00002 · Cited by 41 · see citing works
ECONOMICS OF PREMATURITY IN THE ERA OF MANAGED CARE
Zupancic, J. A. F., Richardson, D. K., Lee, K., & McCormick, M. C. (2000) · Clinics in Perinatology · doi:10.1016/s0095-5108(05)70032-4 · Cited by 40 · see citing works
Improving the quality of care for children in health systems.
Homer, C. J., Kleinman, L. C., & Goldman, D. A. (1998) · PubMed Central · Cited by 38 · see citing works
Risk adjustment for a children's capitation rate.
Newhouse, J. P., Sloss, E. M., Manning, W. G., & Keeler, E. B. (1993) · PubMed Central · Cited by 30 · see citing works
Risk Adjustment for Measuring Health Care Outcomes, 3rd edition
Thomas, J. W. (2004) · International Journal for Quality in Health Care · doi:10.1093/intqhc/mzh035 · Cited by 28 · see citing works
Assessing the Quality of Care for Children
McGlynn, E. A. (1995) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/archpedi.1995.02170160013002 · Cited by 10 · see citing works
Home-taught pediatric asthma program improves outcomes, cuts hospital, physician visits.
(1997) · PubMed · Cited by 3 · see citing works
- Self-citation
Flagged first, then by citations
1 of the 49 references couldn’t be matched to a known paper.
Research works printed but not linked: 1
- Starfield B Riley AW BF Green Ensminger ME Ryan SA Kelleher K et al. The adolescent CHIP: A population-based measure of health Medical Care 1995 33 553 566 7739277
Cited by
Sorted by citations
Development of the EQ-5D-Y: a child-friendly version of the EQ-5D
Wille, N., Badia, X., Bonsel, G., Burström, K., Cavrini, G., Devlin, N., Egmar, A.-C., Greiner, W., Gusi, N., Herdman, M., et al. (2010) · Quality of Life Research · doi:10.1007/s11136-010-9648-y · Cited by 872 · see citing works
the European KIDSCREEN Group, Ravens-Sieberer, U., Erhart, M., Rajmil, L., Herdman, M., Auquier, P., Bruil, J., Power, M., Duer, W., Abel, T., et al. (2010) · Quality of Life Research · doi:10.1007/s11136-010-9706-5 · Cited by 725 · see citing works
Varni, J. W., Burwinkle, T. M., & Lane, M. M. (2005) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-3-34 · Cited by 473 · see citing works
Self-citationMS quality of life, depression, and fatigue improve after mindfulness training: A randomized trial
Grossman, P., Kappos, L., Gensicke, H., D'Souza, M., Mohr, D. C., Penner, I. K., & Steiner, C. (2010) · Neurology · doi:10.1212/wnl.0b013e3181f4d80d · Cited by 419 · see citing works
Generic Health-Related Quality-of-Life Assessment in Children and Adolescents
Ravens‐Sieberer, U., Erhart, M., Wille, N., Wetzel, R., Nickel, J., & Bullinger, M. (2006) · PharmacoEconomics · doi:10.2165/00019053-200624120-00005 · Cited by 384 · see citing works
Varni, J. W., & Limbers, C. A. (2009) · Pediatric Clinics of North America · doi:10.1016/j.pcl.2009.05.016 · Cited by 377 · see citing works
Self-citationVarni, J. W., Burwinkle, T. M., & Seid, M. (2005) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1586/14737167.5.6.705 · Cited by 339 · see citing works
Self-citationHealth-Related Quality of Life of Children With Mild to Moderate Chronic Kidney Disease
Gerson, A. C., Wentz, A., Abraham, A. G., Mendley, S. R., Hooper, S. R., Butler, R. W., Gipson, D. S., Lande, M. B., Shinnar, S., Moxey‐Mims, M., et al. (2010) · PEDIATRICS · doi:10.1542/peds.2009-0085 · Cited by 246 · see citing works
Subjective health, symptom load and quality of life of children and adolescents in Europe
the HBSC Positive Health Focus Group, Ravens‐Sieberer, U., Torsheim, T., Hetland, J., Vollebergh, W., Cavallo, F., Jericek, H., Alikaşifoğlu, M., Välimaa, R. S., Ottová, V., et al. (2009) · International Journal of Public Health · doi:10.1007/s00038-009-5406-8 · Cited by 201 · see citing works
Health-Related Quality of Life in Pediatric Patients with Irritable Bowel Syndrome:
Varni, J. W., Lane, M. M., Burwinkle, T. M., Fontaine, E., Youssef, N. N., Schwimmer, J. B., Pardee, P. E., Pohl, J. F., & Easley, D. (2006) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/00004703-200612000-00001 · Cited by 179 · see citing works
Self-citationFactors affecting health-related quality of life in Thai children with thalassemia
Thavorncharoensap, M., Torcharus, K., Nuchprayoon, I., Riewpaiboon, A., Indaratna, K., & Ubol, B.-O. (2010) · BMC Hematology · doi:10.1186/1471-2326-10-1 · Cited by 157 · see citing works
Guilbert, T. W., Garris, C. P., Jhingran, P. M., Bonafede, M., Tomaszewski, K. J., Bonus, T., Hahn, R., & Schatz, M. X. (2010) · Journal of Asthma · doi:10.3109/02770903.2010.535879 · Cited by 142 · see citing works
Wiklund, I. E., Carlsson, J., & Vakil, N. B. (2005) · The American Journal of Gastroenterology · doi:10.1111/j.1572-0241.2005.00343.x · Cited by 142 · see citing works
Barakat, L. P., Patterson, C. A., Daniel, L. C., & Dampier, C. (2008) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-6-60 · Cited by 132 · see citing works
Abdulah, D. M., & Abdulla, B. M. O. (2018) · Complementary Therapies in Medicine · doi:10.1016/j.ctim.2018.09.020 · Cited by 100 · see citing works
Pilgrim, A. L., Barker, M. E., Jackson, A. A., Ntani, G., Crozier, S., Inskip, H. M., Godfrey, K. M., Cooper, C. C., & Robinson, S. M. (2011) · Journal of Epidemiology & Community Health · doi:10.1136/jech.2010.125476 · Cited by 95 · see citing works
Weissberg-Benchell, J. A., Nansel, T. R., Holmbeck, G. N., Chen, R., Anderson, B. J., Wysocki, T., & Laffel, L. M. (2009) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsp003 · Cited by 94 · see citing works
Oral Health–Related Quality of Life in Children with Orofacial Clefts
Ward, J. A., Vig, K. W. L., Firestone, A. R., Mercado, A. M., da Fonseca, M., & Johnston, W. M. (2012) · The Cleft Palate-Craniofacial Journal · doi:10.1597/11-055 · Cited by 80 · see citing works
Berkes, A., Pataki, I., Kiss, M., Kemény, C., Kardos, L., Varni, J. W., & Mogyorósy, G. (2010) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-8-14 · Cited by 76 · see citing works
Self-citationRoizen, M. F., Rodríguez, S., Bauer, G., Medín, G., Bevilacqua, M. S., Varni, J. W., & Dussel, V. (2008) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-6-59 · Cited by 72 · see citing works
Self-citationLimbers, C. A., Heffer, R. W., & Varni, J. W. (2009) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-009-0777-5 · Cited by 69 · see citing works
Self-citationDumuid, D., Maher, C., Lewis, L. K., Stanford, T. E., Martín Fernández, J. A., Ratcliffe, J., Katzmarzyk, P. T., Barreira, T. V., Chaput, J.-P., Fogelholm, M., et al. (2018) · Quality of Life Research · doi:10.1007/s11136-018-1791-x · Cited by 68 · see citing works
Tarbell, S. E., & Li, B. U. K. (2013) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2013.01.025 · Cited by 62 · see citing works
Iterative cohort analysis and exploration
Zhang, Z., Gotz, D., & Perer, A. (2014) · Information Visualization · doi:10.1177/1473871614526077 · Cited by 62 · see citing works
Viecili, M. A., & Weiss, J. A. (2015) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-120.4.289 · Cited by 60 · see citing works
How poorer quality of life in adolescence predicts subsequent type 1 diabetes management and control
Hilliard, M. E., Mann, K. A., Peugh, J. L., & Hood, K. K. (2013) · Patient Education and Counseling · doi:10.1016/j.pec.2012.10.014 · Cited by 56 · see citing works
Building Life Skills for Children With Cystic Fibrosis
Christian, B. J., & D’Auria, J. P. (2006) · Nursing Research · doi:10.1097/00006199-200609000-00002 · Cited by 53 · see citing works
Alonso, E. M., Martz, K. L., Wang, D., Yi, M., Neighbors, K., Varni, J. W., Bucuvalas, J. C., & The Studies of Pediatric Liver Transplantation (SPLIT) Functional Outcomes Group (FOG) (2013) · Pediatric Transplantation · doi:10.1111/petr.12126 · Cited by 51 · see citing works
Self-citationDellenmark‐Blom, M., Chaplin, J. E., Gatzinsky, V., Jönsson, L., & ABRAHAMSON, K. (2015) · Quality of Life Research · doi:10.1007/s11136-015-0975-x · Cited by 49 · see citing works
Protudjer, J. L. P., Jansson, S., Östblom, E., Arnlind, M. H., Bengtsson, U. J., Dahlén, S., Källström‐Bengtsson, I., Marklund, B., Middelveld, R. J. M., Rentzos, G., et al. (2015) · Acta Paediatrica · doi:10.1111/apa.13044 · Cited by 50 · see citing works
Tarbell, S. E., & Li, B. U. K. (2015) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2015.05.032 · Cited by 49 · see citing works
Rawal, S., Hoffman, H. J., Chapo, A. K., & Duffy, V. B. (2014) · Chemosensory Perception · doi:10.1007/s12078-014-9170-7 · Cited by 47 · see citing works
Panepinto, J. A., Hoffmann, R. G., & Pajewski, N. M. (2010) · Pediatric Blood & Cancer · doi:10.1002/pbc.22651 · Cited by 42 · see citing works
Erhart, M., Hagquist, C., Auquier, P., Rajmil, L., Power, M., Ravens‐Sieberer, U., & the European KIDSCREEN Group (2009) · Child Care Health and Development · doi:10.1111/j.1365-2214.2009.00998.x · Cited by 42 · see citing works
Ryan, J. L., Mellon, M. W., Junger, K. W., Hente, E. A., Denson, L. A., Saeed, S. A., & Hommel, K. A. (2013) · Inflammatory Bowel Diseases · doi:10.1097/mib.0b013e3182a82b15 · Cited by 41 · see citing works
Impaired health-related quality of life in adolescents with allergy to staple foods
Protudjer, J. L. P., Jansson, S., Middelveld, R. J. M., Östblom, E., Dahlén, S., Arnlind, M. H., Bengtsson, U. J., Källström‐Bengtsson, I., Marklund, B., Rentzos, G., et al. (2016) · Clinical and Translational Allergy · doi:10.1186/s13601-016-0128-5 · Cited by 41 · see citing works
Health‐related quality of life in sickle cell disease
Panepinto, J. A. (2008) · Pediatric Blood & Cancer · doi:10.1002/pbc.21557 · Cited by 40 · see citing works
Short-term Persistence of High Health Care Costs in a Nationally Representative Sample of Children
Liptak, G. S., Shone, L. P., Auinger, P., Dick, A. W., Ryan, S. A., & Szilagyi, P. G. (2006) · PEDIATRICS · doi:10.1542/peds.2005-2264 · Cited by 39 · see citing works
Uzark, K. C., King, E. C., Spicer, R. L., Beekman, R. H., Kimball, T. R., & Varni, J. W. (2012) · Congenital Heart Disease · doi:10.1111/chd.12002 · Cited by 37 · see citing works
Self-citationFamily-Centered Assessment and Function for Children With Chronic Mechanical Respiratory Support
Graham, R. J., Rodday, A. M., & Parsons, S. K. (2013) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2013.06.006 · Cited by 36 · see citing works
Salvini, M., Gall, S., Müller, I., Walter, C., du Randt, R., Steinmann, P., Utzinger, J., Pühse, U., & Gerber, M. (2017) · Quality of Life Research · doi:10.1007/s11136-017-1707-1 · Cited by 29 · see citing works
Comparison of 4 Pediatric Health-Related Quality-of-Life Instruments
Kenzik, K. M., Tuli, S. Y., Revicki, D. A., Shenkman, E. A., & Huang, I. (2014) · Medical Decision Making · doi:10.1177/0272989x14529846 · Cited by 29 · see citing works
Quality of Life among Children with Velocardiofacial Syndrome
Looman, W. S., Thurmes, A., & O’Conner-Von, S. (2010) · The Cleft Palate-Craniofacial Journal · doi:10.1597/09-009.1 · Cited by 29 · see citing works
Saha, R., Misra, R., & Saha, I. (2015) · The Indian Journal of Pediatrics · doi:10.1007/s12098-014-1670-6 · Cited by 28 · see citing works
Wade, T. J., & Guo, J. J. (2010) · American Journal of Public Health · doi:10.2105/ajph.2009.185355 · Cited by 27 · see citing works
Gu, X., Solmon, M. A., & Zhang, T. (2013) · Applied Research in Quality of Life · doi:10.1007/s11482-013-9287-x · Cited by 26 · see citing works
Oral Health Related Quality of Life
Hernández, J. D. L. F., Díaz, F. D. C. A., & Vilchis, M. D. C. V. (2015) · InTech eBooks · doi:10.5772/59262 · Cited by 24 · see citing works
Persistence of High Health Care Expenditures among Children in Medicaid
Shenkman, E. A., Knapp, C. A., Sappington, D. E. M., Vogel, B., & Schatz, D. (2007) · Medical Care Research and Review · doi:10.1177/1077558707299864 · Cited by 24 · see citing works
Chen, M., Jones, C. M., Bauer, H. E., Osakwe, O., Ketheeswaran, P., Baker, J. N., & Huang, I. (2022) · Children · doi:10.3390/children9020185 · Cited by 23 · see citing works
Ravens‐Sieberer, U., Horka, H., Illyes, A., Rajmil, L., Ottová-Jordan, V., & Erhart, M. (2013) · ISRN Public Health · doi:10.1155/2013/419530 · Cited by 23 · see citing works
Quality of Life in Chronic Ketogenic Diet Treatment: The GLUT1DS Population Perspective
Varesio, C., Pasca, L., Parravicini, S., Zanaboni, M. P., Ballante, E., Masnada, S., Ferraris, C., Bertoli, S., Tagliabue, A., Veggiotti, P., et al. (2019) · Nutrients · doi:10.3390/nu11071650 · Cited by 23 · see citing works
Yeung, N. C. Y., Lau, J. T. F., Yu, N. X., Chu, Y. Y. L., Shing, M. M. K., Leung, T. F., Li, C. K., Fok, T. F., & Mak, W. W. S. (2012) · Cancer Nursing · doi:10.1097/ncc.0b013e31827028c8 · Cited by 22 · see citing works
Association of Socioeconomic Status With Postdischarge Pediatric Resource Use and Quality of Life
Kachmar, A. G., Watson, R. S., Wypij, D., Perry, M., Curley, M. A. Q., & for the Randomized Evaluation of Sedation Titration for Respiratory Failure (RESTORE) Investigative Team (2021) · Critical Care Medicine · doi:10.1097/ccm.0000000000005261 · Cited by 21 · see citing works
Health related quality of life in 10-year-old schoolchildren
Laaksonen, C., Aromaa, M. E., Heinonen, O. J., Koivusilta, L. K., Koski, P., Suominen, S., Vahlberg, T. J., & Salanterä, S. (2008) · Quality of Life Research · doi:10.1007/s11136-008-9388-4 · Cited by 21 · see citing works
What are the costs of childhood-onset rheumatic disease?
Minden, K. (2006) · Best Practice & Research Clinical Rheumatology · doi:10.1016/j.berh.2005.11.004 · Cited by 20 · see citing works
Cumulative Risk and Asthma Outcomes in Inner-City African-American Youth
Josie, K. L., Greenley, R. N., & Drotar, D. (2007) · Journal of Asthma · doi:10.1080/02770900701496114 · Cited by 20 · see citing works
Association of Mental Health with Health Care Use and Cost: A Population Study
Cawthorpe, D., Wilkes, T. C., Guyn, L., Li, B., & Lu, M. (2011) · The Canadian Journal of Psychiatry · doi:10.1177/070674371105600807 · Cited by 19 · see citing works
Mistry, R. D., Stevens, M. W., & Gorelick, M. H. (2009) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-7-5 · Cited by 19 · see citing works
Zhu, J., Kodali, H., Wyka, K., & Huang, T. T. ‐. (2023) · BMC Public Health · doi:10.1186/s12889-022-14973-1 · Cited by 18 · see citing works
Adolescent health care use: Investigating related determinants in Greece
Giannakopoulos, G., Tzavara, C. K., Dimitrakaki, C., Ravens‐Sieberer, U., & Tountas, Y. (2009) · Journal of Adolescence · doi:10.1016/j.adolescence.2009.06.003 · Cited by 17 · see citing works
Looking beyond patients: Can parents’ quality of life predict asthma control in children?
Cano, A., Gandarillas, I. M., Sanz, A. B., Callén-Blecua, M. T., Castillo-Laita, J. A., Alonso, I. C., Forns-Serrallonga, D., Tauler, E., Alonso-Bernardo, L. M., García-Merino, Á., et al. (2015) · Pediatric Pulmonology · doi:10.1002/ppul.23336 · Cited by 16 · see citing works
Hersh, A. O., Salimian, P. K., & Weitzman, E. R. (2016) · Rheumatic Disease Clinics of North America · doi:10.1016/j.rdc.2016.01.004 · Cited by 16 · see citing works
Rodday, A. M., Graham, R. J., Weidner, R. A., Terrin, N. C., Leslie, L. K., & Parsons, S. K. (2017) · Journal of Pediatric Health Care · doi:10.1016/j.pedhc.2017.04.021 · Cited by 16 · see citing works
Wigham, S., Watts, P., Zubala, A., Jandial, S., Bourne, J., & Hackett, S. (2020) · Frontiers in Psychology · doi:10.3389/fpsyg.2020.01771 · Cited by 14 · see citing works
Vinokurov, A., & Trickett, E. J. (2015) · Journal of Cross-Cultural Gerontology · doi:10.1007/s10823-015-9271-z · Cited by 14 · see citing works
The Quality of Life of a Multidiagnosis Group of Special Needs Children: Associations and Costs
Thurston, S., Paul, L., Loney, P., Wong, M. Y.-Y., & BROWNE, G. B. (2010) · International Journal of Pediatrics · doi:10.1155/2010/940101 · Cited by 14 · see citing works
Doubova, S. V., Flores‐Hernández, S., Rodríguez-Aguilar, L., & Pérez‐Cuevas, R. (2010) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-8-20 · Cited by 13 · see citing works
Using health-related quality of life to predict and manage pediatric healthcare
Seid, M., Yu, H., Lotstein, D. S., & Varni, J. W. (2005) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1586/14737167.5.4.489 · Cited by 13 · see citing works
Self-citationXie, L., & Mo, P. K. H. (2024) · Journal of the American Medical Directors Association · doi:10.1016/j.jamda.2024.105310 · Cited by 12 · see citing works
Predictors of the use of healthcare services in children and adolescents in Spain
Vieira, J. A. P., Villalonga-Olives, E., Valderas, J. M., Herdman, M., Alonso, J., & Rajmil, L. (2012) · International Journal of Public Health · doi:10.1007/s00038-012-0360-2 · Cited by 12 · see citing works
Analisis Faktor yang Memengaruhi Kualitas Hidup Anak Thalassemia Beta Mayor
Poltekkes Kemenkes Tasikmalaya, J. B. I., Mariani, D., Rustina, Y., Fakultas Ilmu Keperawatan Universitas Indonesia, D. I., Nasution, Y., & Fakultas Kesehatan Masyarakat Universitas Indonesia, D. I. (2014) · Jurnal Keperawatan Indonesia · doi:10.7454/jki.v17i1.375 · Cited by 11 · see citing works
Quercioli, C., Nisticò, F., Troiano, G., Maccari, M., Messina, G., Barducci, M., Carriero, G., Golinelli, D., & Nante, N. (2018) · Public Health · doi:10.1016/j.puhe.2018.07.007 · Cited by 11 · see citing works
Petersen, S., Swinburn, B. A., Mavoa, H., Fotu, K. F., Tupoulahi-Fusimalohi, C., Faeamani, G., & Moodie, M. (2014) · Global Health Action · doi:10.3402/gha.v7.24896 · Cited by 10 · see citing works
Pictures versus words: can we use a pictorial scale to measure child health-related quality of life?
Tang, T. C. W., Wong, M., Li, J., & Chan, D. K. C. (2024) · Frontiers in Public Health · doi:10.3389/fpubh.2024.1398944 · Cited by 9 · see citing works
Oral Health-Related Quality of Life Among Sudanese Children Treated for Cleft Lip and Palate
Ali, M. A., Nasir, A. F., & Abass, S. K. (2021) · The Cleft Palate-Craniofacial Journal · doi:10.1177/1055665620987694 · Cited by 9 · see citing works
Hunduma, G., Dessie, Y., Geda, B., Yadeta, T. A., & Deyessa, N. (2022) · PLoS ONE · doi:10.1371/journal.pone.0272651 · Cited by 8 · see citing works
Wohlbefinden und gesundheitsbezogene Lebensqualität aus einer bevölkerungsbezogenen Perspektive
Ravens‐Sieberer, U., Wille, N., Nickel, J., Ottová, V., & Erhart, M. (2009) · Zeitschrift für Gesundheitspsychologie · doi:10.1026/0943-8149.17.2.56 · Cited by 8 · see citing works
Büttner, P., Petermann, F., Petermann, U., & Rücker, S. (2011) · Zeitschrift für Psychiatrie Psychologie und Psychotherapie · doi:10.1024/1661-4747/a000085 · Cited by 8 · see citing works
Översättning och testning av ett livskvalitetinstrument: The PedsQL™ Family Impact Module
Tiberg, I., & Hallström, I. (2009) · Nordic journal of nursing research · doi:10.1177/010740830902900109 · Cited by 8 · see citing works
Dealing with missing data in multi-informant studies: A comparison of approaches
Chen, P., Jia, F., Wu, W., Wang, M.-H., & Chao, T.-Y. (2024) · Behavior Research Methods · doi:10.3758/s13428-024-02367-7 · Cited by 7 · see citing works
Saha, R., Misra, R., & Saha, I. (2016) · International Journal of Travel Medicine and Global Health · doi:10.21859/ijtmgh-040303 · Cited by 7 · see citing works
Grim, S., Kotz, A., Kotz, G., Halliwell, C., Thomas, J. F., & Kessler, R. S. (2024) · Scientific Reports · doi:10.1038/s41598-024-80064-3 · Cited by 6 · see citing works
Psychosocial Issues in Children with Chronic Kidney Disease
Gerson, A. C. (2016) · Springer eBooks · doi:10.1007/978-3-662-52972-0_60 · Cited by 6 · see citing works
Konzept der „gesundheitsbezogenen Lebensqualität“ in der Pädiatrie
Felder-Puig, R., Topf, R. J., Maderthaner, R., Gadner, H., & Formann, A. K. (2008) · Monatsschrift Kinderheilkunde · doi:10.1007/s00112-008-1897-2 · Cited by 6 · see citing works
Gönülateş, S., & Ozturk, M. A. (2019) · International Education Studies · doi:10.5539/ies.v12n4p110 · Cited by 6 · see citing works
Factors associated with health care utilization in pediatric multiple sclerosis
Marrie, R. A., O’Mahony, J., Maxwell, C. J., Ling, V., Till, C., Barlow-Krelina, E., Yeh, E. A., Arnold, D. L., Bar‐Or, A., & Banwell, B. (2019) · Multiple Sclerosis and Related Disorders · doi:10.1016/j.msard.2019.101511 · Cited by 5 · see citing works
Wu, Y. P., & Steele, R. G. (2013) · Journal of Developmental & Behavioral Pediatrics · doi:10.1097/dbp.0b013e3182a509a6 · Cited by 4 · see citing works
Determination of Quality of Life for Thalassemic Adolescent
Al-Asadi, K. M. N., & Shaker, W. H. (2013) · kufa journal for nursing sciences · doi:10.36321/kjns.vi20132.2465 · Cited by 4 · see citing works
Marquardt, A., Newman, S., Hattarki, D., Srinivasan, R., Sushmita, S., Ram, P., Prasad, V., Hazel, D., Ramesh, A., Cock, M. D., et al. (2014) · IEEE ... International Conference on Data Mining workshops · doi:10.1109/icdmw.2014.45 · Cited by 4 · see citing works
Health-related outcomes in children after critical illness*
Coleman, N., & Slonim, A. D. (2012) · Pediatric Critical Care Medicine · doi:10.1097/pcc.0b013e31824174b3 · Cited by 4 · see citing works
Does health-related quality of life predict injury event?
Soori, H., & Abachizadeh, K. (2009) · Journal of Injury and Violence Research · doi:10.5249/jivr.v1i1.9 · Cited by 3 · see citing works
Family-Rated Pediatric Health Status Is Associated With Unplanned Health Services Use
Steele, B. J., Kemp, K., Fairie, P., & Santana, M. (2021) · Hospital Pediatrics · doi:10.1542/hpeds.2020-005728 · Cited by 3 · see citing works
Lü, Q., Lun, D., Dawkins-Moultin, L., Li, Y., Chen, M., Giordano, S. H., Pennebaker, J. W., Young, L., & Wang, C. (2024) · PLoS ONE · doi:10.1371/journal.pone.0309138 · Cited by 4 · see citing works
Mulya, A. P., Yani, D. I., & Ropi, H. (2019) · Asian Community Health Nursing Research · doi:10.29253/achnr.2019.13413 · Cited by 3 · see citing works
Parsons, S. K., Guy, G. P., Peacock, S. J., Cohen, J. T., Rodday, A. M., Kiernan, E. A., & Feeny, D. H. (2016) · Pediatric oncology · doi:10.1007/978-3-319-33679-4_33 · Cited by 3 · see citing works
Li, R., Murray, C. B., Aalfs, H., Lowe, M. E., Uç, A., & Palermo, T. M. (2026) · Pancreas · doi:10.1097/mpa.0000000000002626 · Cited by 2 · see citing works
Takele, G. M., Sullivan, T. A., Samaranayaka, A., Åström, M., Herdman, M., Arega, G., & Derrett, S. (2026) · Systematic Reviews · doi:10.1186/s13643-025-03060-2 · Cited by 1 · see citing works
Tang, T. C. W., Wong, M., Li, J., & Chan, D. K. C. (2025) · Quality of Life Research · doi:10.1007/s11136-025-03988-x · Cited by 1 · see citing works
Uso de las medidas de salud autopercibida en las evaluaciones económicas de tecnologías sanitarias
Gutiérrez, J. R. (2006) · PharmacoEconomics Spanish Research Articles · doi:10.1007/bf03320920 · Cited by 1 · see citing works
The Impact of Pelizaeus-Merzbacher Disease on the Family
McGuire, L. M., Williams, L. S., Walsh, L. E., DeMyer, W. E., & Golomb, M. R. (2007) · Pediatric Neurology · doi:10.1016/j.pediatrneurol.2006.09.015
- Authors
- Seid, M., Varni, J. W., Segall, D., & Kurtin, P. S.
- Affiliations
- RAND Corporation (US)
- Texas A&M University System (US)
- Corresponding author
- Seid, Michael
- Venue
- Health and Quality of Life Outcomes
- Published
- 2004-09-10
- Volume
- 2
- Issue
- 1
- Pages
- 48-48
- ISSN
- 1477-7525 (ISSN-L)
- PMC
- PMC521194
- OpenAlex
- W2118612528
- Cited by
- 108
- References
- 49
- Citations by year
- 2026: 3 · 2025: 2 · 2024: 6 · 2023: 1 · 2022: 2 · 2021: 3 · 2020: 3 · 2019: 4 · 2018: 3 · 2017: 2 · 2016: 5 · 2015: 8 · 2014: 6 · 2013: 8 · 2012: 6
- FWCI
- 10.33
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Licence
- cc-by
- Locations
- Health and Quality of Life Outcomes (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Topics
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Health Systems, Economic Evaluations, Quality of Life
- Social Sciences › Economics, Econometrics and Finance › Economics and Econometrics › Healthcare Policy and Management
- Health Sciences › Medicine › Pediatrics, Perinatology and Child Health › Pediatric Pain Management Techniques
- Keywords
- health-related quality of life, parent proxy reporting, PedsQL 4.0, chronic disease, managed care, prospective payment, care coordination, children
- MeSH terms
- Adolescent, California, Child, Child Health Services, Child Welfare, Child, Preschool, Chronic Disease, Female, Health Status, Humans, Longitudinal Studies, Male, Managed Care Programs, Medicaid, Parents, Pediatrics, Psychometrics, Quality of Life, Health Care Costs, Sickness Impact Profile, Risk Assessment, Proxy, Children with Disabilities, Disabled Children
About these checks
Registry, retraction, Cites and statistics results are computed, not judged, with one exception: a printed reference that no index lists is read once by a model before it counts as a citation error. Claims are extracted by a model and kept only when their quote appears verbatim in the text; each cited source is then checked, with a model’s help, for whether it says what the claim relies on. Those verdicts can be wrong — read the claim’s quote and the cited source before relying on one.
Statistics and arithmetic are recomputed, not judged.
Confidence bands are shown only for fields calibrated on our annotated test set. None is calibrated yet, so no band is shown.
What counts as a claim ›How we measure confidence ›How we check this ›
Are you an author, or do you see a problem with this page? Request a review