Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study

PedsQLTM 4.0: Reliability and Validity of the Pediatric Quality of Life InventoryTM Version 4.0 generic core scales in healthy and patient populations

Varni, J. W., Seid, M., & Kurtin, P. S. (2001) · Medical Care · doi:10.1097/00005650-200108000-00006 · Cited by 5,131

The Psychology of Survey Response

Tourangeau, R., Rips, L. J., & Rasinski, K. (2000) · doi:10.1017/cbo9780511819322 · Cited by 4,734

The PedsQL™: Measurement Model for the Pediatric Quality of Life Inventory

Varni, J. W., Seid, M., & Rode, C. A. (1999) · Medical Care · doi:10.1097/00005650-199902000-00003 · Cited by 3,291

The Patient-Reported Outcomes Measurement Information System (PROMIS): Progress of an NIH Roadmap Cooperative Group During its First Two Years

Cella, D., Yount, S., Rothrock, N., Gershon, R., Cook, K., Reeve, B., Ader, D., Fries, J. F., Bruce, B., & Rose, M. (2007) · Medical Care · doi:10.1097/01.mlr.0000258615.42478.55 · Cited by 3,118

Cognitive Interviewing: A Tool for Improving Questionnaire Design

Willis, G. (2004) · Cited by 1,934

Cognitive Interviewing

Willis, G. (2005) · doi:10.4135/9781412983655 · Cited by 1,778

Thinking About Answers: The Application of Cognitive Processes to Survey Methodology

Sudman, S., Bradburn, N. M., & Schwarz, N. (1995) · Cited by 1,586

Measuring quality of life in children with asthma

Juniper, E. F., Guyatt, G. H., Feeny, D. H., Ferrie, P. J., Griffith, L. E., & Townsend, M. (1996) · Quality of Life Research · doi:10.1007/bf00435967 · Cited by 1,169

KIDSCREEN-52 quality-of-life measure for children and adolescents

Ravens‐Sieberer, U., Gosch, A., Rajmil, L., Erhart, M., Bruil, J., Duer, W., Auquier, P., Power, M., Abel, T., Csémy, L., et al. (2005) · Expert Review of Pharmacoeconomics & Outcomes Research · doi:10.1586/14737167.5.3.353 · Cited by 809

Thinking about Answers: The Application of Cognitive Process to Survey Methodology

Aalbaum, G., Sudman, S., Bradburn, N. M., & Schwarz, N. (1996) · Journal of Marketing Research · doi:10.2307/3152133 · Cited by 783

Developing an interactive mobile phone self-report system for self-management of hypertension. Part 2: Content validity and usability

Bengtsson, U., Kjellgren, K. I., Höfer, S., Taft, C., & Ring, L. (2014) · Blood Pressure · doi:10.3109/08037051.2014.901009 · Cited by 23

Development of the pediatric quality of life inventory neurofibromatosis type 1 module items for children, adolescents and young adults: qualitative methods

Nutakki, K., Varni, J. W., Steinbrenner, S. Y., Draucker, C. B., & Swigonski, N. L. (2017) · Journal of Neuro-Oncology · doi:10.1007/s11060-016-2351-2 · Cited by 23

Item Selection in Self-Report Measures for Children and Adolescents with Disabilities: Lessons from Cognitive Interviews

Eddy, L. L., Khastou, L., Cook, K. F., & Amtmann, D. (2010) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2010.07.004 · Cited by 22

The Three-item ALERT-B Questionnaire Provides a Validated Screening Tool to Detect Chronic Gastrointestinal Symptoms after Pelvic Radiotherapy in Cancer Survivors

Taylor, S., Byrne, A., Adams, R., Turner, J., Hanna, L., Staffurth, J., FARNELL, D. J. J., Sivell, S., Nelson, A., & Green, J. (2016) · Clinical Oncology · doi:10.1016/j.clon.2016.06.004 · Cited by 22

What is the future of patient-reported outcomes in sickle-cell disease?

Singh, S. A., Bakshi, N., Mahajan, P., & Morris, C. R. (2020) · Expert Review of Hematology · doi:10.1080/17474086.2020.1830370 · Cited by 22

Recent advances in patient and proxy-reported quality of life research

Bandayrel, K., & Johnston, B. C. (2014) · Health and Quality of Life Outcomes · doi:10.1186/s12955-014-0110-7 · Cited by 21

Multi-Stakeholder Qualitative Interviews to Inform Measurement of Patient Reported Outcomes After CAR-T

Akinola, I. M., Cusatis, R. N., Pasquini, M. C., Shaw, B. E., Bollu, V. K., Dalal, A. A., Tesfaye, M., & Flynn, K. E. (2023) · Transplantation and Cellular Therapy · doi:10.1016/j.jtct.2023.01.004 · Cited by 23

Advertising for Cognitive Interviews

Head, B. F., Dean, E., Flanigan, T. S., Swicegood, J., & Keating, M. D. (2015) · Social Science Computer Review · doi:10.1177/0894439315578240 · Cited by 23

Development and validation of a remote home safety protocol

Romero, S., Lee, M. J., Simic, I., Levy, C. E., & Sanford, J. A. (2017) · Disability and Rehabilitation Assistive Technology · doi:10.1080/17483107.2017.1300345 · Cited by 21

Factor Structure and Psychometric Properties of the Child Oral and Motor Proficiency Scale

Park, J., Pados, B. F., Thoyre, S. M., Estrem, H., & McComish, C. (2019) · Journal of Early Intervention · doi:10.1177/1053815119841092 · Cited by 20

Development and Psychometric Evaluation of the PROMIS Pediatric Pain Intensity Measure in Children and Adolescents with Chronic Pain

Mara, C. A., Kashikar‐Zuck, S., Cunningham, N. R., Goldschneider, K. R., Huang, B., Dampier, C., Sherry, D. D., Crosby, L. E., Miller, J. F., Barnett, K. A., et al. (2020) · Journal of Pain · doi:10.1016/j.jpain.2020.04.001 · Cited by 22

A PROMIS®ing New Measure for Quantifying Emotion Dysregulation in Toddlers and Preschoolers: Development of the Emotion Dysregulation Inventory-Young Child

Day, T. N., Northrup, J. B., & Mazefsky, C. A. (2022) · Journal of Autism and Developmental Disorders · doi:10.1007/s10803-022-05536-9 · Cited by 20

PROMIS® Pediatric Depressive Symptoms as a Harmonized Score Metric

Kaat, A. J., Kallen, M. A., Nowinski, C. J., Sterling, S., Westbrook, S. R., & Peters, J. T. (2019) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsz081 · Cited by 20

A guiding process to culturally adapt assessments for participation-focused pediatric practice: the case of the Participation and Environment Measures (PEM)

Tomas, V., Srinivasan, R., Kulkarni, V., Teplicky, R., Anaby, D., & Khetani, M. A. (2021) · Disability and Rehabilitation · doi:10.1080/09638288.2021.1960645 · Cited by 21

Measures of Juvenile Fibromyalgia

Daffin, M., Gibler, R. C., & Kashikar‐Zuck, S. (2020) · Arthritis Care & Research · doi:10.1002/acr.24197 · Cited by 21

Assessing children’s interpretations of the Aboriginal Children’s Health and Well-Being Measure (ACHWM)

Young, N. L., Wabano, M. J., Ritchie, S. D., Burke, T. A., Pangowish, B., & Corbiere, R. G. (2015) · Health and Quality of Life Outcomes · doi:10.1186/s12955-015-0296-3 · Cited by 21

Quality of patient-reported outcomes used for quality of life, physical function, and functional capacity in trials of childhood fractures

Marson, B. A., Craxford, S., Deshmukh, S. R., Grindlay, D. J. C., Manning, J. C., & Ollivere, B. J. (2020) · The Bone & Joint Journal · doi:10.1302/0301-620x.102b12.bjj-2020-0732.r2 · Cited by 20

Establishing content validity of LIMB-Q Kids: a new patient-reported outcome measure for lower limb deformities

Chhina, H., Klassen, A. F., Bade, D., Kopec, J. A., & Cooper, A. P. (2022) · Quality of Life Research · doi:10.1007/s11136-022-03140-z · Cited by 19

Translation, Validity, and Reliability of the Chinese Version of the Breast Cancer Survivor Self-efficacy Scale in China

Yuan, X., Wu, F., Howell, D., & Yuan, C. (2019) · Cancer Nursing · doi:10.1097/ncc.0000000000000637 · Cited by 18

Validity and Reliability of Spanish PROMIS Pediatric Pain Interference Short Form

Ceniza-Bordallo, G., Fraile, A. G., Martín‐Casas, P., & López‐de‐Uralde‐Villanueva, I. (2022) · Journal of Pediatric Nursing · doi:10.1016/j.pedn.2022.05.015 · Cited by 18

Measuring Satisfaction With Upper Limb Prostheses: Orthotics and Prosthetics User Survey Revision That Includes Issues of Concern to Women

Resnik, L. J., Borgia, M. L., Clark, M. A., Heinemann, A. W., & Ni, P. (2022) · Archives of Physical Medicine and Rehabilitation · doi:10.1016/j.apmr.2022.05.008 · Cited by 18

Comparability of the Patient-Reported Outcomes Measurement Information System Pediatric short form symptom measures across culture: examination between Chinese and American children with cancer

Liu, Y., Yuan, C., Wang, J., Brown, J. G., Zhou, F., Zhao, X., Shen, M., & Hinds, P. S. (2016) · Quality of Life Research · doi:10.1007/s11136-016-1312-8 · Cited by 17

Patient-Reported oral health outcome measurement for children and adolescents

Liu, H., Hays, R. D., Marcus, M., Coulter, I. D., Maida, C. A., Ramos‐Gomez, F., Shen, J., Wang, Y., Spolsky, V. W., Lee, S., et al. (2016) · BMC Oral Health · doi:10.1186/s12903-016-0293-x · Cited by 18

Translation and psychometric validation of the traditional Chinese version of patient-reported outcomes measurement information system Pediatric-25 Profile version 2.0 (PROMIS-25) in Chinese Children with Cancer in Hong Kong

Chan, S. W. W., Chien, C., Wong, A. Y. L., & Pang, M. Y. C. (2021) · Quality of Life Research · doi:10.1007/s11136-021-02759-8 · Cited by 18

Adverse experiences of social adaptation in children with leukaemia: a qualitative study from China

Tang, X., Mo, L., Liu, Q., Liu, Y., Lu, Y., Liu, Y., & Gao, C. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-051953 · Cited by 17

Bringing PROMIS to Early Childhood: Introduction and Qualitative Methods for the Development of Early Childhood Parent Report Instruments

Cella, D. F., Blackwell, C. K., & Wakschlag, L. S. (2022) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsac027 · Cited by 17

The Impact of an After-School Physical Activity Program on Children’s Physical Activity and Well-Being during the COVID-19 Pandemic: A Mixed-Methods Evaluation Study

Caldwell, H. A. T., Miller, M. B., Tweedie, C., Zahavich, J. B. L., Cockett, E., & Rehman, L. A. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19095640 · Cited by 17

Adaptation and cognitive testing of physical activity measures for use with young, school-aged children and their parents

Leary, J. M., Lilly, C. L., & Cottrell, L. (2011) · Quality of Life Research · doi:10.1007/s11136-011-0095-1 · Cited by 17

Patient-reported outcome measures and value-based medicine in paediatrics: a timely review

Tan, Y. H., Siew, J. X., Thomas, B., & Ng, K.-C. (2021) · Singapore Medical Journal · doi:10.11622/smedj.2021102 · Cited by 16

Agreement between child self-report and parent-proxy report for functioning in pediatric chronic pain

Hanania, J. W., George, J. E., Rizzo, C. J., Manjourides, J., & Goldstein, L. (2024) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-024-00774-0 · Cited by 16

A novel patient-reported outcome for paediatric localized scleroderma: a qualitative assessment of content validity

Zigler, C. K., Ardalan, K., Lane, S., Schollaert, K. L., & Torok, K. S. (2019) · British Journal of Dermatology · doi:10.1111/bjd.18512 · Cited by 16

Item Generation and Reduction Toward Developing a Patient‐reported Outcome for Pediatric Ulcerative Colitis (TUMMY‐UC)

Marcovitch, L., Nissan, A., Mack, D. R., Otley, A. R., Hussey, S., Mclean, B., Lewis, M., Croft, N. M., Barakat, F. M., Griffiths, A. M., et al. (2016) · Journal of Pediatric Gastroenterology and Nutrition · doi:10.1097/mpg.0000000000001259 · Cited by 16

Design and Administration of Patient-Centred Outcome Measures: The Perspectives of Children and Young People with Life-Limiting or Life-Threatening Conditions and Their Family Members

Coombes, L., Harðardóttir, D., Braybrook, D. E., Roach, A., Scott, H. M., Bristowe, K., Ellis-Smith, C. I., Downing, J. D., Bluebond‐Langner, M., Fraser, L., et al. (2023) · Patient · doi:10.1007/s40271-023-00627-w · Cited by 16

Recommendations for Patient-Reported Outcomes Measurement Information System pediatric measures in youth with chronic pain: a COnsensus-based Standards for the selection of health Measurement INstruments systematic review of measurement properties

Li, R., Gibler, R. C., Rheel, E., Slack, K. E., & Palermo, T. M. (2023) · Pain · doi:10.1097/j.pain.0000000000002998 · Cited by 18

Exploring core symptoms and interrelationships among symptoms in children with acute leukemia during chemotherapy: A network analysis

Fang, J. S., Xu, L.-L., Liu, C.-Q., Zhu, Z., Wang, M., Liu, X., Liu, Q., Huang, H., & Lin, Y. (2023) · Supportive Care in Cancer · doi:10.1007/s00520-023-08024-7 · Cited by 16

Considerations to Support Use of Patient-Reported Outcomes Measurement Information System Pediatric Measures in Ambulatory Clinics

COX, E. D., Dobrozsi, S. K., Forrest, C. B., Gerhardt, W. E., Kliems, H., Reeve, B. B., Rothrock, N. E., Lai, J., Svenson, J. M., Thompson, L. A., et al. (2020) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2020.11.053 · Cited by 15

Development of an observational tool to assess health coaching fidelity

Sohl, S. J., Lee, D., Davidson, H. A., Morriss, B., Weinand, R., Costa, K., Ip, E. H., Lovato, J. F., Rothman, R. L., & Wolever, R. Q. (2020) · Patient Education and Counseling · doi:10.1016/j.pec.2020.08.040 · Cited by 14

Cognitive interviews guide design of a new CAM patient expectations questionnaire

Sherman, K. J., Eaves, E. R., Ritenbaugh, C., Hsu, C. W., Cherkin, D. C., & Turner, J. A. (2014) · BMC Complementary and Alternative Medicine · doi:10.1186/1472-6882-14-39 · Cited by 12

Development and usability testing of a web-based and therapist-assisted coping skills program for managing psychosocial problems in individuals with hand and upper limb injuries: Mixed methods study

Babatunde, F. O., MacDermid, J., Grewal, R., Macedo, L., & Szekeres, M. (2020) · JMIR Human Factors · doi:10.2196/17088 · Cited by 12

Structural validity and reliability of the patient experience measure: A new approach to assessing psychosocial experience of upper limb prosthesis users

Resnik, L. J., Borgia, M. L., Clark, M. A., Graczyk, E. L., Segil, J. L., & Ni, P. (2021) · PLoS ONE · doi:10.1371/journal.pone.0261865 · Cited by 14

Psychometric Evaluation of the Chinese Version of the Patient Perceptions of Empowerment Scale (PPES)

Yeh, M., Lin, S.-H., & Tung, T. (2014) · BioMed Research International · doi:10.1155/2014/867451 · Cited by 13

The Effect of an After-School Physical Activity Program on Children’s Cognitive, Social, and Emotional Health during the COVID-19 Pandemic in Nova Scotia

Caldwell, H. A. T., Miller, M. B., Tweedie, C., Zahavich, J. B. L., Cockett, E., & Rehman, L. A. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19042401 · Cited by 13

Individuals with knee impairments identify items in need of clarification in the Patient Reported Outcomes Measurement Information System (PROMIS®) pain interference and physical function item banks – a qualitative study

Lynch, A. D., Dodds, N. E., Yu, L., Pilkonis, P. A., & Irrgang, J. J. (2016) · Health and Quality of Life Outcomes · doi:10.1186/s12955-016-0478-7 · Cited by 13

Association of consistently suboptimal quality of life with consistently poor asthma control in children with asthma

Howell, C. R., Thompson, L. A., Gross, H. E., Reeve, B. B., Huang, S., DeWalt, D. A., & Huang, I. (2017) · Annals of Allergy Asthma & Immunology · doi:10.1016/j.anai.2017.09.053 · Cited by 13

Development of a postacute hospital item bank for the new Pediatric Evaluation of Disability Inventory-Computer Adaptive Test

Dumas, H. M., Fragala-Pinkham, M. A., & Haley, S. M. (2010) · International Journal of Rehabilitation Research · doi:10.1097/mrr.0b013e32833ba5a5 · Cited by 13

The impact of co-occurring chronic pain and mental health symptoms on adolescent functioning, a cross-sectional survey

Bateman, S., Jordan, A. L., Noel, M. E., Loades, M. E., & Caes, L. (2024) · BMC Psychology · doi:10.1186/s40359-024-02126-5 · Cited by 14

Using Cognitive Interviewing to Test Youth Survey and Interview Items in Evaluation: A Case Example

LaPietra, E. H., Urban, J. B., & Linver, M. R. (2020) · Journal of MultiDisciplinary Evaluation · doi:10.56645/jmde.v16i37.651 · Cited by 12

The Chinese version of the Quality of Life in Childhood Epilepsy Questionnaire-16-C (QOLCE-16-C): translation, validity, and reliability

Tang, P., Lu, Q., Wu, Y., Wang, L., Tang, W., Jiang, Y., Yang, L., Ji, J., Sun, X., Sun, J., et al. (2022) · Health and Quality of Life Outcomes · doi:10.1186/s12955-022-01960-8 · Cited by 16

Development and validation of the Social Determinants of Health Questionnaire and implications for “Promoting Food Security and Healthy Lifestyles” in a complex urban food ecosystem

Gadhoke, P., Pemberton, S., Foudeh, A., & Brenton, B. P. (2018) · Ecology of Food and Nutrition · doi:10.1080/03670244.2018.1481835 · Cited by 12

Expert consensus on the development of a health-related questionnaire for the pediatric field of Korean medicine: a Delphi study

Lee, J., Lee, S. H., & Chang, G. T. (2020) · BMC Complementary Medicine and Therapies · doi:10.1186/s12906-019-2796-x · Cited by 13

Psychometric validation of the Chinese version of the PROMIS Social Relationships Short Forms

Cai, T., Huang, Q., Wu, F., Xia, H., & Yuan, C. (2021) · Nursing Open · doi:10.1002/nop2.1077 · Cited by 12

Development and validation of a diverticular clinical score for symptomatic uncomplicated diverticular disease after acute diverticulitis in a prospective patient cohort

Lahat, A., Fidder, H. H., & Ben‐Horin, S. (2020) · Therapeutic Advances in Gastroenterology · doi:10.1177/1756284820913210 · Cited by 11

MyHospitalVoice – a digital tool co-created with children and adolescents that captures patient-reported experience measures: a study protocol

Hybschmann, J., Sørensen‎, J. L., Thestrup, J., Pappot, H., Boisen, K. A., Frandsen, T. L., & Gjærde, L. K. (2024) · Research Involvement and Engagement · doi:10.1186/s40900-024-00582-2 · Cited by 10

Pictorial Assessment of Health-Related Quality of Life. Development and Pre-Test of the PictoQOL Questionnaire

Brzoska, P., Erdsiek, F., Aksakal, T., Mader, M., Ölçer, S., Idris, M., Altinok, K., Wahidie, D., Padberg, D., & Yılmaz-Aslan, Y. (2022) · International Journal of Environmental Research and Public Health · doi:10.3390/ijerph19031620 · Cited by 10

Scoping Review: Neurocognitive Outcome Assessments After Critical Illness in Children

BIAGAS, K. V., Heneghan, J. A., Abu-Sultaneh, S. M. A., Geneslaw, A. S., Maddux, A. B., Pinto, N. P., Murphy, S. A., Shein, S. L., & Cronin, M. T. (2022) · Journal of Intensive Care Medicine · doi:10.1177/08850666221121567 · Cited by 10

Psychosocial needs of pediatric cancer patients and their caregivers at end of treatment: Why psychosocial screening remains important

Perez, M. N., Madden, R. E., Zukin, H. N., Velázquez‐Martin, B., & Barakat, L. P. (2023) · Pediatric Blood & Cancer · doi:10.1002/pbc.30540 · Cited by 10

Challenges of Cognitive Interviewing in Sensitive Health Topic Research

Arthur, E. K., Menon, U., Browning, K. K., Overcash, J. A., & Wills, C. E. (2021) · Nursing Research · doi:10.1097/nnr.0000000000000530 · Cited by 15

Medical Test Results Do Not Tell the Whole Story

Wray, J., Brown, K., Marino, B. S., & Franklin, R. C. G. (2011) · World Journal for Pediatric and Congenital Heart Surgery · doi:10.1177/2150135111416017 · Cited by 10

Quantitative sensory testing is feasible and is well-tolerated in patients with sickle cell disease following a vaso-occlusive episode

Bakshi, N., Lukombo, I., Belfer, I., & Krishnamurti, L. (2018) · Journal of Pain Research · doi:10.2147/jpr.s150066 · Cited by 10

Cognitive Interviews: Recommendations for Best Practices in Clinical Outcome Assessment (COA) Measure Development and Validation

Meadows, K., Ferrante, N., & Geršić, T. (2025) · Patient · doi:10.1007/s40271-025-00752-8 · Cited by 9

Toward a Measure of Communicative Participation for Children with Developmental Speech Disorders

Darling-White, M. (2017) · Seminars in Speech and Language · doi:10.1055/s-0037-1602837 · Cited by 9

Assessing anger and irritability in children: psychometric evaluation and normative data for the German version of the PROMIS® Parent Proxy Anger Scale

Kaman, A., Otto, C., Devine, J., Erhart, M., Döpfner, M., Banaschewski, T., Görtz‐Dorten, A., Hanisch, C., Kölch, M. G., Roessner, V., et al. (2021) · Quality of Life Research · doi:10.1007/s11136-021-03001-1 · Cited by 9

The incidence of late-detected developmental dysplasia of the hip and its functional outcomes: a 17-year cohort study using selective ultrasound screening

Håberg, Ø., Foss, O. A., Gundersen, T., Lian, Ø. B., Hoel, M. S., & Holen, K. J. (2023) · Acta Orthopaedica · doi:10.2340/17453674.2023.24578 · Cited by 9

How sharp can a screening tool be? A qualitative study of patients’ experience of completing a bowel cancer screening questionnaire

Pugh, W., & Porter, A. M. (2010) · Health Expectations · doi:10.1111/j.1369-7625.2010.00629.x · Cited by 9

Disablement Model and Health-Related Quality of Life Classification for Patient-Reported Outcomes Measurement Information System (PROMIS) Instruments

Valier, A. R. S., Bacon, C. E. W., & Lam, K. C. (2018) · Journal of Athletic Training · doi:10.4085/1062-6050-331-17 · Cited by 9

How to Develop Well-Being Survey Questions for Young Children: Lessons Learned from Cross-Cultural Cognitive Interviews

Franc, R., Sučić, I., Babarović, T., Brajša‐Žganec, A., Kaliterna-Lipovčan, L., & Dević, I. (2018) · Children's well-being · doi:10.1007/978-3-319-76063-6_6 · Cited by 9

Children’s understanding of well-being related questions: results of cognitive interviews in four European countries

Babarović, T., Krpanec, E., Blažev, M., Dević, I., Downey, S., Huttunen, I., Panico, L., Perron, Z., Santos, A., Taylor, L. K., et al. (2024) · International Journal of Social Research Methodology · doi:10.1080/13645579.2024.2312621 · Cited by 8

The MASCC COG-IMPACT: An unmet needs assessment for cancer-related cognitive impairment impact developed by the Multinational Association of Supportive Care in Cancer

Haywood, D., Chan, A., Chan, R. J., Baughman, F. D., Dauer, E., Dhillon, H. M., Henneghan, A. M., Lawrence, B. J., Lustberg, M. B., O’Connor, M., et al. (2025) · Supportive Care in Cancer · doi:10.1007/s00520-025-09149-7 · Cited by 8

Development and evaluation of the patient-reported outcomes measurement information system (PROMIS) pediatric pain quality item bank and short form

Mara, C. A., Carle, A. C., Goldschneider, K. R., Kashikar‐Zuck, S., Sherry, D. D., Dampier, C., & Morgan, E. M. (2022) · Pain · doi:10.1097/j.pain.0000000000002739 · Cited by 9

Use of Cognitive Interviews to Adapt PROMIS Measurement Items for Spanish Speakers Living with HIV

Solorio, R., Ayala, N., Paez, E., Skalicky, A. M., & Morales, L. S. (2016) · AIDS Research and Treatment · doi:10.1155/2016/8340863 · Cited by 8

Technology to Support the Care of Children and Adolescents with Cancer

Baggott, C., Jibb, L., Parker, R., Stinson, J., & Linder, L. A. (2020) · Pediatric oncology · doi:10.1007/978-3-030-25804-7_8 · Cited by 8

The Young Disability Questionnaire-Spine: item development, pilot testing and conceptualisation of a questionnaire to measure consequences of spinal pain in children

Meldgaard, E., Lauridsen, H. H., & Hestbæk, L. (2021) · BMJ Open · doi:10.1136/bmjopen-2020-045580 · Cited by 8

Swedish translation and cross-cultural adaptation of eight pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®

Blomqvist, I., Chaplin, J. E., Nilsson, E., Henje, E., & Dennhag, I. (2021) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-021-00353-7 · Cited by 8

Development and content validity of the youth and young-adult participation and environment measure (Y-PEM)

Shahin, S., Rezze, B. D., Ahmed, S., & Anaby, D. (2022) · Disability and Rehabilitation · doi:10.1080/09638288.2022.2030809 · Cited by 8

Development of the Japanese Version of the Infertility Stigma Scale: Examination of Its Reliability and Validity

Yokota, R., Okada, H., Okuhara, T., Goto, E., Furukawa, E., Shirabe, R., Sakakibara, K. S., & Kiuchi, T. (2022) · Healthcare · doi:10.3390/healthcare10030505 · Cited by 9

The Upper Extremity Functional Scale for Prosthesis Users (UEFS-P): subscales for one and two-handed tasks

Resnik, L. J., Borgia, M. L., Heinemann, A. W., Stevens, P. M., Clark, M. A., & Ni, P. (2022) · Disability and Rehabilitation · doi:10.1080/09638288.2022.2138572 · Cited by 8

Determinants of longitudinal health‐related quality‐of‐life change in children with asthma from low‐income families: a report from the PROMIS® Pediatric Asthma Study

Li, Z., Leite, W. L., Thompson, L. A., Gross, H. E., Shenkman, E. A., Reeve, B. B., DeWalt, D. A., & Huang, I. (2016) · Clinical & Experimental Allergy · doi:10.1111/cea.12827 · Cited by 10

PRISM, a Patient-Reported Outcome Instrument, Accurately Measures Symptom Change in Refractory Gastroesophageal Reflux Disease

Fuller, G., Bolus, R. R., Whitman, C. B., Talley, J., Erder, M. H., Joseph, A., Silberg, D. G., & Spiegel, B. M. R. (2017) · Digestive Diseases and Sciences · doi:10.1007/s10620-016-4440-7 · Cited by 8

Measurement in Family Nursing

Sawin, K. J. (2016) · Journal of Family Nursing · doi:10.1177/1074840716656038 · Cited by 8

Investigating Physiological Symptoms Associated with Mental Health Symptoms in Youth with Cerebral Palsy: An Observational Study

Testani, D., McMorris, C. A., Clark, C. A., Sanguino, H., Condliffe, E. G., Noel, M. E., Kopala Sibley, D. C., & Brunton, L. K. (2024) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2024.104783 · Cited by 7

Quality-of-Life Assessment in Pediatric Advanced Cancer: Development of the Patient-Reported Outcome Measure Advance QoL

Robichaud, L.-A., Felipe, J., Duval, M., Michon, B., Olivier-d’Avignon, M., Perreault, S., Tyo-Gomez, M., Marquis, M., & Sultan, S. (2024) · Current Oncology · doi:10.3390/curroncol31040170 · Cited by 7

Association of obstructive sleep apnea and total sleep time with health-related quality of life in children undergoing a routine polysomnography: a PROMIS approach

Xu, S. Y., Turakhia, S., Miller, M. L., Johnston, D., Maddalozzo, J. P., Thompson, D. M., Trosman, I., Grandner, M. A., Sheldon, S. H., Ahluwalia, V., et al. (2021) · Journal of Clinical Sleep Medicine · doi:10.5664/jcsm.9726 · Cited by 7

Translation, cultural adaptation and pilot testing of a questionnaire measuring the factors affecting the acceptance of telemedicine by Greek cancer patients

Papachristou, N., Vasileios, R., Sarafis, P., & Bamidis, P. D. (2023) · PLoS ONE · doi:10.1371/journal.pone.0278758 · Cited by 7

Qualitative methods in the development of a parent survey of children’s oral health status

Maida, C. A., Marcus, M., Hays, R. D., Coulter, I. D., Ramos‐Gomez, F., Lee, S. Y., McClory, P. S., Van, L. V., Wang, Y., Shen, J., et al. (2018) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-018-0033-x · Cited by 7

A content validity and cognitive interview to develop the HARMONI items: Instrument measuring student well-being in West Java, Indonesia

Susanto, H., Wedyaswari, M., & Dalimunthe, K. L. (2023) · Frontiers in Education · doi:10.3389/feduc.2023.1132031 · Cited by 14

Cross‐cultural validation of the genetic counseling outcome scale in Korea

Yang, S., Chang, Y. J., Kim, K. O., Lee, B. H., Kong, S., McAllister, M., & Choi, I. H. (2024) · Journal of Genetic Counseling · doi:10.1002/jgc4.1961 · Cited by 7

Development and validation of the Cancer Knowledge Scale for the general population: An item response theory approach

Kimata, A., Kumagai, K., Kondo, N., Adachi, K., Fujita, R., & Tsuchiya, M. (2021) · Patient Education and Counseling · doi:10.1016/j.pec.2021.05.007 · Cited by 6

Development of the Young Disability Questionnaire (spine) for children with spinal pain: field testing in Danish school children

Lauridsen, H. H., Meldgaard, E., Hestbæk, L., & Hansen, G. K. (2023) · BMJ Open · doi:10.1136/bmjopen-2022-064382 · Cited by 6

Cross‐cultural adaptation of the Genetic Counseling Outcome Scale (GCOS‐24) for use in Canada: A qualitative study

Redondo, L., & McAllister, M. (2023) · Journal of Genetic Counseling · doi:10.1002/jgc4.1771 · Cited by 7

2018 International Olympic Committee consensus statement on prevention, diagnosis and management of paediatric anterior cruciate ligament (ACL) injuries

Ardern, C. L., Ekås, G. R., Grindem, H., Moksnes, H., Anderson, A. F., Chotel, F., Cohen, M., Forssblad, M. L., Ganley, T. J., Feller, J. A., et al. (2018) · Journal of ISAKOS Joint Disorders & Orthopaedic Sports Medicine · doi:10.1136/jisakos-2018-000200 · Cited by 6

Development of Community Pharmacy Characteristics Questionnaire: Application of Cognitive Interviewing

Smith, M. G., Ferreri, S. P., Stafford, R. A., Teeter, B. S., Turner, K. L., Veach, S. R., & Shea, C. M. (2018) · INNOVATIONS in pharmacy · doi:10.24926/iip.v9i3.1349 · Cited by 6

Long-Term Health-Related Quality of Life After Sport-Related Injury in Youth Athletes: A Longitudinal Cohort Study

Verma, R., Render, A., Ramirez, M., Shenvi, N. V., Easley, K. A., LaBella, C. R., Stracciolini, A., & Jayanthi, N. A. (2025) · Orthopaedic Journal of Sports Medicine · doi:10.1177/23259671251341467 · Cited by 5

A pilot randomized controlled trial of the iPeer2Peer program in adolescents with sickle cell disease: A mixed method study

Kelenc, L., Wiles, B., Nishat, F., Lalloo, C., Nair, A., Eling, C., Kirby-Allen, M. A., Simpson, E., Sinha, R., Ward, R. A., et al. (2025) · Journal of Clinical and Translational Science · doi:10.1017/cts.2024.1170 · Cited by 4

Changes in hepatitis B vaccine perception in response to the COVID-19 pandemic: Development of the Shift in vaccine confidence (SVC) survey tool

Boisson-Walsh, A. J. N., Morgan, C., Stover, A. M., Ngimbi, P., Mbonze, N., Ntambua, S., Matondo, J., Parr, J. B., Yotebieng, M., Mwandagalirwa, K., et al. (2022) · Vaccine · doi:10.1016/j.vaccine.2022.12.028 · Cited by 5

Development and content validity of the Person Experiences Interview Survey (PEIS): a measure of the mental health services experiences of people with developmental disabilities

Kramer, J. M., Beasley, J. B., Caoili, A., Kalb, L. G., Urquilla, M. P., Klein, A., Poncelet, J., Black, S., & Tessler, R. C. (2023) · Frontiers in Psychiatry · doi:10.3389/fpsyt.2023.1271210 · Cited by 5

Translation, cross‐cultural adaptation, and preliminary validation of a patient‐reported outcome measure for genetic counseling outcomes in Sweden

Pestoff, R., Danielsson, H., McAllister, M., Johansson, P., & Gunnarsson, C. (2024) · Journal of Genetic Counseling · doi:10.1002/jgc4.1896 · Cited by 5

Development, validity, and reliability assessment of the Canadian Food Literacy Measure

Martín, A., Wallace, A., Jacob, R., Any, M., Laila, A., Hernandez, K. J., Perreault, M., Hutchinson, J. M., Sadowski, A. S., Saher, A., et al. (2024) · Applied Physiology, Nutrition, and Metabolism · doi:10.1139/apnm-2024-0054 · Cited by 7

A Leap Toward Sustainable Consciousness: SCQ ‐S Validation for Spanish Adolescents

Gómez, S. B., Giménez‐Egido, J. M., Férriz-Valero, A., & Baena‐Morales, S. (2025) · Sustainable Development · doi:10.1002/sd.3447 · Cited by 5

Development of Items That Assess Physical Function in Children Who Use Wheelchairs

Kerfeld, C. I., Dudgeon, B. J., Engel, J. M., & Kartin, D. (2013) · Pediatric Physical Therapy · doi:10.1097/pep.0b013e318288d239 · Cited by 5

Gaining an accurate reflection of the reality of palliative care through the use of free-text feedback in questionnaires: the AFTER study

Bowyer, A., Finlay, I. G., Baillie, J., Byrne, A., McCarthy, J., Sampson, C. M., Snow, V., & Nelson, A. (2016) · BMJ Supportive & Palliative Care · doi:10.1136/bmjspcare-2015-000920 · Cited by 5

ral Health and Quality of Life Outcomes ssBioMed Cent

Irwin, D. E., Varni, J. W., Yeatts, K., Dewalt, D. A., & Dewalt, D. A. (2016)

Cognitive Interviewing with Young Children to Support the Development of Patient reported outcome measures (PROMs): An Investigation of Feasibility and Methods

Gale, V. (2025) · White Rose eTheses Online (University of Leeds, The University of Sheffield, University of York)

Young children (6–7 years) can meaningfully participate in cognitive interviews assessing comprehensibility in health-related quality of life domains: a qualitative study

Gale, V., Powell, P. A., & Carlton, J. (2025) · Quality of Life Research · doi:10.1007/s11136-025-03940-z · Cited by 7

Developing and pretesting a new patient reported outcome measure for paediatric Chronic Fatigue Syndrome/ Myalgic Encephalopathy (CFS/ME): cognitive interviews with children

Parslow, R. M., Shaw, A. R. G., Haywood, K. L., & Crawley, E. M. (2019) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-019-0156-8 · Cited by 6

Development of six PROMIS pediatrics proxy-report item banks

Irwin, D. E., Gross, H. E., Stucky, B. D., Thissen, D., DeWitt, E., Lai, J., Amtmann, D., Khastou, L., Varni, J. W., & DeWalt, D. A. (2012) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-10-22 · Cited by 315