Development of six PROMIS pediatrics proxy-report item banks

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Parent–child agreement across child health-related quality of life instruments: a review of the literature

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Measuring quality of life

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Evaluation of Item Candidates: The PROMIS Qualitative Item Review

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An item response analysis of the pediatric PROMIS anxiety and depressive symptoms scales

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Health-related quality of life measurement in pediatric clinical practice: An appraisal and precept for future research and application

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Factors influencing agreement between child self-report and parent proxy-reports on the Pediatric Quality of Life Inventory™ 4.0 (PedsQL™) generic core scales

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PROMIS Pediatric Pain Interference Scale: An Item Response Theory Analysis of the Pediatric Pain Item Bank

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Developing the Patient-Reported Outcomes Measurement Information System (PROMIS)

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The PedsQL™ in Pediatric Asthma: Reliability and Validity of the Pediatric Quality of Life Inventory™ Generic Core Scales and Asthma Module

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Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study

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Children’s Health Care Use

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The Pediatric Cancer Quality of Life Inventory (PCQL). I. Instrument Development, Descriptive Statistics, and Cross-Informant Variance

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The pediatric cancer quality of life inventory-32 (PCQL-32)

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Agreement between child self-report and parent proxy-report to evaluate Quality of Life in Children with Cancer

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Health-related quality of life in childhood cancer: Discrepancy in parent-child reports

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Construction of the eight-item patient-reported outcomes measurement information system pediatric physical function scales: built using item response theory

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Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

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Recurrent pain, emotional distress, and health service use in childhood

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Measuring quality of life

Eiser, C., & Jenney, M. E. M. (2007) · Archives of Disease in Childhood · doi:10.1136/adc.2005.086405 · Cited by 172 · see citing works

PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks

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PROMIS Pediatric Anger Scale: an item response theory analysis

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Construction of the Pediatric Asthma Impact Scale (PAIS) for the Patient-Reported Outcomes Measurement Information System (PROMIS)

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The use of focus groups in the development of the PROMIS pediatrics item bank

Walsh, T., Irwin, D. E., Meier, A., Varni, J. W., & DeWalt, D. A. (2008) · Quality of Life Research · doi:10.1007/s11136-008-9338-1 · Cited by 99 · see citing works

Factors Associated with HIV Infection in Adolescent Females in Zimbabwe

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Validation of the European Proxy KIDSCREEN-52 Pilot Test Health-Related Quality of Life Questionnaire: First Results

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Evaluating Quality of Life in Children With Cancer Using Children's Self-Reports and Parent-Proxy Reports

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Untitled work

(2003) · doi:10.1367/1539-4409(2003)003

COSCA (Core Outcome Set for Cardiac Arrest) in Adults: An Advisory Statement From the International Liaison Committee on Resuscitation

Haywood, K. L., Whitehead, L., Nadkarni, V., Achana, F. A., Beesems, S. G., Böttiger, B. W., Brooks, A. B., Castrén, M. K., Ong, M. E., Hazinski, M. F., et al. (2018) · Circulation · doi:10.1161/cir.0000000000000562 · Cited by 362 · see citing works

COSCA (Core Outcome Set for Cardiac Arrest) in adults: an advisory statement from the international liaison committee on resuscitation

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Agreement Between Child Self-report and Caregiver-Proxy Report for Symptoms and Functioning of Children Undergoing Cancer Treatment

Mack, J. W., McFatrich, M., Withycombe, J. S., Maurer, S. H., Jacobs, S. S., Lin, L., Lucas, N. R., Baker, J. N., Mann, C. M., Sung, L., et al. (2020) · Archives of Pediatrics and Adolescent Medicine · doi:10.1001/jamapediatrics.2020.2861 · Cited by 188 · see citing works

Developing Interventions for Cancer-Related Cognitive Dysfunction in Childhood Cancer Survivors

Castellino, S. M., Ullrich, N. J., Whelen, M. J., & Lange, B. J. (2014) · JNCI Journal of the National Cancer Institute · doi:10.1093/jnci/dju186 · Cited by 175 · see citing works

The emotion dysregulation inventory: Psychometric properties and item response theory calibration in an autism spectrum disorder sample

Mazefsky, C. A., Yu, L., White, S. W., Siegel, M., & Pilkonis, P. A. (2018) · Autism Research · doi:10.1002/aur.1947 · Cited by 169 · see citing works

PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks

Varni, J. W., Thissen, D., Stucky, B. D., Liu, Y., Gorder, H., Irwin, D. E., DeWitt, E. M., Lai, J., Amtmann, D., & DeWalt, D. A. (2011) · Quality of Life Research · doi:10.1007/s11136-011-0025-2 · Cited by 152 · see citing works

Psychometric Evaluation of the PROMIS® Pediatric Psychological and Physical Stress Experiences Measures

Bevans, K. B., Gardner, W. P., PAJER, K. A., Becker, B. D., Carle, A. C., Tucker, C. A., & Forrest, C. B. (2018) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsy010 · Cited by 128 · see citing works

Paediatric health-related quality of life: what is it and why should we measure it?

Haverman, L., Limperg, P. F., Young, N. L., Grootenhuis, M. A., & Klaassen, R. J. (2016) · Archives of Disease in Childhood · doi:10.1136/archdischild-2015-310068 · Cited by 120 · see citing works

Assessment of patient-reported symptoms of anxiety

Rose, M., & Devine, J. (2014) · Dialogues in Clinical Neuroscience · doi:10.31887/dcns.2014.16.2/mrose · Cited by 97 · see citing works

Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans for Juvenile Idiopathic Arthritis–Associated and Idiopathic Chronic Anterior Uveitis

Angeles‐Han, S. T., Lo, M. S., Henderson, L. A., Lerman, M. A., Abramson, L. S., Cooper, A. M., Parsa, M. F., Zemel, L. S., Ronis, T., Beukelman, T., et al. (2018) · Arthritis Care & Research · doi:10.1002/acr.23610 · Cited by 95 · see citing works

Pharmacodynamic Study of Miransertib in Individuals with Proteus Syndrome

Keppler‐Noreuil, K. M., Sapp, J. C., Lindhurst, M. J., Darling, T. N., Burton‐Akright, J., Bagheri, M. H., Dombi, E., Gruber, A., Jarosinski, P. F., Martin, S. C., et al. (2019) · The American Journal of Human Genetics · doi:10.1016/j.ajhg.2019.01.015 · Cited by 93 · see citing works

Initial Evaluation of the Pediatric PROMIS® Health Domains in Children and Adolescents With Sickle Cell Disease

Dampier, C., Barry, V., Gross, H. E., Lui, Y., Thornburg, C. D., DeWalt, D. A., & Reeve, B. B. (2016) · Pediatric Blood & Cancer · doi:10.1002/pbc.25944 · Cited by 93 · see citing works

The Coronavirus Impact Scale: Construction, Validation, and Comparisons in Diverse Clinical Samples

Stoddard, J., Reynolds, E. K., Paris, R., Haller, S. P., Johnson, S. B., Zik, J. B., Elliotte, E., Maru, M., Jaffe, A., Mallidi, A., et al. (2023) · JAACAP Open · doi:10.1016/j.jaacop.2023.03.003 · Cited by 87 · see citing works

Chronic Pain Assessment Tools for Cerebral Palsy: A Systematic Review

Kingsnorth, S., Orava, T., Provvidenza, C. F., Adler, E., Ami, N., Gresley-Jones, T., Mankad, D., Slonim, N., Fay, L., Joachimides, N., et al. (2015) · PEDIATRICS · doi:10.1542/peds.2015-0273 · Cited by 82 · see citing works

Item-level informant discrepancies between children and their parents on the PROMIS® pediatric scales

Varni, J. W., Thissen, D., Stucky, B. D., Liu, Y., Magnus, B. E., He, J. L., DeWitt, E. M., Irwin, D. E., Lai, J., Amtmann, D., et al. (2015) · Quality of Life Research · doi:10.1007/s11136-014-0914-2 · Cited by 80 · see citing works

COVID-19 disruption gets inside the family: A two-month multilevel study of family stress during the pandemic.

Browne, D. T., Wade, M., May, S. S., Jenkins, J. M., & Prime, H. (2021) · Developmental Psychology · doi:10.1037/dev0001237 · Cited by 81 · see citing works

Health-related quality of life of children with attention-deficit/hyperactivity disorder versus children with diabetes and healthy controls

Coghill, D., & Hodgkins, P. (2015) · European Child & Adolescent Psychiatry · doi:10.1007/s00787-015-0728-y · Cited by 77 · see citing works

A Lifespan Approach to Patient‐Reported Outcomes and Quality of Life for People on the Autism Spectrum

Holmes, L. G., Zampella, C., Clements, C. C., McCleery, J. P., Maddox, B. B., Parish‐Morris, J., Udhnani, M. D., Schultz, R. T., & Miller, J. S. (2020) · Autism Research · doi:10.1002/aur.2275 · Cited by 76 · see citing works

PROMIS® Parent Proxy Report Scales for children ages 5–7 years: an item response theory analysis of differential item functioning across age groups

Varni, J. W., Thissen, D., Stucky, B. D., Liu, Y., Magnus, B. E., Quinn, H., Irwin, D. E., DeWitt, E. M., Lai, J., Amtmann, D., et al. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0439-0 · Cited by 74 · see citing works

Fatigue in Child Chronic Health Conditions: A Systematic Review of Assessment Instruments

Crichton, A. J., Knight, S., Oakley, E. A., Babl, F. E., & Anderson, V. A. (2015) · PEDIATRICS · doi:10.1542/peds.2014-2440 · Cited by 74 · see citing works

The Impact of Social Deprivation on Pediatric PROMIS Health Scores After Upper Extremity Fracture

Okoroafor, U. C., Gerull, W. D., Wright, M. A., Guattery, J. M., Sandvall, B. K., & Calfee, R. P. (2018) · The Journal Of Hand Surgery · doi:10.1016/j.jhsa.2018.06.119 · Cited by 71 · see citing works

Applying the Patient-Reported Outcomes Measurement Information System to Assess Upper Extremity Function among Children with Congenital Hand Differences

Waljee, J. F., Carlozzi, N. E., Franzblau, L. E., Zhong, L., & Chung, K. C. (2015) · Plastic & Reconstructive Surgery · doi:10.1097/prs.0000000000001444 · Cited by 65 · see citing works

Patient‐Reported Outcomes Measurement Information System Tools for Collecting Patient‐Reported Outcomes in Children With Juvenile Arthritis

Brandon, T. G., Becker, B. D., Bevans, K. B., & Weiss, P. F. (2016) · Arthritis Care & Research · doi:10.1002/acr.22937 · Cited by 64 · see citing works

Pain and insomnia as risk factors for first lifetime onsets of anxiety, depression, and suicidality in adolescence

Soltani, S., Noel, M. E., Bernier, E. P., & Kopala‐Sibley, D. C. (2023) · Pain · doi:10.1097/j.pain.0000000000002879 · Cited by 57 · see citing works

Age-Related Differences in Psychosocial Function of Children with Craniofacial Anomalies

Volpicelli, E. J., Pfaff, M. J., Hakimi, K. N., Bradley, J. P., Solem, R. C., & Lee, J. C. (2017) · Plastic & Reconstructive Surgery · doi:10.1097/prs.0000000000003687 · Cited by 55 · see citing works

Disentangling the Sleep-Pain Relationship in Pediatric Chronic Pain: The Mediating Role of Internalizing Mental Health Symptoms

Pavlova, M., Ference, J., Hancock, M., & Noel, M. E. (2017) · Pain Research and Management · doi:10.1155/2017/1586921 · Cited by 55 · see citing works

An examination of the PROMIS® pediatric instruments to assess mobility in children with cerebral palsy

Kratz, A. L., Slavin, M. D., Mulcahey, M. J., Jette, A. M., Tulsky, D. S., & Haley, S. M. (2013) · Quality of Life Research · doi:10.1007/s11136-013-0397-6 · Cited by 54 · see citing works

Comparisons Across Depression Assessment Instruments in Adolescence and Young Adulthood: An Item Response Theory Study Using Two Linking Methods

Olino, T. M., Yu, L., McMakin, D. L., Forbes, E. E., Seeley, J. R., Lewinsohn, P. M., & Pilkonis, P. A. (2013) · Research on Child and Adolescent Psychopathology · doi:10.1007/s10802-013-9756-6 · Cited by 52 · see citing works

Item generation for a proxy health related quality of life measure in very young children

Verstraete, J., Ramma, L., & Jelsma, J. M. (2020) · Health and Quality of Life Outcomes · doi:10.1186/s12955-020-1271-1 · Cited by 52 · see citing works

A phase I/II study of ribociclib following radiation therapy in children with newly diagnosed diffuse intrinsic pontine glioma (DIPG)

DeWire-Schottmiller, M. D., Fuller, C. E., Hummel, T. R., Chow, L. M. L., Salloum, R., de Blank, P. M. K., Pater, L. E., Lawson, S. A., Zhu, X., Dexheimer, P. J., et al. (2020) · Journal of Neuro-Oncology · doi:10.1007/s11060-020-03641-2 · Cited by 49 · see citing works

Acceptance-based interoceptive exposure for young children with functional abdominal pain

Zucker, N., Mauro, C., Craske, M., Wagner, H. R., Datta, N., Hopkins, H., Caldwell, K., Kiridly, A., Marsan, S., Maslow, G., et al. (2017) · Behaviour Research and Therapy · doi:10.1016/j.brat.2017.07.009 · Cited by 47 · see citing works

Multi‐disciplinary collaborative consensus guidance statement on the assessment and treatment of p ostacute sequelae of SARS‐CoV ‐2 infection ( PASC ) in children and adolescents

Malone, L. A., Morrow, A. K., Chen, Y., Curtis, D. J., de Ferranti, S. D., Desai, M., Fleming, T. K., Giglia, T. M., Hall, T. A., Henning, E., et al. (2022) · PM&R · doi:10.1002/pmrj.12890 · Cited by 46 · see citing works

Unravelling the Relationship Between Parent and Child PTSD and Pediatric Chronic Pain: the Mediating Role of Pain Catastrophizing

Neville, A., Soltani, S., Pavlova, M., & Noel, M. E. (2017) · Journal of Pain · doi:10.1016/j.jpain.2017.10.004 · Cited by 46 · see citing works

Dutch–Flemish translation of nine pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)®

Haverman, L., Grootenhuis, M. A., Raat, H., van Rossum, M. A. J., Broeder, E. V. D., Hoppenbrouwers, K., Correia, H., Cella, D. F., Roorda, L. D., & Terwee, C. B. (2015) · Quality of Life Research · doi:10.1007/s11136-015-0966-y · Cited by 45 · see citing works

Long-Term Effect of Multiple Operations on Psychosocial Function in Teenage Cleft Lip and Palate Patients

Potemra, H. M. K., Lin, J. W., Bertrand, A. A., Leon, F. S. D., Alford, J., Hu, A. C., Wilson, L. F., & Lee, J. C. (2020) · Plastic & Reconstructive Surgery · doi:10.1097/prs.0000000000006905 · Cited by 43 · see citing works

Anxiety, depression and post‐traumatic stress disorder symptoms in adolescents during the COVID‐19 outbreak and associated factors

Selçuk, E. B., Demir, A. Ç., Erbay, L. G., Özcan, Ö., Gürer, H., & Dönmez, Y. E. (2021) · International Journal of Clinical Practice · doi:10.1111/ijcp.14880 · Cited by 43 · see citing works

Food allergy-related bullying and associated peer dynamics among Black and White children in the FORWARD study

Brown, D. A., Negris, O., Gupta, R. S., Herbert, L., Lombard, L. S., Bozen, A., Assa’ad, A., Chura, A., Andy-Nweye, A., Fox, S., et al. (2020) · Annals of Allergy Asthma & Immunology · doi:10.1016/j.anai.2020.10.013 · Cited by 41 · see citing works

What Factors Contribute to Headache-Related Disability in Teens?

Kemper, K. J., Heyer, G. L., Pakalnis, A., & Binkley, P. F. (2015) · Pediatric Neurology · doi:10.1016/j.pediatrneurol.2015.10.024 · Cited by 40 · see citing works

Concept‐elicitation phase for the development of the pediatric patient‐reported outcome version of the Common Terminology Criteria for Adverse Events

Weaver, M. S., Reeve, B. B., Baker, J. N., Martens, C. E., McFatrich, M., Mowbray, C., Palma, D., Sung, L., Tomlinson, D., Withycombe, J. S., et al. (2015) · Cancer · doi:10.1002/cncr.29702 · Cited by 39 · see citing works

From the Child’s Word to Clinical Intervention: Novel, New, and Innovative Approaches to Symptoms in Pediatric Palliative Care

Brock, K. E., Wolfe, J., & Ullrich, C. (2018) · Children · doi:10.3390/children5040045 · Cited by 58 · see citing works

Factors Related to Agreement Between Child and Caregiver Report of Child Functioning With Chronic Pain: PROMIS Pediatric and Parent Proxy Report

Birnie, K. A., Richardson, P. A., Rajagopalan, A. V., & Bhandari, R. P. (2020) · The Clinical Journal of Pain · doi:10.1097/ajp.0000000000000794 · Cited by 38 · see citing works

Development of a New Module of the FACE-Q for Children and Young Adults with Diverse Conditions Associated with Visible and/or Functional Facial Differences

Longmire, N. M., Riff, K. W. Y. W., O’Hara, J., Aggarwala, S., Allen, G., Bulstrode, N., Forrest, C. R., French, B. M., Goodacre, T., Marucci, D. D., et al. (2017) · Facial Plastic Surgery · doi:10.1055/s-0037-1606361 · Cited by 36 · see citing works

Age‐based norm‐reference values for the Child Oral and Motor Proficiency Scale

Pados, B. F., Thoyre, S. M., & Park, J. (2018) · Acta Paediatrica · doi:10.1111/apa.14299 · Cited by 36 · see citing works

Social Deprivation and Congenital Upper Extremity Differences—An Assessment Using PROMIS

Wall, L. B., Wright, M. A., Samora, J. B., Bae, D. S., Steinman, S. E., & Goldfarb, C. A. (2020) · The Journal Of Hand Surgery · doi:10.1016/j.jhsa.2020.08.017 · Cited by 35 · see citing works

PROMIS Peer Relationships Short Form: How Well Does Self-Report Correlate With Data From Peers?

Devine, K. A., Willard, V. W., Hocking, M. C., Stapleton, J. L., Rotter, D., Bukowski, W. M., & Noll, R. B. (2018) · Journal of Pediatric Psychology · doi:10.1093/jpepsy/jsy038 · Cited by 35 · see citing works

A cluster of high psychological and somatic symptoms in children with idiopathic scoliosis predicts persistent pain and analgesic use 1 year after spine fusion

Voepel‐Lewis, T., Caird, M. S., Tait, A. R., Farley, F. A., Li, Y., Malviya, S. V., Hassett, A. L., Weber, M., Currier, E., de Sibour, T., et al. (2018) · Pediatric Anesthesia · doi:10.1111/pan.13467 · Cited by 34 · see citing works

Anxiety and Depressive Symptoms in Juvenile Idiopathic Arthritis Correlate With Pain and Stress Using PROMIS Measures

Fair, D. C., Nocton, J. J., Panepinto, J. A., Yan, K., Zhang, J., Rodriguez, M. M., & Olson, J. C. (2021) · The Journal of Rheumatology · doi:10.3899/jrheum.210101 · Cited by 35 · see citing works

Measuring global health-related quality of life in children undergoing hematopoietic stem cell transplant: a longitudinal study

Rodday, A. M., Terrin, N. C., Parsons, S. K., & Study, O. B. O. T. J. T. R. S. A. T. H.-C. (2013) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-11-26 · Cited by 33 · see citing works

Performance of Pediatric PROMIS CATs in Children With Upper Extremity Fractures

Gerull, W. D., Okoroafor, U. C., Guattery, J. M., Goldfarb, C. A., Wall, L. B., & Calfee, R. P. (2018) · Hand · doi:10.1177/1558944718793195 · Cited by 33 · see citing works

The psychometric development and initial validation of the DCI-A short form for adolescent therapeutic community treatment process

Stucky, B. D., Edelen, M. O., Vaughan, C., Tucker, J. S., & Butler, J. A. (2013) · Journal of Substance Abuse Treatment · doi:10.1016/j.jsat.2013.12.005 · Cited by 32 · see citing works

Translation, psychometric validation, and baseline results of the Patient‐Reported Outcomes Measurement Information System (PROMIS) pediatric measures to assess health‐related quality of life of patients with pediatric lymphoma in Malawi

Westmoreland, K. D., Reeve, B. B., Amuquandoh, A., van der Gronde, T., Manthalu, O., Correia, H., Stanley, C., Itimu, S., Salima, A., Chikasema, M., et al. (2018) · Pediatric Blood & Cancer · doi:10.1002/pbc.27353 · Cited by 32 · see citing works

Development of the Pediatric Disability Inventory-Patient Reported Outcome (PEDI-PRO) measurement conceptual framework and item candidates

Kramer, J. M., & Schwartz, A. (2018) · Scandinavian Journal of Occupational Therapy · doi:10.1080/11038128.2018.1502344 · Cited by 30 · see citing works

Comparison of pediatric self reports and parent proxy reports utilizing PROMIS: Results from a chiropractic practice-based research network

Alcantara, J., Ohm, J., & Alcantara, J. (2017) · Complementary Therapies in Clinical Practice · doi:10.1016/j.ctcp.2017.08.003 · Cited by 29 · see citing works

Reflection on modern methods: planned missing data designs for epidemiological research

Rioux, C., Lewin, A., Odejimi, O. A., & Little, T. D. (2020) · International Journal of Epidemiology · doi:10.1093/ije/dyaa042 · Cited by 29 · see citing works

Validation of the caregiver Pediatric Patient‐Reported Outcomes Version of the Common Terminology Criteria for Adverse Events measure

Reeve, B. B., McFatrich, M., Lin, L., Lucas, N. R., Mack, J. W., Jacobs, S. S., Withycombe, J. S., Baker, J. N., Freyer, D. R., & Hinds, P. S. (2020) · Cancer · doi:10.1002/cncr.33389 · Cited by 29 · see citing works

The Communication Benefits of Participation in Camp Dream. Speak. Live.: An Extension and Replication

Byrd, C. T., Winters, K. L., Young, M. M., Werle, D., Croft, R. L., Hampton, E., Coalson, G. A., White, A. Z., & Gkalitsiou, Z. (2021) · Seminars in Speech and Language · doi:10.1055/s-0041-1723843 · Cited by 29 · see citing works

A new computerized adaptive test advancing the measurement of health-related quality of life (HRQoL) in children: the Kids-CAT

Devine, J., Otto, C., Rose, M., Barthel, D., Fischer, F. H., Mülhan, H., Nolte, S., Schmidt, S., Ottová-Jordan, V., & Ravens‐Sieberer, U. (2014) · Quality of Life Research · doi:10.1007/s11136-014-0812-7 · Cited by 30 · see citing works

Gender and Satisfaction with Appearance in Children with Craniofacial Anomalies

Shapiro, D. N., Waljee, J. F., Ranganathan, K., Buchman, S. R., & Warschausky, S. A. (2015) · Plastic & Reconstructive Surgery · doi:10.1097/prs.0000000000001803 · Cited by 28 · see citing works

Validation of the Observer-Reported Communication Ability (ORCA) Measure for Individuals With Angelman Syndrome

Zigler, C. K., Lin, L., McFatrich, M., Lucas, N. R., Gordon, K. L., Jones, H. N., Berent, A., Panagoulias, J., Evans, P., & Reeve, B. B. (2023) · American Journal on Intellectual and Developmental Disabilities · doi:10.1352/1944-7558-128.3.204 · Cited by 28 · see citing works

Mobile Health Technology for Pediatric Symptom Monitoring

Vaughn, J., Gollarahalli, S., Shaw, R. J., Docherty, S. L., Yang, Q., Malhotra, C., Summers-Goeckerman, E., & Shah, N. (2020) · Nursing Research · doi:10.1097/nnr.0000000000000403 · Cited by 27 · see citing works

Mobility devices for children with physical disabilities: use, satisfaction and impact on participation

Guðjónsdóttir, B., & Gudmundsdottir, S. B. (2021) · Disability and Rehabilitation Assistive Technology · doi:10.1080/17483107.2021.1913519 · Cited by 27 · see citing works

Youth Anxiety About Political News

Caporino, N. E., Exley, S. L., & Latzman, R. D. (2020) · Child Psychiatry & Human Development · doi:10.1007/s10578-020-00972-z · Cited by 25 · see citing works

Supporting international networks through platforms for standardised data collection—the European Registries for Rare Endocrine Conditions (EuRRECa) model

Ali, S., Bryce, J., Smythe, C., Hytiris, M. L., Zurita, A. L. P., Appelman‐Dijkstra, N. M., & Ahmed, S. F. (2021) · Endocrine · doi:10.1007/s12020-021-02617-0 · Cited by 25 · see citing works

Emotional Aspects of Pediatric Post-Intensive Care Syndrome Following Traumatic Brain Injury

Bradbury, K. R., Williams, C. N., Leonard, S. S., Holding, E. Z., Turner, E. M., Wagner, A., Piantino, J. A., Luther, M. N., & Hall, T. A. (2021) · Journal of Child & Adolescent Trauma · doi:10.1007/s40653-020-00332-y · Cited by 25 · see citing works

Outcome Monitoring and Clinical Decision Support in Polyarticular Juvenile Idiopathic Arthritis

Buckley, L. H., Ware, E. P., Kreher, G., Wiater, L., Mehta, J., & Burnham, J. M. (2019) · The Journal of Rheumatology · doi:10.3899/jrheum.190268 · Cited by 24 · see citing works

A National Survey of U.S. Adolescent Sleep Duration, Timing, and Social Jetlag During the COVID-19 Pandemic

Wesley, K. L., Cooper, E. H., Brinton, J. T., Meier, M. R., Honaker, S. M., & Simon, S. L. (2022) · Behavioral Sleep Medicine · doi:10.1080/15402002.2022.2086871 · Cited by 24 · see citing works

Lack of physician-patient communication as a key factor associated with malpractice litigation in neonatal brachial plexus palsy

Domino, J. S., McGovern, C., Chang, K. W. C., Carlozzi, N. E., & Yang, L. J. ‐. (2013) · Journal of Neurosurgery Pediatrics · doi:10.3171/2013.11.peds13268 · Cited by 24 · see citing works

Refining the Pediatric Evaluation of Disability Inventory–Patient‐Reported Outcome ( PEDI ‐ PRO ) item candidates: interpretation of a self‐reported outcome measure of functional performance by young people with neurodevelopmental disabilities

Kramer, J. M., & Schwartz, A. (2017) · Developmental Medicine & Child Neurology · doi:10.1111/dmcn.13482 · Cited by 24 · see citing works

Agreement Between Parent Proxy Reports and Self-Reports of Adolescent Emotional Distress

Kim, C., Choi, H., Ko, H., & Park, C. G. (2018) · The Journal of School Nursing · doi:10.1177/1059840518792073 · Cited by 24 · see citing works

Frontiers in congenital disorders of glycosylation consortium, a cross-sectional study report at year 5 of 280 individuals in the natural history cohort

Lam, C. C., Scaglia, F., Berry, G. T., Larson, A. A., Sarafoglou, K., Andersson, H. C., Sklirou, E., Tan, Q. K. ‐., Starosta, R. T., Sadek, M., et al. (2024) · Molecular Genetics and Metabolism · doi:10.1016/j.ymgme.2024.108509 · Cited by 23 · see citing works

Engaging the Voices of Children: A Scoping Review of How Children and Adolescents Are Involved in the Development of Quality-of-Life–Related Measures

Willis, J., Zeratkaar, D., ten Hove, J., Rosenbaum, P., & Ronen, G. M. (2020) · Value in Health · doi:10.1016/j.jval.2020.11.007 · Cited by 23 · see citing works

Health‐Related Quality of Life Components in Children With Neonatal Brachial Plexus Palsy: A Qualitative Study

Chang, K. W. C., Austin, A. M., Yeaman, J., Phillips, L., Kratz, A. L., Yang, L. J. ‐., & Carlozzi, N. E. (2016) · PM&R · doi:10.1016/j.pmrj.2016.08.002 · Cited by 23 · see citing works

Agreement between proxy- and self-report scores on PROMIS health-related quality of life domains in pediatric burn survivors: a National Institute on Disability, Independent Living, and Rehabilitation Research Burn Model System Study

Bamer, A. M., McMullen, K. A., Wolf, S. E., Stewart, B. T., Kazis, L. E., Rencken, C. A., & Amtmann, D. (2021) · Quality of Life Research · doi:10.1007/s11136-021-02796-3 · Cited by 22 · see citing works

Effects of an exercise program during pediatric stem cell transplantation: A randomized controlled trial

Smith, C. V., Farhat, R. M., Fern‐Buneo, A., Purrington, H., Cobb, E., Matson, L., Kang, P. T., Beebe, K. L., Campbell, C., Schwalbach, C., et al. (2022) · Pediatric Blood & Cancer · doi:10.1002/pbc.29618 · Cited by 22 · see citing works

Quality of life in children with epilepsy: How does it compare with the quality of life in typical children and children with cerebral palsy?

Mezgebe, M., Akhtar-Danesh, G.-G., Streiner, D. L., Fayed, N., Rosenbaum, P., & Ronen, G. M. (2015) · Epilepsy & Behavior · doi:10.1016/j.yebeh.2015.09.009 · Cited by 22 · see citing works

Scoping review of patient- and family-oriented outcomes and measures for chronic pediatric disease

Khangura, S. D., Karaceper, M. D., Trakadis, Y. J., Mitchell, J. J., Chakraborty, P. K., Tingley, K., Coyle, D., Grosse, S. D., Kronick, J. B., Laberge, A., et al. (2015) · BMC Pediatrics · doi:10.1186/s12887-015-0323-x · Cited by 22 · see citing works

Using the Patient Reported Outcomes Measurement Information System to Evaluate Psychosocial Functioning among Children with Craniofacial Anomalies

Shapiro, D. N., Waljee, J. F., Ranganathan, K., Buchman, S. R., & Warschausky, S. A. (2015) · Plastic & Reconstructive Surgery · doi:10.1097/prs.0000000000001269 · Cited by 22 · see citing works

Randomized clinical trial of parental psychosocial stress management to improve asthma outcomes

Teach, S. J., Shelef, D. Q., Fousheé, N., Horn, I. B., Yadav, K., Wang, Y., Rand, C. S., & Streisand, R. M. (2019) · Journal of Asthma · doi:10.1080/02770903.2019.1665063 · Cited by 22 · see citing works

A Survey of Patient-Relevant Outcomes in Pediatric Craniopharyngioma: Focus on Hypothalamic Obesity

Craven, M., Crowley, J. H., Chiang, L., Kline, C., Malbari, F., Hocking, M. C., & McCormack, S. E. (2022) · Frontiers in Endocrinology · doi:10.3389/fendo.2022.876770 · Cited by 21 · see citing works

Recent advances in patient and proxy-reported quality of life research

Bandayrel, K., & Johnston, B. C. (2014) · Health and Quality of Life Outcomes · doi:10.1186/s12955-014-0110-7 · Cited by 21 · see citing works

Using Digital Measurement–Based Care for the Treatment of Anxiety and Depression in Children and Adolescents: Observational Retrospective Analysis of Bend Health Data

Huffman, L. G., Lawrence‐Sidebottom, D., Huberty, J., Roots, M., Roots, K., Parikh, A., Guerra, R., & Weiser, J. (2023) · JMIR Pediatrics and Parenting · doi:10.2196/46154 · Cited by 21 · see citing works

Quality of Life Among Parents of Adolescent and Young Adult Brain Tumor Survivors

Buchbinder, D. K., Fortier, M. A., Osann, K., Wilford, J., Shen, V., Torno, L. R., Sender, L. S., Parsons, S. K., & Wenzel, L. B. (2017) · Journal of Pediatric Hematology/Oncology · doi:10.1097/mph.0000000000000947 · Cited by 21 · see citing works

Adjustment Correlates of Social Media Engagement Among Early Adolescents

Swirsky, J. M., Rosie, M., & Xie, H. (2021) · Journal of Youth and Adolescence · doi:10.1007/s10964-021-01421-3 · Cited by 20 · see citing works

Factor Structure and Psychometric Properties of the Child Oral and Motor Proficiency Scale

Park, J., Pados, B. F., Thoyre, S. M., Estrem, H., & McComish, C. (2019) · Journal of Early Intervention · doi:10.1177/1053815119841092 · Cited by 20 · see citing works

Post-Intensive Care Syndrome in a Cohort of School-Aged Children and Adolescent ICU Survivors: The Importance of Follow-up in the Acute Recovery Phase

Hall, T. A., Greene, R. K., Lee, J. B., Leonard, S. S., Bradbury, K. R., Drury, K., Recht, G. O., Randall, J., Norr, M. E., & Williams, C. N. (2022) · Journal of Pediatric Intensive Care · doi:10.1055/s-0042-1747935 · Cited by 20 · see citing works

Children with Functional Nausea—Comorbidities outside the Gastrointestinal Tract

Tarbell, S. E., Sullivan, E. C., Meegan, C., & Fortunato, J. E. (2020) · The Journal of Pediatrics · doi:10.1016/j.jpeds.2020.04.019 · Cited by 19 · see citing works

Moderate Weightbearing Restrictions Are Associated with Worse Depressive Symptoms and Anxiety in Children Aged 5 to 7 Years with Perthes Disease

Do, D.-H., Valencia, A. A., Jo, C.-H., & Kim, H. K. W. (2021) · Clinical Orthopaedics and Related Research · doi:10.1097/corr.0000000000002010 · Cited by 19 · see citing works

Parental self-efficacy managing a child’s medications and treatments: adaptation of a PROMIS measure

Foster, C. C., Blackwell, C. K., Kan, K., Morales, L., Cella, D. F., & Shaunfield, S. L. (2023) · Journal of Patient-Reported Outcomes · doi:10.1186/s41687-023-00549-z · Cited by 19 · see citing works

Exploring listening-related fatigue in children with and without hearing loss using self-report and parent-proxy measures

Adams, B., Thornton, S. K., Naylor, G., Spriggs, R. V., Wiggins, I. M., & Kitterick, P. T. (2023) · Frontiers in Pediatrics · doi:10.3389/fped.2023.1127578 · Cited by 19 · see citing works

Maternal Trauma Exposure and Childhood Anxiety Outcomes: Examining Psychosocial Mechanisms of Risk

Robinson, B. A., Hendrix, C. L., Krakovsky, H. S., Smith, A. K., & Brennan, P. A. (2018) · Research on Child and Adolescent Psychopathology · doi:10.1007/s10802-018-0463-1 · Cited by 19 · see citing works

Quality of patient-reported outcomes used for quality of life, physical function, and functional capacity in trials of childhood fractures

Marson, B. A., Craxford, S., Deshmukh, S. R., Grindlay, D. J. C., Manning, J. C., & Ollivere, B. J. (2020) · The Bone & Joint Journal · doi:10.1302/0301-620x.102b12.bjj-2020-0732.r2 · Cited by 19 · see citing works

Linking self-perceived cognitive functioning questionnaires using item response theory: The subjective cognitive decline initiative.

Rabin, L. A., Initiative, T. A. D. N., Sikkes, S. A. M., Tommet, D., Jones, R. N., Crane, P. K., Elbulok-Charcape, M. M., Dubbelman, M. A., Koscik, R. L., Amariglio, R. E., et al. (2023) · Neuropsychology · doi:10.1037/neu0000888 · Cited by 19 · see citing works

Patient-Reported oral health outcome measurement for children and adolescents

Liu, H., Hays, R. D., Marcus, M., Coulter, I. D., Maida, C. A., Ramos‐Gomez, F., Shen, J., Wang, Y., Spolsky, V. W., Lee, S., et al. (2016) · BMC Oral Health · doi:10.1186/s12903-016-0293-x · Cited by 18 · see citing works

Rates of Trauma Exposure and Posttraumatic Stress in a Pediatric Digital Mental Health Intervention: Retrospective Analysis of Associations With Anxiety and Depressive Symptom Improvement Over Time

Lawrence‐Sidebottom, D., Huffman, L. G., Beam, A. B., Guerra, R., Parikh, A., Roots, M., & Huberty, J. (2024) · JMIR Pediatrics and Parenting · doi:10.2196/55560 · Cited by 17 · see citing works

Stakeholder informed development of the Emotion Awareness and Skills Enhancement team–based program (EASE-Teams)

Beck, K. B., Northrup, J. B., Breitenfeldt, K. E., Porton, S., Day, T. N., MacKenzie, K. T., Conner, C. M., & Mazefsky, C. A. (2021) · Autism · doi:10.1177/13623613211061936 · Cited by 21 · see citing works

Patient-reported Outcomes Measurement Information System (PROMIS) Scores for Children With Brachial Plexus Birth Injury

Manske, M. C., Abarca, N. E., Letzelter, J. P., & James, M. A. (2021) · Journal of Pediatric Orthopaedics · doi:10.1097/bpo.0000000000001754 · Cited by 17 · see citing works

Pediatric lymphoma patients in Malawi present with poor health‐related quality of life at diagnosis and improve throughout treatment and follow‐up across all Pediatric PROMIS‐25 domains

Ellis, G. K., Chapman, H., Manda, A., Salima, A., Itimu, S., Banda, G., Séguin, R., Manda, G. E., Butia, M., Huibers, M. H. W., et al. (2021) · Pediatric Blood & Cancer · doi:10.1002/pbc.29257 · Cited by 17 · see citing works

Brief, parent-led, transdiagnostic cognitive-behavioral teletherapy for youth with emotional problems related to the COVID-19 pandemic

Guzick, A. G., Leong, A. W., Dickinson, E. M., Schneider, S. C., Zopatti, K., Manis, J., Meinert, A. C., Barth, A. M., Perez, M., Campo, D. M., et al. (2022) · Journal of Affective Disorders · doi:10.1016/j.jad.2022.01.034 · Cited by 16 · see citing works

Patient-reported outcome measures and value-based medicine in paediatrics: a timely review

Tan, Y. H., Siew, J. X., Thomas, B., & Ng, K.-C. (2021) · Singapore Medical Journal · doi:10.11622/smedj.2021102 · Cited by 16 · see citing works

Irritability and Emotional Impulsivity as Core Feature of ADHD and ODD in Children

Junghänel, M., Thöne, A., Ginsberg, C., Görtz‐Dorten, A., Frenk, F., Mücke, K., Treier, A., Labarga, S. Z., Banaschewski, T., Millenet, S., et al. (2022) · Journal of Psychopathology and Behavioral Assessment · doi:10.1007/s10862-022-09974-8 · Cited by 15 · see citing works

RESEARCH Development of six PROMIS pediatrics proxy-report item banks

Irwin, D. E., Gross, H. E., Stucky, B. D., Thissen, D., DeWitt, E. M., Lai, J. S., Amtmann, D., Khastou, L., Varni, J. W., & Dewalt, D. A. (2013)

PROMIS® Parent Proxy Report Scales: an item response theory analysis of the parent proxy report item banks

Varni, J. W., Thissen, D., Stucky, B. D., Liu, Y., Gorder, H., Irwin, D. E., DeWitt, E. M., Lai, J., Amtmann, D., & DeWalt, D. A. (2011) · Quality of Life Research · doi:10.1007/s11136-011-0025-2 · Cited by 152 · see citing works

Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study

Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A. (2009) · Health and Quality of Life Outcomes · doi:10.1186/1477-7525-7-3 · Cited by 290 · see citing works

Sampling plan and patient characteristics of the PROMIS pediatrics large-scale survey

Irwin, D. E., Stucky, B. D., Thissen, D., DeWitt, E. M., Lai, J. S., Yeatts, K., Varni, J. W., & DeWalt, D. A. (2010) · Quality of Life Research · doi:10.1007/s11136-010-9618-4 · Cited by 175 · see citing works

A Parent-Administered But Child-Completed Patient-Reported Outcome (PRO) Provides a Measure with Content Validity That Is Valid and Reliable for Use in Children Aged 6 to 11 Years

Arbuckle, R., & Marshall, C. (2013) · Value in Health · doi:10.1016/j.jval.2013.08.093