Cited by 290Psychometric Methodologies and TestingHealth Education and ValidationSurvey Methodology and Nonresponse

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Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study

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Irwin, Debra E, Varni, James W, Yeatts, Karin, DeWalt, Darren A·2009·Health and Quality of Life Outcomes

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Abstract

BACKGROUND: The evaluation of patient-reported outcomes (PROs) in health care has seen greater use in recent years, and methods to improve the reliability and validity of PRO instruments are advancing. This paper discusses the cognitive interviewing procedures employed by the Patient Reported Outcomes Measurement Information System (PROMIS) pediatrics group for the purpose of developing a dynamic, electronic item bank for field testing with children and adolescents using novel computer technology. The primary objective of this study was to conduct cognitive interviews with children and adolescents to gain feedback on items measuring physical functioning, emotional health, social health, fatigue, pain, and asthma-specific symptoms. METHODS: A total of 88 cognitive interviews were conducted with 77 children and adolescents across two sites on 318 items. From this initial item bank, 25 items were deleted and 35 were revised and underwent a second round of cognitive interviews. A total of 293 items were retained for field testing. RESULTS: Children as young as 8 years of age were able to comprehend the majority of items, response options, directions, recall period, and identify problems with language that was difficult for them to understand. Cognitive interviews indicated issues with item comprehension on several items which led to alternative wording for these items. CONCLUSION: Children ages 8-17 years were able to comprehend most item stems and response options in the present study. Field testing with the resulting items and response options is presently being conducted as part of the PROMIS Pediatric Item Bank development process.

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Authors: Irwin, D. E., Varni, J. W., Yeatts, K., & DeWalt, D. A.
Affiliations: University of North Carolina at Chapel Hill (US)
Texas A&M University (US)
Corresponding author: Irwin, Debra E
ORCID: Irwin, Debra E
Varni, James W
DeWalt, Darren A
Venue: Health and Quality of Life Outcomes
Publisher: Springer Science and Business Media LLC
Published: 2009-01-23
Volume: 7
Issue: 1
Pages: 3-3
ISSN: 1477-7525 (ISSN-L)
DOI: 10.1186/1477-7525-7-3
PMC: PMC2642767
OpenAlex: W2165452399
Cited by: 290
References: 20
Citations by year: 2026: 10 · 2025: 18 · 2024: 25 · 2023: 23 · 2022: 22 · 2021: 25 · 2020: 20 · 2019: 11 · 2018: 17 · 2017: 18 · 2016: 21 · 2015: 12 · 2014: 17 · 2013: 15 · 2012: 10
FWCI: 15.79
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/2.0 (tdm)
Locations: Health and Quality of Life Outcomes (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
OakTrust (Texas A&M University Libraries) (submittedVersion)
Carolina Digital Repository (University of North Carolina at Chapel Hill) (submittedVersion, cc-by)
Carolina Digital Repository (University of North Carolina at Chapel Hill) (submittedVersion)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
UNC Libraries
Funders: National Institutes of Health
National Institute of Arthritis and Musculoskeletal and Skin Diseases (U01AR052181)
Topics: Social Sciences › Decision Sciences › Management Science and Operations Research › Psychometric Methodologies and Testing
Health Sciences › Nursing › Research and Theory › Health Education and Validation
Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
Keywords: cognitive interviewing, PROMIS, patient-reported outcomes, children and adolescents, item comprehension, item wording, physical function, emotional well-being, social health, fatigue, pain, asthma symptoms
MeSH terms: Adolescent, Child, Cognition, Female, Health Status, Humans, Information Systems, Interviews as Topic, Male, Pediatrics, Outcome Assessment, Health Care, Databases as Topic

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Cognitive interviewing methodology in the development of a pediatric item bank: a patient reported outcomes measurement information system (PROMIS) study

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