Participant retention practices in longitudinal clinical research studies with high retention rates

Abshire, Martha; Dinglas, Victor D.; Cajita, Maan Isabella A.; Eakin, Michelle N.; Needham, Dale M.; Himmelfarb, Cheryl Dennison

doi:10.1186/s12874-017-0310-z

Cited by 274Ethics in Clinical ResearchSurvey Methodology and NonresponseStatistical Methods in Epidemiology

Participant retention practices in longitudinal clinical research studies with high retention rates

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Abshire, Martha, Dinglas, Victor D., Cajita, Maan Isabella A., Eakin, Michelle N., Needham, Dale M., Himmelfarb, Cheryl Dennison·2017·BMC Medical Research Methodology

DOI 10.1186/s12874-017-0310-zPMC PMC5319074

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Abstract

BACKGROUND: There is a need for improving cohort retention in longitudinal studies. Our objective was to identify cohort retention strategies and implementation approaches used in studies with high retention rates. METHODS: Longitudinal studies with ≥200 participants, ≥80% retention rates over ≥1 year of follow-up were queried from an Institutional Review Board database at a large research-intensive U.S. university; additional studies were identified through networking. Nineteen (86%) of 22 eligible studies agreed to participate. Through in-depth semi-structured interviews, participants provided retention strategies based on themes identified from previous literature reviews. Synthesis of data was completed by a multidisciplinary team. RESULTS: The most commonly used retention strategies were: study reminders, study visit characteristics, emphasizing study benefits, and contact/scheduling strategies. The research teams were well-functioning, organized, and persistent. Additionally, teams tailored their strategies to their participants, often adapting and innovating their approaches. CONCLUSIONS: These studies included specialized and persistent teams and utilized tailored strategies specific to their cohort and individual participants. Studies' written protocols and published manuscripts often did not reflect the varied strategies employed and adapted through the duration of study. Appropriate retention strategy use requires cultural sensitivity and more research is needed to identify how strategy use varies globally.

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High retention rates (75% from IND entered OP/MAINT) and attainment of adequate exposure requirements add to the comprehensiveness of the data.
“Furthermore, the high retention rates (75% of patients from the IND phase entered the OP/MAINT phase) and attainment of adequate exposure requirements (as outlined in the International Council for Harmonisation [ICH] E1 guideline) 40 adds to the comprehensiveness of the data collected during this longitudinal study.41,42”
From Esketamine Nasal Spray Plus Oral Antidepressant in Patients With Treatment-Resistant Depression (2020) · cites this paper as [41]
The Background (page unavailable) says participant retention is vital to the power and internal validity of longitudinal research, supporting the general point that retention strengthens the data. The Results (page unavailable) concern studies with at least 80% retention; this paper does not establish the citing study’s 75% transition from IND to OP/MAINT or its exposure requirements. The ICH guideline is cited separately as reference 40. (LLM, conf=0.85)
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An Introduction to Qualitative Research
Flick, U. (2023) · SAGE Publications Ltd eBooks · doi:10.4135/9781036231712 · Cited by 9,550 · see citing works
An Introduction to Qualitative Research
Croker, R. A. (2009) · Palgrave Macmillan UK eBooks · doi:10.1057/9780230239517_1 · Cited by 2,334 · see citing works
The Uniform Data Set (UDS): Clinical and Cognitive Variables and Descriptive Data From Alzheimer Disease Centers
Morris, J. C., Weintraub, S., Chui, H. C., Cummings, J., DeCarli, C., Ferris, S., Foster, N. L., Galasko, D., Graff-Radford, N., Peskind, E. R., et al. (2006) · Alzheimer Disease & Associated Disorders · doi:10.1097/01.wad.0000213865.09806.92 · Cited by 950 · see citing works
Look AHEAD (Action for Health in Diabetes): design and methods for a clinical trial of weight loss for the prevention of cardiovascular disease in type 2 diabetes
The Look AHEAD Research Group (2003) · Controlled Clinical Trials · doi:10.1016/s0197-2456(03)00064-3 · Cited by 767 · see citing works
How much loss to follow-up is acceptable in long-term randomised trials and prospective studies?
Fewtrell, M. S., Kennedy, K., Singhal, A., Martin, R. M., Ness, A., Hadders-Algra, M., Koletzko, B., & Lucas, A. (2008) · Archives of Disease in Childhood · doi:10.1136/adc.2007.127316 · Cited by 601 · see citing works
Active Surveillance Program for Prostate Cancer: An Update of the Johns Hopkins Experience
Tosoian, J. J., Trock, B. J., Landis, P., Feng, Z., Epstein, J. I., Partin, A. W., Walsh, P. C., & Carter, H. B. (2011) · Journal of Clinical Oncology · doi:10.1200/jco.2010.32.8112 · Cited by 595 · see citing works
DNA Methylation Markers and Early Recurrence in Stage I Lung Cancer
Brock, M. V., Hooker, C. M., Ota-Machida, E., Han, Y. K., Guo, M., Ames, S., Glöckner, S. C., Piantadosi, S., Gabrielson, E. W., Pridham, G., et al. (2008) · New England Journal of Medicine · doi:10.1056/nejmoa0706550 · Cited by 594 · see citing works
A systematic review of the effect of retention methods in population-based cohort studies
Booker, C. L., Harding, S., & Benzeval, M. (2011) · BMC Public Health · doi:10.1186/1471-2458-11-249 · Cited by 302 · see citing works
One year outcomes in patients with acute lung injury randomised to initial trophic or full enteral feeding: prospective follow-up of EDEN randomised trial
Needham, D. M., Dinglas, V. D., Bienvenu, O. J., Colantuoni, E., Wozniak, A. W., Rice, T. W., Hopkins, R. O., & for the NIH NHLBI ARDS Network (2013) · BMJ · doi:10.1136/bmj.f1532 · Cited by 278 · see citing works
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Brueton, V. C., Tierney, J. F., Stenning, S., Meredith, S., Harding, S., Nazareth, I., & Rait, G. (2014) · BMJ Open · doi:10.1136/bmjopen-2013-003821 · Cited by 253 · see citing works
Systematic review identifies number of strategies important for retaining study participants
Robinson, K. A., Dennison, C. R., Wayman, D. M., Pronovost, P. J., & Needham, D. M. (2007) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2006.11.023 · Cited by 222 · see citing works
Self-citation
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Robinson, K. A., Dinglas, V. D., Sukrithan, V., Yalamanchilli, R., Méndez-Téllez, P. A., Himmelfarb, C. D., & Needham, D. M. (2015) · Journal of Clinical Epidemiology · doi:10.1016/j.jclinepi.2015.04.013 · Cited by 165 · see citing works
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Longitudinal Study of the Ocular Complications of AIDS
Jabs, D. A., Natta, M. L. V., Holbrook, J. T., Kempen, J. H., Meinert, C. L., & Davis, M. D. (2007) · Ophthalmology · doi:10.1016/j.ophtha.2006.11.008 · Cited by 144 · see citing works
Midlife adiposity predicts earlier onset of Alzheimer’s dementia, neuropathology and presymptomatic cerebral amyloid accumulation
Chuang, Y.-F., An, Y., Bilgel, M., Wong, D. F., Troncoso, J. C., O’Brien, R., Breitner, J. C. S., Ferrucci, L., Resnick, S. M., & Thambisetty, M. (2015) · Molecular Psychiatry · doi:10.1038/mp.2015.129 · Cited by 141 · see citing works
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Szanton, S. L., Wolff, J. W., Leff, B., Thorpe, R. J., Tanner, E. K., Boyd, C., Xue, Q., Guralnik, J., Bishai, D., & Gitlin, L. N. (2014) · Contemporary Clinical Trials · doi:10.1016/j.cct.2014.03.005 · Cited by 138 · see citing works
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Denker, M. G., Boyle, S., Anderson, A. H., Appel, L. J., Chen, J., Fink, J. C., Flack, J. M., Go, A. S., Horwitz, E. J., Hsu, C., et al. (2015) · Clinical Journal of the American Society of Nephrology · doi:10.2215/cjn.04260415 · Cited by 137 · see citing works
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Drummond, M., Merlo, C. A., Astemborski, J. A., Kalmin, M. M., Kisalu, A., McDyer, J. F., Mehta, S. H., Brown, R. H., Wise, R. A., & Kirk, G. D. (2013) · AIDS · doi:10.1097/qad.0b013e32835e395d · Cited by 125 · see citing works
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Eden, K. B., Perrin, N. A., Hanson, G. C., Messing, J. T., Bloom, T. L., Campbell, J. C., Gielen, A. C., Clough, A. S., Barnes-Hoyt, J. S., & Glass, N. E. (2015) · American Journal of Preventive Medicine · doi:10.1016/j.amepre.2014.09.027 · Cited by 103 · see citing works
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Jabs, D. A., Natta, M. L. V., Holbrook, J. T., Kempen, J. H., Meinert, C. L., & Davis, M. D. (2007) · Ophthalmology · doi:10.1016/j.ophtha.2006.07.065 · Cited by 94 · see citing works
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Needham, D. M., Himmelfarb, C. D., Dowdy, D. W., Méndez-Téllez, P. A., Ciesla, N. D., Desai, S. V., Sevransky, J., Shanholtz, C. B., Scharfstein, D. O., Herridge, M. S., et al. (2005) · Critical Care · doi:10.1186/cc3948 · Cited by 89 · see citing works
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Novel participatory methods of involving patients in research: naming and branding a longitudinal cohort study, BRIGHTLIGHT
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Hindmarch, P. N., Hawkins, A., McColl, E., Hayes, M., Majsak‐Newman, G., Ablewhite, J., Deave, T., Kendrick, D., & On behalf of the Keeping Children Safe study group (2015) · Trials · doi:10.1186/s13063-015-0578-4 · Cited by 26 · see citing works
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Personalized contact strategies and predictors of time to survey completion: analysis of two sequential randomized trials
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Sabbagh, M. N., Thompson, N., Tweedy, D., Stipho-Majeed, S., Kawas, C. H., & Connor, D. J. (2003) · Pharmaceutical Development and Regulation · doi:10.1007/bf03257386 · Cited by 3 · see citing works
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Seliverstov, Y. A., Borzov, A., Niyazov, R., Belyaev, M., & Illarioshkin, S. N. (2017) · Neurology · doi:10.1212/wnl.88.16_supplement.p2.008 · Cited by 2 · see citing works

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Sheehan, K. B. (2018) · Communication Monographs · doi:10.1080/03637751.2017.1342043 · Cited by 408 · see citing works
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Wajs, E., Aluisio, L., Holder, R., Daly, E. J., Lane, R., Lim, P., George, J. E., Morrison, R. L., Sanacora, G., Young, A. H., et al. (2020) · The Journal of Clinical Psychiatry · doi:10.4088/jcp.19m12891 · Cited by 299 · see citing works
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Johnson, C. C., Suchyta, M. R., Darowski, E. S., Collar, E. M., Kiehl, A. L., Van, J., Jackson, J. C., & Hopkins, R. O. (2019) · Annals of the American Thoracic Society · doi:10.1513/annalsats.201808-540sr · Cited by 193 · see citing works
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Maintenance interventions for overweight or obesity in children: a systematic review and meta‐analysis
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McCarron, M., McCausland, D., McGlinchey, E., Bowman, S., Foley, M., Haigh, M., Burke, E. A., & McCallion, P. (2022) · Research in Developmental Disabilities · doi:10.1016/j.ridd.2022.104197 · Cited by 25 · see citing works
Robotic technology provides objective and quantifiable metrics of neurocognitive functioning in survivors of critical illness:A feasibility study
Wood, M. D., Maslove, D. M., Muscedere, J., Scott, S. H., & Boyd, J. G. (2018) · Journal of Critical Care · doi:10.1016/j.jcrc.2018.09.011 · Cited by 26 · see citing works
Mindfulness training for emotion dysregulation in multiple sclerosis: A pilot randomized controlled trial.
Schirda, B., Duraney, E., Lee, H. K., Manglani, H. R., Andridge, R. R., Plate, A., Nicholas, J. A., & Prakash, R. (2020) · Rehabilitation Psychology · doi:10.1037/rep0000324 · Cited by 23 · see citing works
Impact of implementing a competency-based job framework for clinical research professionals on employee turnover
Stroo, M., Asfaw, K., Deeter, C. E., Freel, S. A., Brouwer, R. J. N., Hames, B., & Snyder, D. C. (2020) · Journal of Clinical and Translational Science · doi:10.1017/cts.2020.22 · Cited by 25 · see citing works
Youth mental health first aid: Initial outcomes of a statewide rollout in Ohio
Noltemeyer, A. L., Huang, H., Meehan, C., Jordan, E., Morio, K., Shaw, K., & Oberlin, K. (2019) · Journal of Applied School Psychology · doi:10.1080/15377903.2019.1619645 · Cited by 24 · see citing works
Rapid Electronic Capturing of Patient-Reported Outcome Measures in Older Adults With End-Stage Renal Disease: A Feasibility Study
Gabbard, J., McLouth, C. J., Brenes, G. A., Claudel, S. E., Martin, S. O., Burkart, J., Pajewski, N. M., Callahan, K. E., Williamson, J. D., & Murea, M. (2020) · American Journal of Hospice and Palliative Medicine® · doi:10.1177/1049909120954805 · Cited by 24 · see citing works
High adherence and low dropout rate in a virtual clinical study of atopic dermatitis through weekly reward-based personalized genetic lifestyle reports
Ali, Z., Anderson, K., Chiriac, A., Andersen, A. D., Ísberg, A. P., Moreno, F. G., Eiken, A., Thomsen, S. F., & Zibert, J. R. (2020) · PLoS ONE · doi:10.1371/journal.pone.0235500 · Cited by 24 · see citing works
The Quebec Low Back Pain Study: a protocol for an innovative 2-tier provincial cohort
Pagé, M. G., Lacasse, A., Beaudet, N., Choinière, M., Deslauriers, S., Diatchenko, L. B., Dupuis, L., Grégoire, S., Hovey, R. B., Leclair, E., et al. (2019) · PAIN Reports · doi:10.1097/pr9.0000000000000799 · Cited by 23 · see citing works
Overview of the 35-year U.S. National Longitudinal Lesbian Family Study and Its 92% Retention Rate
Gartrell, N. (2021) · Journal of GLBT Family Studies · doi:10.1080/1550428x.2020.1861573 · Cited by 23 · see citing works
Effectiveness of incentives to improve the reach of health promotion programs- a systematic review and meta-analysis
Michaud, T. L., Estabrooks, P. A., You, W., Ern, J., Scoggins, D., Gonzales, K., King, K. M., Dai, H. D., & Su, D. (2022) · Preventive Medicine · doi:10.1016/j.ypmed.2022.107141 · Cited by 23 · see citing works
Feasibility of a yoga intervention to decrease pain in older women: a randomized controlled pilot study
Seguin‐Fowler, R. A., Graham, M. L., Ward, J. P., Eldridge, G. D., Sriram, U., & Fine, D. (2020) · BMC Geriatrics · doi:10.1186/s12877-020-01818-y · Cited by 22 · see citing works
A Randomized Trial of a Personalized Feedback Intervention for Nonstudent Emerging Adult At‐Risk Drinkers
Lau‐Barraco, C., Braitman, A. L., & Stamates, A. L. (2018) · Alcoholism Clinical and Experimental Research · doi:10.1111/acer.13606 · Cited by 22 · see citing works
Framework for a Community Health Observing System for the Gulf of Mexico Region: Preparing for Future Disasters
Sandifer, P. A., Knapp, L. C., Lichtveld, M. Y., Manley, R., Abramson, D. M., Caffey, R. H., Cochran, D. M., Collier, T., Ebi, K. L., Engel, L. S., et al. (2020) · Frontiers in Public Health · doi:10.3389/fpubh.2020.578463 · Cited by 21 · see citing works
Lessons learned from recruiting into a longitudinal remote measurement study in major depressive disorder
Oetzmann, C., White, K. M., Ivan, A., Julie, J., Leightley, D., Lavelle, G., Lamers, F., Siddi, S., Annas, P., Arranz, S., et al. (2022) · npj Digital Medicine · doi:10.1038/s41746-022-00680-z · Cited by 21 · see citing works
Effectiveness of an intensive care unit family education intervention on delirium knowledge: a pre-test post-test quasi-experimental study
Krewulak, K. D., Bull, M. J., Ely, E. W., Davidson, J. E., Stelfox, H. T., & Fiest, K. M. (2020) · Canadian Journal of Anesthesia/Journal canadien d anesthésie · doi:10.1007/s12630-020-01810-5 · Cited by 20 · see citing works
A Smartphone App to Support Adherence to Inhaled Corticosteroids in Young Adults With Asthma: Multi-Methods Feasibility Study
Murphy, J., McSharry, J., Hynes, L., & Molloy, G. J. (2021) · JMIR Formative Research · doi:10.2196/28784 · Cited by 20 · see citing works
Hindsight and moving the needle forwards on rehabilitation trial design
Connolly, B. A., & Denehy, L. (2017) · Thorax · doi:10.1136/thoraxjnl-2017-210588 · Cited by 19 · see citing works
Evaluating the association between unmet healthcare needs and subsequent clinical outcomes: protocol for the Addressing Post-Intensive Care Syndrome-01 (APICS-01) multicentre cohort study
Akhlaghi, N., Needham, D. M., Bose, S., Banner‐Goodspeed, V., Beesley, S. J., Dinglas, V. D., Groat, D., Greene, T., Hopkins, R. O., Jackson, J. C., et al. (2020) · BMJ Open · doi:10.1136/bmjopen-2020-040830 · Cited by 19 · see citing works
Self-citation
Nurturing child social-emotional development: evaluation of a pre-post and 2-month follow-up uncontrolled pilot training for caregivers and educators
Speidel, R., Wong, T. K. Y., Al-Janaideh, R., Colasante, T., & Malti, T. (2023) · Pilot and Feasibility Studies · doi:10.1186/s40814-023-01357-4 · Cited by 14 · see citing works
How Does Diet Change with A Diagnosis of Diabetes? Protocol of the 3D Longitudinal Study
Burch, E., Williams, L. T., Makepeace, H., Alston‐Knox, C., & Ball, L. (2019) · Nutrients · doi:10.3390/nu11010158 · Cited by 19 · see citing works
A Self-Administered Multicomponent Web-Based Mental Health Intervention for the Mexican Population During the COVID-19 Pandemic: Protocol for a Randomized Controlled Trial
Rodríguez, A. D., la Rosa-Gómez, A. D., Jiménez, M. J. H., Arenas-Landgrave, P., Martínez-Luna, S. C., Silva, J. A., Hernández, J. E. G., Arzola-Sánchez, C. A., & Guzmán, V. A. (2020) · JMIR Research Protocols · doi:10.2196/23117 · Cited by 17 · see citing works
Breast Education Improves Adolescent Girls' Breast Knowledge, Attitudes to Breasts and Engagement With Positive Breast Habits
Omrani, A., Scurr, J., Smith, J., Wadey, R., & Brown, N. (2020) · Frontiers in Public Health · doi:10.3389/fpubh.2020.591927 · Cited by 16 · see citing works
Recruitment and Retention Strategies for Community-Based Longitudinal Studies in Diverse Urban Neighborhoods
Ferris, E., Wyka, K., Evenson, K. R., Dorn, J. M., Thorpe, L. E., Catellier, D., & Huang, T. T. ‐. (2021) · JMIR Formative Research · doi:10.2196/18591 · Cited by 17 · see citing works
Socialization in professional reality integration for nursing student transition (SPRINT) to improve professional competence: A quasi-experimental study
Noviani, W., Chong, M. C., & Tang, L.-Y. (2023) · Heliyon · doi:10.1016/j.heliyon.2023.e13433 · Cited by 24 · see citing works
Key components and IT assistance of participant management in clinical research: a scoping review
Pung, J., & Rienhoff, O. (2020) · JAMIA Open · doi:10.1093/jamiaopen/ooaa041 · Cited by 13 · see citing works
Considerations for assessing physical function and physical activity in clinical trials during the COVID-19 pandemic
Moon, S. J. E., Dabbs, A. D., Hergenroeder, A. L., Vendetti, M. L., Jones, K. B., Willey, B. M., Morrell, M. R., & Imes, C. C. (2021) · Contemporary Clinical Trials · doi:10.1016/j.cct.2021.106407 · Cited by 16 · see citing works
Delirium, Cerebral Perfusion, and High-Frequency Vital-Sign Monitoring in the Critically Ill. The CONFOCAL-2 Feasibility Study
Khan, J. M., Wood, M. D., Lee, K. F. H., Maslove, D. M., Muscedere, J., English, S. W., Ball, I. M., Slessarev, M., Hunt, M., & Boyd, J. G. (2020) · Annals of the American Thoracic Society · doi:10.1513/annalsats.202002-093oc · Cited by 15 · see citing works
Prevalence and incidence of antibodies against SARS-CoV-2 among primary healthcare providers in Belgium during 1 year of the COVID-19 epidemic: prospective cohort study protocol
Adriaenssens, N., Scholtes, B., Bruyndonckx, R., Verbakel, J. Y. J., Sutter, A. D., Heytens, S., den Bruel, A. V., Desombere, I., Damme, P. V., Goossens, H., et al. (2022) · BMJ Open · doi:10.1136/bmjopen-2021-054688 · Cited by 15 · see citing works
A review of strategies used to retain participants in clinical research during an infectious disease outbreak: The PREVAIL I Ebola vaccine trial experience
Browne, S. M., Carter, T., Eckes, R., Grandits, G., Johnson, M., Moore, I., & McNay, L. A. (2018) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2018.06.004 · Cited by 15 · see citing works
Best Practices for Participant and Stakeholder Engagement in the All of Us Research Program
Khodyakov, D., Bromley, E., Evans, S., & Sieck, K. (2018) · RAND Corporation eBooks · doi:10.7249/rr2578 · Cited by 15 · see citing works
Rams Have Heart, a Mobile App Tracking Activity and Fruit and Vegetable Consumption to Support the Cardiovascular Health of College Students: Development and Usability Study
Krzyzanowski, M. C., Kizakevich, P. N., Duren‐Winfield, V., Eckhoff, R., Hampton, J. C., Carr, L. T. B., McCauley, G., Roberson, K. B., Onsomu, E. O., Williams, J. P., et al. (2020) · JMIR mhealth and uhealth · doi:10.2196/15156 · Cited by 15 · see citing works
Challenges in recruiting African-American women for a breast cancer genetics study
Compadre, A. J., Simonson, M. E., Gray, K., Runnells, G. A., Kadlubar, S. A., & Zorn, K. K. (2018) · Hereditary Cancer in Clinical Practice · doi:10.1186/s13053-018-0091-3 · Cited by 15 · see citing works
Establishing Requirements for Technology to Support Clinical Trial Retention: Systematic Scoping Review and Analysis Using Self-determination Theory
Gamble, E., Linehan, C., & Heavin, C. (2022) · Journal of Medical Internet Research · doi:10.2196/38159 · Cited by 16 · see citing works
Longitudinal studies of child mental disorders in the general population: A systematic review of study characteristics
Bogdan, T., Xie, W., Talaat, H., Mir, H., Venkataraman, B., Banfield, L. E., Georgiades, K., & Duncan, L. (2023) · JCPP Advances · doi:10.1002/jcv2.12186 · Cited by 14 · see citing works
Assessing Acceptability, Feasibility, and Preliminary Effectiveness of a Community-Based Participatory Research Curriculum for Community Members: A Contribution to the Development of a Community–Academia Research Partnership
Jiménez-Chávez, J., Rosario-Maldonado, F. J., Torres, J. S., Ramos-Lucca, A., Castro, E., & Santiago, L. E. (2018) · Health Equity · doi:10.1089/heq.2018.0034 · Cited by 14 · see citing works
Enhancing Planning Behavior during Retirement: Effects of a Time Perspective Based Training Intervention
Mooney, A., Tsotsoros, C. E., Earl, J. K., Hershey, D. A., & Mooney, C. H. (2021) · Social Sciences · doi:10.3390/socsci10080306 · Cited by 15 · see citing works
Bridging the gap: incorporating exercise evidence into clinical practice in breast cancer care
Smith‐Turchyn, J., Richardson, J. A., Tozer, R. G., McNeely, M. L., & Thabane, L. (2019) · Supportive Care in Cancer · doi:10.1007/s00520-019-04897-9 · Cited by 14 · see citing works
Thirty years later: Locating and interviewing participants of the Chicago Longitudinal Study
Ou, S., Mondi, C. F., Yoo, S., Park, K., Warren, B., & Reynolds, A. J. (2019) · Early Childhood Research Quarterly · doi:10.1016/j.ecresq.2019.08.002 · Cited by 14 · see citing works
Design and rationale of the Post-Intensive Care Syndrome – paediatrics (PICS-p) Longitudinal Cohort Study
Curley, M. A. Q., Watson, R. S., Killien, E. Y., Kalvas, L. B., Perry, M., Cassidy, A. M., Miller, E. B., Talukder, M. Q.-E.-K., Manning, J. C., Pinto, N. P., et al. (2024) · BMJ Open · doi:10.1136/bmjopen-2024-084445 · Cited by 15 · see citing works
The intergenerational effects of parental physical activity on offspring brain and neurocognition in humans: A scoping review
Valkenborghs, S. R., Dent, P. C., & Stillman, C. M. (2022) · Neuroscience & Biobehavioral Reviews · doi:10.1016/j.neubiorev.2022.104953 · Cited by 12 · see citing works
A population-based prospective study on obesity-related non-communicable diseases in northern Iran: rationale, study design, and baseline analysis
Motamed, N., Zamani, F., Maadi, M., Ajdarkosh, H., Roozafzai, F., Keyvani, H., Poustchi, H., Shakeri, R., Ashrafi, G. H., Perumal, D., et al. (2024) · Frontiers in Endocrinology · doi:10.3389/fendo.2024.1329380 · Cited by 12 · see citing works
Processes Underpinning Successful Co‐Design: Lessons From a Digital Health Project
Burns, C., Kilkenny, M. F., Purvis, T. L., Gall, S., Farmer, C., Barker, S., Booth, B. E., Bray, J., Cadilhac, D. A.-M., Cameron, J., et al. (2025) · Health Expectations · doi:10.1111/hex.70272 · Cited by 11 · see citing works
Protocol for the Mason: Health Starts Here prospective cohort study of young adult college students
Cuellar, A. E., Adams, L. M., de Jonge, L., Espina, V. A., Espinoza, L., Fischer, S. F., Frankenfeld, C. L., Hines, D. A., Kornienko, O., Lawrence, H. Y., et al. (2021) · BMC Public Health · doi:10.1186/s12889-021-10969-5 · Cited by 12 · see citing works
Long-term relapse prevention strategies among poly-substance users in Ghana: New insights for clinical practice
Appiah, R. (2022) · Journal of Ethnicity in Substance Abuse · doi:10.1080/15332640.2020.1829237 · Cited by 9 · see citing works
Improving Understanding of Participation and Attrition Phenomena in European Cohort Studies: Protocol for a Multi-Situated Qualitative Study
Marques, S. C. S., Doetsch, J. N., Brødsgaard, A., Cuttini, M., Draper, E. S., Kajantie, E., Lebeer, J., van der Pal, S. M., Pedersen, P., RECAP - WP6 QS Work Group, et al. (2020) · JMIR Research Protocols · doi:10.2196/14997 · Cited by 11 · see citing works
Risedronate to Prevent Bone Loss After Sleeve Gastrectomy: Study Design and Feasibility Report of a Pilot Randomized Controlled Trial
Swafford, A. A., Ard, J. D., Beavers, D. P., Gearren, P. C., Fernandez, A., Ford, S. A., Greene, K. A., Kammire, D. E., Nesbit, B. A., Reed, K. K., et al. (2020) · JBMR Plus · doi:10.1002/jbm4.10407 · Cited by 11 · see citing works
Electrically assisted cycling for individuals with type 2 diabetes mellitus: a pilot randomized controlled trial
Bourne, J. E., Leary, S. D., Page, A. S., Searle, A., England, C. Y., Thompson, D., Andrews, R. C., Foster, C. E., & Cooper, A. R. (2023) · Pilot and Feasibility Studies · doi:10.1186/s40814-023-01283-5 · Cited by 12 · see citing works
Why do participants drop-out: findings from a prospective pediatric cohort for fever surveillance established at Vellore, southern India
Sindhu, K. N., Srinivasan, M., Subramaniam, S., David, A. S., Mohan, V. R., John, J. K., & Kang, G. (2019) · BMC Medical Research Methodology · doi:10.1186/s12874-019-0881-y · Cited by 11 · see citing works
A protocol for chronic pain outcome measurement enhancement by linking PROMIS-29 scale to legacy measures and improving chronic pain stratification
Herman, P. M., Edelen, M. O., Rodriguez, A., Hilton, L. G., & Hays, R. D. (2020) · BMC Musculoskeletal Disorders · doi:10.1186/s12891-020-03696-2 · Cited by 11 · see citing works
Implementing an EMA burst design in community-engaged research: participant and researcher perspectives and recommendations
Helle, A. C., Freeman, L. K., Pellegrini, A. M., Wycoff, A. M., Winograd, R., & Trull, T. J. (2023) · The American Journal of Drug and Alcohol Abuse · doi:10.1080/00952990.2022.2160340 · Cited by 10 · see citing works
Longitudinal cognitive evaluation before and after delivery among people with preeclampsia
Ibarra, A. J., Butters, M. A., Lim, G., Jeyabalan, A., Li, R., Balasubramani, G. K., & Catov, J. M. (2023) · American Journal of Obstetrics & Gynecology MFM · doi:10.1016/j.ajogmf.2023.100966 · Cited by 11 · see citing works
Understanding participation in European cohort studies of preterm children: the views of parents, healthcare professionals and researchers
on behalf of RECAP Preterm-WP6 QS Work Group, Marques, S. C. S., Doetsch, J. N., Abate, G., Brødsgaard, A., Colombo, G., Cuttini, M., Pedersen, P., & Barros, H. (2021) · BMC Medical Research Methodology · doi:10.1186/s12874-020-01206-5 · Cited by 10 · see citing works
Promoting participation in remote digital health studies: An expert interview study
Daniore, P., Nittas, V., Gille, F., & von Wyl, V. (2023) · Digital Health · doi:10.1177/20552076231212063 · Cited by 10 · see citing works
Motivational interviewing for low mood and adjustment early after stroke: a feasibility randomised trial
Patel, K., Watkins, C. L., Sutton, C., Holland, E.-J., Benedetto, V., Auton, M. F., Barer, D. H., Chatterjee, K., & Lightbody, C. E. (2018) · Pilot and Feasibility Studies · doi:10.1186/s40814-018-0343-z · Cited by 10 · see citing works
Predictors of client retention in a state-based tobacco quitline
Nair, U. S., Rabe, B. A., Brady, B. R., & Bell, M. L. (2020) · The Journal of Smoking Cessation · doi:10.1017/jsc.2020.10 · Cited by 10 · see citing works
Informing retention in longitudinal cohort studies through a social marketing lens: Raine Study Generation 2 participants’ perspectives on benefits and barriers to participation
Costello, L. N., Dare, J., Dontje, M. L., & Straker, L. M. (2020) · BMC Medical Research Methodology · doi:10.1186/s12874-020-01074-z · Cited by 10 · see citing works
Patterns and patient factors associated with loss to follow-up in the Muhimbili sickle cell cohort, Tanzania
Masamu, U., Sangeda, R. Z., Kandonga, D., Ondengo, J., Ndobho, F., Mmbando, B. P., Nkya, S. W., Msami, K., & Makani, J. (2020) · BMC Health Services Research · doi:10.1186/s12913-020-05998-6 · Cited by 10 · see citing works
Designing and Implementing an IT Architecture for a Digital Multicenter Dementia Registry: digiDEM Bayern
Reichold, M., Dietzel, N., Chmelirsch, C., Kolominsky‐Rabas, P. L., Graessel, E., & Prokosch, H. (2021) · Applied Clinical Informatics · doi:10.1055/s-0041-1731286 · Cited by 10 · see citing works
Participant Retention in Follow-Up Studies of Acute Respiratory Failure Survivors
Nunna, K. R., Al-Ani, A., Nikooie, R., Friedman, L. A., Raman, V., Wadood, Z., Vasishta, S., Colantuoni, E., Needham, D. M., & Dinglas, V. D. (2020) · Respiratory Care · doi:10.4187/respcare.07461 · Cited by 10 · see citing works
Self-citation
Patterns of participation in the Grow parenting program
Czymoniewicz‐Klippel, M. T., Chesnut, R. P., DiNallo, J. M., & Perkins, D. F. (2019) · Journal of Children s Services · doi:10.1108/jcs-06-2018-0014 · Cited by 10 · see citing works
Stay in treatment: Predicting dropout from pediatric weight management study protocol
Berry, D. C., Rhodes, E. T., Hampl, S. E., Young, C. B., Cohen, G. M., Eneli, I., Fleischman, A., Ip, E. H., Sweeney, B. R., Houle, T. T., et al. (2021) · Contemporary Clinical Trials Communications · doi:10.1016/j.conctc.2021.100799 · Cited by 9 · see citing works
Factors related to retention in a longitudinal study of infants at familial risk for autism
Ozonoff, S. J., Hill, M. M., Hill, A., Ashley, K., & Young, G. S. (2023) · JCPP Advances · doi:10.1002/jcv2.12140 · Cited by 8 · see citing works
Pain self-management plus activity tracking and nurse-led support in adults with chronic low back pain: feasibility and acceptability of the problem-solving pain to enhance living well (PROPEL) intervention
Xu, W., Zhang, Y., Wang, Z., Dorsey, S. G., Starkweather, A. R., & Kim, K. (2023) · BMC Nursing · doi:10.1186/s12912-023-01365-y · Cited by 9 · see citing works
Evaluating the Effectiveness of the Housing First for Youth Intervention for Youth Experiencing Homelessness in Canada: Protocol for a Multisite, Mixed Methods Randomized Controlled Trial
Gaetz, S., Bonakdar, A., Ecker, J., MacDonald, C., Ilyniak, S., Ward, A. K., Kimura, L., Vijayaratnam, A., & Banchani, E. (2023) · JMIR Research Protocols · doi:10.2196/46690 · Cited by 13 · see citing works
Systematic Review and Meta-Analysis: Predictors of Relapsing, Recurrent, and Chronic Depression in Young People
Tagliaferri, S. D., Han, L. K. M., Khetan, M., Nguyen, J., Markulev, C., Rice, S., Cotton, S., Berk, M., Byrne, E. M., Rickwood, D., et al. (2025) · Journal of the American Academy of Child & Adolescent Psychiatry · doi:10.1016/j.jaac.2025.03.019 · Cited by 9 · see citing works
A theory-grounded text message–based intervention to reduce sedentary behaviour in university students
Keahey, R., White, N. C., Duchesne, A., & Pelletier, C. (2021) · Health Education Journal · doi:10.1177/00178969211007163 · Cited by 8 · see citing works
Testing the feasibility and acceptability of an online ‘Fatigue and Activity Management Education for Work (FAME‐W) programme’ for individuals with inflammatory arthritis
Karkon, S., O’shea, F. B., Doran, M., Mccormack, H., & Connolly, D. (2023) · Musculoskeletal Care · doi:10.1002/msc.1756 · Cited by 7 · see citing works
Patient Engagement in Research: Considerations in Creating a Registry for Adults with Congenital Heart Disease
Phillippi, R., Leezer, S., Messmer, M. F., Hile, D. M., & John, A. S. (2023) · Current Cardiology Reports · doi:10.1007/s11886-023-02013-2 · Cited by 8 · see citing works

Retention strategies in longitudinal cohort studies: a systematic review and meta-analysis
Theme, T. S. L. S., Teague, S. J., Youssef, G. J., Macdonald, J. A., Sciberras, E., Shatte, A. B. R., Fuller‐Tyszkiewicz, M., Greenwood, C. J., McIntosh, J. E., Olsson, C. A., et al. (2018) · BMC Medical Research Methodology · doi:10.1186/s12874-018-0586-7 · Cited by 483 · see citing works
Retention strategies and predictors of retention for longitudinal observational cohort studies: A scoping reviewPreprint
Shin, J., Bond, A., Marceau, M., Businger, A., Binker, M. G., Settle, C., Gu, C. A., Smoller, J. W., & Clark, C. (2026) · SSRN Electronic Journal · doi:10.2139/ssrn.6172471
Innovative retention methods in longitudinal research: A case study of the Development Trends Study
Cotter, R. B., Burke, J. D., Loeber, R., & Navratil, J. L. (2002) · Digital Academic REpository of VU University Amsterdam (Vrije Universiteit Amsterdam)
Innovative Retention Methods in Longitudinal Research: A Case Study of the Developmental Trends Study
Cotter, R. B., Burke, J. D., Loeber, R., & Navratil, J. L. (2002) · Journal of Child and Family Studies · doi:10.1023/a:1020939626243 · Cited by 99 · see citing works
A systematic review of the effect of retention methods in population-based cohort studies
Booker, C. L., Harding, S., & Benzeval, M. (2011) · BMC Public Health · doi:10.1186/1471-2458-11-249 · Cited by 302 · see citing works

Authors: Abshire, M., Dinglas, V. D., Cajita, M. I. A., Eakin, M. N., Needham, D. M., & Himmelfarb, C. D.
Affiliations: Johns Hopkins University (US)
ORCID: Abshire, Martha
Dinglas, Victor D.
Eakin, Michelle N.
Needham, Dale M.
Himmelfarb, Cheryl Dennison
Venue: BMC Medical Research Methodology
Publisher: Springer Science and Business Media LLC
Published: 2017-02-20
Volume: 17
Issue: 1
Pages: 30-30
ISSN: 1471-2288 (ISSN-L)
DOI: 10.1186/s12874-017-0310-z
PMC: PMC5319074
OpenAlex: W2590679164
Cited by: 274
References: 35
Citations by year: 2026: 26 · 2025: 40 · 2024: 26 · 2023: 39 · 2022: 26 · 2021: 31 · 2020: 45 · 2019: 26 · 2018: 11 · 2017: 4
FWCI: 22.08
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
creativecommons.org/licenses/by/4.0/ (tdm)
creativecommons.org/licenses/by/4.0/ (vor)
Locations: BMC Medical Research Methodology (publishedVersion, cc-by)
Europe PMC (PubMed Central) (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
PubMed (publishedVersion)
DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
Figshare (submittedVersion, cc-by)
University of Illinois Chicago (cc-by)
Funders: National Heart, Lung, and Blood Institute (R24HL111895)
Topics: Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Ethics in Clinical Research
Social Sciences › Sociology and Political Science › Survey Methodology and Nonresponse
Physical Sciences › Mathematics › Statistics and Probability › Statistical Methods in Epidemiology
Keywords: participant retention, cohort retention, retention strategies, cultural sensitivity
MeSH terms: Clinical Trials as Topic, Data Collection, Humans, Longitudinal Studies, Patient Dropouts, Research Design

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Participant retention practices in longitudinal clinical research studies with high retention rates

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