A scoping review of gestational diabetes mellitus healthcare: experiences of care reported by pregnant women internationally
Open accessAbstract
Background: Gestational diabetes mellitus (GDM) is a condition associated with pregnancy that engenders additional healthcare demand. A growing body of research includes empirical studies focused on pregnant women’s GDM healthcare experiences. The aim of this scoping review is to map findings, highlight gaps and investigate the way research has been conducted into the healthcare experiences of women with GDM. Methods: A systematic search of primary research using a number of databases was conducted in September 2021. Studies were included if they had an explicit aim of focusing on GDM and included direct reporting of participants’ experiences of healthcare. Key data from each study was extracted into a purposely-designed form and synthesised using descriptive statistics and thematic analysis. Results: Fifty-seven articles were included in the analysis. The majority of studies used qualitative methodology, and did not have an explicit theoretical orientation. Most studies were conducted in urban areas of high-income countries and recruitment and research was almost fully conducted in clinical and other healthcare settings. Women found inadequate information a key challenge, and support from healthcare providers a critical factor. Experiences of prescribed diet, medication and monitoring greatly varied across settings. Additional costs associated with managing GDM was cited as a problem in some studies. Overall, women reported significant mental distress in relation to their experience of GDM. Conclusions: This scoping review draws together reported healthcare experiences of pregnant women with GDM from around the world. Commonalities and differences in the global patient experience of GDM healthcare are identified.
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For others, the experience of both internalised stigma (guilt, shame, fear and anxiety) and externalised stigma (labelling, discrimination, depersonalising and judgment), coupled with burden of care that may include financial strain, increased surveillance, and dietary restriction, can lead to a reduced quality of life and negative pregnancy experiences that can persist post partum.
“For others, the experience of both internalised stigma (guilt, shame, fear and anxiety) and externalised stigma (labelling, discrimination, depersonalising and judgment), coupled with burden of care that may include financial strain, increased surveillance, and dietary restriction, can lead to a reduced quality of life and negative pregnancy experiences that can persist post partum. 39”
From Australasian Diabetes in Pregnancy Society ( <scp>ADIPS</scp> ) 2025 consensus recommendations for the screening, diagnosis and classification of gestational diabetes (2025) · cites this paper as [39]
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Sweeting, A., Hare, M. J., de Jersey, S. J., Shub, A. L., Zinga, J., Foged, C., Hall, R. M., Wong, T., & Simmons, D. (2025) · Medical Journal of Australia · doi:10.5694/mja2.52696 · Cited by 26 · see citing works
- Authors
- Pham, S., Churruca, K., Ellis, L. A., & Braithwaite, J.
- Affiliations
- Macquarie University (AU)
- Corresponding author
- Pham, Sheila
- Venue
- BMC Pregnancy and Childbirth
- Published
- 2022-08-08
- Volume
- 22
- Issue
- 1
- Pages
- 627-627
- ISSN
- 1471-2393 (ISSN-L)
- PMC
- PMC9361509
- OpenAlex
- W4290648805
- Cited by
- 30
- References
- 7
- Citations by year
- 2026: 9 · 2025: 6 · 2024: 10 · 2023: 5
- FWCI
- 1.06
- Type
- journal article
- Language
- en
- Open access
- gold
- doi.org
- Locations
- BMC Pregnancy and Childbirth (publishedVersion, cc-by)
- PubMed Central (publishedVersion, cc-by)
- PubMed (publishedVersion)
- DOAJ (DOAJ: Directory of Open Access Journals) (submittedVersion, cc-by-sa)
- Funders
- Australian Government
- Macquarie University
- Topics
- Health Sciences › Medicine › Obstetrics and Gynecology › Gestational Diabetes Research and Management
- Health Sciences › Medicine › Endocrinology, Diabetes and Metabolism › Diabetes Management and Education
- Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Pregnancy and Medication Impact
- Keywords
- gestational diabetes mellitus, patient experience, pregnant women, healthcare provider support, patient information, glucose monitoring, health care costs, psychological distress
- MeSH terms
- Female, Health Facilities, Health Personnel, Humans, Health Knowledge, Attitudes, Practice, Pregnancy, Diabetes, Gestational, Pregnant People, Pregnant Women
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