Cited by 131Mobile Health and mHealth ApplicationsHealth Literacy and Information AccessibilityTelemedicine and Telehealth Implementation

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Expectations and needs of patients with a chronic disease toward self-management and eHealth for self-management purposes

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Huygens, Martine W. J., Vermeulen, Joan, Swinkels, Ilse C. S., Friele, Roland D., van Schayck, Onno C. P., de Witte, Luc P.·2016·BMC Health Services Research

DOI 10.1186/s12913-016-1484-5PMC PMC4938915

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Abstract

BACKGROUND: Self-management is considered as an essential component of chronic care by primary care professionals. eHealth is expected to play an important role in supporting patients in their self-management. For effective implementation of eHealth it is important to investigate patients' expectations and needs regarding self-management and eHealth. The objectives of this study are to investigate expectations and needs of people with a chronic condition regarding self-management and eHealth for self-management purposes, their willingness to use eHealth, and possible differences between patient groups regarding these topics. METHODS: Five focus groups with people with diabetes (n = 14), COPD (n = 9), and a cardiovascular condition (n = 7) were conducted in this qualitative research. Separate focus groups were organized based on patients' chronic condition. The following themes were discussed: 1) the impact of the chronic disease on patients' daily life; 2) their opinions and needs regarding self-management; and 3) their expectations and needs regarding, and willingness to use, eHealth for self-management purposes. A conventional content analysis approach was used for coding. RESULTS: Patient groups seem to differ in expectations and needs regarding self-management and eHealth for self-management purposes. People with diabetes reported most needs and benefits regarding self-management and were most willing to use eHealth, followed by the COPD group. People with a cardiovascular condition mentioned having fewer needs for self-management support, because their disease had little impact on their life. In all patient groups it was reported that the patient, not the care professional, should choose whether or not to use eHealth. Moreover, participants reported that eHealth should not replace, but complement personal care. Many participants reported expecting feelings of anxiety by doing measurement themselves and uncertainty about follow-up of deviant data of measurements. In addition, many participants worried about the implementation of eHealth being a consequence of budget cuts in care. CONCLUSION: This study suggests that aspects of eHealth, and the way in which it should be implemented, should be tailored to the patient. Patients' expected benefits of using eHealth to support self-management and their perceived controllability over their disease seem to play an important role in patients' willingness to use eHealth for self-management purposes.

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Authors: Huygens, M. W. J., Vermeulen, J., Swinkels, I. C. S., Friele, R. D., van Schayck, O. C. P., & de Witte, L. P.
Affiliations: Maastricht University (NL)
Netherlands Institute for Health Services Research (NL)
Tilburg University (NL)
Corresponding author: Huygens, Martine W. J.
ORCID: Huygens, Martine W. J.
Vermeulen, Joan
Swinkels, Ilse C. S.
Friele, Roland D.
Venue: BMC Health Services Research
Publisher: Springer Science and Business Media LLC
Published: 2016-07-08
Volume: 16
Issue: 1
Pages: 232-232
ISSN: 1472-6963 (ISSN-L)
DOI: 10.1186/s12913-016-1484-5
PMC: PMC4938915
OpenAlex: W2464973289
Cited by: 131
References: 33
Citations by year: 2026: 6 · 2025: 12 · 2024: 11 · 2023: 23 · 2022: 15 · 2021: 14 · 2020: 15 · 2019: 12 · 2018: 15 · 2017: 6 · 2016: 1
FWCI: 21.08
Type: journal article
Language: en
Open access: gold
doi.org
Licence: cc-by
Locations: BMC Health Services Research (publishedVersion, cc-by)
Europe PMC (PubMed Central) (publishedVersion, cc-by)
PubMed Central (publishedVersion, cc-by)
Research portal (Tilburg University) (publishedVersion, other-oa)
PubMed (publishedVersion)
Research Publications (Maastricht University) (publishedVersion, cc-by)
White Rose Research Online (University of Leeds, The University of Sheffield, University of York) (acceptedVersion)
Data Archiving and Networked Services (DANS) (submittedVersion, other-oa)
Research Publications (Maastricht University) (submittedVersion, cc-by)
Funders: ZonMw (10-10400-98-009)
Topics: Health Sciences › Health Professions › General Health Professions › Mobile Health and mHealth Applications
Health Sciences › Health Professions › General Health Professions › Health Literacy and Information Accessibility
Health Sciences › Medicine › Public Health, Environmental and Occupational Health › Telemedicine and Telehealth Implementation
Keywords: self-management, e-health, chronic disease, patient expectations, patient needs, diabetes mellitus, chronic obstructive pulmonary disease, cardiovascular disease, chronic care, patient-centered care, perceived controllability, implementation barriers
MeSH terms: Aged, Aged, 80 and over, Attitude, Chronic Disease, Female, Humans, Male, Middle Aged, Self Care, Focus Groups, Telemedicine, Needs Assessment, Qualitative Research

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Expectations and needs of patients with a chronic disease toward self-management and eHealth for self-management purposes

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